Ngamanye amaxesha sibona utshintsho oluncinci emehlweni abantwana bethu. Mhlawumbi elinye iliso libonakala libheke phambili kancinci kwelinye, okanye umntwana uhlala esithi libonakala lifiphele kancinci. Nangona sicinga ukuba ezi zizinto eziqhelekileyo, ngamanye amaxesha kunokubakho isizathu esingasemva koku ekufuneka sisiqwalasele. Esinye sezizathu ezinjalo sinokuba yimeko ebizwa ngokuba yi-Optic Glioma. Esi sisimila esikhula engqondweni. Ngoko ke masithethe ngayo yonke into ngokulula namhlanje.
Yintoni i-Optic Glioma?
Ngamafutshane, i-Optic Glioma sisisu esikhula ngokukhawuleza kakhulu engqondweni . Sibonakala kakhulu kubantwana abangaphantsi kweminyaka eli-10 ubudala. Enyanisweni, sibanga i-5% kuphela yazo zonke izisu ezikhula engqondweni ebuntwaneni.
Le thumba ikhula ijikeleze i-optic nerve, i-nerve edibanisa amehlo ethu nengqondo yethu. Kukho uhlobo lweseli engqondweni yethu olunceda kwaye londle iiseli zemithambo-luvo, ezibizwa ngokuba zii-glial cells. Ezi seli kulapho le thumba iqala khona.
Njengoko eli thumba likhula, liqala ukucinezela iliso kunye nomthambo we-optic. Oku kunokubangela ukubona okufipheleyo, kwaye ukuba akuphathwanga ngokufanelekileyo, nokuba yimfama . Nangona kunjalo, ngenxa yokuba linokukhula kakhulu, utshintsho embonweni lusenokungabonakali ngoko nangoko. Linokuchaphazela iliso elinye okanye omabini.
Kodwa iindaba ezimnandi apha zezokuba, nangona esi sisifo esibi kakhulu, sinokunyangeka ngokupheleleyo.
Eyona nto ibangela ukuba ezi thumba zibe yingozi kukuba zibekwe kwindawo yazo engqondweni. I-optic nerve yethu iqhagamshela ebuchotsheni ngokusebenzisa iziko le-hormone emzimbeni wethu. Ngoko ke njengoko ithumba likhula, linokuyichaphazela loo nto. Oko kuthetha ukuba linokubangela ukungalingani kwama-hormone, iingxaki zokulawula ubungakanani betyuwa namanzi emzimbeni, kwaye lichaphazele izinto ezifana nokutya kunye nokulala .
Ngokwesiqhelo, ingqondo yethu 'inesithintelo segazi-ingqondo' sokuyikhusela. Yiyo le nto ithintela usulelo ukuba lungafikeleli ebuchotsheni. Ngenxa yesi sithintelo, iithumba ezinje azisasazeki ngaphandle kwengqondo ziye kwezinye iindawo zomzimba. Nangona kunjalo, kunqabile kakhulu, oko kukuthi, ngaphantsi kwe-5%, ukuba esi sithintelo sisasazeke ngaphaya kwengqondo kunye nomqolo.
Zithini iimpawu zoku?
Iimpawu zethumba lobuchopho ziyahluka ngokuxhomekeke ekubeni lichaphazeleka phi na ebuchotsheni. Kwimeko ye-optic glioma, iingxaki zokubona zezona ziphambili. Kodwa singazicinga ezi njengeempawu zesinye isifo. Makhe sijonge ukuba zeziphi iimpawu eziphambili.
| Uphawu | Ingcaciso elula |
|---|---|
| Ukuphuma kwebhola yeliso (i-Proptosis) | Iliso elinye okanye omabini abonakala ngathi aphuma ngaphezu kwesiqhelo. Sithi 'amehlo aphuma njengethumba'. |
| Iingxaki zokubona | Ukubona okufipheleyo, ubunzima bokubona imibala, ukulahleka kancinci kancinci kombono kwelinye okanye omabini amehlo. Abantwana abancinci bazama ukusondela kumabonwakude baze bawubukele. |
| Iingxaki ezinxulumene namahomoni | Ukunyuka okanye ukwehla kobunzima okungachazwanga, ukukhula okungaqhelekanga (ukungaphumeleli ukukhula ube mde), kunye nokufikisa kwasekuqaleni. |
| Iingxaki zenkqubo ye-endocrine | Izinto ezifana nokuchama rhoqo kunye nokusela kakhulu. |
Kukho enye into ekhethekileyo. Ukuba umntwana wakho ufunyaniswe ene- Neurofibromatosis 1 (NF1) , usemngciphekweni omkhulu wokufumana i-Optic Glioma. Malunga ne-15% yabantwana abane-NF1 bahlakulela la mathumba. Kodwa into ebalulekileyo apha kukuba amathumba amaninzi akhula ngale ndlela ayancipha okanye ayeka ukukhula ngokwawo ngokuhamba kwexesha, ngaphandle konyango. Ngoko ke ayingabo bonke abantwana abane-NF1 abadinga unyango loku.
Sifunyaniswa njani esi sifo?
Ukuba ugqirha wakho ukrokrela ukuba unesi sifo, uza kwenza uvavanyo oluninzi ukuqinisekisa ukuba sikhona. Nje ukuba isifo sifunyenwe, ithumba linikwa 'ibanga', okanye udidi, ngokusekelwe kubunzima balo. Eli banga linikwa ngokuthatha iqhekeza elincinci lesicubu sethumba kwaye ulihlolisise phantsi kwe-microscope. Amabanga 1 kunye ne-2 ziithumba ezikumgangatho ophantsi. Isibini kwisithathu sazo zonke ii-gliomas ze-optic zobuntwana zezo hlobo. Amabanga 3 kunye ne-4 ziithumba ezikumgangatho ophezulu.
Ezi zilandelayo zezona zilingo ziphambili ezisetyenziselwa ukuxilongwa.
| Uvavanyo | Kwenziwa ntoni ngale nto? (Kwenziwa ntoni?) |
|---|---|
| Uvavanyo olupheleleyo lomzimba | Fumana ukuqonda ngempilo yomntwana iyonke. Jonga izinto ezifana nobude, ubunzima, kunye nokukhula. |
| Uvavanyo lombono | Ingcali yamehlo ilinganisa ngokuchanekileyo izinto ezifana nokubona ngamehlo kunye nombala. |
| Uvavanyo lwe-CT scan | Oku kungathatha imifanekiso eneenkcukacha yobuchopho kunye nemithambo-luvo edibene neliso. Kunokunceda ekuqinisekiseni ukuba kukho ithumba na kwaye likuphi. |
| Uvavanyo lwe-MRI scan | Oku kufana ne-CT scan, kodwa isebenzisa iimagnethi kunye namaza erediyo ukuvelisa imifanekiso ecacileyo. Inika iinkcukacha ezilungileyo malunga nohlobo lwethumba. |
Olu vavanyo lunokubandakanya iingcali ezahlukeneyo. Umzekelo, ugqirha wabantwana, ingcali yemithambo-luvo, kunye nogqirha wamehlo. Bonke baya kudibana, bahlole iziphumo zovavanyo, bafikelele kwisigqibo sokugqibela, baze bakuchazele. Ukuba ukuxilongwa kuqinisekisiwe, inyathelo elilandelayo kukukhetha ukhetho olufanelekileyo lonyango olusekelwe kwimpilo yomntwana wakho kunye nobunzima bethumba.
Zithini iindlela zonyango zoku?
Oogqirha baqwalasela izinto ezininzi xa bekhetha eyona ndlela ilungileyo yokunyanga.
- Ubudala bomntwana, impilo yakhe iyonke, kunye nembali yakhe yezonyango
- Uhlobo, indawo, kunye nobukhulu bethumba
- Ubungakanani besifo
- Indlela umzimba womntwana osabela ngayo kumayeza, kunyango, nakutyando (oku kubaluleke kakhulu kubantwana abancinci)
- Isantya esinokuthi isifo siqhubeke ngaso
Unyango ngamakhemikhali
Ezi thumba zihlala zinyangwa nge-chemotherapy, equka ukunika umzimba amayeza abulala iiseli zomhlaza, anciphise ithumba, aze abuyisele umbono.
Unyango lwanamhlanje (Unyango olujoliswe kulo)
Unyango olutsha olubizwa ngokuba yi-'molecularly targeted therapies' nalo luphumelele kakhulu. Olu nyango lujolise kwaye luhlasela iiseli zomhlaza ngokukodwa.
Unyango lweHormone
Ukuba ithumba lichaphazele inxalenye yengqondo elawula iihomoni, unyango lokutshintshwa kweehomoni lunokufuneka ukulawula iimpawu ezibangelwa yiyo (umz., ukulibaziseka kokukhula).
Utyando
Utyando alufuneki rhoqo kwezi thumba. Utyando luqwalaselwa kuphela xa ithumba lichaphazela kakhulu umbono okanye ukuba umntwana uneentlungu eziqatha. Ukuba ugqirha wakho ucebisa utyando, uza kukuthumela kugqirha wemithambo-luvo.
Unyango ngemitha
Ukuba ithumba aliphenduli kwi-chemotherapy, ukhetho olulandelayo lunyango lwe-radiation. Oku kuquka ukusebenzisa umatshini okhethekileyo ukuhambisa imitha enamandla aphezulu kwithumba, ukutshabalalisa iiseli zomhlaza nokubangela ukuba linciphe.
Umyalezo Wokuya Ekhaya
- I-optic glioma yithumba lobuchopho elikhula ebantwaneni, kodwa lidla ngokunyangeka.
- Ukuba umntwana wakho uneempawu ezifana notshintsho ekuboneni kwakhe, iliso elinye eliphuma phambili, okanye utshintsho lweehomoni, mqaphele. Ukuba ubona into efana naleyo, bonana nogqirha ngokukhawuleza.
- Uvavanyo olufana ne-MRI kunye ne-CT scans zisetyenziselwa ukufumanisa esi sifo. Musa ukoyika, oku kwenziwa ngokukhuselekileyo phantsi kweliso loogqirha.
- Unyango lwe-chemotherapy lolona lusetyenziswa kakhulu. Utyando aluqhelekanga kakhulu.
- Ukuba unemibuzo okanye amathandabuzo malunga noku, kungcono ukuxoxa ngayo yonke into ngokukhululekileyo nogqirha wakho.
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