Ingabe imisipha yakho ihlala ibuhlungu noma izizwa ibuthakathaka? Ake sixoxe nge-Polymyositis!

Ingabe ngezinye izikhathi uzizwa ubuhlungu emisipheni yakho noma uzizwa ubuthakathaka? Noma ingabe othile omaziyo unezinkinga ezinjalo? Lezi zinto zingasithinta ngempela ekuphileni kwethu kwansuku zonke. Namuhla sizokhuluma ngesifo esithinta imisipha yethu, kodwa esingavamile kakhulu. Lokhu kubizwa ngokuthi i-polymyositis.

Kuyini i-Polymyositis? Kalula nje...

Kalula nje, i-polymyositis iyisifo esingavamile sokuzivikela komzimba. Uma uzwa igama elithi "isifo sokuzivikela komzimba," cishe kunzima ukuliqonda, akunjalo? Ake ngikuchaze ngale ndlela.

Sinesimiso sokuzivikela emzimbeni wethu. Kufana nebutho ezweni lakithi. Indima yalesi simiso ukusivikela ngokulwa namagciwane nezinto ezibangela izifo ezivela ngaphandle. Kodwa-ke, ngezinye izikhathi lesi simiso sethu sokuzivikela siyaphambuka. Bese siqala ukuhlasela hhayi izitha ezivela ngaphandle kuphela, kodwa namaseli anempilo nezicubu zomzimba wethu. Leso yisimo esibizwa ngokuthi isifo sokuzivikela komzimba.

Yilokho okwenzekayo ku-polymyositis. Amasosha ethu omzimba aqala ukuhlasela imisipha yethu, okungukuthi, imisipha. Lolu uhlobo lwe-myositis. I-Myositis ukuvuvukala okungapheli, okungukuthi, ukuvuvukala, kwemisipha. Lokhu kuvuvukala kuza futhi kudlule ngokuhamba kwesikhathi, futhi ekugcineni lokhu kwenza imisipha yethu ibe buthaka.

Uma une-polymyositis, lokhu kuvuvukala kungenzeka emisipheni eminingana ngesikhathi esisodwa. Kuvame kakhulu emisipheni eseduze nomzimba. Isibonelo:

• Ezandleni zakho (ezingalweni)
• Endaweni yesinqe nasemathangeni
• Esifubeni
• Emuva
• Esiswini
• Entanyeni

Odokotela abasazi kahle ukuthi yini ebangela i-polymyositis, futhi ayikho ikhambi. Kodwa udokotela angakusiza ukwelapha izimpawu zakho futhi aphathe indlela ezithinta ngayo impilo yakho yansuku zonke.

Sivame kangakanani lesi sifo?

I-Polymyositis empeleni iyisifo esingavamile kakhulu. Ochwepheshe balinganisela ukuthi abantu abangaphansi kuka-25 kwabayi-100,000 bathola lesi sifo minyaka yonke. Ngakho ungacabanga ukuthi singavamile kangakanani.

Ziyini izimpawu zalokhu? Sikubona kanjani?

Kunezimpawu eziningana ezivamile ze-polymyositis. Ake sibheke ukuthi ziyini:

• Ubuthakathaka bemisipha: Ungase uzizwe sengathi imisipha yakho ilahlekelwa amandla, ikakhulukazi emahlombe nasemaqakaleni akho.
• Ubuhlungu bemisipha nokuqina kwayo: Kungase kube buhlungu ukuyithinta.
• Ubunzima bokugwinya: Odokotela bakubiza lokhu ngokuthi “i-dysphagia.” Kuzwakala sengathi ukudla noma isiphuzo akuhambi kahle emphinjeni wakho.
• Ubunzima bokukhuluma: Amagama ayaxaka, okwenza kube nzima ukukhuluma ngokucacile.
• Ubunzima bokuphefumula noma ukuphelelwa umoya: Lokhu kubizwa ngokuthi "ukuphelelwa umoya." Ungase uzizwe sengathi unenkinga yokuphefumula ngisho noma uzikhandla kancane.
• Ukukhathala okuqhubekayo: Kungakhathaliseki ukuthi ulala kangakanani, uzizwa sengathi awunawo amandla, uhlala ukhathele.
• Ubuhlungu bamalunga.
• Imfiva.
• Ukuqina komzimba: Umzimba wakho uzizwa uqinile njengokhuni, ikakhulukazi uma uvuka ekuseni.
• Ukwehlisa isisindo.

Lezi zimpawu zingenza kube nzima ngawe ukwenza imisebenzi yakho evamile. Cabanga ngakho ngale ndlela:

• Kunzima ukuvuka lapho uhleli esihlalweni.
• Imilenze yami iyaba ndikindiki uma ngikhuphuka izitebhisi.
• Kunzima ukuphakamisa insimbi.
• Kunzima ukuphakamisa isandla sakho bese uthatha okuthile.

Into eyodwa ebalulekile okufanele uyikhumbule: Ezinye zezimpawu ze-polymyositis zingaholela ezinkingeni ezingasongela impilo. Ngakho-ke, uma uzizwa sengathi unenkinga yokuphefumula noma awukwazi ukugwinya kahle, iya esibhedlela noma ushayele i-ambulensi ngokushesha . Kubalulekile ukukhuluma nodokotela wakho ngalezi zinto futhi uhlale unolwazi.

Kungani kwenzeka i-polymyositis? Iyini imbangela?

Njengoba sesixoxile ngaphambili, i-polymyositis iyisifo esibangelwa ukuzivikela komzimba. Kodwa ochwepheshe abakaqondi kahle ukuthi kungani kwenzeka. Yingakho amasosha ethu omzimba eqala ukuhlasela imizimba yethu kuseyimfihlakalo.

Ngezinye izikhathi i-polymyositis ingaqala nje ngaphandle kwesizathu esisobala. Odokotela bakubiza lokhu ngokuthi "i-idiopathic." Kodwa-ke, kwezinye izimo, kungabangelwa ezinye izimo zempilo noma ukusabela emithini ethile.

Kungenzeka kakhulu ukuthi ube ne-polymyositis uma unezinye izifo ezizimele. Isibonelo:

• I-Lupus
• Isifo samathambo esibizwa ngokuthi i-rheumatoid arthritis
• I-Scleroderma

Futhi, ezinye izifo ezibangelwa amagciwane zingadala i-polymyositis.

• I-Covid-19 `(COVID-19)`
• Umkhuhlane (umkhuhlane)
• Umkhuhlane ovamile
• I-HIV `(HIV)`

Ubani onamathuba amaningi okuba nalesi sifo? Yiziphi izinto ezibangela ingozi?

Nakuba noma ubani angaba ne-polymyositis, amaqembu athile anamathuba amaningi okuba nayo.

• Kwabesifazane: Abesifazane banamathuba aphindwe kabili okuthola lesi sifo kunabesilisa.
• Kulabo abanezinye izifo ezibangelwa ukuzivikela komzimba.
• Kubantu abaneminyaka ephakathi kuka-30 no-60: Nakuba kungakhula kunoma yimuphi ubudala, kuvame kakhulu kubantu abadala kuleli qembu leminyaka.

Ukubona kanjani lokhu? Udokotela ukubona kanjani lokhu?

Udokotela uxilonga i-polymyositis ngokuhlolwa ngokomzimba kanye nezinye izivivinyo. Okokuqala, uzokubuza ngezimpawu zakho, ukuthi sezinesikhathi esingakanani zikhona, nokuthi uzizwa kanjani. Ngemuva kwalokho, uzohlola imisipha yakho, ikakhulukazi leyo ebuthaka futhi ekhombisa izimpawu. Uzokubuza nokuthi uzizwa kanjani uma wenza ukunyakaza okuthile.

Udokotela wakho uzosebenzisa izivivinyo eziningana ukuqinisekisa i-polymyositis. Ezinye zalezi zivivinyo zingasiza ekususeni ezinye izimo ezibangela izimpawu ezifanayo. Udokotela wakho angase asebenzise izivivinyo ezinjengalezi:

• Ukuhlolwa kwegazi: Lokhu kuhlola ama-enzyme emisipha noma ama-antibodies abonisa ukuthi imisipha yakho yonakele yini.
• Iskena se-MRI (Magnetic Resonance Imaging): Lokhu kungahlola ukuvuvukala, noma ukuvuvukala, emisipheni yakho.
• Ukuhlolwa kwe-EMG (Electromyography): Lokhu kungabona ukusebenza kwemisipha okungajwayelekile.
• Ukuhlolwa kwemisipha: Lokhu kuhilela ukuthatha ingxenye encane yomsipha othintekile bese uyihlola ngaphansi kwesibonakhulu. Lokhu kunganikeza umbono wobukhulu bomonakalo ezicutshini zemisipha kanye nempilo yazo iyonke.

Ingabe kukhona ukwelashwa? Ukuphatha kanjani lokhu?

Ngeshwa, ayikho ikhambi le-polymyositis. Kodwa ungakhathazeki. Udokotela wakho angancoma ukwelashwa ukusiza ukulawula ukuvuvukala, noma ukuvuvukala, emisipheni yakho. Nakuba lokhu kwelashwa kungeke kuphulukise ngokuphelele i-polymyositis, kungasiza ekunciphiseni umthelela wezimpawu empilweni yakho yansuku zonke. Abantu abaningi bangalawula lesi sifo ngalezi zindlela zokwelapha, bafinyelele isikhathi esithile ngaphandle kokuvuvukala kanye nezimpawu ezincane (okubizwa ngokuthi 'ukuxolelwa').

Izindlela zokwelapha ezivame ukusetshenziswa kakhulu ze-polymyositis yilezi:

• Ama-Corticosteroids: Lawa uhlobo lwemithi yokulwa nokuvuvukala enqunywe udokotela. Asiza ekulawuleni ukuvuvukala nobuhlungu.
• Ama-Immunosuppressants: Le mithi isebenza ngokunciphisa ukusebenza kwesimiso sakho somzimba, okunciphisa umonakalo esingawenza emisipheni yakho. Kalula nje, kufana nokuthulisa ibutho lethu.
• I-Intravenous Immunoglobulin (IVIG): Lokhu kuhilela ukukunikeza umthamo owengeziwe wama-antibodies ngomthambo. Lokhu kwelashwa kwe-IVIG kungaqondisa kabusha ukugxila kwesistimu yakho yokuzivikela komzimba. Kungabe sekuhlasela izicubu zomzimba wakho kancane. Kufana nokunikeza uhlelo lwakho lokuzivikela komzimba umsebenzi okufanele uwenze, ngakho-ke lungalimaza imisipha yakho kancane.
• Ukwelashwa ngokomzimba:Udokotela wakho noma uchwepheshe wezokwelapha uzokufundisa ukuzivocavoca nokwelula ukuze ugcine imisipha ethintekile iguquguquka futhi iqinile. Ukwelashwa ngokomzimba kungasiza ekuqiniseni imisipha yakho futhi kunciphise ukuqubuka kwezimpawu ze-polymyositis esikhathini esizayo.

Ingabe lokhu kungavinjelwa ukuthi kwenzeke?

Ngenxa yokuthi imbangela eqondile yalesi sifo ayaziwa, ayikho indlela yokusivimbela. Asikwazi ukubikezela ukuthi ubani ozosithola, izimpawu zizovela nini, noma ukuthi sizophinde sibuye.

Kunjani ukuphila ne-polymyositis? Yini ongayilindela?

I-Polymyositis ivame ukuba yisimo esihlala isikhathi eside. Nakuba kungekho ikhambi, abantu abaningi bangakwazi ukuphatha lesi sifo futhi banciphise izimpawu ngokuhlanganiswa kwezindlela zokwelapha.

Kodwa-ke, kwezinye izimo, i-polymyositis ingabangela izinkinga ezisongela impilo. Ingabulala, ikakhulukazi uma ithinta kakhulu imisipha emphinjeni nasesifubeni sakho ekusiza ukuthi uphefumule futhi ugwinye.

I-Polymyositis ibangela ukuvuvukala kanye nobuthakathaka emisipheni yakho, ikakhulukazi phakathi komzimba wakho. Kuzodingeka ukuthi uyilawule impilo yakho yonke, ngezikhathi zezimpawu ezifika zidlule. Nakuba kungekho ikhambi elihlala njalo, udokotela wakho angakusiza ukuthola uhlelo lokwelapha olukusebenzelayo. Lokhu kungasiza ekunciphiseni umthelela wesifo empilweni yakho yansuku zonke. Abantu abaningi bangalawula lesi sifo futhi babhekane nezimpawu ezimbalwa.

Kufanele ngimbone nini udokotela?

Uma uba nobuthakathaka obusha bemisipha, ubuhlungu, noma ezinye izimpawu, ikakhulukazi uma zingathuthuki ezinsukwini ezimbalwa, bona udokotela ngokushesha.

Khuluma nodokotela wakho uma izimpawu zakho ziba zimbi kakhulu noma uma zibonakala zisakazekela kwezinye izindawo. Tshela nodokotela wakho uma unomuzwa wokuthi ukwelashwa kwakho akusebenzanga kahle njengoba kwakunjalo ngaphambili, noma uma izimpawu zakho ze-polymyositis ziba zimbi kakhulu noma zimbi kakhulu.

Uma unezinye zezimpawu ezilandelayo, iya ekamelweni lezimo eziphuthumayo ngokushesha noma ushayele u-911 (noma inombolo yakho yezimo eziphuthumayo yendawo):

• Uma ungakwazi ukuhambisa ingxenye yomzimba ongayihambisa ngokujwayelekile.
• Uma unenkinga yokuphefumula.
• Uma unenkinga yokugwinya.

Yimiphi imibuzo okufanele uyibuze udokotela wakho?

Kungumqondo omuhle ukubuza udokotela wakho imibuzo efana nale:

• Kungenzeka yini ukuthi ngingaba nolunye uhlobo lwe-myositis?
• Hlobo luni lokwelashwa engiludingayo?
• Yiziphi izimpawu noma izinguquko okufanele ngiziqaphele?
• Kukangaki ngidinga ukuza kuzohlolwa ukuze ngiqaphe izimpawu zami noma ngishintshe ukwelashwa kwami?

Ingabe lokhu kuyinto evela ezizukulwaneni ngezizukulwane?

Ezinye izifundo zithole ukuthi i-polymyositis (nezinye izinhlobo ze-myositis) ingaba nokuxhumana kwezakhi zofuzo. Lokhu kusho ukuthi izingane zingazuza izinguquko ezithile zezakhi zofuzo kubazali bazo, okungase kwandise ingozi yazo yokuthola lesi simo.

Kodwa-ke, ochwepheshe abakakayitholi i-genetic changes ethile ebangela i-polymyositis. Futhi akukakwazi ukufakazela ukuthi uma une-polymyositis, izingane zakho zisengozini enkulu yokuba nayo.

Uma ukhathazekile ngokudlulisela lezi zimo ezinganeni zakho, khuluma nodokotela wakho mayelana nokwelulekwa ngofuzo.

Ingakanani iminyaka yokuphila komuntu one-polymyositis?

I-polymyositis ngokuvamile ayithinti isikhathi sakho sokuphila (ukuthi uzophila isikhathi esingakanani). Kodwa-ke, ingabangela izinkinga ezisongela ukuphila, ikakhulukazi uma imisipha entanyeni nasemphinjeni wakho iba buthakathaka kakhulu. Uma unenkinga yokuphefumula noma yokugwinya, tshela udokotela wakho ngokushesha. Angakusiza ukulungisa ukwelashwa kwakho ukuze ulawule lezi zimpawu ngaphambi kokuba zibe yingozi.

Okokugcina, izinto okufanele uzikhumbule

I-Polymyositis iyisimo esiyinkimbinkimbi nesisongela impilo. Kodwa-ke, ngeseluleko sezokwelapha esifanele, ukwelashwa, kanye nokuzinikela kwakho, abantu abaningi bakwazile ukuphatha lesi simo kahle futhi baphile impilo ephumelelayo.

Khumbula, awuwedwa. Uma uphila nesimo esinjengalesi, ukusekelwa umndeni nabangane kubaluleke kakhulu. Kubalulekile futhi ukukhuluma ngokukhululekile nodokotela wakho ngezinto ezikukhathazayo nokwesaba kwakho. Kungaleso sikhathi kuphela lapho ungakha khona uhlelo lokwelashwa olukufanele.

Khuluma nodokotela wakho ngengozi yezinkinga ezinkulu, ikakhulukazi lezo ezihilela imisipha elawula ukugwinya nokuphefumula. Uzokuchazela ukuthi yiziphi izimpawu eziyisixwayiso okufanele uziqaphele. Ungalokothi uzishaye indiva izimpawu. Ukufuna usizo lwezokwelapha kusenesikhathi kungakusiza ugweme izinkinga eziningi ezengeziwe.

I- Polymyositis, i-Polymyositis, ubuthakathaka bemisipha, ubuhlungu bemisipha, izifo zokuzivikela komzimba, ubunzima bokugwinya, ubunzima bokuphefumula, ukwelashwa