Ingabe uzithola usesimweni lapho ngisho nokusikeka okuncane kukwenza wophe igazi ngendlela engalawuleki? Mhlawumbe unenkinga yokujiya kwegazi njenge-Hemophilia B. Namuhla sizokhuluma ngomuthi okhethekile osiza umzimba wethu ezimweni ezinjalo. Kungumjovo obizwa ngokuthi i-Factor IX. Ungesabi uma uzwa lokhu. Masiqonde konke ngalokhu kalula.
Kuyini i-Factor IX?
Kalula nje, i-Factor IX iyiprotheni ebalulekile ukuze igazi lethu lijiye. Ngokuvamile, lapho umuntu elimele, ukuphuma kwegazi kuyayeka ngoba la maprotheni (izici zokujiya) asebenza ndawonye. Kodwa-ke, kubantu abanesimo esibizwa ngokuthi i-Hemophilia B, le phrotheni ebizwa ngokuthi i-Factor IX ayikhiqizwa ngokwemvelo noma ikhiqizwa ngamanani aphansi kakhulu.
Ngakho-ke, lo muthi usebenza ukulungisa lokho kuntuleka. I-Factor IX, enikezwa njengomjovo, isiza ukujiya kwegazi futhi ilawule ukopha lapho lingena emzimbeni. Ngaphezu kwe-hemophilia B, odokotela bangase futhi banikeze lo muthi kwezinye izimo ezivimbela ukujiya kwegazi.
Izinto okufanele uzitshele udokotela wakho ngaphambi kokuthatha imithi
Kulungile, manje kunezinto ezimbalwa okudingeka uzitshele udokotela wakho ngaphambi kokuthatha lo muthi. Ungazifihli lezi zinto, ngoba zibaluleke kakhulu ekuphepheni kwakho.
- Ezinye izifo onazo:
- Isifo sesibindi
- Ezinye izinkinga zokuqina kwemithambo yegazi
- Isimo lapho kwakheka khona amahlule egazi ngaphakathi kwemithambo yegazi (i-thrombosis)
- Ukungezwani komzimba: Wake waba nokungezwani komzimba nanoma yimuphi umuthi, ukudla, udayi, noma izithasiselo? Qiniseka ukuthi ukhuluma ngalokhu, ikakhulukazi uma une-allergy kumaprotheni abantu noma ezilwane (isib. amagundane, ama-hamster).
- Ukukhulelwa nokuncelisa: Tshela udokotela wakho uma ukhulelwe, uzama ukukhulelwa, noma uncelisa.
Ngokunikeza udokotela wakho lolu lwazi, angakwazi ukunquma ukwelashwa okufanele nokuphephile kakhulu kuwe.
Uyisebenzisa kanjani le mithi?
Lokhu ukujova emthanjeni (`(ukujova emthanjeni)`). Ngokuvamile kunikezwa uchwepheshe wezempilo esibhedlela noma emtholampilo.
Kodwa ngezinye izikhathi, kungadingeka usebenzise lo muthi ekhaya. Uma kunjalo, uzonikezwa ukuqeqeshwa okudingekayo esibhedlela. Kubaluleke kakhulu ukulandela leyo miyalelo ngqo.
Uma uyisebenzisa ekhaya, khumbula lezi zinto ezilandelayo:
- Ukulungiselela: Vumela impuphu yomuthi kanye nesixazululo kufike ekushiseni kwegumbi isikhashana.
- Ukuxuba: Hlanganisa ngokucophelela njengoba kuqondiswe. Unganyakazisi ngamandla ukuze udale igwebu. Jikisa ibhodlela ukuze lincibilike.
- Ukusetshenziswa: Thatha umthamo onqunyiwe, ngesikhathi esinqunyiwe, njengoba kunqunywe udokotela wakho. Lahla noma yikuphi okusele.
- Ukulahla izinaliti: Lokhu kubaluleke kakhulu. Ungalokothi ulahle izinaliti noma amasirinji asetshenzisiwe emgqonyeni kadoti. Kufanele afakwe esitsheni esikhethekile se-sharping. Uma ungenayo, cela udokotela wakho akunike yona.
Ingabe lo muthi unganikezwa izingane?
Yebo, kwezinye izimo ezikhethiwe, lo muthi unikezwa nezingane. Kodwa udinga izinyathelo zokuphepha ezikhethekile. Ngakho-ke, uma unikeza ingane yakho lo muthi, khuluma nodokotela wezingane ngalokhu ngokucophelela.
Yini okufanele uyenze uma uthatha umuthi omningi kakhulu?
Uma ucabanga ukuthi uthathe umthamo ongaphezu kobekiwe walo muthi, shayela ngokushesha i-National Poisons Information Centre e-Colombo National Hospital . Noma uye eMnyangweni Wezimo Eziphuthumayo (ETU) wesibhedlela esiseduze. Ungalibali.
Ezinye izinto ezingase zihlangane nomuthi
Eminye imithi ingasebenzisana ne-Factor IX. Isibonelo:
- I-Aminocaproic acid
- I-Factor VIIa (i-factor VIIa)
- I-Tranexamic acid
Lolu hlu aluphelele. Ngakho-ke, tshela udokotela wakho ngayo yonke imithi oyithathayo (kungakhathaliseki ukuthi uyinikezwe abanye odokotela noma uyithenge ekhemisi), amavithamini, imikhiqizo yamakhambi oyisebenzisayo, kanye nokuthi ubhema, uphuza utshwala, noma usebenzisa ezinye izidakamizwa .
Izinto okufanele uziqaphele uma usebenzisa umuthi
- Ingozi yegciwane: Eminye imikhiqizo ye-Factor IX yenziwe nge-plasma yegazi lomuntu. Ngakho-ke, kunengozi encane kakhulu yokudlulisela izinto ezifana namagciwane. Kodwa ungakhathazeki, izindlela ezithuthuke kakhulu zisetshenziswa ukubulala iningi lala magciwane namagciwane lapho kwenziwa lo muthi. Uma unemibuzo ngalokhu, khuluma nodokotela wakho. Uma usanda kutholakala une-hemophilia, kubaluleke kakhulu ukuthola umuthi wokugomela i-Hepatitis A kanye ne-B.
- Umazisi: Uma une-hemophilia, phatha ikhadi lomazisi elinemininingwane yakho. Kufanele lifake igama lakho, igama kanye nomthamo womuthi owuthathayo, igama kanye nenombolo yocingo kadokotela wakho, kanye nemininingwane yomuntu ongaxhumana naye uma kwenzeka isimo esiphuthumayo. Lokhu kungaba ukusindisa impilo.
Imiphumela emibi engaba khona yomuthi
Njenganoma yimuphi umuthi, lo ungabangela imiphumela emibi kwabanye abantu. Ake sibheke ukuthi iyini.
| Ukuhlukaniswa kwemiphumela emibi | |
|---|---|
| Izinto okufanele uzibike kudokotela wakho noma eMnyangweni Wezimo Eziphuthumayo (ETU) ngokushesha: | |
| Ukusabela kokungezwani komzimba | Ukuqubuka kwesikhumba, ukulunywa, ukuvuvukala kobuso, izindebe noma ulimi. |
| Izinkinga zenhliziyo | Ubuhlungu besifuba, ukushaya kwenhliziyo okusheshayo noma okungajwayelekile. |
| Ubunzima bokuphefumula | Ubunzima bokuphefumula, umsindo wokuphefumula ovela esifubeni. |
| Umkhuhlane noma ukubanda | Umkhuhlane noma ukubanda ngaphandle kwesizathu. |
| Izinkinga endaweni yokujova | Ubuhlungu, ukubomvu, noma ukuvuvukala endaweni lapho kutholakala khona inxeba. |
| Izinto ezingavamile ukuba zimbi kakhulu, kodwa okufanele zibikwe kudokotela uma ziqhubeka: | |
| Ukuhlanza | Ukuzwa ukubomvu nokushisa ebusweni noma emzimbeni. |
| Ikhanda elibuhlungu | Ikhanda elijwayelekile. |
| Isicanucanu nokuhlanza | Ukungakhululeki esiswini nokuhlanza. |
| Ukukhathala | Ukuzizwa ukhathele. |
Umlayezo Wokuya Nawe Ekhaya
- I-Factor IX iwumjovo weprotheni okhethekile osiza ukujiya kwegazi kubantu abanezifo ezifana ne-hemophilia B.
- Ngaphambi kokuthatha lo muthi, tshela udokotela wakho ngazo zonke izimo zakho zezokwelapha, ukungezwani komzimba, kanye neminye imithi oyithathayo.
- Uma uthatha umuthi ekhaya, landela imiyalelo ngqo. Lahla izinaliti ezisetshenzisiwe ngokuphephile.
- Uma uhlangabezana nezimpawu ezifana nobuhlungu besifuba, ubunzima bokuphefumula, noma ukusabela okukhulu kokungezwani komzimba, funa iseluleko sezokwelapha ngokushesha.
- Uma une-hemophilia, hlala uphethe ikhadi lomazisi elinemininingwane yakho.
- Lo muthi ungowakho wedwa. Ungalokothi uwuhlanganyele nanoma ubani omunye.
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