Ingabe ingane yakho isengozini? Ake sixoxe nge-Fetal Hydantoin Syndrome

Uma ukhulelwe noma uhlela ukuba ngumama maduze, kubalulekile ukuqaphela imithi oyithathayo. Ikakhulukazi uma uthatha imithi yesimo esifana nesifo sokuwa (ukuquleka), ungase ukhathazeke ngokuthi imithi izothinta yini ingane yakho engakazalwa. Ngakho-ke, namuhla sizokhuluma ngezimo ezithile ezingase zenzeke enganeni ngenxa yemithi ethile ethathwa ngesikhathi sokukhulelwa.

Iyini i-Fetal Hydantoin Syndrome?

Kalula nje, i-Fetal Hydantoin Syndrome iqoqo lezimpawu ezingase zivele ezinganeni ezithola imithi ethile yokuquleka ethathwa ngumama ngesikhathi sokukhulelwa, ikakhulukazi i-Phenytoin (igama lomkhiqizo i-Dilantin®) . Odokotela babiza le mithi ngokuthi ama-teratogens , okusho ukuthi iyizinto ezingaphazamisa ukukhula okuvamile komntwana osanda kuzalwa.

Ezinye zezimpawu zalesi sifo zingabonakala lapho umntwana ezalwa. Isibonelo, ezinye izinkinga zokuzalwa zingabonakala ebusweni bomntwana, ekhanda, kanye naseminweni.

Kodwa-ke, ezinye izimpawu zingase zingabonakali ngokushesha. Ukulibaziseka kokukhula kanye nokukhubazeka kwengqondo kungase kungabonakali kuze kube kamuva. Ngakho-ke, odokotela namalungu omndeni kudingeka basebenzisane ukuthola imbangela yalesi simo futhi banikeze ingane ukwelashwa nokusekelwa okudingekayo.

Nokho, kubalulekile ukuqaphela ukuthi akuzona zonke izingane ezithola le mithi ezizoba ne-Fetal Hydantoin Syndrome. Ezimweni eziningi, ngeke kube njalo. Kodwa-ke, ngenxa yokuthi kunezingozi ezithile, udokotela wakho uzokuqapha eduze phakathi nokukhulelwa kwakho. Imithi yakho ingadinga ukushintshwa.

Kubaluleke kakhulu ukuthi ungalokothi uyeke ukuthatha imithi yakho ngaphandle kweseluleko sikadokotela wakho. Ukwenza kanjalo kungaba yingozi kuwe kanye nengane yakho engakazalwa. Udokotela wakho uzonciphisa umthamo wemithi yakho uma kudingeka, noma akushintshele komunye umuthi. Ngakho-ke, landela imiyalelo kadokotela wakho ngqo. Buza ukuthi kukhona yini ongakuqondi.

Sivame kangakanani lesi simo?

Ngokwezibalo, phakathi kuka-5% no-11% wezingane ezitholwe emuthini i-Phenytoin zingase zibe ne-Fetal Hydantoin Syndrome.

Kodwa-ke, akulungile ukusekela izinqumo kulezi zinombolo kuphela. Odokotela bavame ukubheka umphumela ojwayelekile wemithi elwa nokuqina ngesikhathi sokukhulelwa. Okusho ukuthi, odokotela bakhathazekile ngayo yonke imiphumela engaba khona yemithi elwa nokuqina ehlukene - kokubili uma ithathwa yodwa nalapho ithathwa ndawonye - kunokuba kubhekwe ukuthi isifo esithile sivame kangakanani.

Isibonelo, ukuphuza imithi yokuxhuzula engaphezu kweyodwa ngesikhathi esisodwa kungaba yingozi kakhulu kunokusebenzisa owodwa kuphela. Futhi, eminye imithi (njengemikhiqizo equkethe i-valproate) inamathuba amaningi okuba nemiphumela emibi kakhulu kuneminye.

Udokotela wakho angakuchazela ngqo ukuthi imithi oyiphuzayo ingathinta kanjani ukukhulelwa kwakho. Bazohlola ubungozi bakho futhi bakunikeze iseluleko ngokufanele.

Ziyini izimpawu ze-fetal hydantoin syndrome?

Ezinye zezimpawu ze-Fetal Hydantoin Syndrome ezingabonakala lapho umuntu ezalwa zifaka:

• Amehlo aqhelelene kakhulu kunokujwayelekile (ngokwezokwelapha okubizwa ngokuthi i-hypertelorism ).
• Amehlo aphambene (strabismus) .
• Umlomo oqhekekile kanye/noma ulwanga oluqhekekile .
• Ibhuloho lekhala liyisicaba noma libanzi kunokuvamile.
• Incane kunosayizi wekhanda ojwayelekile (i-microcephaly) .
• Izinzipho zeminwe nezezinzwane ezingakhuli kahle noma ezikhubazekile.

Njengoba ingane yakho ikhula, ungase uqaphele izimpawu zokulibaziseka kokukhula . Ukulibaziseka kokukhula yilapho ingane yakho yephuza ukufinyelela ezigabeni ezithile zokukhula uma kuqhathaniswa nezinye izingane ezineminyaka yayo. Isibonelo, ukumomotheka okokuqala, ukugingqika, noma ukuthatha izinyathelo zayo zokuqala.

Ungase ubone nezimpawu zokukhubazeka kwengqondo . Ukukhubazeka kwengqondo kuyinto ethinta indlela ingane yakho efunda futhi exhumana ngayo nomhlaba ozungezile. Isibonelo, ingane yakho ingase ingakwazi ukuziqeqesha endlini yangasese noma ukwenza imisebenzi yokuzinakekela ngokushesha ngendlela ongathanda ngayo. Noma, ingase ibe nenkinga yokuqonda imiqondo efana nemali nokuphatha isikhathi.

Iyini imbangela yalokhu?

Imbangela eyinhloko ye-Fetal Hydantoin Syndrome ukudluliselwa kwemithi enikezwa umbungu nge -placenta ngesikhathi sokukhulelwa.

Abacwaningi abakayiqondi ngokugcwele indlela le mithi ebangela ngayo lezi zinguquko kanye nezinye izinguquko. Bakholelwa ukuthi ezinye izici, njengezakhi zofuzo, zingadlala indima. Isibonelo, izinguquko ezithile ezakhiweni zofuzo zingathinta indlela umzimba wakho ophula ngayo izidakamizwa. Lokho kungaba yisizathu sokuthi izidakamizwa zingakuthinta ngesikhathi sokukhulelwa.

Kuthenjwa ukuthi ucwaningo lwesikhathi esizayo luzoveza ulwazi olwengeziwe mayelana nendlela lesi sifo esikhula ngayo nokuthi obani abasengozini enkulu.

Odokotela basibona kanjani lesi simo?

Odokotela baxilonga i-Fetal Hydantoin Syndrome kungaba ngesikhathi sokuzalwa noma ebuntwaneni lapho ingane ibonisa izimpawu ezivamile zalesi simo. Umlando wezokwelapha kamama (kufaka phakathi imithi) nawo uyasiza ekuxilongeni. Akukho ukuhlolwa okuqondile kokuxilongwa kwe-Fetal Hydantoin Syndrome.

Ngokufanayo, akukho ukuhlolwa okuqondile okuqinisekisa ukuba khona kwe-Fetal Hydantoin Syndrome ngesikhathi sokukhulelwa. Kodwa-ke, odokotela bangase basole lesi sifo ngokusekelwe ezifweni ezithile zokuzalwa ezibonwe ngesikhathi sokuhlolwa okufana nokuskena.

Yiziphi izindlela zokwelapha?

Odokotela bazokwelapha ingane yakho ngokusekelwe ezimpawini nasezidingweni zayo ezithile. Lokhu kwelashwa kungashintsha njengoba ingane yakho ikhula. Ezinye zezindlela zokwelapha ezingasetshenziswa zifaka:

• Ukuhlinzwa: Isibonelo, ukuhlinzwa kokulungisa umlomo oqhekekile kanye nolwanga.
• Imithi.
• Ukwelashwa ngokomzimba.
• Ukwelashwa emsebenzini.

Ingane yakho ingase idinge usizo olwengeziwe ngokufunda. Ithimba lezokwelapha lengane yakho lizosebenzisana nawe ukudala Uhlelo Lwezinsizakalo Zomndeni Oluzimele (IFSP) . Lona umbhalo olungiselelwe izidingo zengane yakho. Uhlela izinsizakalo ingane yakho engase izidinge, njengobuchwepheshe bokusiza kanye nokwelashwa kokukhuluma .

Odokotela kanye nabelaphi abasebenza ndawonye ukunakekela ingane yakho bangafaka:

• Odokotela bezingane.
• Odokotela abahlinzayo bepulasitiki.
• Odokotela abahlinzayo be-Maxillofacial.
• Izazi zengqondo zezingane.
• Odokotela bezinzwa bezingane.
• Abelaphi bezemisebenzi.
• Abelaphi benkulumo.

Yini okufanele ngiyilindele uma ingane yami inalesi simo?

Ithimba lezokwelapha lengane yakho lizokutshela ukuthi yini ongayilindela ngokusekelwe ezimpawini zengane yakho. Ingane yakho ingadinga ukuhlinzwa esemncane, kanye nezinsizakalo ezithile, njengosizo lokufunda, njengoba ikhula.

Ungakhathazeki ngakho konke ngesikhathi esisodwa. Thatha isinyathelo ngasinye. Uma uzizwa ucindezelekile noma ucindezelekile kakhulu, bona udokotela wezokwelapha . Bangakhuluma ngemizwa yakho futhi bakusize uthole izindlela ezinempilo zokuphatha ukucindezeleka kwakho.

Ingabe i-Fetal Hydantoin Syndrome ingavinjelwa?

Ngezinye izikhathi, ikakhulukazi uma umuthi ubalulekile empilweni yakho, akwenzeki njalo ukuvimbela umuthi ukuthi ungalimazi ingane yakho engakazalwa. Kodwa-ke, udokotela wakho angasebenzisana nawe ukusiza ekunciphiseni ingozi ye-fetal hydantoin syndrome. Isibonelo, bangase:

• Ukushintsha imithi yakho ngaphambi nangesikhathi sokukhulelwa. Lokhu kungase kuhilele ukunciphisa inani lemithi oyiphuzayo ngosuku. Noma, ukushintshela kweminye imithi engase ilimaze ingane esanda kuzalwa.
• Yeluleka abesifazane ukuthi bathathe izithasiselo ze-folic acid ngaphambi nangesikhathi sokukhulelwa ukuze bavikeleke ekuzalweni okunezinkinga.

Udokotela wakho uzokuqapha eduze phakathi nokukhulelwa kwakho futhi enze noma yiziphi izinguquko ezidingekayo emithini yakho. Ngakho-ke, qiniseka ukuthi uyawagcina ama-aphoyintimenti akho futhi wabelane nganoma yimiphi imibuzo noma ukukhathazeka ongase ube nakho nodokotela wakho.

Kufanele ufune nini iseluleko sezokwelapha?

Uma uthatha imithi yokukusiza ukuthi uhlale uphilile futhi ukwazi ukukhulelwa, noma uhlela ukukhulelwa, qiniseka ukuthi ukhuluma nodokotela wakho. Bazobuyekeza imithi yakho futhi banqume ukuthi kukhona yini izinguquko okudingeka zenziwe.

Uma usuvele ukhulelwe futhi uphuza imithi yokwelapha isifo sokuqina kwesisu, landela isimiso sokubonana nodokotela wakho ngqo. Lokhu kuhlolwa kubaluleke kakhulu ngoba yilapho udokotela wakho engaqapha khona ukukhulelwa kwakho futhi alungise imithi yakho njengoba kudingeka. Bazokwenza konke okusemandleni abo ukukusiza ukuvimbela isifo sokuqina kwesisu ngenkathi futhi benciphisa noma yikuphi ukulimala enganeni yakho.

Yimiphi imibuzo okufanele ngiyibuze udokotela?

Eminye imibuzo ongase ufune ukuyibuza ngaphambi kokuba ukhulelwe:

• Ingabe kuphephile kimi ukukhulelwa?
• Yiziphi izinguquko engizodinga ukuzenza emithini yami?
• Angakanani amathuba okuba imithi yami ithinte ukukhula komntwana osanda kuzalwa?
• Kufanele ngize nini ukukubona futhi?

Imibuzo okufanele uyibuze uma ingane yakho itholakale ine-Fetal Hydantoin Syndrome:

• Lesi simo sizomthinta kanjani umntwana wami?
• Yikuphi ukwelashwa okuncomayo, futhi kuqala nini?
• Ngingayinakekela kanjani ingane yami ekhaya?
• Lesi simo sizoyithinta kanjani intuthuko noma ikhono lobuhlakani lengane yami?
• Yini okufanele ngiyilindele njengoba ingane yami ikhula?

Ukukhulelwa yisikhathi esinezinto eziningi ezingaziwa. Futhi, uma unesifo esidinga ukuthi uphuze imithi, ungase uzibuze ukuthi lowo muthi uzomthinta kanjani umntwana wakho. Ukuthatha imithi enikezwe udokotela ngesikhathi sokukhulelwa kungabangela i-fetal hydantoin syndrome noma eminye imiphumela engafuneki. Kodwa-ke,Kungenzeka ukuthi umuthi ngeke uthinte ukukhulelwa kwakho - leso yisimo esingenzeka kakhulu. Udokotela wakho angakutshela okwengeziwe ngalokho ongakulindela futhi akusekele isinyathelo ngasinye.

Umlayezo Wokuya Nawe Ekhaya

I-Fetal Hydantoin Syndrome, esikhulume ngayo namuhla, iyisimo esingaba khona ezinganeni ngenxa yemithi yokuxhuzula efana nePhenytoin ethathwa ngumama ngesikhathi sokukhulelwa. Lokhu akwenzeki kuwo wonke umuntu , kodwa kukhona ingozi.

Into ebaluleke kakhulu ukukhuluma nodokotela wakho uma uphuza imithi yokwelapha umzimba wakho futhi ucabanga ngokukhulelwa, noma usuvele ukhulelwe. Ungalokothi uyeke ukuthatha imithi yakho ngaphandle kweseluleko sikadokotela wakho. Udokotela wakho uzokusiza ukuphatha imithi yakho ngendlela ephephile kuwe nakumntwana wakho.

Uma ingane yakho inalesi simo, ungesabi, funa iseluleko sezokwelapha bese uthola ukwelashwa nokusekelwa okudingayo. Khumbula, awuwedwa, bakhona odokotela, abelaphi, namalungu omndeni abazokusiza.

I- Fetal hydantoin syndrome, izidakamizwa ngesikhathi sokukhulelwa, i-phenytoin, isifo sokuwa nokukhulelwa, ukukhubazeka kokuzalwa, ukubambezeleka kokukhula, i-Dilantin