Uyazazi i-Lupus (Systemic Lupus Erythematosus - SLE)? Ake sixoxe ngayo!

Ingabe ngezinye izikhathi uzizwa ukhathele ngendlela engenakucatshangwa, ubuhlungu bomzimba, ubuhlungu bamalunga, noma ukuqubuka esikhumbeni sakho? Uma uhlangabezana nalezi zinto hhayi kanye noma kabili, kodwa kaningana ngesikhathi esisodwa, imbangela ingaba yisifo esibizwa ngokuthi i-lupus. Ungakhathazeki, yize leli gama lingase lizwakale njengento enkulu, kuyisimo esingalawulwa ngezinga elikhulu uma unolwazi olufanele futhi uthola ukwelashwa okufanele. Namuhla, sizokhuluma nge-lupus ngendlela elula ongayiqonda.

Kuyini i-Lupus? Ake sikuqonde kalula.

Kalula nje, i-lupus yisifo esibangelwa ukungasebenzi kahle kwesimiso somzimba wethu sokuzivikela . Ngokuvamile, isimiso sethu sokuzivikela sisivikela ezifweni namagciwane. Kodwa okwenzekayo emzimbeni womuntu one-lupus ukuthi lesi simiso sokuzivikela sihlasela ngephutha amangqamuzana nezicubu zomzimba wakhe ezinempilo. Cabanga nje, okwenzekayo lapha kufana nebutho elivikela izwe lethu, lihlasela ngephutha abantu bezwe lakithi. Odokotela bakubiza lokhu ngokuthi 'isifo sokuzivikela komzimba '.

Uma amasosha omzimba ehlasela ngale ndlela, ukuvuvukala , okusho ukuvuvukala, ukubomvu, nobuhlungu, kungavela ezingxenyeni ezahlukene zomzimba. Lokhu kungathinta noma iyiphi ingxenye yomzimba. Isibonelo:

• Isikhumba sakho
• Igazi
• Izindawo zokuhlangana
• Izinso
• Ubuchopho
• Inhliziyo
• Amaphaphu

Kubaluleke kakhulu ukubona udokotela uma ubona noma yiluphi ubuhlungu obusha, ukuqubuka kwesikhumba, noma izinguquko esikhumbeni sakho, ezinweleni, noma emehlweni.

Yiziphi izinhlobo eziyinhloko ze-lupus?

Uma odokotela bekhuluma nge-lupus, bavame ukuyibiza ngokuthi ``Systemic Lupus Erythematosus (SLE)''. Lolu uhlobo oluvame kakhulu lwe-lupus. ``SLE'' kusho ukuthi lesi simo sithinta umzimba wakho wonke. Kukhona nezinye izinhlobo eziningana:

• I-lupus erythematosus yesikhumba: Kulolu hlobo lwe-lupus, lesi simo sithinta isikhumba sakho kuphela .
• I-lupus ebangelwa imithi: Eminye imithi ingabangela izimpawu ze-lupus njengomphumela ongemuhle. Kodwa-ke, lokhu kuvame ukuba okwesikhashana . Lokhu kusho ukuthi izimpawu zingase ziphele ngemva kokuyeka imithi.
• I-lupus yosana olusanda kuzalwa: Lokhu akuvamile kakhulu. Ngezinye izikhathi izingane ezisanda kuzalwa zingaba ne-lupus. Akuzona zonke izingane ezizalwa ngomama abane-lupus ezizoba ne-lupus, kodwa kungaba khona ingozi encane.

Ziyini izimpawu ze-lupus?

I-Lupus yisifo esizibonakalisa ngezindlela ezahlukene. Lokhu kusho ukuthi izimpawu zingahluka kumuntu nomuntu , futhi ubukhulu besifo buyahlukahluka. Abanye abantu banezimpawu ezinzima kakhulu, kanti abanye banezimpawu ezingatheni.

Izimpawu ze-lupus ngokuvamile azihlali njalo.. Ziyafika zidlule. Sibiza izikhathi zezimpawu ezikhulayo ngokuthi "ukuqubuka." Phakathi nalezi zikhathi, izimpawu zingaba zimbi kakhulu kangangokuthi awukwazi ngisho nokwenza imisebenzi yakho yansuku zonke. Kukhona nezikhathi zezimpawu ezinciphile noma ezingenazo nhlobo. Lezi zibizwa ngokuthi "ukuxolelwa."

Izimpawu zivame ukukhula kancane kancane . Ekuqaleni, kungase kuvele uphawu olulodwa noma ezimbili kuphela, kodwa kamuva kungase kuvele ezinye izimpawu noma ezikhona zingashintsha.

Nazi ezinye zezimpawu ezivame kakhulu:

• Ubuhlungu bamalunga, ubuhlungu bemisipha, ubuhlungu besifuba (ikakhulukazi uma uphefumula kakhulu)
• Ikhanda elibuhlungu
• Ukuqubuka kwesikhumba (ngokuvamile ukuqubuka okufana nokwebhabhathane okugeleza ezihlathini nasemakhaleni kuzo zombili izinhlangothi zobuso - "ukuqubuka kwebhabhathane" - kungabonakala)
• Imfiva
• Ukulahlekelwa izinwele
• Izilonda zomlomo
• Ukukhathala okungapheli (ukuzizwa ukhathele ngaso sonke isikhathi)
• Ubunzima bokuphefumula (`(Dyspnea)`)
• Izindlala ezivuvukile
• Ukuvuvukala kwezandla, izinyawo, noma ubuso
• Ukudideka
• Amahlule egazi

I-Lupus ngezinye izikhathi ingabangela ezinye izinkinga zempilo, njenge:

• Ukuzwela kwelanga ( ukuzwela ukukhanya kwelanga)
• Iso elomile
• Ukucindezeleka noma ezinye izinkinga zempilo yengqondo
• Izimo zesifo sokuwa (`Ukuquleka`)
• Ukwehla kwe-hemoglobin egazini (i-anemia)
• I-Raynaud's syndrome (ukuphaphatheka, ukuba luhlaza okwesibhakabhaka kweminwe nezinzwane esimweni sezulu esibandayo)
• I-Osteoporosis (ukuncipha kwamathambo)
• Isifo senhliziyo
• Isifo sezinso

Yini ebangela i-lupus?

Ochwepheshe abakayazi imbangela eqondile ye-lupus , kodwa ucwaningo luthole ukuthi izinto ezithile zingasiza ekuthuthukisweni kwe-lupus.

• Izici zofuzo: Unamathuba amaningi okuthola i-lupus uma unezinguquko ezithile (ukuguqulwa kofuzo) ezizakhini zakho zofuzo. Lokhu kusho ukuthi uma othile emndenini wakho enayo, nawe unethuba elincane lokuyithola.
• Ama-hormone: Ukusabela komzimba kuma-hormone athile, ikakhulukazi i-estrogen, kucatshangwa ukuthi kudlala indima ekuthuthukisweni kwe-lupus. Yingakho i-lupus ivame kakhulu kwabesifazane.
• Izici zemvelo: Izinto ezisendaweni ohlala kuyo, isibonelo, ukungcola komoya kanye nokuchayeka elangeni, zingathinta ingozi yakho ye-lupus.
• Umlando wakho wempilo: Uma ubhema, unengcindezi enkulu, noma unezinye izifo ezihlasela amasosha omzimba, ingozi yakho yokuba ne-lupus inganda.

Ubani osengozini enkulu yokuthola i-lupus?

Noma ubani angaba ne-lupus, kodwa amanye amaqembu asengozini enkulu:

• Abesifazane: Ikakhulukazi abesifazane abaneminyaka ephakathi kwengu-15 no-44.
• Abantu abamnyama.
• AmaHispanic.
• Ama-Asia (nathi singabaleli qembu).
• Abantu Bomdabu baseMelika, Abomdabu base-Alaska, kanye nabantu beZizwe Zokuqala.
• Abantu basePacific Island.
• Abantu abanomzali oyedwa one-lupus.

Itholakala kanjani i-lupus?

Ukuxilonga i-lupus ngezinye izikhathi kungaba nzima kancane. Ngenxa yokuthi ithinta izingxenye eziningi zomzimba, izimpawu zingahlukahluka kakhulu. Udokotela uzoxilonga i-lupus ngokwenza ukuhlolwa ngokomzimba nokwenza ezinye izivivinyo .

Udokotela noma umhlengikazi uzolalela ngokucophelela izimpawu zakho. Mtshele konke okwaziyo ngesikhathi uqala ukuba nezimpawu, ukuthi yiziphi izinguquko ozibonile, nanoma yiziphi izifo oke waba nazo kanye nanoma yimiphi imithi oyiphuzayo njengamanje.

Ungesabi ukutshela udokotela wakho noma yini ezwakala ingajwayelekile kuwe, noma ngabe kuyinto encane. Akekho owazi umzimba wakho kangcono kunawe.

Yiziphi izivivinyo ezenziwayo ukuze kutholakale i-lupus?

Akukho ukuhlolwa okukodwa okungaqinisekisa ukuthi une-lupus. Odokotela bavame ukusebenzisa "ukuxilongwa okuhlukile" ukuze banqume ezinye izifo . Lokhu kusho ukuthi benza izivivinyo eziningana ukuthola ukuthi yini ebangela izimpawu zakho futhi baqinisekise ukuthi ezinye izifo azinacala ngaphambi kokuphetha ngokuthi une-lupus. Ezinye zezivivinyo ezingasetshenziswa kulokhu yilezi:

• Ukuhlolwa kwegazi: Lokhu kuhlola ukuthi amasosha omzimba wakho asebenza kanjani, ukuthi unezifo ezithathelwanayo, izimo ezifana ne-anemia, noma inani eliphansi lamaseli egazi.
• Ukuhlolwa komchamo: Lokhu kusiza ukuhlola umchamo wakho ukuze kutholakale izimpawu zokutheleleka noma ezinye izimo zempilo.
• Ukuhlolwa kwe-antinuclear antibody (ANA): Lokhu kuhlolwa kwama-antibodies. Ama-antibodies ayizimpawu zamaprotheni ezibonisa umlando wemizimba yethu wokulwa nezifo. Abantu abaningi abane-lupus banamazinga aphezulu ala ma-antibodies e-ANA. Lokhu kukhombisa ukuthi isimiso somzimba sokuzivikela sisebenza ngokweqile.
• Ukuhlolwa kwesikhumba noma kwezinso: Ngezinye izikhathi kuthathwa ingxenye encane yezicubu esikhumbeni noma ezinso bese ihlolwa ngaphansi kwesibonakhulu ukuze kubonakale ukuthi yonakaliswe yini amasosha omzimba.

Yiziphi izindlela zokwelapha i-lupus?

Udokotela wakho uzoncoma ukwelashwa kwe-lupus ukulawula nokuphatha izimpawu zakho . Imigomo eyinhloko lapha yile:

• Ukunciphisa umonakalo ezithweni zomzimba.
• Ukunciphisa umthelela we-lupus empilweni yakho yansuku zonke.
• Ukuvimbela ukuqubuka kwesikhumba.
• Ukunciphisa ubukhali bezimpawu ngezikhathi zokukhula okukhulu.

Iziguli eziningi ezine-lupus zidinga inhlanganisela yemithi eminingana.Ungadinga eminye yemithi elandelayo:

• I-Hydroxychloroquine: Lona umuthi osekilasini elibizwa ngokuthi umuthi oguqula izifo olwa namathambo (DMARD). Uyasiza ekunciphiseni izimpawu ze-lupus nokulawula ukuqhubeka kwesifo.
• Imithi elwa nokuvuvukala engeyona eye-steroidal (ama-NSAID): Le mithi itholakala ngaphandle kwemithi kadokotela (ama-OTC) enciphisa ubuhlungu nokuvuvukala (ukuvuvukala). Udokotela wakho uzokutshela ukuthi yiluphi uhlobo lwe-NSAID olukufanele nokuthi kufanele uluthathe isikhathi esingakanani. Ungazisebenzisi izinsuku ezingaphezu kweziyi-10 ngesikhathi ngaphandle kweseluleko sikadokotela wakho.
• Ama-Corticosteroids: Lena imithi enamandla enqunywe udokotela ukunciphisa ukuvuvukala. I-Prednisone iyi-corticosteroid evame ukusetshenziswa kwe-lupus. Inganikezwa njengamaphilisi noma njengomjovo ngqo emalungeni.
• Ama-immunosuppressants: Le mithi isebenza ngokunciphisa nokulawula ukusebenza kwesimiso sakho somzimba, isiza ekuvimbeleni ukulimala kwezicubu nokuvuvukala.

Ngaphezu kwalezi zinhlobo eziyinhloko zemithi, ungadinga ukwelashwa okuhlukile kwezimpawu ezithile onazo noma ezinye izinkinga zempilo ezibangelwa yi-lupus (isib. i-anemia, umfutho wegazi ophakeme, amathambo anciphile).

Yini ongayilindela uma une-lupus?

I-Lupus yisimo sokuphila konke ('esingamahlalakhona') . Lokhu kusho ukuthi kuzodingeka ubhekane futhi ulawule izimpawu ze-lupus impilo yakho yonke.

I-Lupus ayibikezeleki neze. Lokhu kusho ukuthi indlela ekuthinta ngayo ingashintsha ngezikhathi ezithile. Ngakho-ke, kufanele ubonane nodokotela wakho njalo ukuze aqaphe izinguquko ezimpawu zakho.

Njengoba ufunda ukuphila ne-lupus, kuzodingeka usebenzisane nethimba lodokotela . Udokotela wakho womndeni (umhlinzeki wokunakekelwa okuyinhloko) uzoncoma ochwepheshe obadingayo. Ngokuvamile, uzobona udokotela wamathambo — udokotela ochwepheshe ekuxilongeni nasekwelapheni izifo ezihlasela amasosha omzimba. Abanye ochwepheshe obadingayo bazoncika ezimpawu zakho nokuthi zithinta kanjani umzimba wakho.

Ingabe i-lupus ingelapheka ngokuphelele?

Ngeshwa, okwamanje akukho ukwelashwa kwe-lupus . Kodwa-ke, udokotela wakho angakusiza ukuthola inhlanganisela yezindlela zokwelapha ezizokusiza ukulawula izimpawu zakho futhi zikusize ufinyelele isikhathi sokuphumula - isikhathi lapho ungenazo izimpawu noma ezimbalwa kakhulu.

Ingabe i-lupus ingavinjelwa?

Ngenxa yokuthi ochwepheshe abasazi kahle ukuthi yini ebangela i-lupus, ayikho indlela yokuyivimbela . Uma omunye wabazali bakho ene-lupus, khuluma nodokotela wakho ngengozi yakho.

Ungakuvimbela kanjani ukuqubuka kwe-lupus?

Nakuba i-lupus ingenakuvinjelwa, kunezinto eziningana ongazenza ukuze unciphise futhi uvimbele ukuqubuka kwesifo. Lokhu kuhlanganisa nokugwema izinto ezenza izimpawu zakho zibe zimbi kakhulu.

• Gwema ukuchayeka elangeni: Kwabanye abantu, ukuchayeka elangeni isikhathi eside kungenza izimpawu ze-lupus zibe zimbi kakhulu. Ngakho-ke, nciphisa isikhathi sakho ngaphandle ngesikhathi selanga elishisa kakhulu (ngokuvamile phakathi kuka-10 ekuseni no-4 ntambama). Uma uphuma ngaphandle, gqoka amahembe anemikhono emide, isigqoko, nezingubo zokuvikela ilanga. Sebenzisa isivikelo selanga esine -SPF okungenani engu-50 .
• Hlala umatasa: Ubuhlungu bamalunga ngezinye izikhathi bungenza kube nzima ukunyakaza noma ukuzivocavoca. Kodwa-ke, ukunyakaza okuthambile nokuzivocavoca kuyizindlela ezinhle kakhulu zokunciphisa izimpawu ezifana nobuhlungu nokuqina. Ukuhamba, ukugibela ibhayisikili, ukubhukuda, i-yoga, kanye ne-tai chi konke kuyizindlela ezinhle zokunyakaza umzimba wakho ngaphandle kokucindezela kakhulu amalunga akho. Buza udokotela wakho ngezivivinyo eziphephile ukuthi uzenze.
• Lala ngokwanele futhi unakekele impilo yakho yengqondo: Ukuphila ne-lupus kungaba yinto ecindezelayo ngezinye izikhathi. Ukulala ngokwanele (amahora angu-7-9 kumuntu omdala) nokunciphisa ukucindezeleka kungasiza abanye abantu ukuba bagweme ukuqubuka. Isazi sokusebenza kwengqondo noma omunye umeluleki wezempilo yengqondo angakusiza ukuthi uthuthukise izindlela zokubhekana nesimo.

Kufanele ngimbone nini udokotela?

Uma uthola izimpawu ezintsha, noma uma unomuzwa wokuthi izimpawu zakho ziyashintsha, bona udokotela ngokushesha. Ngisho nezinguquko ezincane ezimpawu zakho zingaba yinto ebalulekile.

Uma unomuzwa wokuthi ukwelashwa kwakho kwamanje akulawuli izimpawu zakho ze-lupus, tshela udokotela wakho . Uma uhlaselwa kakhulu yizinhlungu noma uma izimpawu zakho ziba zimbi kakhulu, tshela udokotela wakho. Udokotela wakho angakusiza ukuthi ulungise ukwelashwa kwakho njengoba kudingeka.

Esimweni esiphuthumayo, okungukuthi, uma uhlangabezana nezimpawu ezinjengalezi, iya esibhedlela ngokushesha noma ushayele ku-1990:

• Uma ungakwazi ukuphefumula.
• Uma kukhona ubuhlungu obukhulu.
• Uma ucabanga ukuthi unezimpawu zokuhlaselwa yinhliziyo.

Yimiphi imibuzo okufanele ngiyibuze udokotela wami?

Uma ubona udokotela, kuwumqondo omuhle ukubuza imibuzo efana nale:

• Ingabe ngine-lupus noma esinye isifo sokuzivikela komzimba?
• Hlobo luni lwemithi engiyidingayo?
• Kufanele ngikubone kangaki ('ama-aphoyintimenti okulandelela')?
• Ingabe kuzodingeka ngibone abanye ochwepheshe?
• Ungangitshela ngamaqembu okusekela noma ezinye izinsizakalo zempilo yengqondo ezingangisiza?

Okokugcina, okufanele ukukhumbule (Umyalezo Wokuya Ekhaya)

I-Lupus ingaba yisimo esicasulayo nesiqeda amandla ngezinye izikhathi. Ukuphila nobuhlungu, ukuvuvukala, kanye nokungakhululeki emzimbeni wakho wonke akulula. Kodwa, ungakhohlwa ukuzazisa . Ukuphila nesifo esingamahlalakhona kuwumsebenzi onzima, ngakho-ke ufanele ukuqashelwa ngomzamo owenzayo ekuphatheni izimpawu zakho nsuku zonke.

Uma ucabanga ukuthi kungaba usizo ukukhuluma nothile ngemicabango nemizwa yakho, buza udokotela wakho ngezinsizakalo zempilo yengqondo namaqembu okusekela.

Ungesabi ukukhuluma nodokotela wakho ubuze imibuzo. Ngisho nezinguquko ezincane ezimpawu zakho zingaba uphawu lokuthi i-lupus ikuthinta ngendlela ehlukile. Khumbula, uma unomuzwa wokuthi kukhona okungahambi kahle emzimbeni wakho, ungumahluleli ongcono kakhulu.

I- Lupus, i-SLE, izifo zokuzivikela komzimba, ubuhlungu bamalunga, ukuqubuka kwesikhumba, ukwelashwa kwe-lupus, izimpawu ze-lupus