Ingabe ngezinye izikhathi uvuka ekuseni uzizwe sengathi awunawo amandla? Ngisho noma ulala kahle amahora amaningi ebusuku, usazizwa ukhathele njengokungathi wenze umsebenzi omningi usuku lonke? Uma uzizwa sengathi umzimba wakho wonke ubuhlungu futhi awukwazi ukugxila ngisho nangemva kokwenza umsebenzi omncane, njengokuhlanza indlu noma ukuya esitolo, kufanele ufunde lesi sihloko. Mhlawumbe awukhathele nje kuphela. Namuhla sikhuluma ngesimo abantu abaningi abangasazi, kodwa esithinta kakhulu impilo yabo.
Kalula nje, iyini i-Chronic Fatigue Syndrome (ME/CFS)?
Nakuba igama elide elithi `(Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)` liyinkimbinkimbi kancane, silibiza ngokuthi i-Chronic Fatigue Syndrome `(Chronic Fatigue Syndrome)` noma `(ME/CFS)` ngamafuphi. Kalula nje, kuyisimo esingamahlalakhona, okusho isikhathi eside. Uphawu oluyinhloko nolunzima kakhulu ukukhathala okungavamile, okukhulu.
Cabanga ngakho, lokhu akusikho nje ukukhathala esikuzwayo kusihlwa ngemva kokusebenza usuku lonke. Lokhu kujule kakhulu kunalokho. Lokhu kukhathala akupheli kungakhathaliseki ukuthi siphumule kangakanani noma ukuthi silele kangakanani. Kufana nokuthi ifoni yakho ishajwa ngo-100%, kodwa yehla yaya ku-10% ngemizuzu eyishumi. Kungakhathaliseki ukuthi siphumule kangakanani, lokho kukhathala akupheli.
Esinye isici esiyingqayizivele salesi simo ukuthi siba sibi kakhulu ngemva kokuzikhandla ngokomzimba noma ngokwengqondo. Lokhu sikubiza ngokuthi 'i-post-exertional malaise'. Lokhu kusho ukuthi noma ngabe wenza umsebenzi omncane, ungase ukuthole kunzima ukuvuka embhedeni izinsuku eziningi ngemva kwalokho. Lokhu kwenza kube nzima kwabanye abantu ukwenza imisebenzi yabo yansuku zonke, ukuya emsebenzini, noma ngisho nokuya esikoleni.
Yiziphi izimpawu eziyinhloko zalesi simo?
Izimpawu ze-ME/CFS zingahluka kakhulu kumuntu nomuntu. Ubukhali bezimpawu bungahluka nosuku nosuku. Ngezinye izinsuku ungase uzizwe ungcono kancane, kodwa ngosuku olulandelayo ungase ungakwazi ukuvuka embhedeni. Ake sibheke izimpawu eziyinhloko.
| Isibonakaliso | Kuzwakala kanjani lokhu? |
|---|---|
| Izici eziyinhloko | |
| Ukukhathala/ukukhathala okukhulu | Lesi yisibonakaliso esiyinhloko. Lokhu kukhathala akupheli ngisho nangemva kokuphumula noma ukulala kahle. Lesi simo sihlala isikhathi esingaphezu kwezinyanga eziyisithupha. |
| Izinkinga zokulala | Ungase ungakwazi ukulala ebusuku, noma ungase uvuke njalo. Ngisho nalapho uvuka ekuseni, awuzizwa uqabulekile njengokungathi ulele. |
| Ubuhlungu Bomzimba Ngemva Kokuzivocavoca | Ngisho nokwenza imisebenzi emincane yomzimba noma yengqondo (isib. ukufunda incwadi, ukuhamba ibanga elifushane) kungabangela izimpawu zibe zimbi kakhulu. |
| Izinkinga zokucabanga nenkumbulo | Lokhu kubizwa nangokuthi "inkungu yobuchopho." Kufana nokuba nenkungu ekhanda lakho. Awukwazi ukugxila, awukwazi ukukhumbula okufundile, futhi uzizwa sengathi amazwi akho awaphumi. |
| Ezinye izimpawu ezivamile | |
| Ubuhlungu | Ubuhlungu bekhanda, izinhlungu zemisipha, kanye nobuhlungu bamalunga (ngaphandle kokuvuvukala) kuvamile. |
| Isiyezi kanye nokuquleka | Uma umi noma uvuka endaweni yokuhlala, ungase uzizwe unesiyezi futhi amehlo akho angase azizwe eluhlaza okwesibhakabhaka. |
| Ezinye izici zomzimba | Izimpawu ze-IBS, njengezindlala ezivuvukele, ukuzizwa ubanda, ukujuluka ebusuku, ukungazweli ezandleni nasezinyaweni, ubuhlungu besisu, ukuqunjelwa, kanye nezinkinga zokubona, nazo zingavela. |
| Imiphumela yengqondo nengokomzwelo | Ukugula ngaso sonke isikhathi kungaholela ezimweni ezinjengokukhathazeka, ukucasuka, kanye nokucindezeleka. |
Kungani kwenzeka into efana nale? Yiziphi izizathu?
Eqinisweni, odokotela abakakazi kahle ukuthi yini ebangela i-ME/CFS. Okwamanje kukholelwa ukuthi ayibangelwa yimbangela eyodwa, kodwa yinhlanganisela yezici. Nazi ezinye zezinto ucwaningo oluzithole:
- Izinguquko Esistimu Yokuzivikela Emzimbeni: Uhlelo lokuzivikela komzimba, oluvikela imizimba yethu ezifweni, ngezinye izikhathi lungaphazamisa kancane. Njengakwezinye izimo zokuzivikela komzimba, uhlelo lokuzivikela komzimba lungahlasela ngephutha amangqamuzana ethu amahle.
- Izinkinga Ngokukhiqizwa Kwamandla: Amaseli ayizingxenye ezincane kakhulu emizimbeni yethu. Lawa maseli awakwazi ukuguqula kahle ukudla esikudlayo kube amandla. Ngenxa yalokho, ubuchopho bethu nemisipha akunawo amandla anele okusebenza.
- Izici Zezakhi Zofuzo: Lesi simo sivame ukwenzeka emindenini. Kucatshangwa ukuthi sinesakhi sezakhi zofuzo, kodwa akukho sakhi esithile esitholiwe.
Ngezinye izikhathi lesi simo singavela ngemva kwesigameko. Lokhu sikubiza ngokuthi 'izisusa'.
Ngokwesibonelo:
- Ukutheleleka ngegciwane: Lokhu kungaqala ngemva kokutheleleka ngegciwane njengegciwane le-Epstein-Barr (igciwane elibangela i-chickenpox) kanye negciwane le-Ross River. Muva nje, kutholakale ukuthi abanye abantu abane-COVID-19 nabo babhekana nalolu hlobo lokukhathala kwesikhathi eside.
- Ukucindezeleka okukhulu kwengqondo noma ngokomzimba: Lezi zimpawu zingavela futhi ngemva kwesigameko esifana nokuhlinzwa okukhulu, ingozi, noma ukufa kothandekayo.
Udokotela uhlonza kanjani lokhu?
Uma unalezi zimpawu, into yokuqala okufanele uyenze ukubona udokotela wakho. Kodwa khumbula, akukho ukuhlolwa kwegazi okukodwa noma iskeni esingaxilonga i-ME/CFS.
Ngakho-ke, udokotela uzoqinisekisa ukuthi azikho ezinye izifo. Kunezinye izimo ezingabangela izimpawu ezinjengalezi. Isibonelo, izinkinga ze-thyroid, isifo sikashukela, i-anemia, njll. Ngakho-ke, udokotela uzokucela ukuthi wenze ukuhlolwa kwegazi, ukuhlolwa komchamo, njll.
Ngemva kwakho konke lokho okwenziwe, futhi sekuqinisekisiwe ukuthi azikho ezinye izifo, futhi izimpawu zakho ziyafana neze-'ME/CFS', khona-ke lokhu kuxilongwa kwenziwa. Amaphuzu alandelayo abhekwa kakhulu:
- Ingabe ukhathala kakhulu okuhlala isikhathi esingaphezu kwezinyanga eziyisithupha futhi okungaphumuli ngokuphumula?
- Ingabe umzimba wakho uzizwa ungaphili ngisho nangemva kokulala?
- Ingabe izimpawu ziba zimbi kakhulu ngemva kokuzikhandla?
- Ingabe unezimpawu "zokungabekezeleli ukunyakaza kwamalunga" njengenkungu yobuchopho noma isiyezi lapho umi?
Kungathatha isikhathi ukuthola ukuxilongwa. Kufanele wenze izivivinyo eziningi. Kungaba nzima kakhulu, ngoba usuvele usesimweni esinzima. Kodwa ukuthola ukuxilongwa kuyisinyathelo sokuqala nesibaluleke kakhulu ekutholeni ukwelashwa okufanele.
Indlela yokwelapha? Indlela yokwenza impilo ibe lula?
Kuyiqiniso ukuthi alikho ikhambi lalokhu okwamanje. Kodwa lokho akusho ukuthi alukho usizo kuwe. Kunezindlela eziningi zokuphatha izimpawu zakho nokwenza impilo ibe lula kakhulu. Uhlelo lokwelapha luhlukile kumuntu ngamunye. Udokotela wakho uzokhetha lezo ezikufanele kakhulu.
Izinto eziyinhloko okufanele ugxile kuzo yilezi:
- Imisebenzi Yokuhamba Ngejubane: Lena yinto ebaluleke kakhulu. Kalula nje, ukuqonda "umkhawulo wakho wamandla" nokusebenza ngaphakathi kwalowo mkhawulo. Thatha ikhefu ngaphambi kokuba "uphelelwe amandla ngokuphelele." Isibonelo, esikhundleni sokuhlanza indlu usuku lonke, hlanza ikamelo elilodwa nje bese uthola ukuphumula okwanele. Udokotela wakho uzokusiza ukuphatha lokhu ngendlela efanele.
- Ukushintsha imikhuba yokulala: Ukujwayela ukulala ngesikhathi esifanayo nsuku zonke, ukuvuka ngesikhathi esifanayo, ukugwema ukulala isikhathi eside emini, nokuyeka ukubuka i-TV namafoni ngaphambi kokulala kungathuthukisa ikhwalithi yokulala kwakho.
- Imithi: Nakuba kungekho ukwelashwa okuqondile kwe-ME/CFS, izimpawu ezihambisana nayo zingelashwa. Isibonelo, udokotela wakho angase akunike imithi yokwelapha izinhlungu, amaphilisi okulala ezinkinga zokulala, kanye nemithi yokucindezeleka.
- Ukusekelwa kwempilo yengqondo: Ukuphila nesifo esingamahlalakhona esinjengalesi kungaba yinselele engqondweni. Ngakho-ke, ukuze akusize ujwayele le ndlela entsha yokuphila, udokotela wakho angakudlulisela ku-psychotherapy, ikakhulukazi i-Cognitive Behavioral Therapy (CBT). Lokhu kukusiza ukuthi ulawule ukucindezeleka kwalesi sifo.
Into ebaluleke kakhulu ukuthi akudingeki ulwe nalezi zinto wedwa. Thola ukwesekwa kudokotela wakho, emndenini nakubangani.
Impilo izoqhubeka kanjani nalesi simo?
I-ME/CFS ayifani kuwo wonke umuntu. Kwabanye abantu, izimpawu zingase zithuthuke kancane kancane ngokuhamba kwesikhathi. Kodwa kwabanye, izimpawu zingase ziqhubeke isikhathi eside. Akuvamile ukuba abantu balulame ngokuphelele kulesi sifo.
Kunemibono ehlukene ngokuthi lesi simo siyanciphisa yini isikhathi sokuphila. Abanye abantu baphila impilo evamile. Kodwa-ke, ucwaningo lukhombisile ukuthi abanye abantu basengozini yokuzibulala ngenxa yokucindezeleka kanye nezinguquko empilweni ezihambisana nakho. Ngakho-ke, ukunakekela impilo yakho yengqondo kubaluleke kakhulu. Uma uzizwa ukhungathekile, unesizungu, noma unesithukuthezi ngempilo, sicela ukhulume nodokotela wakho noma othile omethembayo ngakho.
Umlayezo Wokuya Nawe Ekhaya
- I-ME/CFS iyisimo sezokwelapha sangempela nesibucayi. Akusona "isithukuthezi" noma "inkohliso."
- Ukukhathala okukhulu okuzwakala kulesi simo akupheli ngokuphumula noma ukulala okuvamile.
- Uma unezimpawu ezinjengalezi ezihlala isikhathi esingaphezu kwezinyanga eziyisithupha, isinyathelo sokuqala kufanele kube ukubona udokotela bese uthola ukuxilongwa okufanele.
- Nakuba kungekho ikhambi lalokhu okwamanje, kunezindlela eziningi zokuphatha izimpawu nokuphila impilo enhle. Ukuzivumelanisa nezimo kuyingxenye ebalulekile yalokhu.
- Impilo yakho yengqondo ibaluleke njengempilo yakho engokomzimba. Ungalokothi unqikaze ukufuna usizo lokubhekana nokucindezeleka okuhambisana nalesi simo.
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