Ingabe wena noma othile omaziyo unesifo segazi esingavamile esibizwa ngokuthi i-Paroxysmal Nocturnal Hemoglobinuria , noma i-PNH ngamafuphi? Kungase kuzwakale kuyinkimbinkimbi, kodwa ngamazwi alula, kuyisimo lapho amangqamuzana egazi abomvu emizimbeni yethu ewohloka ngaphambi kwesikhathi. Lokhu kungaholela ezinkingeni eziningana, okuhlanganisa i-anemia, ukukhathala, kanye nama-blood clots. Ngakho-ke namuhla sizokhuluma ngomuthi wokugomela obizwa ngokuthi i-Pegcetacoplan (obizwa ngokuthi i-peg-seta-co-plan) olethe ithemba elisha kubantu abaningi abanalesi simo.
Iyini i-Pegcetacoplan? Isebenza kanjani?
Cabanga ngamaseli ethu abomvu egazi njengezimoto ezincane ezithwala umoya-mpilo emzimbeni wonke. Kumuntu one-PNH, isimiso somzimba sokuzivikela (ibutho elisivikela ezifweni) ngephutha sicabanga ukuthi la maseli abomvu egazi ayizitha bese siwahlasela futhi siwabhubhise. Lokhu kungenxa yokungasebenzi kahle kwengxenye yesimiso somzimba sokuzivikela esibizwa ngokuthi uhlelo Lokugcwalisa .
Yilapho umuthi obizwa ngokuthi i-Pegcetacoplan ungena khona. Lo muthi wokugoma ufana nomvikeli ohlakaniphile. Usebenza ngokumisa ingxenye yesimiso somzimba sokuzivikela ehlasela ngephutha futhi ivikele amangqamuzana ethu abomvu egazi. Lokhu kulawula ukuwohloka kwamangqamuzana abomvu egazi futhi kunciphisa kakhulu izimpawu ze-PNH.
Kalula nje, i-Pegcetacoplan iyisidakamizwa esisebenza njengesivikelo esivikela amangqamuzana akho abomvu egazi.
Izinto okudingeka uzitshele udokotela wakho ngaphambi kokusebenzisa lo muthi
Ngenxa yokuthi lo muthi ubaluleke kangaka, kubalulekile ukuxoxa ngezinto ezithile ngokukhululekile nodokotela wakho ngaphambi kokuqala ukwelashwa. Ukuze uphephe, ungazifihli lezi zinto.
- Ingabe unazo izifo okwamanje? Tshela udokotela wakho nganoma yiziphi izifo, njengomkhuhlane, umkhuhlane, ukukhwehlela, noma umphimbo obuhlungu.
- Ingabe unayo eminye imithi yokungezwani komzimba? Hhayi nje kuphela kulo muthi, kodwa nanoma yimuphi omunye umuthi, ukudla, noma izithasiselo, sicela usazise ngazo.
- Ingabe ukhulelwe? Noma uhlela ukukhulelwa? Kubalulekile ukufuna iseluleko sezokwelapha ngaphambi kokunquma ukusebenzisa lo muthi ngesikhathi sokukhulelwa.
- Ingabe ungumama oncelisayo? Kufanele futhi ukhulume nodokotela wakho mayelana nokusebenzisa lo muthi ngenkathi uncelisa.
Ungayisebenzisa kanjani imithi?
I-Pegcetacoplan iwumjovo ongazinika wona ekhaya. Umjovo ongaphansi kwesikhumba . Kungase kubonakale kuyesabeka kancane ekuqaleni, kodwa ungakhathazeki.
Ngokuvamile, udokotela wakho noma umhlengikazi oqeqeshiwe uzokukhombisa ngokucacile ukuthi ungawusebenzisa kanjani kahle lo muthi wokugoma.
- Indlela yokulungisa ibhodlela lomuthi.
- Inani elifanele lomuthi okufanele uthathwe ngesirinji.
- Izindawo ezifanele zokujova (ikakhulukazi esiswini, endaweni yethanga).
- Indlela yokuhlanza isikhumba.
Bazokusiza ukuthi ujwayele konke lokhu. Imiphumela emihle kakhulu itholakala ngokuthola umuthi wokugoma njengoba kunqunywe udokotela, ngezinsuku ezihleliwe, futhi cishe ngesikhathi esifanayo .
Ukulahlwa ngokuphephile kwezinaliti kanye nesirinji
Lokhu kubaluleke kakhulu. Ungalokothi ulahle izinaliti ezisetshenzisiwe kanye namasirinji kudoti ojwayelekile. Kuyingozi kakhulu kuwe, emndenini wakho, kanye nasendaweni ezungezile.
Kukhona isitsha esikhethekile se-sharps esenzelwe ngqo le njongo. Ungabuza udokotela wakho noma ikhemisi ukuthi utholaphi umuthi wakho. Babuze ukuthi bangasilahla kanjani ngokuphephile isitsha uma sesigcwele.
Izinto okufanele uziqaphele uma usebenzisa umuthi
Udinga ukunakekela impilo yakho kancane ngenkathi uthatha lo muthi.
- Ukuhlolwa njalo kwezokwelapha: Udokotela wakho uzovame ukukucela ukuthi uhlolwe igazi. Qiniseka ukuthi uyakwenza lokhu ukuze ubone ukuthi ukwelashwa kusebenza kanjani. Qiniseka ukuthi uya emihlanganweni kadokotela wakho.
- Zivikele ezifweni: Njengoba lo muthi ucindezela ukusebenza kwengxenye yesimiso somzimba sokuzivikela, ingozi yokuthola ezinye izifo inganda kancane. Ngakho-ke, uma uzwa izimpawu ezifana nomkhuhlane, ukubanda, umphimbo obuhlungu, ukukhwehlela, amanxeba angapholi, noma ubuhlungu lapho uchama , ungaziphilisi futhi ushayele udokotela wakho ngokushesha . Nciphisa ukuvakashela kwakho izindawo lapho abantu begula khona.
Imiphumela emibi engaba khona yomuthi
Njenganoma yimuphi umuthi, i-Pegcetacoplan ingabangela imiphumela emibi. Eminye yale miphumela kufanele ibikwe ngokushesha, kanti eminye ayibi kangako.
| Uhlobo lomphumela ongemuhle | Izimpawu |
|---|---|
| Izinto okufanele uzibike kudokotela wakho ngokushesha | |
| Ukusabela Kokungezwani Nomzimba | Ukuqubuka kwesikhumba, ukulunywa, ukuvuvukala kobuso, izindebe, ulimi noma umphimbo, ubunzima bokuphefumula. |
| Izimpawu Zokutheleleka | Umkhuhlane, ukubanda, ukukhwehlela, umphimbo obuhlungu, amanxeba angapholi, izifo zomgudu womchamo, kanye nokungaphatheki kahle. |
| Izinto ezingavamile ukuba zimbi kakhulu, kodwa okufanele zibikwe kudokotela uma ziqhubeka | |
| Ukungakhululeki endaweni yokujova | Ubuhlungu, ukubomvu, noma ukuvuvukala okuncane endaweni yokujova. |
| Ezinye izinkinga ezincane | Uhudo, ukukhathala, ubuhlungu besisu. |
Kuthiwani uma ngiphuthelwa umthamo wemithi?
Uma uphuthelwa umthamo, thatha ngokushesha nje lapho ukhumbula. Kodwa-ke, uma sekuyisikhathi somthamo wakho olandelayo, yeqa umthamo ophuthelwe bese uthatha umthamo wakho olandelayo ngesikhathi esihleliwe. Ungalokothi uthathe imithamo emibili ngesikhathi esisodwa.
Kuthiwani uma ngiphuza umuthi omningi kakhulu?
Uma ucabanga ukuthi ngephutha uthathe lo muthi omningi kakhulu, isinyathelo esisheshayo ukuya eMnyangweni Wezimo Eziphuthumayo (i-ETU) wesibhedlela esiseduze noma ushayele i-National Poisons Information Centre e-Colombo National Hospital .
Ungawugcina kanjani umuthi?
- Gcina lo muthi esiqandisini . Ungawugcini esiqandisini/efrijini elijulile.
- Khipha umuthi wokugoma esiqandisini cishe imizuzu engama-30 ngaphambi kokuwunikeza bese uwuvumela ufike ezingeni lokushisa legumbi.
- Kungcono ukuyigcina ebhokisini lokuqala eyayingeniswe kulo, ukuze ivikeleke ekukhanyeni.
- Gcina kude nezingane nezilwane ezifuywayo.
- Ungasebenzisi umuthi ophelelwe yisikhathi.
Lo muthi ungowakho kuphela. Unikezwe udokotela wakho, ngakho ungawunikezi omunye umuntu.
Umlayezo Wokuya Nawe Ekhaya
- I-Pegcetacoplan iwumjovo onikezwa ngaphansi kwesikhumba ovimba ukuwohloka kwamaseli abomvu egazi esifweni segazi esingavamile esibizwa ngokuthi i-PNH.
- Ngaphambi kokuqala lo muthi, tshela udokotela wakho ngazo zonke izimo zakho zezokwelapha kanye nokungezwani komzimba.
- Kubaluleke kakhulu ukuphuza umuthi ngesikhathi esifanele nangesilinganiso esifanele.
- Uma uba nezimpawu zokutheleleka njengomkhuhlane nokukhwehlela, funa iseluleko sezokwelapha ngokushesha.
- Ungalokothi ulahle izinaliti ezisetshenzisiwe kanye nesirinji emgqonyeni kadoti. Sebenzisa isitsha esikhethekile (iSharp Container) ngalokho.
- Uma unemibuzo mayelana nalomuthi, ungangabazi ukubuza udokotela wakho.
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