Ingabe uhlala ugula? Noma uzizwa sengathi uthelelana kakhulu kunabanye abakuzungezile? Uma unomkhuhlane kodwa kuthatha isikhathi eside ukuba ngcono, ungamane uwuthathe njengento evamile. Kungenzeka ukuthi isimiso sokuzivikela somzimba wakho, isimiso sokuzivikela komzimba, sibuthakathaka kancane. Namuhla sizokhuluma ngesihloko abantu abaningi abangasazi, kodwa sibaluleke kakhulu. Leso yiSifo Esiyinhloko Sokuntuleka Kwamasosha Omzimba (i-PIDD).
Kuyini i-Primary Immunodeficiency?
Kalula nje, amasosha omzimba wethu afana nebutho elivikela izwe. Umsebenzi waleli butho ukusivikela ezifweni ngokulwa nabahlaseli bakwamanye amazwe, njengamabhaktheriya namagciwane.
Ake ucabange nje, bekuzokwenzekani uma amanye amasosha akuleli butho engaqeqeshwanga kahle, noma uma engenazo izikhali azidingayo? Bekuyoba lula kakhulu ngezitha ukungena ezweni bese zibangela umonakalo, akunjalo? Kunjalo nangomuntu one-Primary Immunodeficiency Syndrome (PIDS). Kulesi simo, izingxenye zesimiso sakho somzimba azisebenzi kahle kusukela ekuzalweni. Lokhu kusho ukuthi izivikelo zomzimba wakho zibuthakathaka kancane.
Ngenxa yalokhu, ungase ugule kaningi kunabanye. Futhi, kungenzeka kakhulu ukuthi ube nesifo esibi kakhulu noma izinkinga ezibangelwa ukugula okuvame ukuba lula futhi okuzikhawulela.
Yiziphi izinhlobo eziyinhloko zalokhu?
Kunezinhlobo ezingaphezu kuka-400 zalezi zifo eziyinhloko zokuntuleka kwamasosha omzimba. Ezinye zincane kakhulu futhi azikuthinti kakhulu. Kodwa ezinye izinhlobo zingaba zimbi kakhulu, zize zisongele nokuphila. Ezinye izinhlobo zibonisa izimpawu lapho uzalwa, kanti ezinye zingase zingabonisi izimpawu uze ube mdala.
Ngezansi kunezinye zezimo eziyinhloko eziwela kulesi sigaba. La magama angase azwakale engajwayelekile kuwe, kodwa kubalulekile ukuwaqaphela lapho ukhuluma nodokotela.
| Igama Lesifo | Isingeniso esifushane |
|---|---|
| Ukuntuleka kwamasosha omzimba okuvamile (i-CVID) | Uhlobo oluvamile olubangela ukutheleleka okuvamile. |
| I-Ataxia-telangiectasia | Isimo esithinta hhayi nje kuphela amasosha omzimba, kodwa futhi nesimiso sezinzwa. |
| Isifo se-granulomatous esingamahlalakhona (CGD) | Isimo lapho amangqamuzana omzimba engakwazi ukubhubhisa amagciwane athile. |
| I-DiGeorge syndrome | Isimo sofuzo esikhona lapho umuntu ezalwa singathinta isimiso somzimba sokuzivikela kanye nenhliziyo. |
| Ukuntuleka kwe-IgA ekhethiwe | Isimo esivamile lapho iphrotheni ethile ohlelweni lokuzivikela komzimba incipha khona. |
| Ukuntuleka okukhulu kwamasosha omzimba okuhlangene (i-SCID) | Kuyisimo esibi kakhulu . Singabulala uma singelashwa ngokushesha. |
Ingabe zonke izifo zokuntuleka kwamasosha omzimba zizalwa nazo?
Cha. Lowo ngumbuzo obaluleke kakhulu. Ukuntuleka kwamasosha omzimba okukhuluma ngawo kuze kube manje yilowo ozalwa nawo, obangelwa yizimbangela zofuzo.
Kodwa-ke, kukhona olunye uhlobo olubizwa ngokuthi i-Secondary Immunodeficiency . Lokhu kwenzeka ngemva kokuzalwa kwakho, ngenxa yesinye isimo sezokwelapha, noma ngenxa yemithi oyiphuzayo. Nakuba lesi kuyisimo esihluke ngokuphelele, izimpawu zingafana kakhulu.
Into ebalulekile ukuthi ukuntuleka okuyinhloko kuyinkinga yofuzo eba khona lapho kuzalwa. Ukuntuleka kwesibili kuwubuthakathaka besimiso somzimba sokuzivikela ngenxa yesinye isizathu esenzeka kamuva.
Ake sibheke ukuthi yini engabangela ukuntuleka kwamasosha omzimba okwesibili.
| Izimbangela zokuntuleka kwamasosha omzimba okwesibili | |
|---|---|
| Izimo zezokwelapha | Imithi kanye nokwelashwa |
| - Isifo sikashukela kanye nezinye izifo ezihlasela amasosha omzimba - I-HIV ne-AIDS - Ezinye izinhlobo zomdlavuza - I-Cirrhosis yesibindi - Ukungondleki kahle | - Imithi yokucindezela amasosha omzimba - Ama-Corticosteroids - Ukwelashwa ngamakhemikhali komdlavuza - Ukwelashwa ngemisebe |
Uma ngisola ukuthi nginalesi simo, yiziphi izimpawu okufanele ngizibheke?
Kulungile, manje cishe ucabanga ukuthi, "O, angazi ukuthi nami nginale nto efana nale." Ake sibheke ukuthi yiziphi izimpawu eziyinhloko. Ukuthi nje unesinye noma ezimbili zalezi zimpawu akusho ukuthi unalesi sifo. Kodwa uma uneziningana zazo njalo, kungcono kakhulu ukubona udokotela bese uthola iseluleko.
- Ukugula kaningi kunabanye: Uma uzithola unesifo ngokushesha kunalabo abakuzungezile.
- Ukugula okuthatha isikhathi eside ukululama: Ngisho nomkhuhlane ovamile ohlala amasonto.
- Ukuthatha ama-antibiotic isikhathi eside: Ukuthatha ama-antibiotic amasonto amaningi, ngisho nokutheleleka ngamagciwane okuvame ukuphela ezinsukwini ezimbalwa.
- Ubende obukhulu.
- Ama-lymph node avuvukele.
- Ukwehla kwesisindo okungachazeki noma, uma kwenzeka ingane, ukukhula okuphazamisekile.
- Ukuphazamiseka kwesisu njalo kanye nesifo sohudo.
- Uma unikezwa umuthi wokugomela ophilayo, imiphumela emibi ingenzeka kakhulu kuneminye.
Ngokuvamile, abantu abanalezi zimo baba nezimpawu ngaphambi kokuba bafinyelele eminyakeni engu-20. Kodwa-ke, zingavela nganoma yisiphi isikhathi empilweni.
Kungani kwenzeka into efana nale?
Njengoba sishilo ngaphambili, imbangela eyinhloko yokuntuleka kwamasosha omzimba okuyinhloko izinguquko zofuzo. Njengoba nje igciwane elincane ohlelweni lwekhompyutha lingaqhubeka, izinguquko ezakhiweni zofuzo, uhlelo oluyisisekelo lomzimba wethu, zibangela ukuba isimiso somzimba sokuzivikela singakhuli noma singasebenzi kahle.
Yingakho amasosha omzimba:
- Kungabonisa ukusebenza okuphansi kunokuvamile.
- Ezinye izinhlobo ezibalulekile zamaseli kungenzeka zingekho.
- Kungase kube yinto engasebenzi nhlobo.
Lokhu akulona iphutha lakho noma yini engaphezu kwamandla akho. Kubangelwa ushintsho lwezakhi zofuzo olwenzeka ngaphambi kokuba uzalwe.
Lezi zimo zivame ukwenzeka emindenini. Lokhu kusho ukuthi uma abazali bakho noma abafowenu benalesi simo, nawe usengozini yokuba naso. Lezi zimo zivame kakhulu kwabesilisa.
Udokotela ukuthola kanjani lokhu?
Uma uya kudokotela, uzocabangela izici eziningana ukuze anqume ukuthi unalesi simo.
1. Umlando wakho wezokwelapha: Uzobuzwa nganoma yiziphi izifo osuzigule muva nje nokuthi ugula kangaki.
2. Ukuhlolwa ngokomzimba: Uzohlolwa ngokomzimba okuphelele.
3. Izimpawu zakho: Buza ngokungezwani onakho.
4. Umlando womndeni wakho: Buza ukuthi ukhona yini emndenini wakho oke waba nalesi simo.
Ngemva kwalokho, kungase kwenziwe izivivinyo eziningana ukuqinisekisa lesi sifo.
| Ukuhlolwa | Kalula nje, yilokhu okwenzayo... |
|---|---|
| Ukuhlolwa kwegazi | Bayahlola ukuthi kukhona yini ukutheleleka emzimbeni nokuthi inani lamaseli omzimba linjani. |
| Ukuhlolwa kofuzo | Kuhlolwa ukuze kubonakale ukuthi kukhona yini izinguquko zofuzo ezingadala lesi simo. |
| I-Flow cytometry | Ukuhlolwa okukhethekile okubala izinhlobo zamaseli omzimba esampuleni yegazi lakho nokuthi mangaki awo akhona. |
Yiziphi izindlela zokwelapha lokhu?
Ukwelashwa kuncike ekutheni unesifo sokuntuleka kwamasosha omzimba esinjani. Udokotela wakho uzokutshela izindlela ezingcono kakhulu zokuvimbela nokuphatha izifo.
Izindlela zokwelapha eziyinhloko ezisetshenziswayo yilezi:
- Ama-antibiotic yimithi enikezwa ukuvimbela noma ukwelapha izifo ezibangelwa amagciwane.
- Imithi yokulwa namagciwane yokutheleleka ngegciwane.
- Ukwelashwa nge-IVIG: Lokhu kuhilela ukujova umzimba wakho ngama-antibodies avela kubantu abaphilile. Kufana nokufaka iqembu elisha lamasosha aqeqeshiwe ebuthweni lomzimba wakho. Lokhu kuqinisa okwesikhashana amasosha akho omzimba.
- Ukufakelwa kwamaseli e-stem: Lokhu kuyindlela yokwelapha abantu abanezimo ezibucayi kakhulu. Kulokhu, amaseli e-stem athathwe kumuntu ophilile afakwa esigulini, ngomzamo wokwakha isimiso esisha sokuzivikela somzimba esinempilo.
- Ukwelashwa ngezakhi zofuzo: Lokhu kuyindlela entsha yokwelapha esathuthukiswa. Izama ukulungisa izakhi zofuzo ezinephutha noma ukuzishintsha ngezakhi zofuzo ezinempilo.
Kufanele ngimbone nini udokotela?
Wonke umuntu uyagula ngezikhathi ezithile. Lokho kujwayelekile. Kodwa ubani owazi umzimba wakho kangcono kunawe? Uma uzizwa sengathi, "Kukhona okungahambi kahle, ngiyagula ngaso sonke isikhathi," ungawushayi indiva lowo muzwa. Bona udokotela ngokushesha.
Futhi, uma usuvele welashwa ngalesi simo,
- Uma unomuzwa wokuthi ukuthatha umuthi akusizi
- Uma uhlaselwa umkhuhlane noma olunye ukutheleleka
Yazisa udokotela wakho ngokushesha. Uzokunikeza imiyalelo edingekayo ukuze uvimbele izinkinga.
Uphila kanjani nesimo esinjengalesi?
Ukuphila nalesi simo kungaba yinselele. Kufanele uqaphele izifo ngaso sonke isikhathi. Kungase kudingeke uphuze imithi impilo yakho yonke. Kodwa awuwedwa. Udokotela wakho, umndeni wakho, nabangani bakho bangakusiza.
Kunezinto ezimbalwa ezilula ongazenza ukuvimbela ukutheleleka:
- Geza izandla zakho kahle njalo ngensipho. Lokhu kubaluleke kakhulu ngaphambi kokudla nangemva kokusebenzisa indlu yangasese.
- Thola imijovo enconywe udokotela wakho ngesikhathi.
- Ukulala ngokwanele .
- Ukulandela ukudla okunempilo nokulinganiselayo .
- Ukuhlala uvivinya umzimba ngangokunokwenzeka.
Abathandekayo bakho nabo bangakusiza ekukuvikeleni. Tshela umndeni wakho nabangani bakho ngalokhu. Uma benomkhuhlane noma olunye ukugula, bacele ukuthi bakutshele ngaphambi kokuba beze ukuzokubona. Ngaleyo ndlela, ungazivikela ekuguleni.
Ukuphila nesimo esinjengalesi kungaba nzima ngezinye izikhathi. Kodwa khumbula, lokhu kumane nje kuyingxenye yempilo yakho. Akuchazi ukuthi ungubani.
Umlayezo Wokuya Nawe Ekhaya
- I-Primary immunodeficiency (PIDD) iwubuthakathaka bokuzalwa, obuvela ku-genetic system.
- Uphawu oluyinhloko ukutheleleka okuvamile, okunzima, noma okuhlala isikhathi eside.
- Uma wena noma ingane yakho ninezinye zalezi zimpawu, kubaluleke kakhulu ukufuna iseluleko sezokwelapha kunokuzilahla ngokuthi "yilokho kanye."
- Ngokuhlonza kahle kanye nokuphathwa okufanele, ungaphila impilo enhle ngalesi simo.
- Lesi sifo siyingxenye nje yempilo yakho, asichazi ukuthi ungubani.
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