Ungacabanga uvuka ekuseni ngolunye usuku ube nezimpawu ezifana nokuba ndikindiki kolunye uhlangothi lomzimba wakho kanye nokungaboni kahle, bese kuthi ezinsukwini noma emavikini ambalwa, konke lokho kuphele ngokuphelele. Bese ungabi nazinkinga izinyanga, mhlawumbe ngisho neminyaka. Konke kubuyela esimweni esijwayelekile. Bese ngokuzumayo uba nezinye izimpawu, mhlawumbe ngisho nobunzima bokuhamba. Sikhuluma ngesimo esinezimpawu ezifika zidlule kanje. Yilokhu esikubiza ngokuthi i-RRMS kwezokwelapha.
Kalula nje, iyini i-RRMS?
I-RRMS isifinyezo se-'Relapsing-Remitting Multiple Sclerosis'. Lolu uhlobo oluvame kakhulu lwe-'Multiple Sclerosis' (MS). Eqinisweni, cishe abantu abangu-80-85 kwabayi-100 abane-MS banalolu hlobo lwe-'RRMS'.
Kulungile, manje ake sibheke incazelo yaleli gama.
- Ukubuyela emuva: Lokhu kubhekisela esikhathini lapho izimpawu zivele khona ngokuzumayo noma ziba zimbi kakhulu. Abanye abantu bakubiza nangokuthi 'ukuqhuma'. Lesi sikhathi singahlala kusukela ezinsukwini ezimbalwa kuya emavikini ambalwa.
- Ukuyeka: Lokhu kubhekisela esikhathini lapho izimpawu ziphela kancane kancane bese ubuyela esimweni esijwayelekile, ngokuphelele noma ngokwengxenye. Ungase ungabi nazimpawu phakathi nalesi sikhathi.
Kalula nje, i-RRMS yisimo esishintshashintsha phakathi kwezinkathi zokuqubuka kwezimpawu kanye nezinkathi zokukhululeka kwezimpawu.
I-MS yisimo sokuzivikela komzimba lapho isimiso somzimba wethu sokuzivikela, uhlelo olusivikela ezifweni, sihlasela ngephutha isimiso sethu sezinzwa esiyinhloko. Kubalulekile kuwe nodokotela wakho ukuthi nibone kahle uhlobo lwesifo, i-RRMS, ngoba yileyo ndlela eninganquma ngayo ukwelashwa okufanele kakhulu kuwe.
Yiziphi izimpawu ezivamile ezibonakala ku-RRMS?
Lezi zimpawu azenzeki kubo bonke ngendlela efanayo. Zingahluka kakhulu kumuntu nomuntu. Ngezinye izikhathi eziningana zalezi zimpawu zingavela ndawonye. Esinye noma ngaphezulu salezi zingavela ngesikhathi sokubuyela emuva.
| Isibonakaliso | Incazelo elula |
|---|---|
| Izinguquko ekuboneni | Izinto ezifana nokubona okufiphele, ukubona okukabili, ukungakwazi ukuhlukanisa imibala, kanye nobuhlungu lapho uhambisa iso. |
| Ukuba ndikindiki noma ukulahlekelwa umuzwa | Ukuzwa sengathi ungezwa noma ulahlekelwe umuzwa ezandleni, ezinyaweni, ebusweni, noma kwezinye izingxenye zomzimba. |
| Ukuqina okuzungeze isifuba noma isisu | Kuzwakala sengathi othile ukugona ngokuqinile esifubeni noma esiswini sakho. Abanye abantu bakubiza nangokuthi "ukugona kwe-MS." |
| Ukukhathala | Ukuzizwa ukhathele kakhulu, ungabekezeleleki okungaphezu kokuvamile. Lokhu kukhathala kungase kunganciphi ngisho nangemva kokulala kahle ebusuku. |
| Izinkinga zomchamo kanye namathumbu | Izinkinga ezinjengobunzima bokuqala ukuchama, ukuphuthuma komchamo (ukuphuthuma komchamo), kanye nokungakwazi ukulawula umchamo. |
| Ukuzizwa sengathi ushaqekile ngogesi. | Umuzwa wokushaqeka kukagesi okwehla emgogodleni lapho intamo igobile phambili. (Isibonakaliso sikaLhermitte) |
| Ubunzima bokuhamba nezinkinga zokulinganisela | Ukukhubeka ngenkathi uhamba, ukulahlekelwa yibhalansi, ubunzima bokuhamba ngenxa yobuthakathaka bemisipha. |
| Ubuthakathaka noma ukuqina kwemisipha | Ukuncipha kwamandla emisipha noma ukuqina okungavamile (ukuqaqamba). |
| Izinkinga zokucabanga nenkumbulo | Ubunzima bokugxilisa ingqondo, ukulahlekelwa yinkumbulo, ubunzima bokuthola amagama, njll. Lokhu kubizwa nangokuthi "i-brain fog". |
Nakuba abanye abantu bezwa ubuhlungu obuphelele bezimpawu zabo, abanye bangase babe nezimpawu ezisele. Ezimweni ezinjalo, i-physiotherapy, imithi, noma imijovo efana ne-Botox®, njengoba kuqondiswe udokotela wakho, ingasiza ekulawuleni izimpawu zakho.
Ingabe zikhona izimbangela ezenza izimpawu zibe zimbi kakhulu?
Yebo, izinto ezithile zingabangela ukuthi izimpawu zakho zibuye noma zibe zimbi kakhulu. Kodwa lezi 'zibangela' azithinti wonke umuntu ngendlela efanayo. Okuthinta umuntu oyedwa kungase kungamthinti omunye.
Nazi ezinye zezinto ezivame ukubangela:
- Ukucindezeleka: Ukucindezeleka ngokweqile kungaba yimbangela enkulu yezimpawu.
- Izinga lokushisa: Izinga lokushisa eliphezulu, umkhuhlane, noma ngisho nokubanda okukhulu kwabanye abantu kungenza izimpawu zibe zimbi kakhulu.
- Ukutheleleka: Ngisho nokutheleleka okuncane, njengomkhuhlane ovamile noma ukutheleleka komgudu womchamo, kungabangela izimpawu ze-MS ezindala ukuba ziphinde zivele.
- Ukusetshenziswa kwemikhiqizo kagwayi: Ukubhema kungasheshisa ukuqhubeka kwesifo futhi kubhebhethekise izimpawu.
- Ukuntuleka kwe-Vitamin D: Ucwaningo luthole ukuthi amazinga aphansi e-vitamin D nawo ayathinta isifo se-MS kanye nezimpawu zaso.
Kungani lesi sifo sikhula? Iyini imbangela?
Eqinisweni, imbangela eqondile ye-MS ayikatholakali okwamanje , kodwa ucwaningo luthole ukuthi kunezici eziningana ezingaba nomthelela kuyo.
Cabanga nje ngemizwa yethu njengezintambo zikagesi. Lezi zintambo zizungezwe yigobolondo elivikelayo, njenge-'insulation'. Lokhu sikubiza ngokuthi 'i-myelin' . Lesi sigxobo se-myelin yisona esivumela imiyalezo ukuthi ihambe ngokushesha nangokunembile ngemizwa.
Ku-MS, isimiso sethu somzimba sokuzivikela, amasosha asivikela ezifweni, ahlasela ngephutha lesi sigxobo se-myelin. Lokhu kuhlasela konakalisa isigxobo se-myelin. Bese ukudluliselwa kwemiyalezo yezinzwa kuyaphazamiseka. Njengoba nje lapho 'ukufakwa' kwentambo kulimele, 'kuyanqamuka'. Yilapho kuvela khona izimpawu esikhulume ngazo ngaphambili.
Kukholelwa ukuthi izici zemvelo, okuhlanganisa ukuthambekela kwezakhi zofuzo kanye nokutheleleka ngamagciwane njengegciwane le-Epstein-Barr, kungabangela ukuthi isimiso somzimba sokuzivikela sihlasele ngephutha ngale ndlela.
Itholakala kanjani i-RRMS?
Ukuthola isifo se-MS kungaba yinselele, njengoba kungekho kuhlolwa okukodwa okungaqinisekisa ukuxilongwa. Udokotela wakho uzohlaziya izimpawu zakho, umlando wezokwelapha, ukuhlolwa ngokomzimba, kanye nemiphumela yezinye izivivinyo eziningana ukuze kutholakale ukuxilongwa.
Ukuhlolwa okuvame ukwenziwa kulokhu yilokhu:
- Ukuskena kwe-MRI: Ukuskena kwe-MRI (Magnetic Resonance Imaging) kobuchopho kanye nomgogodla kungabona izindawo zomonakalo (izilonda) ku-myelin sheath.
- Ukubhoboza Kwethambo: Lokhu kuhilela ukufaka inalithi encane kakhulu emgudwini womgogodla bese uthatha inani elincane loketshezi lwe-cerebrospinal ukuhlola ukuthi kukhona amaprotheni athile ku-MS, njenge-oligoclonal bands.
- Ukuhlolwa kwegazi: Ukuhlolwa kwegazi kwenziwa ukuqinisekisa ukuthi awunazo ezinye izimo ezibangela izimpawu ezifana ne-MS.
- Ukuhlolwa kwe-OCT: ``Optical Coherence Tomography`` ukuhlolwa okungenabuhlungu okuhlola i-optic nerve ngemuva kweso ukuze kubonakale ukuthi yonakaliswe yi-MS.
Yiziphi izindlela zokwelapha i-RRMS?
Nakuba kungekho ukwelashwa kwe-RRMS okwamanje, okwamanje kunezindlela zokwelapha ezisebenza kahle kakhulu ezingakusiza ukuphatha lesi sifo futhi uphile impilo evamile.
Imigomo eyinhloko yokwelashwa yile:
- Ukunciphisa inani lokubuyela emuva.
- Ukunciphisa umonakalo ohlelweni lwezinzwa oluphakathi.
- Ukulibazisa ukuqala kokukhubazeka okubangelwa yilesi sifo.
Imithi esetshenziselwa lokhu ibizwa ngokuthi imithi yokwelapha eguqula izifo (i-DMTs) . Le mithi ingatholakala ngezindlela ezahlukene.
- Imijovo: Imijovo enikezwa ngaphansi kwesikhumba noma emisipheni.
- Imithi yomlomo: Imithi ethathwa njengamaphilisi nsuku zonke noma ngezinsuku ezibekiwe.
- Ama-infusion: Imithi enikezwa emzimbeni ngemithambo yegazi, njenge-saline. Le mithi ingase inikezwe kanye ngenyanga noma njalo ezinyangeni ezimbalwa.
Kubalulekile ukuqala ukwelashwa kwe-DMT okufanele ngokushesha okukhulu ngemuva kokuxilongwa, njengoba le mithi ingavimbela ukulimala kwesimiso sezinzwa esikhathini esizayo. Khuluma ngokukhululekile nodokotela wakho mayelana nokwelashwa okukulungele kanye nemiphumela yako emibi.
Izinto okufanele uzibuze udokotela wakho
Ngenxa yokuthi i-RRMS iyisimo sesikhathi eside, kuvamile ukuba nemibuzo eminingi engqondweni yakho. Uma uya kudokotela wakho, bhala phansi le mibuzo.
Uma uba nezimpawu ezintsha, uma izimpawu zakho ezikhona ziba zimbi kakhulu, noma uma uhlangabezana nemiphumela emibi evela ekwelashweni kwakho, khuluma nodokotela wakho ngokushesha.
Eminye imibuzo engaba usizo ukuyibuza udokotela wakho:
- Nginaluphi uhlobo lwe-MS?
- Yikuphi ukwelashwa ongangincoma khona? Kungani?
- Yimiphi imiphumela emibi yalokho kwelashwa?
- Ngenzenjani uma izimpawu zami ziba zimbi ngokuzumayo (ukubuyela emuva)?
- Ngingazibona kanjani izinto ezibangela izimpawu zami?
Ukuphila ne-RRMS kungaba yinselele. Kodwa khumbula, awuwedwa. Ngokwelashwa okufanele, izinguquko zendlela yokuphila, kanye nokusekelwa yithimba lakho lezokwelapha, ungaphila impilo enhle kakhulu nesebenzayo. Ukufuna usizo lochwepheshe bezempilo yengqondo, uma kudingeka, nakho kungaba usizo kakhulu.
Umlayezo Wokuya Nawe Ekhaya
- I-RRMS uhlobo oluvame kakhulu lwe-Multiple Sclerosis (MS).
- Lapha, izikhathi zokuqubuka kwezimpawu (ukubuyela emuva) kanye nezikhathi zokunciphisa izimpawu (ukukhululwa) ziyashintshana.
- Nakuba ingelapheki ngokuphelele, kunezindlela zokwelapha eziphumelela kakhulu (ama-DMT) ezitholakalayo namuhla zokuphatha lesi sifo kahle kakhulu nokunciphisa umonakalo ohlelweni lwezinzwa.
- Ukuxilongwa kusenesikhathi kanye nokwelashwa kubalulekile ukuvimbela izinkinga zesikhathi esizayo.
- Khuluma nodokotela wakho njalo ngezimpawu zakho, ukwelashwa, noma yiziphi izinkinga ongase ube nazo.
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