Iyini i-Sneddon Syndrome? Ingabe unamabala anjengalawa esikhumbeni sakho? Ake sixoxe!

Wake waphawula ukuthi abanye abantu banamabala ansomi esikhumbeni sabo, ikakhulukazi ezithweni zabo, ngendlela efana nenethi? Ngezinye izikhathi bakhononda nangokuzungeza kanye nekhanda elibuhlungu. Namuhla sizokhuluma ngesimo esingavamile esinezimpawu ezifanayo, kodwa akekho okhuluma ngaso kakhulu. Lokhu kubizwa ngokuthi i-Sneddon Syndrome.

Iyini i-Sneddon Syndrome? Kalula nje...

Kalula nje, i-Sneddon Syndrome yisifo esithinta imithambo yegazi emincane nephakathi emzimbeni wakho. Cabanga ngale mithambo yegazi njengamapayipi athwala amanzi. Kulesi sifo, ungqimba olubushelelezi lwamaseli ngaphakathi kwemithambo yegazi yakho, ngokwezokwelapha olubizwa ngokuthi i-endothelium, lukhula ngokushesha futhi lube lukhulu kunalokho okufanele. Kwenzekani-ke? Lawa maseli engeziwe anciphisa isikhala ngaphakathi kwemithambo yegazi, njengalapho ukungcola kubhajwa epayipini, kuba nzima ngamanzi ukugeleza. Lokhu kubangela ukuthi ukugeleza kwegazi kuvimbeke.

Lesi yisimo esidinga ukuqashelwa isikhashana, njengoba singaba sibi kakhulu ngokuhamba kwesikhathi. Abantu abanalesi simo basengozini enkulu yokuqhekeka kwegazi. Bangaba nezinkinga zesikhumba nezinkinga zezinzwa. Ngezinye izikhathi sibizwa ngokuthi i-Sneddon-Champion syndrome. Elinye igama elithi livedo reticularis racemosa. Lesi simo singabangela ukufa kohlangothi kanye nokuhlaselwa kwe-ischemic okungapheli (TIAs) kwabanye abantu.

Sivame kangakanani lesi simo? Sivame kangakanani phakathi kwabani?

Eqinisweni, i-Sneddon Syndrome iyisifo esingavamile kakhulu. Ngokwezibalo, kulinganiselwa ukuthi abantu abane kuphela kwabayisigidi abasithola minyaka yonke. Lokho kufana nomuntu oyedwa kwabayizigidi ezimbili nesigamu.

Ngaphezu kwalokho, lesi simo sivame kakhulu kwabesifazane kunakwabesilisa. Cishe abantu abangu-80% abane-Sneddon syndrome ngabesifazane. Ngokuvamile batholakala benalesi simo cishe eminyakeni engu-40.

Ziyini izimpawu zalokhu? Ukubona kanjani?

Umuntu one-Sneddon Syndrome angase abe nezimpawu ezahlukahlukene. Kodwa-ke, akuzona zonke lezi zimpawu ezibonakala ngesikhathi esisodwa. Ezinye izimpawu zingase zivele eminyakeni eminingi ngemva kokuqala kwezinkinga zezinzwa. Noma abanye abantu bangase baqale babhekane nezinkinga zamehlo noma ikhanda. Nazi ezinye zezimpawu:

• Iphethini efana ne-mesh esikhumbeni:Lesi yisibonakaliso sokuqala abantu abaningi abasiqaphelayo. Isikhumba siba nochungechunge lwamabala abomvu-onsomi, afana namanethi okudoba noma amaphethini kwezinye izinyoka. Lokhu akubuhlungu. Uma lawa mabala evela ezingalweni nasemilenzeni yakho, evela emakhazeni, futhi enyamalala lapho ufudumala, kubizwa ngokuthi i-livedo reticularis. Kodwa-ke, uma leli phethini livela esifubeni sakho, esiswini, noma ezinqeni, futhi linganyamalali ngisho nalapho ufudumala, libizwa ngokuthi i-livedo racemosa.
• Ikhanda elibuhlungu: Ikhanda elibuhlungu elivame ukwenzeka, ngezinye izikhathi elibuhlungu kakhulu.
• Isiyezi: Umuzwa wokuzungeza.
• Ukuhlaselwa yisifo sohlangothi kanye ne-TIA: Njengoba kushiwo ngaphambili, lezi ngezinye zezinkinga ezinkulu kakhulu.
• Izinguquko ekuziphatheni nasekucabangeni: Kungase kube nezinguquko ebuntwini bakho, endleleni ocabanga ngayo, kanye nekhono lakho lokukhumbula.
• Izinkinga zezinso: Lokhu akuvamile kangako, kodwa abanye abantu bangaba nezinkinga zezinso.

Into ebaluleke kakhulu ukuthi uma unesinye noma ezimbili zalezi zimpawu, ikakhulukazi uma unekhanda elibuhlungu kanye nesiyezi kanye nephethini yesikhumba efana ne-mesh, kufanele nakanjani ubone udokotela ukuze akunike iseluleko.

Kungani i-Sneddon Syndrome ivele? Iyini imbangela?

Empeleni lokhu kuyinto odokotela abangakayitholi. Imbangela eqondile ye-Sneddon Syndrome ayikatholakali. Yingakho ibizwa ngokuthi i-idiopathic, okusho ukuthi imbangela ayaziwa. Kodwa-ke, njengoba lesi sifo sibonakala sisebenza kweminye imindeni, kusolwa ukuthi kungase kube nengxenye yezakhi zofuzo .

Futhi, kwezinye izimo, i-Sneddon syndrome ingenzeka kanye nezinye izimo zokuzivikela komzimba . Isifo sokuzivikela komzimba simane nje yisimo lapho amasosha omzimba wethu ehlasela khona amangqamuzana omzimba wethu. Uma une-Sneddon syndrome, ingase ihlotshaniswe nesinye sezimo ezilandelayo:

• I-Lupus
• I-Antiphospholipid syndrome
• Isifo sikaBehçet
• Isifo sezicubu ezixhumeneyo ezixubile

Kuhlolwa kanjani lokhu? Yiziphi izivivinyo ezenziwayo?

Uma udokotela wakho esola ukuthi une-Sneddon Syndrome ngokusekelwe ezimpawini zakho, uzoyala ukuhlolwa okuningana okuhlukene. Lokhu kuhlolwa kuzobheka:

• Igazi lakho: Hlola izimpawu zesifo sokuzivikela komzimba kanye nezinkinga zokujiya kwegazi.
• Inhliziyo yakho: Hlola ukuthi igazi ligeleza kanjani enhliziyweni yakho nasemithanjeni yegazi.
• Ubuchopho bakho:Hlola umonakalo wobuchopho. Kungase kube ngenxa yesifo sohlangothi.
• Isikhumba sakho: Kuthathwa ingxenye encane yesikhumba bese kuhlolwa (i-skin biopsy) ukuze kubonakale ukuthi kukhona yini ushintsho lweseli oluhambisana nalesi sifo.

Lezi zivivinyo zingafaka phakathi izivivinyo ezikhethekile zesithombe . Isibonelo:

• Izikena ze-MRI (i-magnetic resonance imaging - izikena ze-MRI)
• I-CT scan `(i-computed tomography - i-CT scans)`
• Ama-Angiogram (i-X-ray ekhethekile yokubheka isimo semithambo yegazi)

Odokotela bangaqinisekisa ngokunembile lesi sifo kuphela ngemva kokwenza zonke lezi zivivinyo.

Iphathwa kanjani? (Ukwelashwa) Yiziphi izinketho?

Indlela engcono kakhulu yokwelapha i-Sneddon Syndrome ayikaqondakali ngokugcwele. Esinye isizathu salokhu ukuthi bambalwa kakhulu abantu abanalesi simo kangangokuthi kunzima ukuthola abantu abanele ukwenza izivivinyo ezinkulu zezokwelapha.

Kodwa-ke, kunezindlela ezahlukene zokwelapha kuye ngezimpawu zesifo. Isibonelo, udokotela wakho angakunikeza imithi efana nalokhu:

• Imithi elwa nokuvuvukala kwegazi noma imithi elwa nokuvuvukala: Le mithi ivimbela ukujiya kwegazi futhi yenza kube lula ukugeleza kwegazi.
• Ama-Vasodilator: Isibonelo, i-nifedipine. Lawa andisa imithambo yegazi futhi andise ukugeleza kwegazi. Lokhu kuvame ukuletha impumuzo ezimpawini zesikhumba.
• Ama-enzyme inhibitors aguqula i-angiotensin (i-ACE inhibitors): Lawa asiza ekumiseni ukukhula okungavamile kwalawo maseli endothelial okukhulunywe ngawo ngaphambili.

Okubalulekile: Uma une-Sneddon syndrome, kufanele ugweme ngokuphelele ukubhema nokusebenzisa amaphilisi okuvimbela inzalo aqukethe i-estrogen. Lokhu kungenza isimo sibe sibi kakhulu.

Ingabe ikhona indlela yokuvimbela lesi sifo?

Ngeshwa, ngokusekelwe olwazini lwamanje, ayikho indlela yokuvimbela i-Sneddon Syndrome. Ngenxa yokuthi imbangela eqondile ayaziwa, kunzima ukusho ukuthi ingavinjelwa kanjani.

Kuzokwenzekani uma lesi simo siqhubeka? (Isibikezelo) Yini esingayilindela esikhathini esizayo?

Ezimweni eziningi, i-Sneddon Syndrome ibangela izinguquko ohlelweni lwezinzwa. Isibonelo , ukulahlekelwa yinkumbulo kanye nobunzima bokukhuluma kungase kukhule kancane kancane ngokuhamba kwesikhathi. Kwezinye izimo, abantu abane-Sneddon Syndrome bangatholakala benesifo sokulahlekelwa yingqondo ekuqaleni. Yingakho kubalulekile ukuqaphela lezi zimpawu.

Ingabe ikhona ikhambi eliphelele?

Ngokusho kolwazi lwezokwelapha lwamanje, i-Sneddon Syndrome"Ukwelashwa" okuphelele akukatholakali okwamanje. Ukwelashwa kuhlose ukulawula izimpawu nokuzama ukuvimbela lesi sifo ukuthi singabi sibi kakhulu.

Kufanele ufune nini iseluleko sezokwelapha?

Uma unezimpawu ze-Sneddon Syndrome, njengephethini yesikhumba efana ne-mesh, ikhanda elibuhlungu, kanye nesiyezi, bona udokotela ngokushesha. Ungalibali, ikakhulukazi uma unezinye izimpawu kanye namabala esikhumba.

Uma usuvele utholakale une-Sneddon syndrome, uma uthola izimpawu ezintsha, noma uma unomuzwa wokuthi izimpawu zakho ziya ziba zimbi kakhulu, yazisa udokotela wakho ngokushesha.

Futhi, uma uzwa izimpawu zesifo sohlangothi, ungalibali. Shayela ku-911 ngokushesha (eSri Lanka, ngo-1990 Suwaseriya Ambulance Service) noma uye emnyangweni wezimo eziphuthumayo esibhedlela esiseduze. Izimpawu zesifo sohlangothi zingafaka:

• Ikhanda elibuhlungu kakhulu ngokuzumayo.
• Izinkinga zokubona (njengokulahlekelwa umbono kwelinye iso, ukufiphala kokubili).
• Ukuba ndikindiki noma ubuthakathaka ohlangothini olulodwa noma zombili zomzimba.
• Ubunzima bokuhamba.
• Ubunzima bokukhuluma noma ukuqonda lokho abanye abakushoyo.

Okokugcina, izinto okufanele uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Sneddon Syndrome iyisimo esingavamile futhi esingaba yingozi. Kodwa-ke, uma utholakale unalesi simo, landela imiyalelo kadokotela wakho ngokucophelela. Thatha imithi yakho ngesikhathi, gcina ama-aphoyintimenti akho okulandelela, futhi ungaphuthelwa yinoma yiziphi izinhlelo zokuhlolwa.

Ungazisiza ngokwamukela indlela yokuphila enempilo yenhliziyo. Lokho kusho ukudla ukudla okunempilo, ukuzivocavoca umzimba, nokugwema ukubhema kanye nokulawula inzalo okuqukethe i-estrogen. Lezi zinto zingasiza kakhulu ekulawuleni isimo sakho. Ungakhathazeki, ungaphila nalesi simo ngokwelashwa okufanele kanye nokushintsha indlela yokuphila.

I- Sneddon syndrome, isifo semithambo yegazi, amabala esikhumba, isifo sohlangothi, i-neuropathy, i-livedo reticularis, amahlule egazi