Ingabe ingane yakho ingaba nale nkinga 'efihliwe' ngomgogodla wayo? (I-Spina Bifida Occulta) Ake sifunde ngayo.

O, kujwayelekile ukuzizwa ukhathazekile kancane uma sicabanga ngezingane zethu ezincane, sizibuza ukuthi konke kuhamba kahle yini. Ngezinye izikhathi abazi ngisho ngakho, futhi asikwazi nokukubona ngaphandle. Enye yalezo zinto yi- Spina Bifida Occulta . Ngisho noma igama lizwakala njengento enkulu, ungakhathazeki, isikhathi esiningi alibi kangako. Ake sixoxe ngalokhu ngemininingwane eyengeziwe, akunjalo?

Kuyini i-Spina Bifida Occulta?

Kalula nje, i-Spina Bifida Occulta iyisici sokuzalwa esibangelwa ukuzalwa lapho umgogodla ungakhuli kahle ngesikhathi sokukhulelwa, lapho umntwana esesesibelethweni.

Igama elithi "occulta" lisho ukuthi "kufihliwe." Yingakho libizwa nangokuthi "i-hidden spina bifida." Lokhu kungenxa yokuthi imbobo emgogodleni imbozwe ungqimba oluncane lwesikhumba, ngakho-ke ayibonakali emhlabeni wangaphandle. Lokhu kusho ukuthi akukho mehluko obonakalayo ngeso lenyama. Lolu uhlobo oluthambile noluvame kakhulu lwe-spina bifida.

Ubani osengozini enkulu yokuthola i-Spina Bifida Occulta?

Lesi simo singathinta noma ubani. Kodwa-ke, abanye abantu basengozini enkulu yokuba nomntwana one-Spina Bifida Occulta. Ake sibheke ukuthi iyini:

• Ukuntuleka kwe-folate kumama ngesikhathi sokukhulelwa: I-folate uhlobo lwe-vitamin B9. Itholakala ekudleni okuningi, njengemifino eluhlaza, ubhontshisi, amantongomane, kanye nokusanhlamvu okuphelele. Uma umama okhulelwe engatholi le folate noma i-folic acid eyanele, usengozini.
• Umlando womndeni we-spina bifida (ithonya lezakhi zofuzo): Uma othile emndenini wakho eke waba nalesi simo ngaphambili, kusho ukuthi kungase kube nokuxhumana okuncane kwezakhi zofuzo .
• Isifo Sikashukela Noma Ukukhuluphala Kumama Okhulelwe: Uma umama enesifo sikashukela esingalawuleki noma ekhuluphele ngokweqile, singathinta nomntwana osesiswini.
• Ingane inezinye izimo zofuzo: Ngezinye izikhathi le ngozi inganda uma ingane inezinye izimo zofuzo, njenge -Down syndrome, i-Edwards syndrome, noma i-Patau's syndrome .
• Eminye imithi umama ayithathayo yezifo ezifana nesifo sokuwa: Isibonelo, uma ethatha imithi yokulwa nesifo sokuwa njenge -valproate noma i-carbamazepine , lokho kungaba nomthelela.

Uma uhlela ukukhulelwa, kubaluleke kakhulu ukukhuluma nodokotela nganoma yimiphi imithi oyiphuzayo njengamanje kanye nomlando wezakhi zofuzo zomndeni wakho.

Sivame kangakanani lesi simo?

I-Spina Bifida Occulta uhlobo oluvame kakhulu lwe-spina bifida. Kulinganiselwa ukuthi phakathi kuka-10% no-20% wabantu baseMelika banalesi simo. Lokhu kusho ukuthi asivamile njengoba ungase ucabange.

I-Spina Bifida Occulta ithinta kanjani umzimba wami?

Lolu uhlobo oluthambile kakhulu lwe-spina bifida, ngakho alunamiphumela eminingi emibi emzimbeni njengezinye izinhlobo ezinzima. Izimpawu ezithinta izinto ezifana nokuhamba azivamile, ikakhulukazi ebuntwaneni. Cishe umuntu oyedwa kwabayi-1000 one-spina bifida occulta uba nezimpawu . Ngokuvamile kwenzeka ngesikhathi sokukhula okukhulu esemncane lapho umgogodla udonswa khona . Lokhu kungaba nomthelela omncane ezintweni ezinjengokuqina kwemisipha kanye nokulawulwa kwamathumbu kanye nesinye. Kodwa-ke, noma kunjalo, izimpawu zingancishiswa ngokwelashwa okufanele.

Ziyini izimpawu ze-Spina Bifida Occulta?

Njengoba kushiwo ngaphambili, lolu uhlobo oluthambile kakhulu lwe-Spine Bifida, ngakho-ke isikhathi esiningi azikho izimpawu . Kodwa-ke, ezinye izingane ezine-Spina Bifida Occulta zingase zibe nesikhumba esingezansi emhlane wazo lapho zizalwa. Lokhu kungaba:

• Njengesigaxa esincane.
• Ibala elibomvu noma elinsomi (i-hemangioma) .
• Uphawu lokuzalwa olumnyama.
• Isicaba esikhumbeni .

Kodwa lezi zimpawu azibonakali kuwo wonke umntwana.

Akuvamile kakhulu, ezinye izimpawu zingase zivele ngenxa yokulimala kwemizwa (ukuntuleka kwemizwa). Lokhu kufaka phakathi:

• Izinkinga zamathumbu kanye/noma zomchamo (isib. ukuqunjelwa, ukungakwazi ukuzibamba).
• Ukuhlungu obusemhlane .
• Ubuthakathaka bemisipha yemilenze .
• I-Scoliosis .

Ingabe izimpawu zingabonakala lapho umuntu ekhula?

Izimpawu zivame ukwenzeka cishe kubantu abayinkulungwane, ngokuvamile ngesikhathi sokuthomba, lapho umgogodla welulwa ngesikhathi sokukhula okusheshayo. Izingane eziningi ezine-spina bifida occulta azinazo izimpawu. Kodwa-ke, lezi zimpawu ezingavamile zingase zande njengoba umgogodla uqhubeka welulwa ngesikhathi sokuthomba noma sobudala.

Yiziphi izimbangela ze-Spina Bifida Occulta?

Imbangela eqondile ye-Spina Bifida Occulta ayikakaziwa , kodwa ucwaningo lubonisa ukuthi kungenzeka ukuthi ibangelwa yinhlanganisela yezici zofuzo, ezokudla kanye nezemvelo. Lokhu kufaka phakathi:

• Ukuntuleka kwe-folate (i-vitamin B9) kumama ngesikhathi sokukhulelwa.
• Umlando womndeni walesi simo (ufuzo) .
• Umama okhulelwe unesifo sikashukela esingalawuleki .
• Ukukhuluphala kumama okhulelwe.
• Impendulo yemithi efana ne -valproate noma i-carbamazepine, esetshenziselwa ukwelapha izimo ezifana nesifo sokuwa.

Ngakho-ke, uma uhlela ukukhulelwa, kubalulekile ukukhuluma nodokotela wakho ukuze uqonde ingozi yokuba ingane yakho ibe nesifo esifana ne-Spina Bifida Occulta. Angakweluleka ngokuthi udinga yini ukwengeza i-folate noma i-folic acid ekudleni kwakho, noma ukuthi noma yimiphi imithi oyiphuzayo njengamanje ingaba yingozi empilweni yengane yakho.

I-Spina Bifida Occulta itholakala kanjani?

I-Spina Bifida ivame ukutholakala ngesikhathi sokukhulelwa nge -ultrasound scan . Kodwa-ke, ngenxa yokuthi i-Spina Bifida Occulta iyisimo esibucayi kakhulu, "esifihliwe", ivame ukungatholakali noma itholakala kuphela lapho umuntu esemdala . Lokhu kungenxa yokuthi lesi simo asivamile ukubangela izimpawu.

I-Spina Bifida Occulta ivame ukutholakala ngengozi lapho kwenziwa i-X-ray yomgogodla ngenxa yengozi noma ukulimala okunye .

I-Spina Bifida Occulta itholakala ngokuhlolwa kwezithombe okufana ne-X-ray, i-MRI scan, noma i-CT scan . Lokhu kuhlolwa kunganikeza isithombe esicacile samathambo omgogodla angakhekanga kahle ngesikhathi sesigaba somntwana.

Iphathwa kanjani i-Spina Bifida Occulta?

Izindaba ezinhle ukuthi amacala amaningi e-Spina Bifida Occulta awadingi ukwelashwa .

Kodwa-ke, ezimweni ezingavamile lapho kuvela khona izimpawu, ukwelashwa kuhlose ukunciphisa ingcindezi emgogodleni. Ukwelashwa kungafaka:

• Ukuhlinzwa ukuvala isikhala phakathi kwamathambo omgogodla.
• Ukwelashwa ngokomzimba noma ukwelashwa ngokomsebenzi ukuze kuthuthukiswe amandla emisipha.
• Ukusebenzisa amadivayisi okusiza njenge-brace yomhlane, i-walker, noma isihlalo sabakhubazekile.
• Ukunikeza imithi yezinkinga zamathumbu noma zomchamo.

Yimiphi imithi enikezwayo ye-Spina Bifida Occulta?

Uma kuvela izimpawu, imithi efana nalezi ingadingeka ukuze yelashwe:

• Ama-painkiller obuhlungu bomhlane.
• Ngezinkinga zamathumbu njengokuqunjelwaAma-laxative, ama-suppository, kanye/noma ama-enemas.
• Ama-antibiotic okuvimbela ukutheleleka ngemva kokuhlinzwa.
• Imithi ethile yokukhulula isinyi nokwelapha izinkinga zomchamo.

Unganciphisa kanjani ingozi ye-Spina Bifida Occulta?

Njengoba imbangela eqondile ingaziwa, ayikho indlela yokuvimbela ngokuphelele lesi simo. Kodwa-ke, uma uhlela ukukhulelwa, ungathatha lezi zinyathelo ukunciphisa ingozi yokuthola umntwana one-Spina Bifida Occulta:

• Ukuthatha i-Folic Acid: I-US CDC (Centers for Disease Control and Prevention) itusa ukuthatha ama-microgram angu-400 (400 mcg) e-folic acid nsuku zonke. Lokhu kunganciphisa ingozi yokuthola umntwana one-Spina Bifida cishe ngo-75%!
• Ukukhuluma nodokotela wakho: Khuluma nodokotela wakho nganoma yimiphi imithi, amavithamini, kanye nezithasiselo ozisebenzisayo njengamanje. Eminye imithi, ikakhulukazi leyo yesifo sokuwa, ingaba nomthelela ekuthuthukisweni kwe-spina bifida occulta.
• Ukuphatha izimo ezikhona kakade: Uma unezimo ezikhona kakade njengesifo sikashukela noma ukukhuluphala ngokweqile, sebenzisana nodokotela wakho ukuze uphathe lezo zimo ngaphambi kokukhulelwa.
• Ukuhlolwa kofuzo: Uma othile emndenini wakho eke waba nezimo zofuzo, khuluma nodokotela wakho mayelana nokuhlolwa kofuzo ukuze uqonde ingozi yakho yokuba nengane enesifo sofuzo.

Kwenzekani uma ngine-Spina Bifida Occulta?

Akukho ukwelashwa kwe-Spine Bifida Occulta. Kodwa-ke, noma ngabe unalesi simo, ungase ungasazi ngoba izimpawu azivamile futhi zincane. I-Spine Bifida Occulta ithinta wonke umuntu ngendlela ehlukile. Uma unezinkinga noma izimpawu ngenxa yokucindezelwa komgogodla, ukwelashwa kungasiza ekunciphiseni.

Ngizinakekela kanjani?

Ukuxilongwa ngakunye kwe-Spine Bifida Occulta kuhlukile. Ezimweni eziningi, akuthinti impilo yakho yansuku zonke noma umsebenzi wakho . Uma uba nezimpawu, landela uhlelo lokwelashwa olunikezwa udokotela wakho.

Kufanele ngimbone nini udokotela?

Bona udokotela uma unezimpawu ze-spina bifida occulta, ikakhulukazi lezo ezithinta ukunyakaza kwakho . Uma izimpawu zakho zinzima kangangokuthi awukwazi ukwenza imisebenzi yakho yansuku zonke, ukuya esikoleni, noma ukusebenza ngenxa yobuhlungu noma ukungakwazi ukuzibamba, bona udokotela ukuze uthole ukwelashwa.

Yimiphi imibuzo okufanele ngiyibuze udokotela wami?

• Ingabe ngisengozini yokuthola omunye umntwana one-Spina Bifida Occulta?
• Ngingahlala kanjani ngiphilile ngesikhathi sokukhulelwa kwami?
• Yiziphi izingozi zokuhlinzwa ukuze kwelashwe i-Spina Bifida Occulta?
• Ingabe ikhona imiphumela emibi ekwelashweni okunconyiwe?

Uyini umehluko phakathi kwe-Spina Bifida Occulta ne-Spina Bifida Cystica?

Kalula nje, i-Spina Bifida Occulta uhlobo oluthambile noluvame kakhulu lwe-Spina Bifida. Iningi labantu abanalesi simo alibi nazo izimpawu noma izimpawu ezibonakalayo ezithinta ukunyakaza.

I-Spine Bifida Cystica uhlobo olubi kakhulu. Lubonakala ngesikhwama esigcwele uketshezi (i-cyst) esiphuma emhlane ongezansi womntwana. Lesi sikhwama siwuphawu lwezimo ezibizwa ngokuthi i-spina bifida meningocele kanye ne-myelomeningocele.

Nakuba izingane ezine-Spine Bifida Occulta zinesikhala phakathi kwamathambo omgogodla wazo, isikhwama esigcwele uketshezi (i-cyst) esiphumayo asibonakali ngaphandle komgogodla.

Amacala amaningi e-Spina Bifida Occulta awatholakali, futhi noma ngabe atholakale, awadingi ukwelashwa ngoba awabonakali.

Ekugcineni, kufanele ngithi... (Umyalezo Wokuya Ekhaya)

Ngakho-ke, cishe usuyaqonda manje ukuthi i-Spina Bifida Occulta akuyona into okufanele uyesabe. Abantu abaningi banayo, kodwa abazi nokuthi iyazi, futhi ayibangeli izinkinga empilweni yabo.

Into ebaluleke kakhulu ukuthi wonke umama okhulelwe kufanele aphuze i-folic acid eyanele ngaphambi nangesikhathi sokukhulelwa . Kubaluleke kakhulu futhi ukukhuluma ngokukhululekile nodokotela wakho ngempilo yakho, imithi oyiphuzayo, kanye nomlando wempilo yomndeni wakho. Khona-ke uzoba nethuba elingcono kakhulu lokubeletha umntwana onempilo.

Uma uneminye imibuzo mayelana nalokhu, ungangabazi ukubuza udokotela wakho. Yibo abangakunikeza iseluleko esingcono kakhulu.

I - spina bifida occulta, umgogodla, ukukhubazeka kokuzalwa, i-folic acid, ukukhulelwa, ubuhlungu bomhlane, i-spina bifida efihliwe