Ingabe umgogodla wakho ubambeke ndawana thize? Ake sifunde nge-Tethered Spinal Cord.

Ingabe wena noma ingane yakho nike naphawula ukungakhululeki, ubuhlungu, noma izinguquko emhlane noma ekuhambeni kwakho? Ngezinye izikhathi kungenzeka ukuthi nike naphawula iqhubu elincane noma iqhubu esikhumbeni phansi komhlane wakho. Esinye sezimbangela zalezi zinto kungaba yisimo esibizwa ngokuthi 'intambo yomgogodla eboshiwe' . Igama lingase lizwakale liyesabeka kancane, kodwa uma ukwazi lokhu, izinkinga eziningi zingaxazululwa. Namuhla, sizoxoxa ngalokhu ngendlela elula ongayiqonda.

Iyini 'intambo yomgogodla eboshiwe'?

Kalula nje, intambo yethu yomgogodla , intambo eyinhloko yemizwa edlula emgogodleni wethu, kufanele ivame ukuhamba ngokukhululeka ngaphakathi komgogodla. Njengentambo ngaphakathi kwepayipi. Kodwa-ke, kulesi simo 'somgogodle oboshiwe', intambo yomgogodla inamathele ngendlela engavamile odongeni lwangaphakathi lomgogodla noma kwezinye izicubu.

Cabanga nje, ubopha intambo endaweni eyodwa bese uyidonsa kwenye. Bese intambo iyadonsa, akunjalo? Yilokho okwenzekayo nalapha. Lapho intambo yomgogodla icindezelwa kanje, lapho sikhuphuka noma senza imisebenzi yethu yansuku zonke, intambo yomgogodla iqala ukudonsa. Lokhu kudonsa kungalimaza intambo yomgogodla futhi kuphazamise ukugeleza kwegazi ezinzwa ezidlula kuyo . Lokhu kubizwa nangokuthi `(Tethered Cord Syndrome)` noma `(Tethered Spinal Cord Syndrome)`.

Uyini umgogodla wethu?

Ukuze uqonde lokhu kahle, udinga ukuba nomqondo omncane ngentambo yomgogodla. Intambo yomgogodla iyisicubu esijiyile sezicubu esiqala phansi kwekhanda lethu siye phakathi nomgogodla wethu. Izimpawu zemizwa ezihlobene nakho konke okusemzimbeni wethu, njengokunyakaza nokuzwa, zihamba ngale ntambo yomgogodla. Ngamanye amazwi, ifana nesikhungo sokulawula somzimba wethu.

Uyini umehluko phakathi kwe-'Tethered Spinal Cord' kanye ne-'Spina Bifida'?

Kungenzeka ukuthi uke wezwa ngesimo esibizwa ngokuthi 'i-Spina Bifida'. Lesi yisimo esiba khona lapho kuzalwa. Izingane ezine-'Spina Bifida' nazo zingaba nesimo 'se-Tethered Spinal Cord' lapho kuzalwa.

I-Myelomeningocele uhlobo olubi kakhulu lwe-spina bifida. Lokhu kwenzeka lapho ingxenye engezansi yomgogodla womntwana kanye naleyo ngxenye yomgogodla ingakhuli kahle ngesikhathi sokukhulelwa. Ngemuva kwalokho, lapho umntwana ezalwa , umgogodla ungase uvezwe futhi unamathele esikhumbeni.

Kukhona nezinhlobo ze-spina bifida ezingabangeli ubunzima obukhulu. Isibonelo, isimo esibizwa ngokuthi "i-Spina Bifida Occulta". Kulokhu, intambo yomgogodla ingase inamathele ngendlela engavamile odongeni lomsele womgogodla ngenxa yezicubu ezinamafutha (i-lipoma) noma i-filum ejiyile (ibhande lezicubu) ekugcineni kwentambo yomgogodla.

Izingane ezine-spina bifida zivame ukuhlinzwa zisencane ukuze kuqaqwe intambo. Kodwa-ke, ngezinye izikhathi izicubu zesilonda zingakheka endaweni ngemva kokuhlinzwa futhi intambo ingaphinde inamathele emgogodleni.Njengoba izingane zikhula, lokhu kungabangela ukuthi intambo yomgogodla inwebeke, okuholela esimweni esibizwa ngokuthi 'i-tethered spinal cord syndrome'.

Into ebaluleke kakhulu ukuqonda ukuthi noma ngabe isimo esibizwa ngokuthi 'i-Spina Bifida' singabonakali kahle, isimo 'se-Tethered Spinal Cord' singaba khona.

Ubani othinteka kakhulu yilesi simo?

I-Tethered Spinal Cord Syndrome yisimo esivame ukubonwa kubantu abane-open spina bifida. Abanye ochwepheshe balinganisela ukuthi cishe ingane eyodwa kwezimbili ezine -myelomeningocele izoba ne-tethered spinal cord syndrome. Kodwa-ke, njengoba kushiwo ngaphambili, kungenzeka futhi ngaphandle kwe-spina bifida esobala.

Ziyini izimpawu 'zomgogodla oboshiwe'?

Izimpawu zalesi simo zingahluka kakhulu kumuntu nomuntu. Ezinye izingane zibonisa izimpawu lapho zizalwa. Ngokuvamile, lezi zimpawu zivela njengoba izingane zikhula. Akuvamile ukuthi abanye abantu bangabi nazo izimpawu beseyizingane futhi bangase babe nezimpawu kamuva ekuphileni, njengoba bengazange baxilongwe ngaphambilini.

Bobabili izingane kanye nabantu abadala bangase babe nezimpawu ezilandelayo ezihlobene nalesi simo:

• Ubunzima bokuhamba: Kufanele ukhathazeke uma ingane ihamba ngendlela engajwayelekile, ikakhulukazi lapho iqala ukuhamba, noma uma kukhona ushintsho endleleni yayo yokuhamba.
• Izinguquko zesikhumba emhlane ongezansi: Ungase uqaphele i -dimple encane emhlane ongezansi, ngaphezu nje kwezinqe. Noma, ungase uqaphele ukukhula kwezinwele okungavamile kuleyo ndawo. Ungase ubone nezimila ezingenabungozi, amabala esikhumba anombala ohlukile , noma izimpawu zokuzalwa ezibizwa ngokuthi ama-hemangioma. Ngezinye izikhathi, ungase ubone nokukhula okuncane okufana nama-mole esikhumbeni (amathegi esikhumba / ama-acrochordons) .
• Ukuba ndikindiki noma ukulahlekelwa umuzwa emilenzeni noma emhlane: Uma uvame ukuzwa imilenze yakho iphelelwa umuzwa, noma uma uzizwa sengathi imilenze yakho ilahlekelwa umuzwa, qaphela lokho.
• Ubuhlungu obukhulu emlenzeni noma emhlane: Lobuhlungu buvame ukusabalala buye endaweni engemuva noma endaweni yokuzala.
• I-Scoliosis: Uma umgogodla ubonakala ugobile ohlangothini olulodwa.
• Izinkinga zokulawula umchamo kanye nokulawula amathumbu: Izinkinga ezifana nokuchama njalo, ubunzima bokugcina umchamo, noma ubunzima bokulawula ukunyakaza kwamathumbu.
• Ama-cyst agcwele uketshezi emgogodleni (i-Syringomyelia): Lokhu kungatholakala kuphela ngokuskena.
• Ukuwohloka Kwemisipha: Ikakhulukazi uma imisipha emilenzeni ibonakala ibuthakathaka futhi imincane.

Uma unesinye noma ngaphezulu salezi zimpawu, kungcono ukufuna iseluleko sezokwelapha.

Yiziphi izimbangela ze-'Tethered Spinal Cord Syndrome'?

Lesi simo singaba yinto yokuzalwa (ekhona lapho umuntu ezalwa) noma sitholakale kamuva ekuphileni.

Izimbangela zokuzalwa:

• Ukuqina okungavamile kwezicubu kusukela ekugcineni komgogodla kuya ethanjeni lomsila (i-Sacrum) (i-Filum Terminale) kuyimbangela evame kakhulu.
• Isimo se-Spina Bifida.

Izimbangela ezitholiwe:

• Izicubu ezibomvu ngemva kokuhlinzwa komgogodla.
• Izifo.
• Ukulimala okukhulu komgogodla.
• Izimila.

Abanye abacwaningi bakholelwa ukuthi izici zofuzo zingase zidlale indima ezimweni ezifana ne-spina bifida. Nakuba kutholakale ukuxhumana phakathi kwe-myelomeningocele nezakhi zofuzo, ukuxhumana okucacile phakathi kwe-tethered cord syndrome nezakhi zofuzo akukakafakazelwa.

Ungayibona kanjani 'intambo yomgogodla eboshiwe'?

Lesi simo sivame ukuhlonzwa udokotela wezinzwa . Uzokuhlola wena noma ingane yakho bese ebuza ngezimpawu zakho. Ngaphezu kwalokho, ukuhlolwa okulandelayo kwezithombe kuvame ukwenziwa:

• Iskeni se-MRI (Magnetic Resonance Imaging): Lesi isivivinyo esivame kakhulu ukuxilonga lesi simo. Sisebenzisa omaginethi namagagasi omsakazo ukuze sibone kahle umgogodla, imizwa, kanye nezicubu ezizungezile.
• I-Myelogram: Kulokhu, kufakwa idayi ekhethekile esikhwameni esimboza intambo yomgogodla (isikhwama se-thecal). Kube sekuthathwa i-X-ray ukuze kubonakale ukuthi intambo yomgogodla icindezelwe yintambo yomgogodla.
• Iskeni se-CT (Computed Tomography): Ikhompyutha ekhethekile kanye ne-X-ray kuyasetshenziswa ukubheka ngaphakathi emzimbeni. Ngezinye izikhathi i-CT scan yenziwa ngemva kwe-myelogram ukuze kubonwe ukuthi idayi ihamba kanjani eduze komgogodla.
• Ukuskena nge-ultrasound: Lokhu kusebenzisa amaza omsindo avame kakhulu ukubheka ngaphakathi komzimba. Kuvame ukusetshenziselwa ukubona ukuthi intambo yomgogodla ihamba kanjani ngaphakathi kwekholomu yomgogodla ezinganeni ezincane kakhulu .

Iphathwa kanjani intambo yomgogodla eboshiwe?

Ukwelashwa okuyinhloko kwalesi simo ukuhlinzwa. Uhlobo lokuhlinzwa okwenziwayo luncike ezintweni eziningana, isibonelo:

• Ubukhulu be-`(Filum Terminale)` yakho.
• Lapho intambo yomgogodla icindezelwa khona.
• Ingabe ungumuntu omdala noma ungumntwana?

Lokhu kuhlinzwa kuvame ukwenziwaUdokotela ohlinzayo wezinzwa ungudokotela ogxile ekuhlinzeni ubuchopho nomgogodla. Uqala ngokusika okuncane emhlane ongezansi. Bese, besebenzisa amathuluzi okuhlinza, basusa ngokucophelela izicubu zesibazi bese bekhulula umgogodla entanjeni yomgogodla.

Kwenzekani ngemva kokuhlinzwa 'komgogodla oboshiwe'?

Ngemva kokuhlinzwa, wena noma ingane yakho ningaqhubeka nemisebenzi evamile nelula ngokushesha ngemva kwalokho. Kodwa-ke, imisebenzi enzima, njengokuphakamisa izinto ezisindayo, kufanele igwenywe amasonto ayisithupha kuya kwayisishiyagalombili, noma ngaphezulu, njengoba kuqondiswe udokotela wakho. Udinga ukunikeza inxeba isikhathi sokuphola kahle.

Abanye abantu bangadinga ukwelashwa ngokomzimba noma ukwelashwa ngokomsebenzi ngemva kokuhlinzwa ukuze babasize baphinde baphinde balahlekelwe ukusebenza. Lokhu kuhlinzwa kwenzelwa ukuvimba umonakalo owengeziwe ezinzwa. Kodwa-ke, kungase kungakwazi ukulungisa ngokuphelele umonakalo wezinzwa osuvele ukhona. Ngakho-ke, abanye abantu bangase baqhubeke nokuba buthakathaka bemisipha noma izinkinga zokunyakaza ngemva kokwelashwa.

Ingabe lesi simo singavinjelwa?

Ngeshwa, ayikho indlela yokuvimbela intambo yomgogodla eboshiwe. Kodwa-ke, uma uthola ukwelashwa kusenesikhathi, ungaziguqula izimpawu. Ngakho-ke, uma usola ukuthi wena noma ingane yakho ninayo yalezi zimpawu, bona udokotela ngokushesha.

Iyini ikusasa lesimo 'somgogodla oboshiwe'?

Ngokwelashwa, abantu abaningi bangaphila impilo evamile. Isivinini othola ngaso ukwelashwa kwentambo yomgogodla eboshiwe sinquma amathuba akho okululama ngokugcwele. Ezinye izimpawu, njengobunzima bokulawula ukunyakaza, ukungazweli, noma ubuthakathaka, zingase zingapheli ngokuphelele, ikakhulukazi uma ukuhlinzwa kwenziwa kamuva ekuphileni.

Ingabe mina noma ingane yami sizodinga ukuhlinzwa okungaphezu kokukodwa?

Kwabaningi , ukuhlinzwa okukodwa kwanele ukwelapha intambo yomgogodla eboshiwe. Kodwa-ke, cishe ingane eyodwa kwezinhlanu ingadinga ukuhlinzwa okungaphezu kokukodwa. Izimpawu zentambo yomgogodla eziboshiwe zivame ukuba zimbi noma ziphinde zivele ngezikhathi zokukhula okusheshayo (ukukhula okusheshayo). Ngezikhathi ezinjalo, kungase kudingeke ukuhlinzwa okunye ngemva kokuba ingane isikhule kakhulu. Izingane eziphakathi kweminyaka engu-7 nengu-12 zisengozini enkulu yokudinga ukuhlinzwa okunye.

Yimiphi imibuzo okufanele ngiyibuze udokotela wami?

Uma wena noma ingane yakho ninesifo 'somgogodla oboshiwe', noma uma nicabanga ukuthi ningaba naso, kuwumqondo omuhle ukubuza udokotela wakho le mibuzo:

• Izimpawu zokuqala 'zomgogodla oboshiwe'Ini?
• Yiziphi izivivinyo ezenziwayo ukuze kutholakale lesi simo?
• Yiziphi izindlela zokwelapha lokhu?
• Angakanani amathuba okuthi izimpawu ziphinde zivele ngemva kokwelashwa?

Kungenzeka yini ukuphila impilo evamile unesifo 'somgogodla oboshiwe'?

Yebo. Abantu abaningi abathola ukwelashwa kusenesikhathi ngenxa yentambo yomgogodla eboshiwe bangaphila impilo evamile futhi babe nempilo ejwayelekile.

Intambo yomgogodla eboshiwe iwukunamathela okungajwayelekile kwentambo yomgogodla kukholomu yomgogodla. Kuvamile ukuzizwa wesaba lapho wena noma ingane yakho nithola ukuthi unalesi simo, kodwa ukwelashwa kwasekuqaleni kungasiza ekunciphiseni izimpawu ngisho nokuyelapha. Lesi simo sihlobene kakhulu ne-spina bifida, ukukhubazeka kokuzalwa lapho intambo yomgogodla noma umgogodla ungakhuli kahle. Futhi, izingane eziningi eziye zahlinzwa i-myelomeningocele kamuva ziba nentambo yomgogodla eboshiwe. Uma wena noma ingane yakho nibona noma yiziphi zalezi zimpawu, funa usizo lwezokwelapha ngokushesha.

Izinto ezibaluleke kakhulu okudingeka uzikhumbule (Umyalezo Wokuya Ekhaya)

Kulungile, ake ngifingqe amanye amaphuzu abaluleke kakhulu kulokho esikhulume ngakho:

• Intambo yomgogodla eboshiwe yisimo lapho intambo yomgogodla ibanjwa khona futhi yeluliwe emgogodleni.
• Lokhu kungaba khona lapho kuzalwa noma kukhule kamuva ekuphileni . Izingane ezine-spina bifida zisengozini enkulu.
• Izimpawu ziyahlukahluka: ubuhlungu emhlane nasemilenzeni, ukungazweli, ubunzima bokuhamba, izinguquko zesikhumba, kanye nezinkinga zokulawula isinyi/amathumbu.
• Ukuskena kwe-MRI kuyisihluthulelo sokuxilongwa.
• Ukwelashwa okuyinhloko ukuhlinzwa. Lokhu kuvimbela ukulimala kwemizwa.
• Uma uthola ukwelashwa ngokushesha, amathuba akho okululama ayanda. Ezinye izimpawu zingase ziqhubeke.
• Ungakhathazeki! Ngokwelashwa okufanele, ungaphila impilo evamile.
• Uma wena noma ingane yakho ninayo noma iyiphi yalezi zimpawu, ningachithi isikhathi niyobona udokotela.

Ngiyethemba ukuthi lolu lwazi luwusizo kuwe. Hlala uphilile!

Umgogodla , umgogodla, i-spina bifida, izifo zezinzwa, ukuhlinzwa, impilo yengane, ubuhlungu bomhlane