Wopɛ sɛ wuhu Amniotic Band Syndrome, tebea a asiane wom a nnwontofo kuw ahorow kyekyere wo ba no ho asɛm?

Bere nyinaa wususuw wo ba no yiyedi ho bere a wanyinsɛn no, ɛnte saa? Ɛtɔ mmere bi a, sɛ wuhu biribi ketewaa bi bere a woreyɛ scan a, wote ehu nka kɛse. Saa na ɛnanom pii haw, nanso sɛ wɔbɔ wo amanneɛ yiye a, wotumi di tebea a wɔfrɛ no amniotic band syndrome yi ho dwuma. Momma yɛnka ho asɛm tiawa, wɔ ɔkwan a wubetumi ate ase so.

Dɛn ne Amniotic Band Syndrome?

Sɛ yɛbɛka no tiawa a, eyi ba bere a nsu a ɛyɛ tratraa a efi amniotic sac (a yɛfrɛ no ``Amniotic Sac'') a atwa akokoaa no ho ahyia wɔ awotwaa mu no kyekyere akokoaa no nipadua ho no. Fa no sɛ akokoaa no te sɛ balloon a nsu ahyɛ mu ma. Sɛ ntini a ɛyɛ mmerɛw a ɛwɔ amnion no mu no sɛe ɔkwan biara so a, ebetumi abubu ayɛ asinasin a ɛte sɛ asaawa anaasɛ ɛte sɛ ahama na asensɛn akɔneaba wɔ amniotic kotoku no mu. Eyi ne nea yɛfrɛ no ``Amniotic Bands''. Saa nhama a ɛsensɛn nsu so yi, te sɛ asaawa bɔɔl no, tumi kyere akokoaa no basa, nan, nsateaa, anaa nipadua no fã foforo bi ho wɔ awotwaa no mu. Sɛ saa nhama yi kyekyere wɔn ho denneennen a, mogya a ɛkɔ saa fã no so tew, na ɛtɔ mmere bi mpo a egyae koraa. Afei saa ɔfã no nnyin yiye. Ɛtɔ mmere bi a, eyi betumi aka akokoaa no mu akwaa ne awotwaa no mpo. Eyi betumi ama obi anya awo mu dɛmdi (Congenital Disorders) na wɔ tebea horow a emu yɛ den mu no, wɔatwa no. Sɛnea tebea no mu yɛ den no gyina sɛnea wɔakyekyere nhama no denneennen ne baabi a wɔde kyekyere akokoaa no nipadua ho no so. Ebia nkokoaa binom wɔ honam ani nsensanee nketenkete a ɛyɛ den bere a wɔawo wɔn nkutoo. Nanso, wobetumi awo nkokoaa binom a wonni nsa, anan, anaa nsateaa. Sɛ saa nhama yi twa akokoaa no mogya a efi awotwaa no mu no mu a, ebetumi de ne nkwa ato asiane mu. Ɛtɔ mmere bi a nnuruyɛfo tumi de ultrasound scan hu tebea no bere a wɔyem no. Nanso, mpɛn pii no, wonsi eyi so dua kosi sɛ wɔawo akokoaa no akyi. Saa tebea yi ntaa mma koraa. Ɛba wɔ mmofra a wɔawo wɔn a wɔte ase bɛyɛ 1,200 kosi 15,000 biara mu 1 mu. Wɔsan frɛ no:

• Amniotic Band Ntoatoaso
• Constriction Band/Rings Syndrome a Ɛyɛ Nnipa a Wɔyɛ Nneɛma a Ɛyɛ Fɛ
• Amniotic Band a Ɛhaw Nneɛma a Ɛyɛ Den
• Nnwontofo Ahorow/Nkaboa a Ɛma Ɛyɛ Den a Wɔde Awo Wɔn
• ADAM Complex `(ADAM Complex - Amniotic Deformities/ Nneɛma a Ɛbata Ho /Nneɛma a Wɔatwitwa)`
• Streeter Anomaly a Ɛyɛ Fɛ

Dɛn ne eyi ho sɛnkyerɛnne? Ɔkwan bɛn so na yebetumi ahu?

Tebea yi ho sɛnkyerɛnne gyina baabi a hama no akyekye wɔ akokoaa no nipadua so ne sɛnea ɛkyekyere denneennen no so kɛse.Nsɛm no mu bɛyɛ ɔha biara mu nkyem 80 ka nsa ne anan. Nanso saa nhama yi nso betumi akɔhyɛ ti, kɔn, ne yafunu mu. Ɛtɔ mmere bi a, eyi nyɛ aniberesɛm saa. Ɛtew mogya a ɛkɔ honam ani no so nkutoo. Afei sɛ wɔwo akokoaa no a, ebia nneɛma te sɛ constriction rings wɔ honam ani, anaasɛ dɛmdi nketenkete wɔ honam ani. Nanso ɛtɔ mmere bi a, saa nhama yi kyere denneennen na emu dɔ ma mogya a ɛkɔ saa akwaa anaa nipadua no fã no mu no twa koraa. Afei saa fã no betumi ayera, mogya a wɔde ma no ayera, na ɛtɔ mmere bi a nsɛnnennen a ɛde nkwa to asiane mu betumi aba. Nsɛnkyerɛnne afoforo a wobetumi ahu wɔ tebea yi mu ne:

• Wɔwoo obi a onni nsa, nan, anaa nsateaa.
• Nsateaa a ɛbata ho (Syndactyly). Ebia were wɔ nsateaa no ntam, te sɛ ananse de.
• Akwaa no yɛ tiaa na ennyinii yiye.
• Ɛhonhon wɔ baabi a nhama no ayɛ tan no.
• Clubfoot a ɛyɛ .
• Anofafa a Apaapae ne Anom a Apaapae .
• Nnompe a ɛyɛ mmerɛw, te sɛ scoliosis.
• Choanal Atresia (hwene mu ntini a enni mũ). Eyi betumi ama ayɛ den ama akokoaa no sɛ ɔbɛhome.
• Aniwa a ɛyɛ nketewa koraa anaasɛ ennyin yiye (Microphthalmia).

Nsɛnnennen bɛn na eyi betumi de aba?

Amniotic band syndrome betumi de nsɛnnennen ahorow bi aba, na ebinom betumi ayɛ nkwa nna nyinaa. Nsɛnnennen bi yɛ aniberesɛm paa na ɛde nkwa mpo to asiane mu. Nhwɛsoɔ:

• Tokuru a ɛwɔ ti nhwi no mu (Encephalocele). Wɔ eyi mu no, amemene no fã bi betumi apue afa ti nhwi no mu.
• Tokuru anaa dɛmdi a ɛwɔ yafunu anaa moma so afasu mu.
• Nneɛma a ɛho hia te sɛ yafunu mu nhyehyɛe anaa ɔbarima ne ɔbea nna mu nsu nhyehyɛe a ɛsɛe.
• Nsɛnnennen a ebetumi aba sɛ saa nhama yi kyekyere awotwaa no mu na esiw akokoaa no mogya kwan a .

Saa tebea yi taa ma wɔwo akokoaa no ntɛm. Sɛ wɔwo obi ntɛm a, ɛwɔ n’ankasa asiane ahorow. Asiane nso wɔ hɔ sɛ nyinsɛn betu anaa awo a wawu. Ebia mmofra a wɔwɔ saa tebea yi behia apɔw-mu-teɛteɛ ne adwuma mu ayaresa mfe pii, anaasɛ kosi sɛ wɔbɛyɛ nsakrae wɔ nsɛnnennen a ɛne wɔn akwaa a ɛyera anaasɛ wɔn nyin a ɛyɛ mmerɛw mu.

Dɛn nti na amniotic band syndrome (ABS) ba? Dɛn na ɛde ba?

Nhwehwɛmu pii kyerɛ sɛ ntease pɔtee biara nni hɔ a enti ɛte saa.Wosusuw sɛ nea ɛde ba titiriw ne amnion (nsu kotoku a atwa akokoaa no ho ahyia) no mu fã a ɛsɛe. Nneɛma a ebetumi ama nsu kotoku yi asɛe no bi ne:

• Wɔyɛ nhwehwɛmu ahorow bi bere a wɔyem , te sɛ Chorionic Villus Sampling (CVS) anaa Amniocentesis. Nea ɛka eyi ho ne sɛ wɔde ade bɛto nsu kotoku no mu na wɔagye nsu anaa ntini bi afi akokoaa no mu. Nanso, ɛntaa nsi koraa sɛ sɔhwɛ ahorow yi de ɔhaw bɛba.
• Oprehyɛn akɛse a wɔyɛ wɔ akokoaa a ɔwɔ awotwaa mu no ho (Open Fetal Surgery). Wɔyɛ eyinom wɔ nsɛm a emu yɛ den yiye a ɛde nkwa to asiane mu nkutoo mu.

Nanso, wɔ tebea horow bi a ɛwɔ amniotic band syndrome mu no, nsu kotoku no nsɛe koraa. Enti, abenfo binom gye di sɛ ɔhaw bi a ɛwɔ mogya a ɛkɔ akokoaa no nipadua mu no mu na ɛde eyi ba. Ebia nkokoaa binom mogya ntumi nkɔ yiye esiane awosu mu nkɛntɛnso nti.

Hena na ɔwɔ asiane kɛse mu ma tebea yi?

Hokwan a wowɔ sɛ wobɛwo akokoaa a ɔwɔ saa tebea yi betumi ayɛ kɛse kakra sɛ wo:

• Sɛ wowɔ nsɛnnennen afoforo wɔ nyinsɛn mu a.
• Sɛ wowɔ tebea bi a wɔfrɛ no `(Vascular Ehlers-Danlos Syndrome)` a.
• Sɛ wonom sigaret bere a wonyinsɛn a.
• Sɛ wode nnuru a wɔankyerɛw amma wo redi dwuma a wunnyaa nnuruyɛfo afotu, anaasɛ worenom nnuru bi bere a wonyinsɛn a.

Wobɛyɛ dɛn ahu eyi pɛpɛɛpɛ?

Mpɛn pii no, oduruyɛfo hu saa tebea yi bere a wɔawo akokoaa no akyi, bere a ɔreyɛ akokoaa no mu nhwehwɛmu no. Nanso ɛtɔ mmere bi a, wobetumi ahu eyi ho sɛnkyerɛnne nso bere a wɔreyɛ ultrasound scan bere a wɔyem no. Ebia scan no bɛkyerɛ nhama a nhama a ɛyɛ den no na ɛde ba. Nanso mpɛn pii no, scan no kyerɛ sɛ akwaa bi nni hɔ, anaasɛ nipadua no akwaa nnyaa nkɔso yiye.

Wotumi hu eyi ntɛmntɛm dɛn wɔ scan so?

Ɛtɔ mmere bi a wotumi hu amniotic band syndrome ho sɛnkyerɛnne wɔ adapɛn 12 akyi wɔ nyinsɛn no akyi, nanso ɛyɛ den yiye. Mpɛn pii no, wo duruyɛfo behu eyi ho sɛnkyerɛnne bere a wɔreyɛ nipadua no nipadua mu nhwehwɛmu, a wɔyɛ no bɛyɛ adapɛn 20. Sɛ adwenem naayɛ bi wɔ hɔ a, wo duruyɛfo betumi ahyɛ sɛ wɔnyɛ nhwehwɛmu foforo te sɛ MRI (Magnetic Resonance Imaging).

Dɛn ne ayaresa ahorow a wɔde sa eyi?

Wɔtaa yɛ ayaresa bere a wɔawo wo ba no akyi. Ayaresa ko a wɔde yɛ no gyina baabi a na teyp no wɔ ne sɛnea na ɛyɛ den no so. Wɔ tebea horow a emu nyɛ den mu no, ebia oduruyɛfo a ɔbɛhwɛ no yiye nkutoo ne nea ehia.Nanso sɛ tebea no mu yɛ den araa ma ɛka akokoaa no nkate a, ehia sɛ wɔsa no ntɛm. Ɛtɔ mmere bi a oprehyɛn betumi asiesie ɔhaw ahorow te sɛ nan a wɔde abɔ, anofafa ne anom a apaapae, ne syndactyly. Nkokoaa ne mmofra a wɔn akwaa ayera anaasɛ ayɛ tiaa betumi anya mfaso afi nipadua a wɔde yɛ nipadua no mu. Apɔw-mu-teɛteɛ ne adwuma mu ayaresa betumi aboa wɔn ma wɔde saa akwaa a wɔde nsa ayɛ yi adi dwuma na ama wɔn dwumadi nyinaa atu mpɔn.

Ɛntaa mma koraa sɛ oduruyɛfo betumi ayɛ adeyɛ bi a wɔfrɛ no fetoscopy de ayi amniotic kotoku no bere a akokoaa no da so ara wɔ awotwaa mu no. Oprehyɛn yi botae ne sɛ ɛbɛma kotoku a ɛyɛ den no afi hɔ na wɔasiw ɔsɛe foforo ano. Nanso, saa adeyɛ yi betumi de akwahosan ho asiane kɛse aba ɛna ne akokoaa nyinaa so. Mpɛn pii no, bere a kotoku no mu ayɛ den araa ma ɛde nkwa to asiane mu nkutoo na wɔyɛ eyi.

So akokoaa no betumi atra ase wɔ tebea yi mu?

Yiw, nkokoaa pii de tebea yi tra ase. Sɛ́ ebia wɔbɛtra ase anaasɛ wɔrennya nkwa no gyina nneɛma te sɛ baabi a na kasɛt no wɔ ne sɛnea na ɛyɛ den no so.

So saa amniotic bands yi rekɔ?

Dabi Mpɛn pii no , ntini a ɛwɔ nipadua no mu anaa akuru a amniotic bands de ba no nkɔ. Eyi gyina sɛnea nhama no akɔ honam ani kɔ akyiri no so. Bisa wo duruyɛfo no ayaresa a wobetumi de adi akuru ahorow yi ho asɛm.

So ɔkwan bi wɔ hɔ a wɔbɛfa so asiw eyi ano?

Nokwarem no, ɔkwan pɔtee biara nni hɔ a wɔbɛfa so asiw amniotic band syndrome ano. Nnuruyɛfo gye di sɛ mpɛn pii no ɛba kwa, a ntease biara nni mu.

Dɛn na yebetumi asusuw ho wɔ tebea yi ho akɔ yɛn anim? (Nsusuwii) .

Wɔ nkokoaa a wɔwɔ ABS a emu nyɛ den fam no, adwene no ye. Nkokoaa a wɔwo wɔn a wɔn akwaa bi a ɛnyɛ ne kwan so no taa dan wɔn ho yiye wɔ nipadua akwaa a wɔde yɛ nipadua ne nhyehyɛe ahorow a wɔde siesie wɔn ho no mu. Nanso, nkokoaa a wɔn akwaa asɛe kɛse na mogya nkɔ wɔn awotwaa mu no ntaa ntra ase. Mmofra a wɔawuwu 70 biara mu bɛyɛ 1 fi amniotic band syndrome.

Sɛ wo ba no wɔ amniotic band syndrome a, dɛn na ɛsɛ sɛ woyɛ?

Mmofra a wɔwɔ saa tebea yi hia mmoa a emu yɛ den ne ɔhwɛ a ɛkyɛ.Ɛsɛ sɛ awofo, abusua mufo, ne nnuruyɛfo nyinaa bom boa wo ba no ma ɔyɛ nsakrae wɔ ne honam ani hwɛbea ne dwumadi mu nsɛnnennen a tebea yi de ba no mu. Ebia ɛho behia sɛ wo ba no kɔ animdefo ahorow bi nkyɛn. Sɛ nhwɛso no, nnompe ho oprehyɛn ne ntini ho animdefo (egyina nipadua no afã horow a ɛka so). Abusua mufo ne anuanom nso betumi anya mmoa wɔ akuw a wɔboa mmusua a wɔwɔ mmofra a wɔwɔ saa tebea yi mu. Sɛ wuhu sɛ wo ba no wɔ amniotic band syndrome a, ebia wubenya nsɛmmisa ne ehu pii. Nea edi kan koraa no, kae sɛ w’aduruyɛfo kuw no wɔ hɔ sɛ wɔbɛboa wo ne wo ba no, ahwɛ wo yiye. Sɛnea wo tebea no te ankasa begyina sɛnea nhama no mu yɛ den ne baabi a ɛwɔ so. Ebia eyi bɛkyerɛ sɛ ɛho behia sɛ wotaa yɛ ultrasound scan wɔ wo nyinsɛn mu. Anaasɛ ebia ebehia sɛ wɔyɛ wo oprehyɛn bere a wɔawo akokoaa no akyi, wɔsan siesie wo bere tenten, anaasɛ wɔde akwaa a wɔde nsa ayɛ bedi dwuma de asan ayɛ adwuma. Nsuro sɛ wo ne wo oduruyɛfo a ɔwɔ ayaresabea a wɔhwɛ awo ansa na wɔawo anaa wo ba no aduruyɛ kuw bɛkasa afa saa yare a wɔahu yi ne sɛnea ɛbɛka w’abusua no ho.

Nkrasɛm a Etwa To a Wɔde Kɔ Fie

Amniotic Band Syndrome yɛ ade a ɛyɛ hu ankasa, nanso ɛho hia yiye sɛ wuhu.

• Eyi yɛ tebea a ɛntaa nsi koraa.
• Mpɛn pii no, eyi si kwa, a ɛkyerɛ sɛ ɛnyɛ obiara mfomso.
• Nkokoaa pii a wɔwo wɔn a wɔwɔ saa tebea yi no, sɛ wɔde ayaresa pa ne abusua boa wɔn a, wotumi tra ase yiye.
• Sɛ wotumi hu eyi bere a wɔyem a, ɛbɛboa ma wɔayɛ ayaresa a ehia ma akokoaa no ho nhyehyɛe.
• Sɛ wowɔ adwenem naayɛ anaa nsɛmmisa bi a, hwɛ hu sɛ wo ne wo duruyɛfo bɛkasa. Wɔbɛma wo nsɛm ne mmoa a wuhia nyinaa. Mma ɛnhaw wo, ɛnyɛ wo nko ara.