So wote nka sɛ woabrɛ na woabrɛ araa ma wuntumi nyɛ wo da biara da nnwuma, anaasɛ wuntumi mfi mpa so mpo? So ɛte sɛ nea aguare a wobɛhohoro na woasiesie aduan no te sɛ adwuma kɛse? Sɛ woka eyi kyerɛ obi a, so obu wɔn ani gu wo so, na wɔka sɛ, "Ɛyɛ wo ɔkwasea kɛkɛ," "Dɔ kakra," anaa "Ɛyɛ adwene mu asɛm ara kwa?" Afei akyinnye biara nni ho sɛ ɛsɛ sɛ wokenkan asɛm yi. Efisɛ ɛnnɛ yɛreka tebea bi a ɛde sɛnkyerɛnne te sɛ eyinom ba ho asɛm, nanso nnipa pii, wɔ ɔmanfo ne aduruyɛ mu nyinaa, nnim no yiye.
Dɛn ankasa ne Myalgic Encephalomyelitis/Ɔbrɛ a Enni Sabea (ME/CFS)?
Sɛ yɛbɛka no tiawa a, ME/CFS yɛ tebea a ɛtra hɔ kyɛ, ɛyɛ den, na emu yɛ den a ebetumi asɛe wo da biara da dwumadi ahorow koraa. Nsɛnkyerɛnne titiriw ne ɔbrɛ a emu yɛ den a wontumi nnyina ano na wontumi nkyerɛkyerɛ mu mfi biribiara mu. Eyi nte sɛ ɔbrɛ a ɛyɛ daa. Saa ɔbrɛ yi nnyae bere a obi ada nnɔnhwerew pii mpo akyi.
Fa no sɛ woresan afi akwantu tiawa bi mu aba, anaasɛ woreyɛ ofie nnwuma bi. Afei, nna pii no, wote nka sɛ woabrɛ araa ma wuntumi mfi mpa so. Yɛfrɛ eyi "Post-Exertional Malaise." Ɛkyerɛ sɛ yare no ho sɛnkyerɛnne no mu yɛ den wɔ nipadua anaa adwene mu mmɔdenbɔ kakra akyi.
Nnipa pii a wɔte saa tebea yi mu no hyia ɔhaw afoforo pii.
- Dae a ɛnyɛ nea ahoɔden wom
- Nipadua mu yaw
- Sɛ obi ntumi mfa n’adwene nsi biribi so, na wo werɛ mfi biribiara, tebea te sɛ amemene mu sum
- Adwene a ɛyɛ basaa bere a ogyina hɔ anaa ɔte hɔ no
Saa sɛnkyerɛnne ahorow yi ma ɛyɛ dae ma wɔn sɛ wɔbɛyɛ adwuma, de wɔn ho ahyɛ ayɔnkofa dwumadi ahorow mu, na wɔayɛ da biara da nnwuma mpo.
So eyi yɛ yare ankasa? Anaasɛ worebu w’ani agu yɛn so?
Eyi ne asɛnnennen kɛse a nnipa a wɔwɔ ME/CFS hyia. Ɛnyɛ wɔn abusuafo, nnamfo, ne adwumawuranom nko, na mmom ɛtɔ mmere bi a nnuruyɛfo mpo mmu saa sɛnkyerɛnne ahorow yi aniberesɛm. Nhwehwɛmu bi a CDC ne WebMD yɛe nnansa yi wɔ United States daa no adi sɛ nnipa a wohu yare yi sua koraa.
Wɔn a wobisabisaa wɔn nsɛm no mu 90% kae sɛ saa sɛnkyerɛnne ahorow yi ahyɛ wɔn ma wɔagyae asetra, ahomegye, ne adwumayɛ dwumadi ahorow. Nanso, na wɔn mu nkyem abiɛsa mu biako pɛ na wɔne oduruyɛfo bi abɔ ho nkɔmmɔ. Ade titiriw nti a eyi bae ne suro a na yɛwɔ sɛ "oduruyɛfo no rennye yɛn nni."
Wo de susuw sɛnea ɛyɛ awerɛhow no ho hwɛ. Worehu amane wɔ yare bi mu, nanso obiara nni hɔ a ɔbɛka akyerɛ, na sɛ woyɛ saa mpo a, obiara nnye wo nni. Sɛnea nhwehwɛmu bi kyerɛ no, nnipa 10 biara a wɔakɔ oduruyɛfo nkyɛn no mu 6 te nka sɛ wɔamfa wɔn aniberesɛm.
- 64% na wɔn duruyɛfo aka akyerɛ wɔn sɛ "wɔnnye wɔn ahome kakra."
- 62% kaa sɛ "Eyi yɛ adwene mu haw."
Eyi twentwɛn sɛnea wobehu yare no ase mfe pii. Nnipa binom gye bɛboro mfe 5 ansa na wɔahu yare no yiye.
Dɛn nti na ɛyɛ den saa sɛ wobehu yare no?
Nneɛma atitiriw pii nti na ME/CFS a wobehu no betumi ayɛ den.
1. Nhwehwɛmu pɔtee biara nni hɔ: Te sɛ nea wɔhwɛ asikre a ɛwɔ mogya mu de hu asikreyare no, mogya mu nhwehwɛmu anaa scan pɔtee biara nni hɔ a ebetumi asi ME/CFS so dua.
2. Nsɛnkyerɛnne ahorow gu ahorow: Ɔkwan a sɛnkyerɛnne ahorow no fa so da adi no betumi ayɛ soronko wɔ onipa biara ho. Bio nso, wohu saa sɛnkyerɛnne ahorow yi wɔ nyarewa afoforo pii mu.
3. Nnuruyɛfo a wonni nimdeɛ: Aduruyɛ sukuu pii a ɛwɔ wiase nyinaa mfa ME/CFS nka wɔn adesua nhyehyɛe ho, na ɛma nnuruyɛfo binom susuw sɛ ɛyɛ adwene mu asɛm.
Enti, sɛ wubehu yare yi a, wuhia oduruyɛfo a ne ho akokwaw a ɔde boasetɔ tie ɔyarefo no na ɔhwehwɛ yare no ho sɛnkyerɛnne ahorow mu yiye . Oduruyɛfo no bedu saa asɛm yi ho bere a watie wo yare no ho sɛnkyerɛnne no yiye na wapow aduruyɛ mu tebea afoforo akyi.
| Nneɛma atitiriw a wɔde hu ME/CFS | |
|---|---|
| Nsɛnkyerɛnne atitiriw (ɛsɛ sɛ abiɛsa no nyinaa wɔ hɔ) . | |
| 1. Ɔbrɛ a ɛtra so | Ɔbrɛ a emu yɛ den a ɛtra hɔ asram 6 anaa nea ɛboro saa na ɛmma wontumi nyɛ da biara da dwumadi ahorow. |
| 2. Apɔw-mu-teɛteɛ akyi a ɛyɛ mmerɛw | Nsɛnkyerɛnne no mu yɛ den yiye wɔ nipadua, adwene, anaa nkate fam mmɔdenbɔ nketenkete mpo akyi. |
| 3. Dae a Ɛmma Ahomegye | Sɛ woda nnɔnhwerew pii mpo a, sɛ wosɔre a, woda so ara te ɔbrɛ nka. |
| Nsɛnkyerɛnne foforo (anyɛ yiye koraa no, ɛsɛ sɛ eyinom mu biako wɔ hɔ) . | |
| 1. Nkate mu Nhumu a Ɛyɛ Fɛ | Wonim no sɛ "Brain Fog," ɛyɛ den sɛ wɔbɛkae, wontumi mfa n'adwene nsi biribi so, na egye bere tenten ansa na wɔadi nsɛm ho dwuma. |
| 2. Orthostatic Intolerance a ɛnyɛ nea ɛfata | Nsɛnkyerɛnne te sɛ adwenemhaw, mmerɛwyɛ, anaa aniwa a ɛyɛ kusuu ba bere a ɔte hɔ anaa ogyina hɔ na ɛma ahotɔ bere a ɔda fam no. |
Dɛn ne Amemene Mu Nsuo?
Eyi yɛ sɛnkyerɛnne a ɛhyɛ abufuw kɛse. Sɛnea ayarefo kyerɛ no, ɛtɔ mmere bi a wɔkyerɛw email na wɔde mena wɔ adwumam, nanso bere a edi hɔ no wɔnkae sɛ ebia wɔde email no kɔe anaa nea na ɛwɔ mu. Egye bere tenten ansa na yɛasusuw nneɛma a ɛnyɛ den ho na yɛasi gyinae. Eyi nya wɔn adwuma ne wɔn ankasa asetra so nkɛntɛnso kɛse.
Nsɛnnennen a ɛwɔ tebea yi a wɔde bɛtra ase mu
Saa nkurɔfo yi wɔ adwene mu nhyɛso a ɛyɛ hu sen nipadua mu ɛyaw a ME/CFS de ba no. Awerɛhow ne ankonamyɛ a wɔte nka bere a wɔn ankasa abusua susuw sɛ, "Woreyɛ ade," ne bere a wɔn nnamfo bɔ wɔn sobo sɛ, "Worekwati yɛn mprempren" no yɛ den yiye sɛ wobegyina ano.
Nneɛma bi wɔ hɔ a wopɛ sɛ woyɛ, nneɛma bi wɔ hɔ a wopɛ sɛ woyɛ. Nanso wo nipadua remma wo kwan. Na afei obi ka kyerɛ wo sɛ, "Ɛsɛ sɛ wohome." Esiane nneɛma a ɛte sɛɛ nti, nnipa a wɔwɔ ME/CFS no taa nya adwenemyare te sɛ adwenemhaw ne dadwen .**
Enti, ɛho hia paa sɛ yɛn nyinaa ma yɛn ani da hɔ wɔ saa yare yi ho. Sɛ wowɔ saa sɛnkyerɛnne ahorow yi, anaasɛ obi a wunim no rehu amane wɔ saa tebea yi mu a, mmoa kɛse a wubetumi ayɛ ne sɛ wobɛboa no na woate ase.
Nkrasɛm a Wɔde Kɔ Fie
- Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) yɛ aduruyɛ mu tebea ankasa a emu yɛ den . Ɛnyɛ ɔbrɛ anaa adwene mu nsusuwii.
- Nsɛnkyerɛnne titiriw ne ɔbrɛ a wontumi nnyina ano, sɛnkyerɛnne a emu yɛ den bere a wabɔ mmɔden kakra mpo akyi, ne nna a ɛnyɛ dɛ.
- Ebetumi ayɛ den sɛ wubehu yare no, enti ɛho hia sɛ wokɔ oduruyɛfo nkyɛn a obefi ne bo ase atie wo yare no ho sɛnkyerɛnne ahorow .
- Ansa na wobɛkɔ oduruyɛfo nkyɛn no, sɛ wokyerɛw wo sɛnkyerɛnne ahorow no da biara da (sɛ nhwɛso no, bere a ɛyɛ kɛse, sɛnea woda, sɛnea wokae ade) a, ɛbɛboa wo ma woahu yare no pɛpɛɛpɛ.
- Ɛyɛ den sɛ wo nkutoo bɛfa akwantu yi mu. Nanso mma anidasoɔ nnyae. Sɛ wonya ntease ne mmoa a ɛfata a, wobetumi adi tebea yi ho dwuma.
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