So wo nipadua kotow dodo? So wowɔ nkwaa mu yaw? Momma yensua Joint Hypermobility Syndrome ho ade.

Ebia woahyɛ no nsow sɛ nnipa binom kotow wɔn nsateaa san wɔn akyi wɔ ɔkwan a ɛyɛ nwonwa so, anaasɛ wɔkotow wɔn nkotodwe kɔ akyiri araa ma wɔsan kɔ akyi nyinaa. Nnipa binom nso frɛ eyi sɛ ‘double-jointed’. Nokwarem no, mpɛn pii no eyi nyɛ ɔhaw a anibere wom. Nanso sɛ wo nso wowɔ saa nkwaa a ɛyɛ mmerɛw yi, ne nkwaa mu yaw ne opira a ɛtaa ba a, ebia wubenya tebea bi a wɔfrɛ no Joint Hypermobility Syndrome. Momma yɛnka eyi ho asɛm tiawa, wɔ ɔkwan a wubetumi ate ase so.

Sɛ yɛbɛka no tiawa a, dɛn ne Joint Hypermobility Syndrome?

Yɛn nkwaa no nam ntini a ɛyɛ den so na ɛka bom. Yɛfrɛ saa ntini ahorow yi . Wɔte sɛ rɔba a ɛkura yɛn nkwaa mu na ɛmma ɛnkeka yɛn ho dodo. Wɔ obi a ɔwɔ Joint Hypermobility Syndrome mu no, saa ntini ahorow yi yɛ mmerɛw anaasɛ ɛyɛ mmerɛw. Wɔte sɛ rɔba a wɔatrɛw mu afi dwumadie mu. Enti wɔn nkwaa tumi kotow kɔ akyiri sen sɛnea ɛte daa. Sɛ ɛyaw ka saa nsakrae a ɛboro so yi ho a, yɛfrɛ tebea yi Joint Hypermobility Syndrome. Wɔkyekyɛ mu sɛ ɛyɛ ntini a ɛka bom yɛ adwuma .

Nsonsonoe bɛn na ɛda ‘ɔhohoro’ ne ‘yare’ ntam?

Ɛha na nnipa pii adwene tu fra. Nkwaa a ɛkɔ baabiara dodo, anaasɛ tumi a obi tumi kotow nkwaa dodo no abu so kɛse wɔ ɔmanfo mu. Sɛ wubetumi abɔ nkwaa te sɛ wo nsateaa, wo nsateaa, wo nsateaa, ne wo nkotodwe a ɛboro nea ɛfata so a, ɛno na wɔfrɛ no hypermobility.

Nanso wɔ nnipa dodow no ara fam no, eyi mfa ɛyaw anaa akwahosan ho haw foforo biara mma. Nanso ebinom fam no, saa nsakrae a ɛtra so yi de sɛnkyerɛnne pii te sɛ nkwaa mu yaw, nkwaa ne ntini a ɛtaa pira, ɔbrɛ, ne ɔhaw ahorow a ɛba wɔ dwensɔtwaa ne nsu a ɛkɔ nipadua no mu ho ba . Ɛno ne bere a yɛfrɛ no Joint Hypermobility Syndrome . Sɛ yɛbɛka no tiawa a, nsakrae a ɛboro so + sɛnkyerɛnne = syndrome.

Saa tebea yi taa ba mmofra ne mpanyimfo nkumaa so. Ɛtaa ba mmea ne nnipa a wofi Asia ne Afrika-Caribbean abusua mu nso kakra. Nanso asɛmpa no ne sɛ tebea no taa so tew bere a obi nyin no.

So eyi betumi ayɛ yare foforo a emu yɛ den ho sɛnkyerɛnne?

Yiw, ɛtɔ mmere bi a nkwaa a ɛtumi tu boro so no betumi ayɛ tebea bi a emu yɛ den kɛse, a efi awosu mu ho sɛnkyerɛnne. Wɔfrɛ eyinom sɛ Heritable Disorders of Connective Tissue (HDCT) a ɛma obi nya apɛde. Tebea horow a ɛntaa nsi a ebia ɛne Joint Hypermobility Syndrome wɔ abusuabɔ no bi ni:

• Ehlers-Danlos Syndrome: Eyi yɛ tebea horow kuw bi a ɛka yɛn ntini, nnompe, srade, ne mogya. Yɛn ntini a ɛka bom a ɛma ahoɔden na ɛyɛ mmerɛw no, .protein collagen no mu sintɔ bi na ɛde tebea yi ba.
• Marfan Syndrome: Eyi nso yɛ tebea a ɛka ntini a ɛka bom. Ɛnam sintɔ bi a ɛwɔ awosu mu abɔde bi a ɛyɛ fibrillin ne elastic fibers a ɛyɛ yɛn ntini a ɛka bom no fã titiriw no mu.
• Down Syndrome: Eyi yɛ awosu mu tebea a ɛka yɛn amemene ne yɛn nipadua nyin. Wɔwo nnipa a wɔwɔ Down Syndrome a wɔwɔ chromosome foforo.

So wo nso wowɔ saa sɛnkyerɛnne ahorow yi? Hwɛ sɛnea ɛte...

Joint Hypermobility Syndrome ho sɛnkyerɛnne titiriw ne nea ɛtaa ba ne ɛyaw a ɛba nkwaa ne ntini mu. Nea ɛka ho no, hwɛ sɛ wo nso wowɔ saa nneɛma yi anaa:

• Nkwaa ne ntini a ɛtaa pira: Sɛ nhwɛso no, mmati a ɛpae, kotodwe a ɛpae, ne akisikuru taa ba.
• Nkwaa ne ntini a ɛyɛ den: Sɛ wote nka sɛ wo ho ayɛ den wɔ nipadua no mu, bere a wudi kan sɔre anɔpa anaa bere a wugyina hɔ kakra no.
• Ɔbrɛ: Ɔbrɛ a wobɛte nka bere nyinaa a ntease pɔtee biara nni ho.
• Kari a ɛnkari pɛ wɔ nipadua no mu: Sɛ wote nka sɛ worehwe ase bere nyinaa na worehwere wo kari pɛ.
• Nsuo ne nsuo mu haw: Nnipa binom betumi anya yafunu mu yaw na wɔn ho ayɛ wɔn yaw wɔ tebea yi ho.
• Adwene a ɛyɛ wo yaw na woatɔ piti: Wote nka sɛ wo ho ayɛ wo yaw na wo tirim yɛ hare, te sɛ nea wosɔre gyinaa hɔ mpofirim.
• Wo honam ani hwɛbea a ɛyɛ tratraa a ɛtrɛw: Ebia nnipa binom honam ani bɛtrɛw sen sɛnea ɛte daa.

Dɛn nti na biribi a ɛte sɛɛ si?

Wonnya nhuu nea ɛde tebea yi ba ankasa. Nanso, wogye di sɛ wɔde fi awo ntoatoaso so kɔ awo ntoatoaso so . Eyi kyerɛ sɛ, sɛ wo maame, wo papa, anaa wo busuani bi a ɔbɛn wo wɔ saa yare yi a, ɛda adi sɛ wo nso wubenya bi.

Nyansahufo gye di sɛ nsakrae a ɛba awosu mu nneɛma a ɛma protein bi a wɔfrɛ no collagen wɔ yɛn nipadua mu no na ɛde eyi ba. Sɛnea yɛadi kan aka no, collagen ne nea ɛma yɛn nkwaa, ntini, ne ntini ahorow no ahoɔden ne nea ɛyɛ mmerɛw. Nnipa a wɔwɔ Joint Hypermobility Syndrome no wɔ saa sintɔ yi wɔ collagen mu, na ɛma wɔn ntini ahorow no yɛ mmerɛw. Sɛ ntini no yɛ mmerɛw a, nkwaa no mu yɛ hare na efi ase kotow sen sɛnea ɛsɛ sɛ ɛyɛ.

Wobɛyɛ dɛn ahu eyi, Oduruyɛfo?

Sɛ wokɔ oduruyɛfo nkyɛn a, ade a edi kan a ɔbɛyɛ ne sɛ ɔbɛyɛ nipadua mu nhwehwɛmu de ahwɛ sɛnea wo nkwaa no tumi keka wo ho. Ebia wɔbɛyɛ mogya mu nhwehwɛmu nso de ahwɛ sɛ awosu mu tebea afoforo a yɛadi kan aka ho asɛm no wɔ hɔ.

Nea ɛka ho no, akwan titiriw pii wɔ hɔ a wɔfa so susuw sɛnea wo nkwaa no tumi yɛ mmerɛw.

Beighton nkontabuo

Eyi yɛ nsenia a ɛwɔ nsɛntitiriw 9. Saa sɔhwɛ yi susuw sɛnea wubetumi ayɛ nsakrae. Sɛ wubetumi ayɛ nea edidi so yi a, wubenya nkontaa biako wɔ emu biara ho.

Nsɛmmisa anum a wɔde bisabisa nsɛm

Afei nso, oduruyɛfo no betumi abisa wo nsɛm 5 yi:

1. So woatumi de wo nsateaa ato fam a woankotow wo nkotodwe pɛn?

2. So woatumi abɔ wo nsateaa kɛse na wode apete wo nsa ase pɛn?

3. Sɛ́ abofra no, so wode wo nipadua kotow wɔ akwan a ɛyɛ nwonwa so gyee wo nnamfo ani? Anaasɛ wutumi yɛɛ mpaapaemu?

4. Sɛ́ abofra anaa ɔpanyin kumaa no, so wopaapaee wo mmati anaa wo kotodwe bɛboro pɛnkoro?

5. So wubu wo ho sɛ ‘woyɛ obi a ɔwɔ nkwaa abien’?

Sɛ wubua "yiw" wɔ nsɛmmisa yi mu abien anaa nea ɛboro saa ho a , ebia wowɔ Joint Hypermobility Syndrome.

Dɛn ne ayaresa ahorow a wɔde sa eyi?

Wɔnnyaa saa tebea yi ano aduru biara. Nanso wubetumi adi wo yare no ho sɛnkyerɛnne so na woabɔ bra sɛnea ɛsɛ. Botae atitiriw a ɛwɔ ayaresa mu ne sɛ ɛbɛbɔ wo nkwaa ho ban na adi wo yaw no ho dwuma.

Sɛ wohyɛ ntini a atwa wo nkwaa ho ahyia no den a, ebetumi aboa ma mmoa a wonya no ayɛ kɛse na abɔ ho ban. Nneɛma bi a wubetumi ayɛ de aboa ni:

• Kɔ so gyina hɔ yiye: Sɛ wugyina hɔ a, kotow wo nkotodwe kakra. Kwati sɛ wobɛkotow wo nkotodwe a ɛboro nea wobetumi ayɛ so.
• Hyɛ mpaboa a ɛboa wo yiye: Fa mpaboa soronko (orthotics) a wɔayɛ wɔ nnuruyɛfo afotu so di dwuma, titiriw sɛ wo nan yɛ tratraa a.
• Hwɛ Apɔw-mu-teɛteɛ Ho Oduruyɛfo: Ɛho hia yiye sɛ wohwehwɛ apɔw-mu-teɛteɛ ho ɔyaresafo mmoa na ama ɛyaw no so atew, ama ntini ahoɔden akɔ soro, na ama wo gyinabea ne nipadua no kari pɛ.

Sɛ ɛyaw a, ebia wo duruyɛfo bɛkamfo nnuru a wɔtɔn a wɔde ma ɛyaw te sɛ acetaminophen anaa ibuprofen akyerɛ wo . Nanso nnyɛ wo ho aduru da a wunni aduruyɛ mu afotu. Sɛ ɛyaw no mu yɛ den a, wo ne wo duruyɛfo nkasa mfa ayaresa a ɛfata ho.

So aduan ne anonne ka eyi?

Nhwehwɛmu ada no adi sɛ ebia abusuabɔ bi wɔ Joint Hypermobility Syndrome ne yafunu mu yare, titiriw Irritable Bowel Syndrome (IBS) ntam . IBS ho sɛnkyerɛnne (yafunu mu yaw, akisikuru, akisikuru, anaa akisikuru) abu so wɔ nnipa a wɔwɔ saa tebea yi mu.

Enti, ebia wo duruyɛfo bɛka akyerɛ wo sɛ sɔ nnuan bi nhwɛ kakra. Wɔfrɛ eyi aduan a wɔayi afi mu . Eyi betumi aboa wo ma woahu sɛ ebia wowɔ aduan a wuntumi nnyina ano anaa. Aduan akuw a wɔtaa sɔ hwɛ wɔ saa kwan yi so ne:

• Aduan a gluten nnim: Kwati nnuan a gluten, protein a ɛwɔ aburow te sɛ awi ne atoko mu wom.
• Aduan a lactose nnim: Kwati nnuan a lactose, asikre bi a ɛwɔ nufusu ne nufusu mu nneɛma wom.
• Aduan a FODMAP nnim: Nnuan a asikre a ɛnyɛ den sɛ ɛbɛhyew (lactose, fructose, fructans, galactans, polyols) a ɛwɔ nnuan bi mu a wɔbɛbara.