So wo ba ketewa no anofafa/anom apaapae? (Cleft Lip/Cleft Palate) – Momma yɛnka nufu a wɔde ma ho asɛm!

Oh, so wɔwoo wo ba ketewa no a n’ano anaa n’anom apaapae? Sɛ́ ɛna no, ebia sɛ biribi te sɛ eyi si a, wunya nsusuwii pii. Nanso mma ɛnhaw wo, wɔde saa nneɛma yi wo nkokoaa pii. Nea ɛho hia sen biara ne sɛ wobɛma akokoaa no nufusu dodow a ɛfata sɛnea ɛbɛyɛ a ne mu duru bɛkɔ soro yiye na nsu remma ne mu. Ɛtɔ mmere bi a, nkokoaa yi hia mmoa titiriw kakra na wɔatumi anom nufusu.

Ɔkwan bɛn so na wɔma akokoaa a n’ano apaapae nufu?

Mpɛn pii no, nkokoaa a wɔwo wɔn a wɔn ano apaapae na wonni anom haw biara no betumi ama nufu yiye a wonni nnwinnade titiriw biara. Wobetumi ama nufu sɛnea ɛsɛ anaasɛ wɔde toa a wɔde di dwuma daa adi dwuma. Ɛtɔ mmere bi a nea ɛsɛ sɛ wɔyɛ ara ne sɛ wɔbɛsesa latch no kakra sɛnea ɛbɛyɛ a akokoaa no betumi akyekyere no yiye . Sɛ worenom nufu a, bɔ mmɔden sɛ wobɛsesa wo ba no gyinabea sɛnea ɛbɛyɛ a wo nufu no bɛhyɛ wo nufu ntam kwan no ma. Eyi bɛboa wo ba no ma wanom nufu ntɛm.

Nsɛnnennen bɛn na ɛwɔ akokoaa a n’anom apaapae nufu mu?

Nanso, ɛyɛ den ma nkokoaa a wɔwo wɔn a wɔn ano anaa wɔn anom apaapae, sɛ́ ebia wɔn ano apaapae anaasɛ enni mu no, sɛ wɔbɛnom nufu afi nufu no mu tẽẽ. Nea enti a ɛte saa ne sɛ wontumi mfa nhyɛso a ɛwɔ wɔn ano no mma sɛ wobeyi nufusu no afi nufusu no mu. Susuw ho sɛ sɛ yɛnom biribi fa sare mu a, ɛsɛ sɛ yɛyɛ vacuum wɔ yɛn ano mu. Ɛno nti na ɛyɛ den ma nkokoaa yi sɛ wɔbɛyɛ biribi a ɛte saa esiane anom a apaapae nti. Sɛ wobɔ mmɔden sɛ wobɛma akokoaa a ɔte saa nufu a, sɛ́ ebia wobɔ mmɔden sɛ wode toa a wɔde di dwuma daa bɛma no aduan no, ebia ɔrennya nufusu a ɛdɔɔso na ebia ne mu duru renkɔ soro (ɔrentumi nyɛ yiye) . Ɛno kyerɛ sɛ ebia akokoaa no rennyin yiye. Ɔhaw afoforo bɛn na ebetumi aba?

• Sɛ akokoaa nom nufusu a ebia nufusu betumi afi ne hwene mu aba . Yɛsan frɛ eyi ``Nasal Regurgitation''. Ebetumi ayɛ hu ama ɛnanom sɛ wobehu eyi, nanso ɛyɛ biribi a ɛsɛ sɛ wɔhwɛ kwan wɔ tebea yi mu.
• Ebia akokoaa bɛmene mframa pii asen akokoaa a ɔte ase bere a ɔrema nufu, na ɛno betumi ama ne yafunu ayɛ basaa.
• Ɛtɔ da bi a, sɛ akokoaa bi nya ``syndrome'' foforo a, sɛnkyerɛnne ahorow a ɛfa ho a wɔaboaboa ano, nufu ho nsɛm afoforo te sɛ aduan mu haw ahorow betumi aba.

Toa bɛn na ɛsɛ sɛ wɔde ma akokoaa a n’anom apaapae aduan?

Sɛ wobɛma akokoaa a n'anom apaapae aduan a ɛsɛ sɛ wode toa nhyehyɛe titiriw bi di dwuma . Wɔayɛ saa nkotoku yi sɛnea ɛbɛyɛ a akokoaa no benya aduannuru a ɛfata a ɛremma akokoaa no nhyɛ akokoaa no so dodo sɛ ɔbɛnom nufu. Eyinom nte sɛ nkotoku a wɔde di dwuma daa. Nneɛma ahorow pii wɔ hɔ a mpaapaemu a wɔde ma aduan toa nhyehyɛe ahorow. Momma yɛnhwɛ nea wɔyɛ, na ama ayɛ mmerɛw ama wo sɛ wobɛte ase:

Oduruyɛfo Brown Aduan a Wɔde Ma Titiriw

Saa toa nhyehyɛe yi wɔ ɔkwan biako so aduan a ɛma nufusu sen kɔ ɔkwan biako pɛ so.. Eyi mma nufusu no ntumi nsan nkɔ toa no mu. Eyi kyerɛ sɛ enhia sɛ akokoaa no nufu, na obetumi anom nufusu no denam nufu no a ɔbɛka anaasɛ ɔbɛpiapia no so . Nufusu ahorow wɔ hɔ a ɛsono sɛnea ɛsen no gyina akokoaa no mfe so (efi nkokoaa nkumaa paa (preemie) kosi level 3). Mpɛn pii no ɛyɛ mmerɛw ma awofo ne wɔn a wɔhwɛ wɔn sɛ wɔde saa toa yi bedi dwuma . Esiane sɛ akokoaa no na ɔyɛ adwuma no nti, ɛnsɛ sɛ ɛna no pia toa no anaasɛ ɔde kura mu wɔ baabi soronko.

Aborɔnoma Aduan

Saa toa nhyehyɛe yi nso wɔ `ɔkwan biako valve` a ɛmma nufusu ntumi nsan nkɔ toa no mu. `Y-twitwa nufu` (kyerɛ sɛ, `nufu` a wɔatwa no te sɛ nkyerɛwde Y) wɔ ɔfã a ɛyɛ tratraa na ɔfã a ɛyɛ den kakra wɔ ɔfã foforo no.

• Ɛsɛ sɛ wɔde ɔfã a ɛyɛ den no si akokoaa no atifi anom anom.
• Ɛsɛ sɛ ɔfã a ɛyɛ tratraa no ba akokoaa no tɛkrɛma so.
• Ɛsɛ sɛ wɔde notch ketewaa a ɛwɔ nufu no ano ase no to akokoaa no hwene ase. Eyi bɛboa wo ma woahwɛ sɛ nufu no wɔ ano yiye anaa.

Saa nufusu yi wɔ akɛse abien. Wubetumi nso ayɛ nsakrae wɔ sɛnea ɛsen no mu denam nufu no a wobɛkyekyere anaasɛ wobɛsansan no so. Eyi gye sɛ obi bɛyɛ ne su kakra.

Medela Ahiadeɛ Titiriw a Wɔde Ma (Haberman) `(Medela Ahiadeɛ Titiriw a Wɔde Ma (Haberman))`

Eyi nso na ebinom frɛ no `Haberman Feeder`. Saa toa nhyehyɛe yi nso wɔ `ɔkwan biako valve` a ɛma nufusu no kɔ so tra `nufusu` no mu. Nkokoaa binom tumi fa nufusu denam `nufusu` a wɔde mia wɔn anom no so. Nanso mpɛn pii no, ɛsɛ sɛ nea ɔhwɛ no no piapia toa no ma ɛne akokoaa no nufu ne ne mene nnyigyei ahyia :

• Sɛ akokoaa no fi ase nufu ara pɛ a, pia toa no denneennen na afei gye w’ahome .
• Ɛsɛ sɛ wɔyɛ eyi bere a akokoaa no renom nufu nkutoo. Tie akokoaa no nnyigyei a ɔremene nufusu no yiye .
• Sɛ akokoaa no gyae home kakra a, ɛsɛ sɛ wugyae toa no a wobɛpiapia no nso.

Egye sɛ wode wo ho bɛhyɛ mu kakra na ama bere no ayɛ nea ɛfata . Ɛno kyerɛ sɛ ɛsɛ sɛ wosua sɛnea wobɛpiapia bere a wo ba no nufu na wugyae bere a wɔagyae no. Ntrɛwmu abiɛsa a ɛwɔ toa no ho no kyerɛ sɛnea nufusu a efi nufu no mu ba no sen. Wubetumi ayɛ nsakrae wɔ sɛnea ɛsen no mu denam toa no a wobɛdannan no sɛnea ɛbɛyɛ a nhama no biako bɛda wo ba no hwene ase no so.

Enfamil Mead Johnson Anofafa/Anom a Apaapae Ɔyarehwɛfo

Saa toa yi nni `akwan biako valve` . Te sɛ `Haberman` toa nhyehyɛe no, ɛsɛ sɛ nea ɔhwɛ no no piapia toa no na ɔsakra ahoɔhare no ma ɛne akokoaa no nufu kwan no hyia . Eyi nso gye sɛ wode wo ho hyɛ mu kakra.

Kae sɛ wɔayɛ saa nkotoku yi mu biara sɛnea ɛbɛyɛ a akwantu yi bɛyɛ mmerɛw kakra ama wo ne wo ba no. Ɛtɔ mmere bi a, toa biako ntumi nyɛ adwuma, na ɛsɛ sɛ wosɔ foforo hwɛ. Wo nnuruyɛfo kuw no bɛboa wo wɔ eyi mu, na wɔapaw nea ɛfata wo ba no yiye.

Afotu foforo bɛn na ebetumi aboa?

Okay, seesei a yɛaka nkotoku ho asɛm no, nneɛma afoforo kakraa bi wɔ hɔ a ebetumi aboa wo wɔ nufu a wɔde ma yi mu. Sɛ wudi eyinom akyi yiye a, ɛbɛyɛ mmerɛw mpo ama wo ba no.

• Ɛsɛ sɛ wowie aduan a wɔde ma no wɔ nea ennu simma 30 mu . Sɛ ɛregye bere tenten asen saa a, ebetumi akyerɛ sɛ akokoaa no rehyia ɔhaw wɔ nufusu a obenya ho, anaasɛ ebia nufusu no ntumi nkɔ ntɛmntɛm sɛnea ɛsɛ. Sɛ ɛte saa a, bɔ mmɔden sɛ wode nufusu a ɛma nufusu fi mu ntɛmntɛm kakra bedi dwuma.
• Boa wo ba no ma ɔbɔ akuturuku daa . Bɛyɛ simma 5 biara bere a ɔrema nufu no. Nea enti a ɛte saa ne sɛ nkokoaa mene mframa pii, enti ɛyɛ papa sɛ wɔbɛyɛ saa. Eyi bɛboa ma yafunu a ɛyɛ yaw ne ɔfe so atew.
• Ma wo ba no gyina hɔ tẽẽ bere a worema no aduan ne simma 20-30 bere a woama no aduan awie no. Eyi betumi aboa ma hwene mu a ɛtwetwe no so atew.
• Sɛ nufusu fi wo ba no hwene mu a, fa ntama a ɛho tew popa . Ɛho nhia sɛ wode afiri a wɔde suw nufusu bedi dwuma de anom nufusu no. Saa a wobɛyɛ no betumi ayɛ nea ɛnyɛ dɛ ama wo ba no.
• Ɛwom sɛ nkokoaa a wɔn anom apaapae no ntumi mma wɔn nufu tẽẽ de, nanso ɛnanom betumi ayi wɔn nufusu adi na wɔde afi toa soronko bi mu ama wɔn ba . Eyi som bo yiye, efisɛ akokoaa no nya aduannuru ne ahobammɔ fi nyarewa ho wɔ nufusu mu.
• Afei nso, sɛnea ɛbɛyɛ na wo ne wo ba no ntam abusuabɔ mu ayɛ den kɛse no, wubetumi ama no kwan ma wayɛ nufu a ahoɔden nnim . Eyi kyerɛ sɛ akokoaa no renom nufu no ara kwa de akyekye ne werɛ, na ɛnyɛ sɛ ɔbɛnom nufusu. Eyi nso hyɛ akokoaa no ntini a ɔde nufu no mu den. Nanso mma ɔnyɛ eyi bɛboro simma 10 bere koro mu.

Mɛyɛ dɛn ahu sɛ me ba no nnom nufu yiye?

Esiane nsɛnnennen yi a ɛwɔ nufu a wɔde ma mu nti, nkokoaa a wɔn anom apaapae no wɔ asiane mu sɛ wontumi nnyin . Enti, wo ba no oduruyɛfo, anaa mpaapaemu kuw, animdefo kuw bi a wɔsa mpaapaemu tebea horow yi, bɛhwɛ wo ba no mu duru daa ahwɛ sɛ ne mu duru reyɛ kɛse sɛnea ɛsɛ. Eyi ho hia paa. Ɛtɔ mmere bi a, sɛ wɔde toa nhyehyɛe titiriw bi di dwuma mpo a, nkokoaa betumi anya aduan a wɔde ma ho haw ne wɔn mu duru a ɛkɔ soro ho haw. Ebia wɔn ho nyɛ wɔn dɛ bere a wɔrema nufu no, na ebia wonnya nufusu a ɛdɔɔso. Ɛsɛ sɛ wohwɛ nsɛnkyerɛnne yi yiye :

• Sɛ woresu bere a worenom nufu anaa bere a woama wo nufu awie no a.
• Sɛ wote nka sɛ worebɔ wo ho ban a, ɛyɛ ``worebɔ'' .
• Sɛ nusu fi aniwa mu ba a ɛyɛ `` aniwa a ɛyɛ nsu '' .
• Furrowing eyebrows (eyi kyerɛ sɛ akokoaa no ho nyɛ no dɛ).
• Sɛ wobɔ wo nipadua no kɔ akyi bere a worema nufu a, wɔfrɛ no ``back arching'' .

Sɛ wuhu saa nsɛnkyerɛnne yi bi wɔ wo ba no ho a, ɛkyerɛ sɛ ɛyɛ den ma no sɛ ɔbɛma nufu bi. Afei ɛsɛ sɛ wobɔ mmɔden sɛ wobɛyɛ nsakrae ketewaa bi wɔ wo aduan a wode ma no mu.

Nhwɛsoɔ:

• To nufusu dodow a wo ba nom bere koro mu ano hye, na bɔ mmɔden sɛ wode nufusu a ɛsen brɛoo bedi dwuma .
• Gye w’ahome mpɛn pii bere a worema wo aduan no. Ma wo ba no bere ma ɔhome na ma nufusu no nkɔ fam.
• Sɛ wonom nufusu kakraa bi wie a, dan toa no kakra kɔ nkyɛn na gyae nufusu a ɛsen no kakra.

Sɛ wowɔ nsɛm bi a ɛhaw wo anaa nsɛmmisa bi fa wo ba no nufu ho a, wo ne wo cleft ne craniofacial kuw no nkasa ntɛm ara . Oduruyɛfo a ɔhwɛ aduan ma anaa ɔyarehwɛfo a ɔyɛ adwuma wɔ saa kuw no mu bɛhwehwɛ wo ba no mu bere a worema nufu no. Ebia wɔbɛkamfo akyerɛ sɛ wɔnyɛ nsakrae wɔ ɔkwan a wofa so ma nufu anaa nhwehwɛmu foforo a wobɛyɛ no mu. Mma wo nkutoo nyɛ wo ho da.

Ɔkwan bɛn so na awofo betumi aboa?

Akokoaa a n’ano/anom apaapae nufu a wɔde bɛma no betumi ayɛ den kakra mfiase no. Nanso ɛnyɛ wo nkutoo, mmoa pii wɔ hɔ . Wo cleft kuw, kuw a wɔyɛ animdefo, betumi de mmoa ne nsɛm a wuhia ama wo. Wɔn ho akokwaw wɔ adwuma a wɔne nkokoaa a wɔwɔ saa tebea yi yɛ mu. Akuw pii wɔ hɔ a wɔyɛ mpaapaemu a sɛ wohu sɛ akokoaa no mu mpaapaemu bere a wɔreyɛ ultrasound a, wɔma no animtiaabu ansa na wɔawo no. Afei awofo betumi ne kuw no ahyiam asusuw nsɛmmisa biara a wɔwɔ wɔ nufu a wɔde ma ho no ho. Afei wobetumi ayɛ aduanma ho nhyehyɛe ansa na wɔawo akokoaa no . Eyi betumi ama ahotɔ kɛse. Momma yɛnka sɛ wuhui mpofirim sɛ wowɔ mpaapaemu bere a wɔwoo akokoaa no akyi. Afei adwumayɛfo a wɔda ayaresabea no bɛboa awofo no ma wɔanya toa nhyehyɛe a ɛbɛyɛ adwuma yiye ama wɔn ba no . Ebia akokoaa no oduruyɛfo de awofo no bɛkɔ kuw bi a emu apaapae mu. Mpɛn pii no, kuw a wɔapaapae mu no ne awofo ne akokoaa no hyia wɔ dapɛn biako anaa abien a edi kan wɔ akokoaa no awo akyi. Wɔbɛhwɛ sɛnea nufu a wɔde ma no rekɔ so na wɔabua nsɛmmisa biara a ebia wowɔ. Wubetumi nso anya eyi ho nsɛm wɔ Intanɛt so. Nhwɛsoɔ:

• American Cleft Palate-Craniofacial Association (ACPA) - Nsɛm a mfasoɔ wɔ so pii wɔ ahyehyɛdeɛ te sɛ yei wɛbsaet so.

Enti, nneɛma bɛn na ɛho hia sen biara a ɛsɛ sɛ yɛde fi asɛm yi mu kɔ fie?

Okay, yɛaka pii ho asɛm seesei, ɛnte saa? Sɛ wo ba kumaa no ano anaa n’anom apaapae a, ebia nufu a wɔde ma no bɛyɛ soronko kakra. Nanso ma eyinom ntra w’adwenem:

• Mpɛn pii no, nkokoaa a wɔn ano apaapae no tumi ma wɔn nufu sɛnea ɛsɛ. Ebia ɛho behia sɛ wɔyɛ nsakrae nketenkete wɔ wɔn gyinabea mu nkutoo .
• Nkokoaa a wɔn anom apaapae hia nkotoku titiriw efisɛ ɛyɛ den ma wɔn sɛ wɔbɛma nhyɛso a ehia na ama wɔanom nufu na wɔanya nufusu no aba.
• Nkotoku titiriw te sɛ `Dr. Brown's`, `Aborɔnoma`, `Medela Ahiade Titiriw (Haberman)`, ne `Enfamil`. Wo ne w’aduruyɛfo kuw no nkasa na paw nea ɛyɛ adwuma yiye ma wo ba no. Nsuro sɛ wobɛsɔ foforo ahwɛ sɛ toa biako ntumi nyɛ adwuma yiye a.
• Fa wo ba no gyina hɔ pintinn bere a worema nufu no, boa no ma ɔtaa bɔ abubuw, na fa simma 30 ma no. Saa nneɛma nketenkete yi betumi ama nsakrae kɛse aba.
• Sɛ wo ba no reda sɛnkyerɛnne ahorow adi sɛ ne menewa anaa ne menewa a, ebetumi ayɛ nufu ho haw. Hwehwɛ nnuruyɛfo afotu ntɛm ara.
• Ɛnyɛ wo nko ara! ``Cleft team'' no bɛboa wo wɔ biribiara mu. Nsuro sɛ wobɛbisa wɔn nsɛm, bisa mmoa. Wɔwɔ hɔ sɛ wɔbɛboa wo.

Ade a ɛho hia sen biara ne sɛ wode boasetɔ, ɔdɔ, ne akwan a ɛfata bɛma wo ba no nufu . Ɛwom mpo sɛ mfiase no eyi bɛyɛ te sɛ akwantu a emu yɛ den de, nanso wubetumi ayɛ eyi. Afei wo ba no benyin a ɔwɔ apɔwmuden na n’ani agye. Mepɛ sɛ monya nkɔsoɔ nyinaa wɔ akwantuo yi mu!

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Anofafa a Apaapae, Anom a Apaapae, Nufu a Wɔde Ma, Nkotoku Titiriw, Nufu a Wɔde Ma Nsɛnnennen, Aduruyɛ mu Afotu, Nkokoaa Aduandi