So wote nka bere nyinaa sɛ woabrɛ na wunni nkwa? Ade biako nti a eyi ba betumi ayɛ mogya a enni nipadua no mu, tebea a wɔfrɛ no mogya a ɛtɔ kɔ nipadua mu wɔ aduruyɛ mu. Sɛ mogya a ɛtɔ kɔ nipadua mu yi ba esiane ayaresa tebea horow bi nti a, ebia ɛho behia sɛ wɔtaa ma wo mogya. Enti, ɛnnɛ yɛrebɛka aduru foforo koraa a wɔde aba wiase de asa tebea horow a ɛtete saa ho asɛm. Saa aduru no din ne Reblozyl.
Aduru bɛn na Reblozyl yɛ?
Reblozyl yɛ aduru a wɔpenee so wɔ afe 2019. Sɛ yɛbɛka no pɛpɛɛpɛ a, ɛka nnuru bi a wɔfrɛ no ``erythroid maturation agents (EMA)'' ho. Okay, okay, saa asɛmfua no betumi ayɛ te sɛ nea ɛyɛ den kakra. Sɛ yɛbɛka no tiawa a, saa aduru yi boa mogya mu nkwammoaa kɔkɔɔ a wɔyɛ wɔ yɛn nnompe mu ntini mu no ma "wonyin", kyerɛ sɛ, ɛbɛyɛ nkwammoaa a enyin yiye na ɛwɔ apɔwmuden. Wɔde saa aduru yi sa mogya a ɛtɔ kɔ nipadua mu a mogya mu nyarewa bi de ba no titiriw. Titiriw wɔ mpanyimfo a wɔwɔ nyarewa abien yi mu: 1.
Beta-thalassemia: Nnipa a ɛsɛ sɛ wɔma wɔn mogya daa esiane tebea yi nti. 2.
Myelodysplastic Syndromes (MDS): Wɔsan frɛ eyi sɛ nnompe
mu ntini a entumi nyɛ adwuma yiye. Enti, wɔde Reblozyl nso ma nnipa a ɛsɛ sɛ wɔma wɔn mogya daa.
Momma yensua beta-thalassemia ne MDS ho ade kakra.
Sɛ wote nyarewa abien yi ase kakra a, ɛbɛyɛ mmerɛw sɛ wobɛte sɛnea Reblozyl aduru no yɛ adwuma no ase.
- Beta-thalassemia: Fa mogya mu nkwammoaa kɔkɔɔ a ɛwɔ yɛn mogya mu no sɛ kar a ɛde mframa pa kɔ. Wɔde mframa pa a ɛwɔ kar yi mu no gu protein bi a wɔfrɛ no hemoglobin so . Obi a ɔwɔ beta-thalassemia no ntumi nnya saa hemoglobin protein yi a ɛdɔɔso. Enti nkwammoaa a ɛwɔ nipadua no mu no nnya mframa pa a wohia no. Ɛno nti na sɛnkyerɛnne ahorow te sɛ ɔbrɛ ne honam ani hwɛbea a ɛba bere nyinaa ba no.
- Myelodysplastic syndrome (MDS): Eyi yɛ kokoram bi a efi ase wɔ nnompe mu ntini mu. Nnompe mu ntini ne adwumayɛbea a ɛyɛ yɛn mogya mu nkwammoaa (nkwaboaa kɔkɔɔ, nkwammoaa fitaa, ne mogya mu nkwammoaa). Wɔ obi a ɔwɔ MDS mu no, adwumayɛbea yi a wɔyɛ no sɛe. Eyi kyerɛ sɛ mogya mu nkwammoaa a ɛte apɔw na enyin yiye a wɔyɛ no so tew.
Wɔ tebea abien yi nyinaa mu no, ɔhaw titiriw no ne mogya mu nkwammoaa kɔkɔɔ a ɛte apɔw na ɛyɛ adwuma no dodow a ɛso tew, a ɛkyerɛ sɛMogya a ɛtɔ kɔ nipadua mu no ba.
Reblozyl yɛ adwuma denam mogya mu nkwammoaa kɔkɔɔ a ennyinii a ennyin yiye a ɛboa ma enyin yiye no so. Eyi ma mogya mu nkwammoaa kɔkɔɔ a ɛte apɔw no dɔɔso, ɛma hemoglobin dodow kɔ soro, na ɛma nipadua no tumi a ɛde mframa pa kɔ nipadua no mu no tu mpɔn. Ne saa nti,
ebia ɛho behia sɛ wɔmma wo mogya mpɛn pii.
Nanso ma eyi ntra w’adwenem: Reblozyl nyɛ ade a wɔde si mogya a wɔde ma ananmu. Ɛyɛ ayaresa a ɛboa ma ɛho hia no so tew kɛkɛ.
Ɔkwan bɛn so na wɔde aduru yi ma?
Reblozyl nyɛ aduru a wubetumi anom wɔ fie. Ɛyɛ tuo a wɔde ma
adapɛn 3 biara . Oduruyɛfo anaa ɔyarehwɛfo a wɔatete no wɔ wo duruyɛfo adwumayɛbea, ayaresabea, anaa ayaresabea na ɔde saa tuo yi ma.
- Baabi a wɔde vaccine no ma: Wɔtaa de saa vaccine yi ma wɔ abasa, asen, anaa yafunu honam ani, wɔ mmati ase.
- Vaccine no a wobɛma no bere ano: Ɛho hia paa sɛ wobɛkɔ akɔfa vaccine no da koro no ara a oduruyɛfo no de bɛma wo no. Sɛ wopa da no a, frɛ oduruyɛfo no ntɛm ara na bisa afotu da a edi hɔ a ɛbɛba no.
- Nsɛnkyerɛnne ho kyerɛwtohɔ: Ɛyɛ papa sɛ wobɛkyerɛw wo sɛnkyerɛnne ahorow (te sɛ ɔbrɛ ne adwenemhaw ) wɔ nhoma a wɔde kyerɛw nsɛm mu anaa wo fon so da biara. Eyi bɛma ayɛ mmerɛw sɛ wobɛkyerɛkyerɛ sɛnea aduru no renya wo so nkɛntɛnso no mu akyerɛ wo duruyɛfo.
Wo duruyɛfo na obegyina wo mu duru ne sɛnea wo nipadua no yɛ n’ade wɔ aduru no ho so akyerɛ nnuru dodow a wɔde bɛma wo.
Dɛn ne nsunsuanso bɔne a ebetumi afi mu aba? Ɔkwan bɛn so na wobedi wɔn ho dwuma?
Te sɛ aduru biara no, Reblozyl betumi de ɔhaw ahorow bi aba. Ɛnyɛ obiara na onya bi, nanso ɛho hia sɛ wohu wɔn. Wɔakyerɛw nneɛma bɔne a ɛtaa ba ne sɛnea wodi ho dwuma no bi wɔ pon a ɛwɔ ase ha no so.
| Nkɛntɛnso a Ɛfa Ho | Sɛnea wobedi ho dwuma |
|---|
| Ɔbrɛ a ɛtra so, adwenemhaw, nipadua a wontumi nni so | Kwati sɛ wobɛka kar anaa wode mfiri a emu yɛ duru bedi dwuma kosi sɛ wubehu sɛnea aduru yi ka wo ankasa. |
| Tiyɛ, ntini anaa nkwaa mu yaw | Bisa wo duruyɛfo no nnuru a wɔde kum ɛyaw a ebetumi aboa ma saa sɛnkyerɛnne ahorow yi afi hɔ no ho asɛm. Sɛ wo yare no ho sɛnkyerɛnne no ankɔ yiye anaasɛ ankɔ so ansɛe a, ka kyerɛ wo duruyɛfo. |
| Akisikuru, yafunu mu yaw, akisikuru (akisikuru) . | Bɔ mmɔden sɛ wubedi nnuan nketenkete sen sɛ wubedi nnuan akɛse. Di nnuan a ɛnyɛ dɛ te sɛ paanoo, krak, ne aburow. Nom nsu pii. Sɛ saa sɛnkyerɛnne ahorow yi mu yɛ den anaasɛ ɛnkɔ yiye a, ka kyerɛ wo duruyɛfo. |
| Mogya Nhyɛso a Ɛkɔ Anim | Ɛho hia sɛ woteɛteɛ w’apɔw mu na wofa aduan pa te sɛ DASH. Hwɛ wo mogya mmoroso daa. Sɛ wo mogya mmoroso boro 180/120 mmHg a, kɔ Emergency Department (ETU) ntɛm ara. |
| Ɔhome a ɛyɛ den, Allergic reaction | Di kan bisa wo duruyɛfo no sɛnkyerɛnne ahorow a ɛkyerɛ sɛ obi ho yɛ no yaw (sɛ nhwɛso no, honam ani akisikuru, ɛyaw, anim a ɛho ahonhon, ahome a ɛyɛ tiaa). Sɛ wuhu saa sɛnkyerɛnne ahorow yi bi a, frɛ wo duruyɛfo ntɛm ara anaa kɔ Dwumadibea a Ɛhwɛ Ntɛmntɛm (ETU) a ɛbɛn wo no nkyɛn . |
| Nsu a ɛboaboa ano wɔ nipadua no mu (edema) . | Sɛ wuhu sɛ wo nsa, wo nan, anaa wo nipadua mu ahonhon biara a, ka kyerɛ wo duruyɛfo. Ɔno na ɔde ayaresa a ɛho hia bɛma. |
So ɔhaw ahorow betumi aba wɔ nnuru afoforo ho?
Aane. Reblozyl a wobɛnom no betumi de ɔhaw aba sɛ wonom nnuru afoforo bi a. Titiriw no, sɛ worenom aduru a wɔde si hormone ananmu de yɛ brayɛ anaa awo ano aduru a, asiane a ɛwɔ hɔ sɛ mogya bɛtɔ wo no betumi ayɛ kɛse.
Enti, hwɛ hu sɛ wobɛka nnuru a wonom nyinaa akyerɛ wo duruyɛfo, a nea nnuruyɛfo akyerɛw ama wo, nnuru a wɔtɔn, vitamin, nnuru a wɔde di dwuma wɔ amanne kwan so, ne nhabannuru ka ho.
Nkrasɛm a Wɔde Kɔ Fie
- Reblozyl yɛ aduru foforo koraa a wɔde ma sɛ aduru a wɔde sa mogya a ɛtɔ kɔ nipadua mu a tebea horow a wɔfrɛ no beta-thalassemia ne MDS de ba no.
- Eyi boa titiriw ma mogya mu nkwammoaa kɔkɔɔ a ennyinii no nyin yiye.
- Saa aduru yi betumi atew hia a ehia sɛ wɔtaa de mogya ma no so, nanso ɛnyɛ nea wɔde si mogya a wɔde ma ananmu.
- Oduruyɛfo anaa ɔyarehwɛfo na ɔde saa vaccine yi ma adapɛn 3 biara.
- Nneɛma bɔne te sɛ tiyɛ, ɔbrɛ, ne ntini mu yaw betumi aba. Wo ne wo duruyɛfo nkasa mfa sɛnkyerɛnne biara a ɛyɛ soronko ho.
- Ɛho hia sɛ wobɔ wo duruyɛfo amanneɛ wɔ nnuru afoforo a worenom nyinaa ho.
Reblozyl, mogya a ɛtɔ kɔ nipadua mu, Beta-Thalassemia, Myelodysplastic Syndromes, MDS, mogya a wɔde ma, Luspatercept, hemoglobin
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