So ɛtɔ mmere bi a wote nka sɛ wo nsa ne wo nan ho yɛ wo yaw, wote yaw, anaasɛ wo ho yɛ wo yaw? Bere a nnipa binom susuw sɛ eyinom yɛ nneɛma a ɛfata no, ɛtɔ mmere bi a ebia awosu mu tebea bi a emu yɛ den na ɛntaa nsi wɔ akyi. Ɛnnɛ yɛreka aduru bi a wɔfrɛ no Vutrisiran a wɔde sa tebea pɔtee bi a ɛte saa ho asɛm. Wɔtaa frɛ no brand din AMVUTTRA.
Aduru bɛn na saa Vutrisiran yi yɛ?
Sɛ yɛbɛka no tiawa a, Vutrisiran yɛ aduru a wɔde sa awosu mu tebea bi a ɛntaa nsi a wɔfrɛ no awosu mu transthyretin-mediated amyloidosis (hATTR) .
Okay, afei ebia woresusuw nea yare yi wɔ a ɛwɔ din tenten saa no ho. Momma yɛnkyerɛkyerɛ mu tiawa.
Eyi yɛ tebea a yebetumi anya afi yɛn awosu mu. Nea ɛba wɔ eyi mu ne sɛ protein bi a wɔfrɛ no ‘transthyretin’ a wɔyɛ wɔ yɛn mmerɛbo mu no sesa ne nsusuwii wɔ ɔkwan a ɛnteɛ so, na wɔbom yɛ nneɛma a wɔfrɛ no ‘amyloid’ wɔ nipadua no afã horow, titiriw wɔ ntini mu. Saa protein a ɛwɔ hɔ a ɛnyɛ ne kwan so yi sɛe ntini ahorow no.
Ɛno ne bere a sɛnkyerɛnne ahorow a madi kan aka ho asɛm, te sɛ ɛyaw a efi ntini mu, akwaa a ɛyɛ mmerɛw, akwaa a ɛyɛ mmerɛw, nkate a ɛyera wɔ akwaa mu, ne mmerɛwyɛ no da adi.
Saa aduru yi a wɔfrɛ no Vutrisiran no yɛ adwuma denam saa protein a ɛnyɛ ne kwan so no a egyae no so. Dwumadi titiriw a aduru yi yɛ ne sɛ ɛbɛtew ntini a ɛsɛe no so na asiw sɛnkyerɛnne ahorow so.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na wode aduru no adi dwuma
Ansa na wo duruyɛfo no besi gyinae sɛ ɔbɛma wo saa aduru yi no, obebisa wo nsɛm kakraa bi. Saa bere no, akyinnye biara nni ho sɛ ɛsɛ sɛ woka saa nneɛma yi kyerɛ no a womfa nsie.
- Allergies: Ka kyerɛ yɛn sɛ wowɔ allergy bi wɔ Vutrisiran, aduru foforo biara, aduan, nnuru a wɔde yɛ nneɛma, anaa nneɛma a wɔde siesie nneɛma ho a.
- Nyinsɛn: Sɛ woanyinsɛn, worebɔ mmɔden sɛ wubenyinsɛn, anaa wususuw sɛ woanyinsɛn a, hwɛ hu sɛ wobɛbɔ wo duruyɛfo amanneɛ.
- Sɛ woyɛ ɛna a ɔma nufu a: Sɛ woyɛ ɛna a ɔma nufu a, wo ne wo duruyɛfo nkasa wɔ ɛno nso ho.
Mɛyɛ dɛn anya injection no?
Eyi nyɛ aduru a wubetumi anom wɔ fie. Ɛyɛ aduru a wɔde twitwiw nipadua no honam ani . Mpɛn pii no, ɛsɛ sɛ wofa saa aduru yi asram abiɛsa biara.
Oduruyɛfo anaa ayarehwɛfo a wɔatete wɔn ama no na ɔde eyi ma wɔ ayaresabea anaa ayaresabea, enti wunni biribiara a ɛsɛ sɛ wohaw wo ho.
Na sɛ mepa nnuru dodow bi nso ɛ?
Ɛho hia yiye sɛ wobɛma wo injection no bere ano ama saa ayaresa yi. Sɛ biribi nti wuntumi nkɔ da a woahyɛ da ayɛ no a, frɛ wo duruyɛfo anaa ayaresabea ntɛm ara na san yɛ nhyehyɛe foforo. Mma nntwa wo nnuru no so.
Na sɛ wɔnom aduru no pii nso ɛ?
Wɔde eyi ma wɔ ayaresabea tebea mu enti hokwan a ɛwɔ hɔ sɛ eyi bɛba no sua koraa . Nanso, sɛ wususuw sɛ woanom aduru no boro so a, kɔ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea no nkyɛn ntɛm ara anaa kɔ ayaresabea a ɛbɛn wo no Dwumadibea a Ɛhwɛ Ntɛmntɛm (ETU) nkyɛn.
Nneɛma a ɛsɛ sɛ ɛtra w’adwenem bere a worenom aduru yi
Wo duruyɛfo bɛhwɛ wo tebea no so daa bere a worenom saa aduru yi no, enti ɛho hia yiye sɛ wobɛkɔ bere a wɔahyɛ sɛ wobɛkɔ no bere ano.
- Vitamin A dodow: Ebia wo vitamin A dodow so bɛtew bere a worenom aduru yi no. Enti, ɛda adi sɛ wo duruyɛfo bɛkyerɛw vitamin A bi ama wo sɛ fa da biara da. Ɛho hia sɛ fa no sɛnea wo duruyɛfo kamfo kyerɛ no pɛpɛɛpɛ. Afei nso, wo ne wo duruyɛfo nkasa fa nnuan a vitamin A wom ho (sɛ nhwɛso no, karɔt, ɛmo a ɛyɛ dɛ, akutu, nkesua).
- Nsakrae a ɛba w’anisoadehu mu: Sɛ wuhu nsakrae bi wɔ w’ani so, te sɛ aniwa a ɛyɛ kusuu anaa anadwo nhumu a ɛso atew a, mmu w’ani ngu so. Fa ho amanneɛ kyerɛ wo duruyɛfo ntɛm ara .
- Nnuru afoforo: Ka nnuru afoforo a worenom nyinaa (a vitamin, nhabannuru, ne nnuru a wɔde ka ho) ho asɛm kyerɛ wo duruyɛfo. Ɛnyɛ nea ɛda adi sɛ saa aduru yi ne nnuru afoforo bedi nkitaho, nanso eye sɛ wobɛma wo duruyɛfo ahu.
Dɛn ne nsunsuanso bɔne a ebetumi afi mu aba?
Te sɛ aduru biara no, nnipa binom betumi anya ɔhaw ahorow. Ɛnyɛ obiara na obenya mu osuahu. Nanso, ɛho hia sɛ wohu eyinom.
| Vutrisiran ho nsunsuanso bɔne | |
|---|---|
| Nneɛma bɔne a anibere wom a ɛsɛ sɛ wobɔ wo duruyɛfo amanneɛ ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no yaw | Honam ani akisikuru, ɛyaw, anim, anofafa, tɛkrɛma anaa menewa a ɛho ahonhon. |
| Anisoadehu sesa | Nsakrae biara a ɛba wɔ anisoadehu mu, te sɛ aniwa a ɛyɛ kusuu anaa aniwa a ɛso tew. |
| Ɔhome a ɛyɛ den | Ɔhome a ɛyɛ tiaa, ahome a ɛyɛ den. |
| Koma a ɛbɔ so tew | Adwene a ɛyɛ basaa, te nka sɛ ɛyɛ wo yaw, ɔtotɔ piti, ɔbrɛ a ɛtra so. |
| Nsunsuanso bɔne a mpɛn pii no ɛnyɛ aniberesɛm, nanso sɛ ɛkɔ so a, ɛsɛ sɛ wobɔ wo duruyɛfo amanneɛ | |
| Nkwaa mu yaw | Nkwaa mu yaw. |
| Injection beae a ɛnyɛ dɛ | Baabi a wɔde aduru no guu mu no a ɛyɛ kɔkɔɔ, ɛyaw, anaasɛ ɛho ahon. |
Saa nsɛm a wɔahyehyɛ yi nka nsunsuanso bɔne a ebetumi aba nyinaa ho. Sɛ wuhu biribi foforo biara a, wo ne wo duruyɛfo nka ho asɛm.
Nkrasɛm a Wɔde Kɔ Fie
- Vutrisiran yɛ aduru titiriw bi a wɔde sa ntini mu yare bi a ɛntaa nsi a efi awosu mu a wɔfrɛ no hATTR .
- Nnuruyɛfo a wɔatete wɔn a wɔwɔ ayaresabea anaa ayaresabea bi na wɔde saa aduru yi ma. Worentumi mfa nsie anaa wode nni dwuma wɔ fie.
- Ɛho hia yiye sɛ woka wo duruyɛfo no ho asɛm kyerɛ wo akisikuru nyinaa ne sɛ ebia woanyinsɛn anaasɛ worebɔ mmɔden sɛ wubenyinsɛn ansa na woafi ayaresa ase.
- Bere a worenom saa aduru yi no, fa vitamin A a wɔde ma sɛnea wo duruyɛfo akyerɛ wo no na bɔ nsakrae biara a ɛba w’ani so no ho amanneɛ.Sɛ eyi ba a, ɛho hia sɛ wɔbɔ amanneɛ ntɛm ara.
- Sɛ wunya ɔhaw biara a emu yɛ den te sɛ w’anim a ɛho ahonhon anaasɛ ɛyɛ den sɛ wobɛhome a, hwehwɛ aduruyɛfo afotu ntɛm ara.
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