Yala sugunɛ tɛ aw den na wa? Walima sugunɛ kelen dɔrɔn de b’a la wa? An ka (Renal Agenesis) dɔn!

Yala aw delila k’a mɛn ko den dɔw bɛ bange ni sugunɛ kelen dɔrɔn ye, walima hali ni sugunɛ fila bɛɛ tɛ u la wa? O bɛ se ka kɛ siranfɛn ye dɔɔni, nka a nafa ka bon ka nin bana in dɔn. Bi an bɛna kuma nin bana in kan min bɛ wele ko (Renal Agenesis). Aw kana aw hakili ɲagami, an ka fɛn bɛɛ ɲɛfɔ cogo nɔgɔman na.

(Agénèse rénale) ye mun ye? An k’a faamu cogo nɔgɔman na, tiɲɛ tɛ?

N’an y’a fɔ a nɔgɔya la, (Renal Agenesis) ye den bangera ni sugunɛ kelen dɔrɔn ye walima ni sugunɛ fila bɛɛ tɛ a la. A ka c’a la, sugunɛ fila bɛ an bɛɛ la an farikolo la. A dɔgɔyalenba la, sugunɛ kelen ka kan ka baara kɛ ka ɲɛ walasa ka ɲɛnamaya. Nin ye (Congenital) cogoya ye, o kɔrɔ ye ko fɛn min bɛ yen kabini a bangeli.

Sisan n’i ye nin daɲɛ fla ninnu kɔrɔ lajɛ ɲɔgɔn na, a bɛna jɛya i bolo:

• Sugunɛ : Nin ye furakɛli tɔgɔ ye min bɛ fɔ " sugunɛ " ma.
• Agenesis : O bɛ tali kɛ farikolo yɔrɔ dɔ dɛsɛ ka yiriwa pewu ka den to ba kɔnɔ, o kɔrɔ ye ko denso kɔnɔ.

O la n’an y’a fɔ ko (Renal Agenesis), o kɔrɔ ye ko den sugunɛw ma dilan ka ɲɛ.

(Renal Agenesis) suguya kunbabaw ye jumɛnw ye?

O ko in bɛ se ka ye cogoba fila la:

1. Sugunɛbilenni min bɛ kɛ fan kelen fɛ

Fɛn min bɛ kɛ o la, i n’a fɔ a tɔgɔ b’a jira cogo min na, o ye ko sugunɛ tɛ den fan kelen fɛ. O kɔrɔ ye ko sugunɛ tɔ kelen bɛ cogo la. A nisondiyalen don, a bɛ se ka kɛ ka ɲɛnamaya kɛ cogo la min bɛ bɛn, ka ɲɛnamaya dafalen kɛ ni sugunɛ kelen dɔrɔn ye. A ka ca a la, sugunɛ kelen min tora, o bɛ se ka sugunɛ tununnen ka baara daminɛ, o la a bɛ se ka bonya dɔɔni. A bɛ iko denmisɛnnin bɛ degeliw fila kɛ kalanso kɔnɔ.

2. Sugunɛ fila bɛɛ bɔnɛni (Bilateral Renal Agenesis) .

Nin ye bana ye min ka jugu dɔɔni. Yan, sugunɛ fila bɛɛ tɛ den na. Ani fana, tubabufura misɛnnin minnu Ureters minnu bɛ sugunɛ ta ka bɔ sugunɛ na ka taa Sugunɛ la, olu yɛrɛ ma bɔ. Ka fara o kan, den ka Fogonfogonw tɛ yiriwa ka ɲɛ, o kɔrɔ ye k'u ka dɔgɔn kosɛbɛ Fogonfogonlabana. Nin sugunɛ dɛsɛ ni fogonfogon dɛsɛ in faralen ɲɔgɔn kan, o fana bɛ wele ko Potter Syndrome. A fɔ man di nka, a ka c’a la, o bana bɛ mɔgɔ faga.

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Mun bɛ kɛ an ka sugunɛw la?

Sugunɛ fila minnu bɛ an fari la, olu ye an ka sugunɛ kɛcogo yɔrɔ nafamaba ye. Miiri u la i n’a fɔ nɔgɔbɔlan min bɛ an ka so kɔnɔ. Sugunɛ ka baara kunba ye ka fɛnɲɛnamafagalanw sama ka bɔ an joli la minnu man ɲi. O fɛnɲɛnamafagalanw bɛ bɔ fari la ka kɛ sugunɛ ye.

Nin bana in (Renal Agenesis) ka teli ka kɛ cogo di?

Jateminɛw y’a jira ko den 2000 o 2000 bɛ bange, kelen ɲɔgɔn bɛ se ka bana dɔ sɔrɔ min bɛ wele ko Unilateral Renal Agenesis, sugunɛ kelen tɛ sɔrɔ min na. Bilateral Renal Agenesis cogoya, sugunɛ fila bɛɛ tɛ sɔrɔ min na, o ka dɔgɔn ka tɛmɛ o kan yɛrɛ. A bɛ sɔrɔ den kura 8500 o 8500 la, kelen ɲɔgɔn na. Hali ni a sababu tigitigi ma dɔn, sugunɛ fila bɛɛ tununni nin cogoya in ka ca den cɛmanw na.

(Renal Agenesis) sababuw ye mun ye?

A ka c’a la, (Renal Agenesis) sababuba ye fɛn caman cili ye walima fɛn caman cili ye jamu (Gene mutation) . Ɲininikalaw ye jamu caman ɲɔgɔnna wolonwula ɲɔgɔn dɔn fɔlɔ minnu bɛ tali kɛ o la. O jɛnɛya jiginni in sababu la, sugunɛw sɔrɔli bɛ tiɲɛ den kɔnɔbara la kɔnɔmaya kalo saba fɔlɔw la (Kɔnɔbara kalo saba fɔlɔ).

Kun misɛnnin wɛrɛw ye:

• Sukarodunbana bɛ denba minɛ kɔnɔmaya waati (kɔnɔmaya sukarodunbana).
• Kɔnɔmaya caman (i n’a fɔ filaninw, den saba).
• Fura jugu dɔw tali kɔnɔmaya waati.

(Renal Agenesis) taamasiɲɛw ye mun ye?

Den min bɛ ni Potter Syndrome ye, o sugunɛ fila bɛɛ tɛ a la, wa a fogonfogon ma bonya ka ɲɛ, o bɛ ninakili gɛlɛyaw sɔrɔ minnu bɛ se ka a ka ɲɛnamaya bila farati la a bangenen kɔfɛ dɔrɔn.

Den min wolola ni sugunɛ kelen ye, a bɛ se ka kɛ a tɛ taamasiɲɛ foyi jira. Nka ni bana taamasiɲɛw bɛ ye, u bɛ se ka kɛ ninnu ye:

• Tansiyɔn jiginni denmisɛnniw na .
• Protéines hakɛ caya sugunɛ na (Proteinuria).
• Vesicoureteral reflux (banakisɛfagalan kɔsegincogo).

Tuma dɔw la, den minnu bangera ni sugunɛ kelen ye, olu fana bɛ se ka bana wɛrɛw sɔrɔ i n’a fɔ:

• Kuluba senna.
• Dusukunnabana bangenenw , i n’a fɔ dingɛ minnu bɛ dusukun tantanni walima dusukun tantanni cɛ (ASD walima VSD).
• Sugunɛbilenni bangenenw.
• Kɔnɔbara basigilen walima Anal atresia.

(Renal Agenesis) sɛgɛsɛgɛli cogo di kɔnɔmaya waati?

A ka ca a la, jiginni ɲɛfɛ ultrasound scan bɛ kɛ ka a sɔrɔ ba kɔnɔma don.Nin bana in bɛ se ka dɔn. Nin sɛgɛsɛgɛli in b’a jira ko sugunɛw tɛ yen. Ani fana, ni den kɔnɔbara laminiji bɛ dɔgɔya (Oligohydramnios), o fana bɛ se ka kɛ bana dɔ taamasiɲɛ ye min bɛ wele ko Renal Agenesis. O bɛ kɛ barisa den sugunɛ tɛ sugunɛ bɔ, o bɛ kɛ sababu ye ka nin ji in dɔgɔya. Ni o ji ma caya, den fogonfogonw tɛna yiriwa ka ɲɛ.

(Renal Agenesis) bana bɛ se ka sɛgɛsɛgɛ cogo di den bangenen kɔfɛ?

Jala sɛgɛsɛgɛli bɛ se ka kɛ den bangenen kɔfɛ dɔrɔn walasa ka bana sɛgɛsɛgɛli dafa. Nka, tuma dɔw la, bana in tɛ se ka dɔn fo den ka kɔrɔ dɔɔni. Tuma dɔw la, bana in bɛ se ka sɔrɔ a danma ni taamasiɲɛ wɛrɛw bɛ den na ani ni a bɛ ka sɛgɛsɛgɛli kɛ, walima ni ultrasound scan bɛ kɛ kun wɛrɛ la, i n’a fɔ sugunɛbilenni (UTI).

Scan suguya kunbaba minnu bɛ kɛ ka (Renal Agenesis) sɛgɛsɛgɛ, olu ye :

• Kɔnɔbara lajɛ walima sugunɛbilenni .
• CT scan (CT scan) kɛcogo.
• MRI sɛgɛsɛgɛli (MRI).

Bilateral Renal Agenesis bɛ furakɛ cogo di?

Fɔ ka na se kɔsa in na, den min tɛ sugunɛ ni fogonfogon ma yiriwa, jigiya tun tɛ o la ka tɛmɛ lɛri damadɔ kan kɔnɔbara kɔkan. Nka, furakɛli kura minnu bɛ kɛ k’a lajɛ, olu bɛ jigiya dɔw di sisan. O ye ka kɔgɔji pikiri kɛ denso kɔnɔ kɔnɔmaya waati walasa ka denso kɔnɔji hakɛ segin a cogo kɔrɔ la. O ji in b’a to den fogonfogonw ka yiriwa. O kɔ, den bangenen kɔfɛ, den bɛ bila diyalizi la fo ka se ka sugunɛ cili kɛ. Nka aw hakili to a la ko nin furakɛli in bɛ k’a lajɛ hali bi, wa a tɛ sɔrɔ yɔrɔ bɛɛ.

Sugunɛbilenni (Unilateral Renal Agenesis) bɛ furakɛ cogo di?

sugunɛ kelen bɛ mɔgɔ minnu na , olu bɛ se ka furaw ta tuma dɔw la walasa ka u ka tansiyɔn jigin . Ni nin bana in bɛ aw walima aw den na, a nafa ka bon aw ka to ka taa sugunɛ furakɛla dɔ fɛ (Sugunɛ furakɛla) ani ka farikolo lajɛ, ka sugunɛ sɛgɛsɛgɛ ani ka a lajɛ siɲɛ kelen san kɔnɔ, walima ka tɛmɛ o kan. Aw den bɛ se ka nin sɛgɛsɛgɛliw fana kɛ:

• Sugunɛ baarakɛcogo sɛgɛsɛgɛliw.
• Sugunɛ furakisɛw sɛgɛsɛgɛli.

Aw bɛ se ka mun kɛ walasa ka aw ka sugunɛ kelenpe lakana?

Sugunɛ kelen bɛ mɔgɔ caman na, a bɛ fɔ u ma ko u ka sugunɛ kɛcogo ɲuman (DASH) labato . Nin dumuni in bɛ kɛ ni kɔgɔ ni sukaro dɔgɔyali ye ani ka dumuniw dun minnu nafa ka bon ni jolisegindumuni ni potasiyɔmu ye.

Denmisɛnniw ni balikuw minnu bɛ ni sugunɛbilenni ye, olu bɛ se ka nin wale ninnu kɛ walasa k’u ka sugunɛ kɛnɛya lakana:

• Aw bɛ aw yɛrɛ tanga funufura minnu tɛ stɛroyi ye (AINE) ani dimimadafura dɔw tali. Olu bɛ se ka aw ka sugunɛ tiɲɛ. Aw bɛ fɛn dɔ kɛ i n’a fɔ asetaminofɛni o nɔ na.
• Aw bɛ aw farikolo girinya kɛnɛman mara ani ka to farikoloɲɛnajɛ la. Nka, a ka fisa aw ka aw yɔrɔ janya farikoloɲɛnajɛw la minnu bɛ nɔba bila mɔgɔ la i n’a fɔ ntolatan, rugbi, ani kɛlɛcɛw, barisa u bɛ se ka kɛ farati ye aw ka sugunɛ tɔ la.
• Aw bɛ to ka aw ka tansiyɔn lajɛ so kɔnɔ.