Ðe dzesi siawo le ŋuwòa? Mina míasrɔ̃ nu tso Ame Tsitsiwo ƒe Dɔléle si Dzea Eme (AOSD) ŋu!

Ðe nèsena le ɖokuiwò me ɣeaɖewoɣi be yeƒe ƒunukpeƒewo le veve sem, asrã le ye ŋu, eye yeƒe ƒunukpeƒewo le veve sem ŋkeke geɖea? Ðewohĩ kple ʋuʋudedi pink aɖe le wò ŋutigbalẽ ŋu. Ne dzesi siawo le ŋuwò la, ɖewohĩ nusi ŋu míele nu ƒom tsoe egbea le ŋuwò: Ame Tsitsiwo ƒe Dɔléle si Gɔmedzedze Kokoko (AOSD). Esia nye nɔnɔme si mebɔ o, gake ele vevie be nànyae.

Nukae Nye Ame Tsitsiwo ƒe Dɔléle si Gɔmedzedze Kokoko (AOSD)?

Kpuie ko la, AOSD nye ƒunukpeƒetetedɔ si xɔa ame ƒe ŋutilã bliboa, si nana ƒunukpeƒewo vuvu hesea veve . Ate ŋu ana ƒunukpeƒewo nase veve, lãmekawo nase veve, asrã si va nɔa ame ŋu va yina le ŋkekea me katã, kple ŋutigbalẽ ƒe ʋuʋu. Tsɔ kpe ɖe eŋu la, ɖoɖowɔɖi ƒe dzesi bubuwo hã ate ŋu ado mo ɖa.

Dɔléle sia, si woyɔna be `AOSD`, nye ame tsitsiwo ƒe dɔléle si nye `Still's disease` alo `(Juvenile Idiopathic Arthritis - JIA)` si dzɔna ɖe ɖeviwo me. Zi geɖe la, edzea sɔhɛ siwo xɔ tso ƒe 16 va ɖo ƒe 35. Abe alesi dɔlélea le ɖeviwo ŋu ene la, ɣeaɖewoɣi la, ate ŋu anɔ anyi mede ƒe ɖeka o eye emegbe wòabu, alo ate ŋu ava eye wòadzo le ɣeyiɣi aɖe megbe. Dzesiwo ``flares`` ateŋu ava eye woadzo enuenu, alo ateŋu ava eye woadzo ɣeyiɣi didi. Azɔ hã, dzesi siawo ate ŋu asẽ ŋutɔ ɣeaɖewoɣi, eye ɣebubuɣiwo la, woate ŋu asẽ ŋutɔ. Gake atike nyui aɖewo li siwo woatsɔ aɖu dzesiawo dzi ne wodze.

Nukawoe nye dɔléle sia ƒomevi vevitɔwo?

AOSD gblẽa nu le amesiame ŋu le mɔ vovovowo nu. Esesẽ be nàgblɔ alesi tututu wòakpɔ ŋusẽ ɖe dziwòe. Gake ɖɔktawo de dzesii be zi geɖe la, dzesiawo dzena le mɔ vevi etɔ̃ nu:

Monophasic AOSD `(AOSD si me nuwo le ɖeka)`

"Monophasic" fia be zi ɖeka koe dzesiawo dzena . Esia ate ŋu anɔ anyi kwasiɖa alo ɣleti ʋɛ aɖewo, gake mede ƒe ɖeka o. Esia ƒomevi ate ŋu adze egɔme kpata, eye wòabu kabakaba hã. Bu eŋu kpɔ, dzesi siawo dze mía xɔlɔ̃ Kasun ŋu kple asrã kple ƒunukpeƒeveame, eye le abe ɣleti etɔ̃ ene megbe la, eƒe lãme sẽ keŋkeŋ le atikewo zazã me, eye megatrɔ gbɔ o. Esiae woyɔna be `(Monophasic AOSD)` sia.

AOSD si me nuwo le vovovo `(AOSD si me nuwo le)`

"Polyphasic" fia be dzesiawo dzena zi gbɔ zi geɖe . Esiawo ate ŋu adzɔ ɣeaɖewoɣi, ɣeaɖewoɣi kwasiɖa, ɣleti, alo ƒe ʋɛ aɖewo gɔ̃ hã. Gake le ɣeyiɣi aɖe megbe la, zi geɖe la, dzesi siawo va nɔa kpuie eye womegasẽna ɖe edzi o.

AOSD si nɔa anyi didi `(AOSD si nɔa anyi didi)`

"Esi nɔa anyi didi" fia be dzesi siwo yia edzi le ŋuwò, alo be nɔnɔmea nu sẽna enuenu . Abe alesi wòle le dɔlélewo abe Rheumatoid Arthritis ene gome ene la, nɔnɔme sia (Chronic AOSD) ate ŋu agblẽ nu le wò ƒunukpeƒewo ŋu ɣeyiɣi didi wu.

Wokpɔa ƒomevi etɔ̃awo katã le agbɔsɔsɔ ɖeka me wu alo wu nenema. Gake manya wɔ be woagblɔ ƒomevi si tututu wònye le gɔmedzedzea me o. Ɣeaɖewoɣi la, ne wosusu be enye "monophasic" alo "polyphasic" hã la, ateŋu ava zu "chronic" `AOSD` emegbe.

Nukawoe nye AOSD ƒe dzesiwo?

Tsɔ kpe ɖe dzesi vevi siwo wokpɔna le dɔléle sia me ŋu la, dzesi bubu siwo bɔ hã li.

Dzesi veviwo

• Asrã: Ne dzesiawo le dɔ wɔm la, asrã dzea ame akpa gãtɔ dzi zi eve gbesiagbe , zi ɖeka le ŋdi me eye zi ɖeka le fiẽ me. Zi geɖe la, asrã sia ate ŋu akɔ wu Celsius dzidzenu 39 (Fahrenheit dzidzenu 102).
• Ŋutilã me ʋuʋudedi: Zi geɖe la, ʋuʋudedi si ƒe amadede nye pink, si ƒe amadede nyea salmon ɣeaɖewoɣi la dona le asrã ƒe sesẽɣi . Ate ŋu abu ne asrãa nu fa. Zi geɖe la, edzena le akɔta, abɔwo, kple afɔwo dzi le gɔmedzedzea me, gake ate ŋu akaka ɖe ŋutilã bliboa me.
• Ƒunukpeƒeveame: Ame geɖe sea ƒunukpeƒewo vea , eye ame geɖe hã ate ŋu avuvu ahasẽ. Ate ŋu adze ƒunukpeƒe ʋɛ aɖewo ko dzi le gɔmedzedzea me, gake le ɣeyiɣi aɖe megbe la, vevesese sia ate ŋu agblẽ nu le ƒunukpeƒewo ŋu le ŋutilã bliboa me.
• Lãmetsiwo ƒe vevesese: Wò lãmekawo hã ate ŋu ase veve , vevietɔ ne asrãa nu sẽ wu.

Dzesi bubu siwo bɔ

• Vemexɔabi.
• Dɔgbo ƒe vevesese.
• Ðeɖiteameŋu si gbɔ eme ƒe seselelãme.
• Malaise nye seselelãme si nye be ame ƒe lãme mekɔ o, seselelãme si nye be yeƒe lãme mekɔ o.

Aleke wòsena le eɖokui me ne AOSD le ame ŋu?

Le nyateƒe me la, gbã la, AOSD sena le eɖokui me abe dɔlékui ƒe dɔléle alo dzamezã ene . Dzesiwo abe asrã, ŋutilã ƒe veve, kple ŋɔti me veve ene sɔ kple dɔléle bubu geɖe siwo bɔ. Mia kple wò ɖɔkta miate ŋu adze ɖikeke vie ne dzesi siawo meɖiɖi le kwasiɖa eve va ɖo etɔ̃ megbe o.

Nukatae AOSD dɔléle sia dzɔna?

Dzoxɔxɔ le wò ŋutilã me ye hea AOSD ƒe dzesiwo vɛ . Zi geɖe la, míaƒe dɔlélenutsiŋutete nana dɔdzẽ sia wɔa avu kple dɔlékuiwo eye wòdaa abi. Ele be wòanye ɣeyiɣi kpui aɖe ƒe nu ŋutɔŋutɔ. Gake le dɔléle aɖewo abe AOSD ene me la, nane ƒe kuxi aɖe le wò dɔlélenutsiŋutete ŋu , eye wòyia edzi hea dɔdzẽ sia hem vɛ ne dɔlékui aɖeke meli woawɔ avu kplii alo abi aɖeke meli be wòada o gɔ̃ hã.

Numekulawo menya nusita tututu nusia dzɔna haɖe o. Abe Ðeviwo ƒe Ƒunukpeƒetetedɔ ene la, woyɔa Ame Tsitsiwo ƒe Dɔléle be " idiopathic ." Ema fia be womenya nusi tututu gbɔ wòtso o . Edze abe menye domenyiŋusẽfianue wònye o ene.

Aleke wowɔa dea dzesi AOSD?

AOSD ƒe dzesiwo sɔ kple nɔnɔme bubu geɖe. Eye esi wònye dɔléle si mebɔ o ta la, ɖewohĩ ɖɔktawo masusui le gɔmedzedzea me o. Eyata ate ŋu axɔ ɣeyiɣi aɖe hafi woate ŋu akpɔ dɔlélea nyuie .

Ne wò ɖɔkta lé ŋku ɖe wò dzesiwo kple atikewɔwɔ ŋutinya ŋu vɔ la, abia be woawɔ ʋudodokpɔ kple nɔnɔmetatawo dodokpɔ be woanya nu geɖe tso wò nɔnɔmea ŋu. Dodokpɔwo abe X-ray alo ultrasound scans ene ate ŋu adi be dɔdzẽ kple vuvu le wò ƒunukpeƒewo. Ʋudodokpɔ ate ŋu aɖe nɔnɔme bubuwo ɖa. Ne wò ʋudodokpɔ ɖee fia be ferritin sɔ gbɔ ŋutɔ, tsɔ kpe ɖe ʋumenugbagbevi ɣiwo ƒe xexlẽme si sɔ gbɔ ŋu , la, dzesi siawo ate ŋu afia be AOSD le ŋuwò.

Nukawoe nye atike siwo wozãna na AOSD?

Ðɔktawo tsɔa atike vovovo siwo tsia dɔdzẽ nu daa AOSD . Atike ƒomevi siwo wɔa dɔ nyuie wu na ame ɖesiaɖe la to vovo. Ðewohĩ abia dodokpɔ aɖewo hafi nàke ɖe esi awɔ dɔ nyuie wu na wò dzesiwo ŋu. Ne ènya ke ɖe esi sɔ ŋu ko la, ahiã be nàyi atikeawo nono dzi ɣeyiɣi didi aɖe, ne dzesi aɖeke mele ŋuwò o gɔ̃ hã. Ema ko hafi nàte ŋu atɔ te dɔdzẽa be wòagagblẽ ɖe edzi o.

Atike aɖewo ate ŋu ahe nugbegblẽ le ame ŋu ne wozã wo ɣeyiɣi didi. Ne èle atike mawo zãm la, wò ɖɔkta atrɔ atikeawo ɣeaɖewoɣi be wòagagblẽ nu le wo ŋu o.

Atike siwo wozãna tsɔ daa dɔe dometɔ aɖewoe nye:

• Atike siwo me steroid mele o siwo tsia dɔdzẽ nu (NSAIDs).
• Corticosteroids (steroids siwo wowɔ) `(Corticosteroids - steroids siwo wowɔ)`.
• Atike siwo trɔa dɔléle siwo tsia ʋumenugbagbeviɣidɔ nu (DMARDs).
• Nu gbagbewo ƒe atikewo `(Biologics)`.

Aleke gbegbee AOSD nye nu sesẽe?

Zi geɖe la, AOSD kpɔa ŋusẽ ɖe wò agbenɔnɔ ƒe nyonyome dzi wu wò lãmesẽ si nɔa anyi didi . Eyae nye be ate ŋu ana nàse veve eye wòado kplamatse gbesiagbedɔwo, gake megblẽa nu le wò ŋutilã ŋu kokoko le ɣeyiɣi didi aɖe megbe o.

Gake ame aɖewo ate ŋu axɔ ƒunukpeƒetetedɔ si yia edzi ɖaa, si gblẽa nu le ame ŋu . Esia ate ŋu adzɔ le AOSD si nɔa anyi didi me wu le ƒomevi bubuwo me. Ne dɔdzẽ si le wò ƒunukpeƒewo nu sẽ ale gbegbe eye wònɔa anyi didi la, woate ŋu avuvu vivivi. Ne akɔtaɖonu siwo ƒo xlã wò ƒunukpeƒewo le vɔvɔm le dɔdzẽ ta la, wò ƒunukpeƒewo ate ŋu adze ʋuʋu gɔme le teƒe si mele o. Ƒunukpeƒewo ƒe vuvu kple gbegblẽ sia ate ŋu ana wò ƒunukpeƒewo nazu nuwɔametɔ siwo me vevesese le.

Ƒã ŋutɔ hafi dɔdzẽ ƒe nɔnɔme siwo do ƒome kple AOSD ate ŋu akpɔ ŋusẽ ɖe wò ŋutinu ememetɔwo abe wò dzi kple lãkusi ene hã dzi. Esia ate ŋu ahe kuxi sesẽwo vɛ. Togbɔ be AOSD ŋutɔ mate ŋu akpɔ ŋusẽ ɖe wò agbenɔƒe dzi o hã la, ƒã hafi nɔnɔme evelia siawo ate ŋu awu ame.

Kuxi sesẽ kawoe ate ŋu ado mo ɖa?

Kuxi siwo mebɔ o gake wosẽ ŋutɔ dometɔ aɖewoe nye:

• Dzitodzito me dɔléle.
• Dzitodzito me dɔléle.
• Ʋukawo me ʋu ƒe sisi si kaka (DIC).
• Aklã me ʋukawo me ʋusɔgbɔdɔ.
• Pleural effusion ƒe ʋuʋu.
• Aɖuɖɔtoedɔléle si le lãkusiwo dome.
• Ʋumenugbagbeviɣidɔ si woyɔna be lymphohistiocytosis (HLH).

Ðe woate ŋu ada AOSD keŋkeŋa?

Atikewo mate ŋu ada AOSD o, gake woate ŋu akpe ɖe ŋuwò nàtsi dzesiawo nu. Le ame aɖewo gome la, dzesiawo ate ŋu nu ayi keŋkeŋ le ɣeyiɣi aɖe megbe eye magatrɔ ava gbeɖe o. Woyɔa esia be "remission" me yiyi, alo dɔlélea ƒe ɖoɖoezizi. Ne èyi "remission" me la, àte ŋu adzudzɔ wò atikewo nono. Gake le ame aɖewo gome la, AOSD medzona ŋutɔŋutɔ gbeɖe o. Ðewohĩ ahiã be woano atike ɣeyiɣi didi aɖe be woatsɔ aɖu dɔdzẽa dzi.

Esesẽ be nàgblɔ nɔnɔme si tututu nàte ŋu akpɔ mɔ na. Gake ɖɔkta aɖewo xɔe se be wò dzesi gbãtɔwo ate ŋu ana nàkpɔe . Ne wò ƒunukpeƒewo le veve sem eye wòvuvu le gɔmedzedzea me la, anɔ eme be anɔ anyi eteƒe nadidi.

Aleke wòle be míalé be na mía ɖokui esime míele agbe kple AOSD?

Ame geɖe siwo ŋu AOSD le ate ŋu anɔ agbe si sɔ, si me dzidzeme le ne wozã atike nyuitɔ . Le ame bubuwo gome la, wowɔa avu kple vevesese atraɖii ɣeaɖewoɣi kple ɖeɖiteameŋu atraɖii, si ate ŋu agblẽ nu le woƒe gbesiagbegbenɔnɔ ŋu. AOSD ƒe dzesiwo yi edzi le fu ɖem na wò alo meɖe fu na wò o, àte ŋu akpɔ nugbegblẽ le atike siwo nèno ŋu, abe lolo kple seselelãme ƒe tɔtrɔ ene.

Ne agbea le nuteɖeamedzi me ɣesiaɣi le nusiwo dzi màte ŋu aɖu o ta la, ele vevie wu be nàkpɔ ɖokuiwò dzi kpɔkpɔ veviwo gbɔ . Alɔ̃dɔdɔ nyuie, nuɖuɖu si me nunyiame le, kple kamedede edziedzi si me ŋusẽ boo aɖeke mele o ate ŋu akpe ɖe ŋuwò nàse le ɖokuiwò me be yeƒe lãme sẽ le goawo katã me.

AOSD nye nɔnɔme manyatalenu aɖe si vaa ame dzi kpata eye womenya susu aɖeke si tae o. Ne edzɔ zi gbãtɔ la, àte ŋu ase le ɖokuiwò me be yele dɔ lém le mɔ si mebɔ o nu ɣeyiɣi didi aɖe. Ðewohĩ axɔ ɣeyiɣi kple agbagbadzedze aɖe hafi wò ɖɔkta nakpɔ nusi le edzi yim. Dzɔgbenyuietɔe la, ne wonya kpɔe be dɔlélea le ŋuwò ko la, àte ŋu adze atikewɔwɔ gɔme eye vivivi la, wò lãme nasẽ.

Togbɔ be abia dodokpɔ kple vodada aɖewo hafi nàke ɖe atike si awɔ dɔ na wò wu ŋu hã la, ame akpa gãtɔ ate ŋu akpɔ woƒe dzesiwo gbɔ eye woaxe mɔ ɖe kuxi sesẽwo nu to atikewo zazã me . Ɣeyiɣi didi ka kee AOSD le ŋuwò o, wò ɖɔkta anye wò zɔhɛ nyuitɔ kekeake le edzikpɔkpɔ me.

Mlɔeba la, gbedasi si woatsɔ ayi aƒemee

• AOSD nye ƒunukpeƒetetedɔ si mebɔ o si xɔa ame ƒe ŋutilã bliboa eye wòdzɔna le ame tsitsiwo me.
• Asrã, ŋutigbalẽ ƒe ʋuʋu enuenu, kple ƒunukpeƒewo kple lãmekawo ƒe vevee nye dzesi vevitɔwo.
• Womenya nusi tututu gbɔ esia tso o, gake dɔdzẽ si tso tɔtrɔ siwo va le dɔlélenutsiŋutete ƒe dɔwɔwɔ me gbɔ koŋue wòtso.
• Ate ŋu axɔ ɣeyiɣi aɖe hafi woate ŋu anya dɔlélea, elabena dzesiawo sɔ kple dɔléle bubuwo.
• Atikewo ate ŋu akpe ɖe ame ŋu wòaɖu dɔlélea ƒe dzesiwo dzi eye , le ame aɖewo gome la, woate ŋu ada dɔlélea keŋkeŋ gɔ̃ hã.
• Ne wowɔ atike nyuitɔ eye wokpɔ wo ɖokui dzi nyuie la, ame akpa gãtɔ ate ŋu anɔ agbe si sɔ.
• Ne dzesi siawo le ŋuwò la, yi ɖɔkta gbɔ godoo eye nàɖo aɖaŋu na wò . Mègatsi dzi o, nusianu gbɔ kpɔnu li.

Míele lãmesẽ nyui dim na wò!

` Ame tsitsi Still ƒe dɔléle, AOSD, ƒunukpeƒetetedɔ, dzoxɔxɔ, ŋutigbalẽ ƒe ʋuʋu, autoimmune dɔlélewo, atikewɔwɔ