Ðe Ankylosing Spondylitis, alo AS kpuie, le ŋuwòa? Ekema ɖewohĩ ènya alesi gbegbe wògblẽa nu le ƒunukpeƒe siwo le akɔta kple akɔta dome ŋu. Gake nusi ɖewohĩ mènya o enye be ame aɖewo siwo ŋu AS le hã ate ŋu axɔ ayiku me kuxiwo. Esia medzɔna ɖe amesiame dzi o, gake ele vevie be nànya esia.
Kpuie ko la, Ankylosing Spondylitis (AS) nye ƒunukpeƒetetedɔ ƒomevi aɖe si gblẽa nu le akɔta kple ƒunukpeƒe siwo do ƒome kplii ŋu. Nusi dzɔna le esia mee nye be dɔdzẽ aɖe nɔa ŋutilãa me ɣeyiɣi didi. Menye ɖeko dɔdzẽ sia si dzi womeɖu o si le ŋutilãa me la nɔa anyi ɖe afima ko o. Edzea ŋusẽkpɔkpɔ ɖe ŋutilã ƒe akpa vovovowo dzi. Ayikuwo nye teƒe mawo dometɔ ɖeka. Numekuku yeyewo ɖee fia be ɖewohĩ kadodo sia bɔ fifia wu alesi wosusui tsã. Eyata mina míaƒo nu tso esia ŋu egbea.
Ayikukuxi kawoe ate ŋu ado mo ɖa le AS ta?
Mɔ vevi geɖe li siwo dzi AS ate ŋu ato akpɔ ŋusẽ ɖe ayiku dzi. Na míalé ŋku ɖe nusiwo wonye ŋu.
1. Ayiku ƒe Amyloidosis Evelia
Esia aɖi ŋkɔ si gɔme sese sesẽ, gake ele bɔbɔe. Le dɔdzẽ ƒe nɔnɔme siwo nɔa míaƒe ŋutilã me ɣeyiɣi didi ta la, woate ŋu awɔ protein si mesɔ o si woyɔna be ‘amyloid’. Protein sia dzea ƒoƒo ɖe ayikuawo me vivivi. Ele abe gbeɖuɖɔ si le ƒoƒom ɖe pɔmpi me ene. Esi protein la le dzidzim ɖe edzi la, ayikuawo megate ŋu wɔa woƒe dɔ si sɔ, si nye ʋua ɖeɖe ɖa o. Wogayɔa nɔnɔme sia be ‘AA amyloidosis’.
2. Dɔlékuiwutike si woyɔna be Immunoglobulin A Nephropathy (IgAN) .
Esia nye ayikudɔ bubu si woate ŋu akpɔ le AS dɔnɔwo ŋu. Nusi dzɔna le esia mee nye be protein aɖe si woyɔna be IgA, si nye míaƒe dɔlélenutsiŋutete ƒe akpa aɖe, gena ɖe ayikuwo me, si wɔnɛ be dɔdzẽ nɔa afima eye wògblẽa nu le ayikuwo ŋu. Be woaɖo kpe edzi nenye be aleae wòle ŋutɔŋutɔ hã la , ehiã be woaɖe ŋutilã ƒe akpa aɖe , si nye lãkusi sue aɖe si woɖe tso ayiku me hedoe kpɔ.
3. Ayikudɔléle si nɔa anyi didi (CKD) .
Ayikudɔ si nɔa anyi didi, alo CKD, nye nɔnɔme si me ayikuawo gblẽna le ɣeyiɣi aɖe megbe eye vivivi la, womegate ŋu wɔa dɔ o. Togbɔ be AS ate ŋu anye nusiwo gbɔ wòtsona dometɔ ɖeka hã la, nɔnɔme bubuwo abe suklidɔ kple ʋusɔgbɔdɔ ene hã ate ŋu ahe nɔnɔmea vɛ. Ne ayikuwo mete ŋu kɔ gbeɖuɖɔ siwo le ʋua me nyuie o la, gbeɖuɖɔ mawo ƒoa ƒu ɖe ŋutilãa me, si wɔnɛ be kuxi sesẽwo abe dzidɔ kple ʋusɔgbɔdɔ ene ƒe afɔkua dzina ɖe edzi.
4. Ayiku me Kpewo
Numekuku aɖewo ɖee fia be amesiwo ŋu AS le, vevietɔ amesiwo ŋu AS le ɣeyiɣi didi aɖe la, ate ŋu axɔ ayiku me kpewo wu amesiwo le lãmesẽ me. Esiawo nye nu suesuesue sesẽ siwo wotsɔ dze kple tomenu siwo le eme. Ɣeaɖewoɣi la, wotsia dzodzodzoe le aɖuɖɔ me, gake ate ŋu ave wo ŋutɔ.Ate ŋu adzɔ. Ɣeaɖewoɣi la, kpe siawo ate ŋu atsi aɖuɖɔtoe me eye woahe dɔlékuiwo vɛ.
Nukae nye ayiku me kuxiwo ƒe dzesiwo?
Dzesi siwo bɔ eye wole tẽe le nɔnɔme siawo dometɔ ɖesiaɖe ŋu. Ele vevie ŋutɔ be nànya nusiawo, elabena ekema àte ŋu ayi ɖɔkta kaba.
Nu vevitɔe nye be le ayikudɔ ƒe gɔmedzedze la, ɖewohĩ dzesi aɖeke manɔ eŋu o. Eyata abe amesi ŋu AS le ene la, ele be nànya esia ɣesiaɣi.
| Atikewɔwɔ ƒe nɔnɔme | Dzesi siwo woate ŋu akpɔ |
|---|---|
| Amyloidosis ƒe dɔléle |
|
| Ayikudɔ si nɔa anyi didi (CKD) . | |
| IgA ayikudɔ (IgAN) . |
Ne AS le ŋuwò eye nèle dzesi siawo dometɔ ɖeka alo esi wu nenema kpɔm la, taflatse mègaŋe aɖaba ƒu edzi o. Kpɔ egbɔ be yeƒo nu tso eŋu na wò ɖɔkta.
Nukatae kuxi siawo doa mo ɖa? Nukawoe nye afɔku siwo le eme?
Esesẽna ɣeaɖewoɣi be woanya nusi tututu gbɔ ayikudɔléle tsona, gake susu vevi geɖewo li siwo tae wòdo ƒome kple AS ɖo.
- Dzoxɔxɔ si dzi womeɖu o: Dzoxɔxɔ si nɔa anyi didi, si nye AS ƒe akpa vevi aɖe, ye nye fɔɖila vevitɔ. Esiae hea nɔnɔmewo abe Amyloidosis kple IgAN vɛ.
- Atikewo: Vevesesenutsitike aɖewo na AS kple ƒunukpeƒetetedɔ, vevietɔ NSAID (Nonsteroidal anti-inflammatory drugs) ate ŋu agblẽ nu le ayiku ŋu ne wozãe ɣeyiɣi didi. Eyata ƒo asa na vevesesenutsitikewo nono le ɖokuiwò si ne mèbia wò ɖɔkta o.
- Atikewɔwɔ ƒe nɔnɔme bubuwo: Afɔku si le ayikudɔléle xɔxɔ me gasɔ gbɔ wu ne nɔnɔmewo abe ʋusɔgbɔdɔ, suklidɔ, dzidɔ, kple lolo akpa ene le ŋuwò.
- Atamanono kple ƒome ŋutinya: Ame siwo noa atama eye ayikudɔ le ƒomea me la le afɔku me wu.
Aleke woawɔ akpɔ egbɔe ahakpɔ egbɔ?
Nu nyuitɔ kekeakee nye be woate ŋu akpɔ nɔnɔme siawo gbɔ. Atikewɔwɔ ƒe tiatia nɔ te ɖe ayiku ƒe kuxi ƒomevi si le ŋuwò dzi.
Nu vevitɔe nye be nàɖu wò AS dzi nyuie. Zi alesi nèɖu abi dzii la, zi nenemae màte ŋu agblẽ nu le wò ayiku ŋu o. Esia fia be nàwɔ ɖe wò ɖɔkta ƒe atikewɔwɔ, abe dɔlékuiwutikewo (abe TNF mɔxenuwo ene) dzi pɛpɛpɛ.
Kpeɖe eŋu la,
- Ðo dze kple wò ɖɔkta tso atike siwo nèzãna (siwo dome vevesesenutsitikewo hã le) ŋu eye nàdzro atike bubu siwo megblẽa nu le wò ayiku ŋu o me.
- Na atikewɔwɔ ƒe nɔnɔme bubuwo abe ʋu ƒe sisi kple suklidɔ ene nanɔ anyi.
- No tsi geɖe.
- Wɔ ɖe wò ɖɔkta ƒe aɖaŋuɖoɖo dzi eye nàwɔ ɖe nuɖuɖu si me dze kple protein mesɔ gbɔ ɖo o dzi.
- Mègano vitamin alo kpeɖeŋutɔ aɖeke ne mèbia wò ɖɔkta o.
Ne ayikudɔléle si nɔa anyi didi (CKD) va nu sẽ la, ate ŋu ana woaɖe ayiku alo ayiku dodo na ame, eyata anyo wu be nàkpɔ esia gbɔ kaba.
Gbedasi si Wotsɔ Yi Aƒeme
- Menye dɔléle si gblẽa nu le akɔta ŋu koe Ankylosing Spondylitis (AS) nye o. Ate ŋu agblẽ nu le ŋutilãa ƒe ŋutinu bubuwo hã ŋu, eye ayiku hã le eme.
- Ne AS le ŋuwò la, nya dzesiwo abe wò afɔwo ƒe vuvu, wò aɖuɖɔ ƒe tɔtrɔ, kple ɖeɖiteameŋu si gbɔ eme ene ɣesiaɣi.
- Mègazã vevesesenutsitikewo (vevietɔ NSAID) ɣeyiɣi didi atikewɔlawo ƒe aɖaŋuɖoɖo manɔmee o.
- Wò AS kple dɔdzẽ si do ƒome kplii dzi ɖuɖu nye mɔ nyuitɔ si dzi nàto akpɔ wò ayiku ta.
- Ne ɖikeke alo dzesi aɖe le ŋuwò la, mègavɔ̃ be yeaƒo nu tso eŋu na wò ɖɔkta ahawɔ dodokpɔ siwo hiã o.
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