Ðe viwòa dɔa alɔ̃ le klass zi geɖea? Ðewohĩ nufiala la agblɔ be, "Viwòŋutsu/viwònyɔnu dɔa alɔ̃ le klass ɣesiaɣi, nu ti kɔ nɛ ŋutɔ." Alo ɖe wòdɔa alɔ̃ zi ɖeka esime wòle fefem kple exɔlɔ̃woa? Dzila aɖewo susuna be esia nye nusi yewowɔna le kuviawɔwɔ ta, alo nu bubu aɖe le esi yewomedɔa alɔ̃ nyuie le zã me o ta. Gake esia ate ŋu anye ahɔhɔ̃mekawo ƒe dɔléle si nu sẽ wu si do ƒome kple ahɔhɔ̃a ɣeaɖewoɣi. Míele nu ƒom tso ema ŋu egbea. Míeyɔa nɔnɔme sia be Narcolepsy.
Kpuie ko la, nukae nye alɔ̃madɔmadɔ?
Alɔ̃madɔmadɔ nye nɔnɔme si me ɖevi ƒe ahɔhɔ̃ mete ŋu ɖɔa woƒe alɔ̃dɔdɔ kple ŋudzɔnɔnɔ ɖo o. Ele abe míaƒe ŋutilã ƒe "gaƒoɖokui ememetɔ" si le tɔtɔm ene. Vevietɔ, esia kpɔa ŋusẽ gãtɔ ɖe ɖevi ƒe ŋutete be wòanɔ ŋudzɔ dzi.
Dzesi gbãtɔ siwo ɖea ahɔhɔ̃mekawo ƒe dɔléle sia fiana dometɔ ɖekae nye alɔ̃dɔdɔ fũu akpa le ŋkeke me , si ate ŋu ado kplamatse ɖevi ƒe ŋutete be wòasrɔ̃ nu, afe, ahade ha kple exɔlɔ̃wo.
Ðevi si ŋu nɔnɔme sia le ate ŋu ase le eɖokui me be ɖeɖi te ye ŋu eye alɔ̃ le ye ƒom le ŋkekea me katã. Ɣeaɖewoɣi la, woate ŋu axɔ "alɔ̃dɔdɔ ƒe amedzidzedze" zi ɖeka eye woadɔ alɔ̃ esime wole nane wɔm. Bu afɔku siwo ate ŋu ado mo ɖa ne wodɔ alɔ̃ kpata esime wole zɔzɔm le ablɔdzi, le fefem, alo le nu ɖum la ŋu kpɔ. Eyata esia nye nɔnɔme si mele be míabu nu tsɛe o.
Narcolepsy ƒomevi vevi eve li:
Ẽ, nɔnɔme sia koŋue ma ɖe akpa eve me. Vovototo sue aɖewo le wo ame evea dome.
| Aɖuɖɔtoemedɔléle ƒomevi | Numeɖeɖe dzro ko |
|---|---|
| Ƒomevi 1 lia (Woyɔe tsã be Narcolepsy with Cataplexy) | Le esia ƒomevi me la, ɖevia hã kpɔa alɔ̃dɔdɔ fũu akpa le ŋkeke me eye wòkpɔa nɔnɔme aɖe si woyɔna be cataplexy . Esiae nye esime ŋutilãa ƒe lãmekawo gbɔdzɔna zi ɖeka eye wosena le wo ɖokui me abe ɖe womegate ŋu le wo ɖokui dzi ɖum o ene. Tsɔ kpe ɖe eŋu la, atike aɖe si woyɔna be hypocretin, si kpena ɖe ahɔhɔ̃a ŋu be wòanɔ ŋudzɔ la ƒe agbɔsɔsɔ mesɔ gbɔ o. Le ƒomevi sia me la, ŋutilãa hã ate ŋu alolo zi ɖeka. |
| Ƒomevi 2 lia (Woyɔe tsã be Narcolepsy without Cataplexy) | Le ƒomevi sia me la, ŋkeke me alɔ̃dɔdɔ fũ akpa koe ɖevia tsina. Cataplexy ƒe nɔnɔme si míeyɔ va yi la medzɔna o. Azɔ hã, mekpɔa ŋusẽ ɖe hypocretin ƒe agbɔsɔsɔ si le ahɔhɔ̃a me dzi o. |
Nu vevitɔe nye be ƒomevi evea siaa ate ŋu akpɔ ŋusẽ ɖe ɖevi ƒe gbesiagbegbenɔnɔ dzi, eyata ele vevie ŋutɔ be woade dzesi dzesiawo.
Nukae nye alɔ̃madɔmadɔ ƒe dzesiwo le ɖeviwo ŋu?
Menye ɖevi siwo katã ŋu alɔ̃dɔdɔ ƒe dɔléle le la kpɔa dzesi siawo katã le mɔ ɖeka nu o. Dzesi aɖewo ate ŋu adze egɔme kaba, eye bubuwo ate ŋu adze emegbe. Dzesi vevi enee li.
1. Alɔ̃dɔdɔ fũu akpa le ŋkeke me
2. Cataplexy - lãmekawo ƒe gbɔdzɔgbɔdzɔ kpata
3. Alɔ̃dɔdɔ ƒe lãmetutudɔ
4. Nu vovovowo kpɔkpɔ/sese ne èle alɔ̃ dɔm alo nyɔ (Hallucinations) .
Tsɔ kpe ɖe eŋu la, àte ŋu akpɔ dzesi siawo hã:
- Alɔ̃dɔdɔ ƒe tɔtɔ
- Alɔ̃dɔdɔ sɛkɛnd ʋɛ aɖewo evɔ mànya nusi wɔm nèle o (Automatic behaviors) .
- Kpekpeme ƒe dzidziɖedzi kpata
- Ƒewuiwo ƒe tsitsi kaba
Azɔ mina míalé ŋku ɖe dzesi vevi siawo ŋu tsitotsito vie.
Alɔ̃dɔdɔ fũu akpa le ŋkeke me
Zi geɖe la, esiae nyea dzesi gbãtɔ. Eyi ŋgɔ wu "alɔ̃dɔdɔ" ko. Egblẽa nusianu kloe si ɖevia wɔna le aƒeme, le suku, kple exɔlɔ̃wo gbɔ.
Kpɔe ɖa be nusiawo dzɔ ɖe viwòa dzi hã:
- Ðeɖiteameŋu si gbɔ eme le ŋkekea me katã, vevietɔ ne èbɔbɔ nɔ anyi, le agbalẽ xlẽm, alo le ʋu me.
- "Alɔ̃dɔdɔ ƒe amedzidzedze" dzɔna. Ema fia be èdɔa alɔ̃ zi ɖeka, si dzi màte ŋu aɖu o.
- Eyi edzi mlɔa alɔ̃ le ŋkekea me le ƒe 5 xɔxɔ vɔ megbe, alo wòdɔa alɔ̃ didi wu ɖevi mamã dedie (gaƒoƒo eve va ɖo etɔ̃).
- Ne èdɔ alɔ̃ le ŋkekea me eye nènyɔ hã la, àgase le ɖokuiwò me be yedɔ alɔ̃ le ɣeyiɣi aɖe megbe.
- Ta la sena le eɖokui me be yele kuvia wɔm, eŋlɔa nu be, eye ŋusẽ mele eŋu o.
- Wobua susu kple susu tsɔtsɔ ɖo nu ŋu bɔbɔe.
- Dzikudodo, dzikudodo, nuwɔna si gbɔ eme, alo blanuiléle le susu aɖeke manɔmee.
Cataplexy - lãmekawo ƒe gbɔdzɔgbɔdzɔ kpata
Esia nye dzesi aɖe koŋ ŋutɔ. Cataplexy nye lãmekawo ƒe ŋusẽ si bu kpata le ŋutilãa me ɣeyiɣi kpui aɖe. Esia ate ŋu axɔ tso sɛkɛnd ʋɛ aɖewo va ɖo aɖabaƒoƒo ʋɛ aɖewo.
Esia ate ŋu ase le eɖokui me abe ɖe wò klowo le ʋuʋum ene, alo wò ŋutilã bliboa ate ŋu ase le eɖokui me be yevuvu eye àte ŋu adze anyi.
Àde dzesi nɔnɔme siawo le viwòa ƒe mo gbã:
- Agbe mele kɔsɔkɔsɔa me o eye nu ʋuna.
- Ŋkuawo le kpekpem eye wole ɖiɖim.
- Aɖe dodo ɖe gota.
- Nyawo tɔtɔna ne wole nu ƒom.
- Eɖea mo ƒe ʋuʋu alo dzedzeme si mebɔ o fiana.
Nu vevitɔe nye be cataplexy nɔnɔme sia dzɔna ne seselelãme sesẽ aɖe abe dzidzɔkpɔkpɔ, nukoko, dziku, vɔvɔ̃, alo dzidzɔkpɔkpɔ do mo ɖa. Bu eŋu kpɔ, ne viwòa ko nu sesĩe le fefenya aɖe ta la, kasia ebɔbɔa klo henɔa anyi ɖe anyigba. Alo ne ekpɔ dzidzɔ le fefe aɖe dzi ɖuɖu vɔ megbe la, etsɔa nusi wòlé ɖe asi la ƒua gbe ɖe anyigba.
Ðevi siwo ŋu alɔ̃madɔmadɔ le ƒe 70% lɔƒo kpɔa nɔnɔme sia. Gake le ɖevi suewo gome la, woate ŋu abui vodadatɔe be enye ɖekematsɔleme, alɔ̃madɔmadɔ, alɔ̃madɔmadɔ, alo mɔ si dzi woato ana woƒe susu nanɔ wo ŋu ko .
Alɔ̃dɔdɔ ƒe lãmetutudɔ
Esia nye nusi me ame geɖe to kpɔ, gake ate ŋu ado vɔvɔ̃ na ame ŋutɔ. Alɔ̃dɔdɔ ƒe lãmetutudɔ nye nɔnɔme si me màte ŋu aʋuʋu wò ŋutilã alo aƒo nu ne èle alɔ̃ dɔm, alo ne èfɔ le ŋdi me o.
Ne esia nɔa anyi sɛkɛnd alo aɖabaƒoƒo ʋɛ aɖewo eye emegbe wòdzo hã la, vɔvɔ̃ ɖoa ɖevia ŋutɔ, abe ɖe woxaxa eye womete ŋu bia kpekpeɖeŋu o ene. Esia ate ŋu akpɔ ŋusẽ gã aɖe ɖe ɖevia ƒe susu ƒe lãmesẽ dzi. Zi geɖe la, nɔnɔme sia nu yina ne ame bubu ka asi ametia ŋu.
Nu vovovowo kpɔkpɔ/sese (Hallucinations) .
Esiawo nye nuteƒekpɔkpɔ siwo le abe drɔ̃e ene siwo dzena abe nu ŋutɔŋutɔwo ene gake womele eme o. Wodzɔna ne èle alɔ̃ dɔm (hypnagogic hallucinations) alo ne ènyɔ tso alɔ̃ me (hypnopompic hallucinations).
Zi geɖe la, ɖeviwo kpɔa alo sea nu siwo doa vɔvɔ̃ na wo, abe lãwo ƒe nɔnɔmetatawo alo lãwo ƒe gbeɖiɖiwo ene. Zi geɖe la, nɔnɔme sia dzɔna kpe ɖe alɔ̃dɔdɔ ƒe lãmetutudɔ si míeyɔ va yi ŋu.
Nukatae ɖeviwo va xɔa alɔ̃dɔdɔ ƒe dɔléle?
Nu ɖeka aɖeke meli si tututu gbɔ esia tso o, gake wosusui be kuxi aɖe si le ɖevia ƒe ahɔhɔ̃ ƒe akpa si kpɔa alɔ̃dɔdɔ kple ŋudzɔnɔnɔ dzi (hypothalamus) gbɔ koŋue wòtso.
Etɔxɛe la, ahɔhɔ̃mekawo ƒe atike si nye hypocretin , si kpena ɖe mía ŋu míenɔa ŋudzɔ la dzi ɖena kpɔtɔna gbɔe alɔ̃madɔmadɔ Ƒomevi 1 tsona. Nu geɖe li siwo ate ŋu ahe esia vɛ:
- Dɔlélenutsiŋutete ƒe nɔnɔme: Kpuie ko la, ɖevia ŋutɔ ƒe dɔlélenutsiŋutete dzea ahɔhɔ̃a me lãmenugbagbevi siwo le lãmesẽ me siwo wɔa hypocretin dzi vodadatɔe, si wɔnɛ be atike ma meganɔa anyi o. Ɣeaɖewoɣi la, nɔnɔme sia ate ŋu ado mo ɖa le dɔlékui bɔbɔe aɖe xɔxɔ vɔ megbe.
- Ƒome ŋutinya:Ne dɔléle sia le ame aɖe ŋu le ƒomea me la, domenyiŋusẽfianu ƒe kadodo aɖe ate ŋu anɔ ɖevia hã ŋu.
- Ahɔhɔ̃ ƒe abi alo dɔdzẽ: Ƒã ŋutɔ la, nɔnɔme sia ate ŋu ado mo ɖa le nusi gblẽ le teƒe si kpɔa alɔ̃dɔdɔ dzi le ahɔhɔ̃ me abi, dɔdzẽ, alo atikewɔwɔ ƒe nɔnɔme bubu aɖe ta.
Kuxi kawoe ate ŋu ado tso alɔ̃madɔmadɔ me?
Nɔnɔme sia ate ŋu akpɔ ŋusẽ ɖe ɖevia ƒe agbenɔnɔ ƒe akpa vovovowo dzi.
- Suku ƒe dɔwɔwɔ nyuie o.
- Xɔlɔ̃wo gododo kple hadomekadodowo me léle ɖe asi sesẽ.
- Susu me kuxiwo (blanuiléle, dzimaɖitsitsi).
- Nuwɔna me kuxiwo (abe susu ƒe dɔmawɔmawɔ nyuie ƒe dɔléle - ADHD ene).
- Ŋutilãmefɔku siwo dzɔna le alɔ̃dɔdɔ ƒe amedzidzedze kpata ta.
Aleke ɖɔktawo wɔa dea dzesi dɔléle siae?
Ne èsusu be dzesi siawo le viwòa ŋu la, nu gbãtɔ si nàwɔe nye be nàkpɔ wò ɖɔkta, vevietɔ ɖeviwo ƒe dɔdala.
Ðɔktaa ado ɖevia kpɔ ahabia nya wò tso dzesiwo kple alɔ̃dɔdɔ ƒe ɖoɖowo ŋu. Ɣeaɖewoɣi la, ɖevia mesea eƒe dzesiwo katã gɔme o, eyata nusi nèkpɔe nye vevitɔ kekeake.
Le ema megbe la, woate ŋu aɖo wò be woawɔ dodokpɔ geɖe atsɔ aɖo kpe dɔlélea dzi.
| Dodokpɔmɔnu | Nusi dzɔna ko |
|---|---|
| Alɔ̃dɔdɔ Ŋuti Ŋkekegbalẽ Dzraɖoƒe | Kwasiɖa ʋɛ aɖewo la, woabia tso asiwò be nàŋlɔ nuwo abe ɣeyiɣi si viwòa mlɔ anyi, ɣeyiɣi si wòfɔ, kple ɣeyiɣi didi si wòdɔ alɔ̃ le ŋkekea me ene ɖi. |
| Dɔwɔnu si nye actigraph | Esia nye mɔ̃ sue aɖe si le abe asiƒomegaƒoɖokui ene. Edzidzea vidzĩa ƒe ʋuʋu eye wòƒoa nyatakakawo nu ƒu tso ɣeyiɣi si me vidzĩa le alɔ̃ dɔm kple ɣeyiɣi si wòfɔ ŋu. |
| Alɔ̃dɔdɔ ƒe dodokpɔ (PSG) . | Esia nye dodokpɔ si wowɔna le zã ɖeka me le alɔ̃dɔdɔ ŋuti nusrɔ̃ƒe aɖe. Ne ɖevia le alɔ̃ dɔm la, wodzidzea nuwo abe ahɔhɔ̃ ƒe ʋuʋu, dzi ƒe tsotso, gbɔgbɔ, ŋku kple afɔ ƒe ʋuʋu ɣesiaɣi. |
| Alɔ̃dɔdɔ ƒe Ɣeyiɣi Ðeka Dodokpɔ (MSLT) . | Wowɔa esia le ŋkeke si kplɔ PSG dodokpɔa ɖo me. Le esia me la, wobia tso ɖevia si be wòadɔ alɔ̃ vie gaƒoƒo eve ɖesiaɖe. Wodzidzea alesi ɖevia dɔa alɔ̃ kabakaba kple alesi wogena ɖe alɔ̃dɔdɔ deto (REM alɔ̃dɔdɔ) me kabakabae. |
Ɣeaɖewoɣi la, dzesi siawo sɔ kple ɖevimenɔɣi ƒe dɔléle bubuwo (e.g., ADHD, alɔ̃madɔmadɔ), si ate ŋu ana woakpɔ dɔlélea le mɔ gbegblẽ nu . Eyata dodokpɔ siawo le vevie ŋutɔ be woate ŋu akpɔ dɔlélea nyuie.
Ðe atike aɖe li na alɔ̃dɔdɔ ƒe dɔlélea?
Nublanuitɔe la, womekpɔ atike aɖeke na alɔ̃madɔmadɔ haɖe o. Gake togbɔ be enye dɔléle si nɔa anyi le eƒe agbemeŋkekewo katã me hã la, atikewɔmɔnu siwo wɔa dɔ ŋutɔ li siwo ate ŋu akpe ɖe ɖevia ŋu wòaɖu dzesiawo dzi eye wòakpe ɖe ɖevia ŋu wòanɔ agbe si sɔ.
Woma atikewɔwɔa ɖe akpa eve me koŋ:
1. Atikewo zazã
2. Nuwɔna kple agbenɔnɔ ƒe tɔtrɔ
Atikewo zazã
Wò ɖɔkta ate ŋu aŋlɔ atike vovovowo na wò be wòaɖe alɔ̃dɔdɔ le ŋkeke me dzi akpɔtɔ, aɖu cataplexy dzi, aɖe dzesiwo abe alɔ̃dɔdɔ ƒe tɔtɔ kple susumenuwo ene dzi akpɔtɔ.
Le kpɔɖeŋu me:
- Nusiwo doa ŋusẽ ame
- Nusiwo doa nyɔnyrɔ̃ ɖe ŋgɔ
- Titina lãmekawo ƒe dɔwɔwɔ ƒe blanuilélenutsitikewo
- Blanuilélenutsitikewo
Nu vevitɔe nye be wò ɖɔkta atso nya me le atike kple agbɔsɔsɔme si sɔ na viwòa ŋu. Esia ate ŋu axɔ kwasiɖa geɖe. Eyata ele vevie be nàwɔ ɖe ɖɔkta ƒe mɔfiamewo dzi pɛpɛpɛ.
Nuwɔna kple agbenɔnɔ ƒe tɔtrɔ
Tsɔ kpe ɖe atikewo zazã ŋu la, tɔtrɔ suesuesue siwo woawɔ le ɖevi ƒe agbenɔnɔ ŋu ate ŋu ana tɔtrɔ gã aɖe nava.
- Wɔ ɖoɖo si nàwɔ edziedzi hafi amlɔ anyi: Na viwòa nazu numame na wò be wòamlɔ anyi ahafɔ le ɣeyiɣi ɖeka me gbesiagbe.
- Na viwòa nadɔ alɔ̃ kpuie: Na viwòa nadɔ alɔ̃ kpuie aɖabaƒoƒo 20-30 ne ese le eɖokui me be alɔ̃ dɔm wu.
- Wɔ alɔ̃dɔdɔ ƒe nɔnɔme si me nànɔ bɔbɔe: Ele be wò xɔdɔme nanɔ anyi kpoo, wòado viviti, wòafa, eye wòanɔ bɔbɔe. Ƒo asa na television kpɔkpɔ alo wò telefon zazã ne èbɔbɔ nɔ aba dzi.
- Dzudzɔ caffeine nono: Ƒo asa na soda, kɔfi, tii, kple tsokolet gaƒoƒo ʋɛ aɖewo hafi nàmlɔ anyi.
- Kamedede: Enyo be nàde kame aɖabaƒoƒo 20 ya teti gbesiagbe. Gake manyo be nàde kame gaƒoƒo etɔ̃ hafi amlɔ anyi o.
- Ƒo asa na nuwɔna siwo me afɔku le: Na viwòa nanɔ ame tsitsiwo ƒe dzikpɔkpɔ te ne ele dɔwɔnawo abe tsiƒuƒu kple nuɖaɖa ene siwo ate ŋu anye afɔku ne edɔ alɔ̃ kpata la wɔm.
- Xɔ kpekpeɖeŋu tso sukua gbɔ: Na nufialawo kple sukutatɔ nanya nu tso viwòa ƒe nɔnɔmea ŋu. Esia akpe ɖe wo ŋu woakpɔ dzeƒe si hiã (e.g., mɔɖeɖe na ɖevia be wòadɔ alɔ̃ le ŋkekea me).
- Na susuŋutinunya ƒe kpekpeɖeŋu: Agbenɔnɔ kple nɔnɔme sia ate ŋu asesẽ na ɖevi le seselelãme gome, eyata ele vevie ŋutɔ be nàna susumedɔdala aɖe nakpe ɖe wo ŋu.
Aleke wò, abe dzila ene, àte ŋu akpe ɖe viwòa ŋu?
Abe dzila ene la, wòe nye viwòa ƒe ŋusẽ gãtɔ kekeake le mɔzɔzɔ sia me. Ate ŋu axɔ ɣeyiɣi aɖe hafi woate ŋu akpɔ dɔlélea nyuie ahakpɔ atikewɔwɔ ƒe ɖoɖo nyuitɔ. Gbɔ dzi ɖi le ɣeyiɣi ma me.
Nɔ kadodo me kple sukua ƒe nufialawo. Ðe viwòa ƒe nɔnɔmea me na wo. Ðo dze kpli wo tso mɔ siwo dzi nàto akpe ɖe viwòa ŋu wòasrɔ̃ nu ŋu.
Ðo ŋku edzi be menye wò ɖeka koe le esia me o. Dɔwɔwɔ ɖekae kple viwòa ƒe nufialawo, kple ne ehiã la, susumedɔdalawo ate ŋu ana ŋusẽ si viwòa hiã be wòanɔ te ɖe nɔnɔme sia nu.
Mlɔeba la, ne viwòa le alɔ̃ dɔm fũu akpa le ŋkeke me la, mègayɔe be "kuviawɔwɔ" ko o, ke boŋ ƒo nu tso eŋu na ɖɔkta. Zi alesi wokpɔ dɔlélea dze sii kaba la, zi nenemae woate ŋu akpe ɖe viwòa ŋu wòakpɔ dzidzedze le ɖevime.
Gbedasi si Wotsɔ Yi Aƒeme
- Alɔ̃madɔmadɔ menye kuviawɔwɔ o, ke boŋ enye ahɔhɔ̃mekawo ƒe dɔléle si do ƒome kple ahɔhɔ̃.
- Dzesi vevitɔwoe nye alɔ̃dɔdɔ fũu akpa le ŋkeke me kple susu ƒe dɔwɔwɔ zi ɖeka (Cataplexy) si kpe ɖe seselelãme sesẽwo abe nukoko ene ŋu.
- Ne dzesi siawo le ŋuwò la, yi ɖeviwo ƒe dɔdala gbɔ godoo.
- Ðewohĩ ahiã be woawɔ alɔ̃dɔdɔ ŋuti numekuku tɔxɛwo hafi woate ŋu anya dɔlélea nyuie.
- Togbɔ be womate ŋu adae bliboe o hã la, atikewo kple agbenɔnɔ ƒe tɔtrɔ ate ŋu aɖu dzesiawo dzi nyuie eye wòakpe ɖe ɖevia ŋu wòanɔ agbe si sɔ.
- Ne ɖevia ɖo afɔku me le alɔ̃dɔdɔ kpata ta la, kplɔ wo yi kɔdzi si te ɖe eŋu wu ƒe Atikewɔwɔ Kpata ƒe Dɔwɔƒe (ETU) enumake.
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