Loaʻa iā ʻoe kēia mau hōʻailona me ka rheumatoid arthritis? E kamaʻilio kākou e pili ana i ka rheumatoid vasculitis!

Aloha! Pehea ʻoe? I kekahi manawa hiki iā kākou ke loaʻa i kahi maʻi ʻē aʻe me kekahi maʻi, ʻeā? No laila, inā ua loaʻa iā ʻoe ka Rheumatoid Arthritis, i kēia lā e kamaʻilio mākou e pili ana i kahi maʻi ʻē aʻe e hiki ke hana pū me ia. Ua kapa ʻia kēia ʻo Rheumatoid Vasculitis. ʻOiai paha he mea weliweli iki ka inoa, e hoʻomaopopo maʻalahi kākou.

He aha ka Rheumatoid Vasculitis?

I ka ʻōlelo maʻalahi, ʻo ka vasculitis rheumatoid ka mumū o kou mau kīʻaha koko. Hoʻokumu ʻia kēia e kou maʻi rheumatoid arthritis. I kēia manawa, ʻo ka vasculitis ka pehu ʻana o nā kīʻaha koko i loko o ko mākou kino, nā ʻōmole liʻiliʻi e lawe ana i ke koko. Lawe kēia mau kīʻaha koko i ke koko ma o ko mākou kino, e like me nā paipu wai. ʻO ka rheumatoid arthritis kahi ʻano arthritis e hoʻopilikia i kou mau hono. ʻO ka mea e hana ʻia ma kēia, ʻo ia ka hoʻouka ʻana o kāu ʻōnaehana pale ponoʻī i nā ʻiʻo i loko o kou mau hono. ʻO ka Rheumatoid vasculitis, rheumatoid arthritis, a me nā ʻano vasculitis ʻē aʻe he mau maʻi autoimmune āpau. ʻO ia hoʻi, ʻo ka ʻōnaehana pale, ka mea i manaʻo ʻia e pale i ko mākou kino, e hoʻomaka hewa ana e hoʻouka i ko mākou kino ponoʻī. E noʻonoʻo, ua like ia me ka pūʻali koa, ka mea i manaʻo ʻia e pale i ko mākou ʻāina, ke hoʻouka mai nei iā mākou.

Pehea ka maʻamau o kēia kūlana?

ʻO kaʻoiaʻiʻo, he mea kākaʻikahi loa kēia maʻi i kapa ʻia ʻo rheumatoid vasculitis. ʻO ia hoʻi, ʻoiai i loko o kahi heluna kanaka nui, he kakaikahi loa ka poʻe e loaʻa iā ia. No ka laʻana, ma kahi ʻāina e like me ʻAmelika, ʻoi aku ka liʻiliʻi ma mua o 50 o kēlā me kēia miliona kānaka i loaʻa iā ia. ʻOi aku ka nui o ka poʻe ma luna o 50 mau makahiki e loaʻa iā ia. Akā ʻoiai i loko o kēlā hui makahiki, ʻaʻole ia he mea maʻamau. Wahi a nā loea, hoʻopilikia ia ma lalo o 300 o kēlā me kēia miliona kānaka i kēlā hui makahiki. Akā i ka wā ma mua, ʻoi aku ka maʻamau o kēia maʻi i kapa ʻia ʻo rheumatoid vasculitis. Akā i kēia manawa, no ka mea ua hoʻomohala ʻia nā lāʻau lapaʻau maikaʻi a maikaʻi hoʻi no ka rheumatoid arthritis, ua emi nui ka nui o nā hōʻike o kēia maʻi.

He aha nā hōʻailona?

Hiki i nā kānaka me ka rheumatoid vasculitis ke hōʻike i nā ʻano hōʻailona like ʻole. E nānā kākou i ke ʻano o lākou.

Nā hōʻailona i ʻike pinepine ʻia

Eia kekahi o nā hōʻailona maʻamau:

• Nā ʻeha ma kou ʻili, ʻoi aku hoʻi ma kou manamana lima a kokoke paha. Hiki i kēia ke lilo i mau ʻeha ʻeha e lōʻihi ai ka manawa e ho'ōla ai.
• Nā ʻōhū a i ʻole nā ​​pehu ʻili.
• Ka loli ʻana o ka ʻili, ka palapū.
• Ke ʻeha nei ma nā lima, nā manamana lima, nā wāwae, a me nā manamana wāwae.
• Ka maneʻo a i ʻole ke ʻano ʻūlū ma nā lima a me nā wāwae.
• Manaʻo o ka nāwaliwali i nā ʻiʻo.

Nā hōʻailona e hiki ke kū mai i nā hihia koʻikoʻi

I kekahi manawa, inā lilo ka maʻi i mea ʻino, hiki ke ʻike ʻia nā hōʻailona ʻē aʻe, e like me:

• ʻEha ʻōpū.
• Kuke.
• ʻAʻohe ʻono o ka meaʻai .
• Ka emi ʻana o ke kaumaha .
• ʻEha ka umauma .
• Kuni.
• Ka luhi mau o ka naʻau ( Fatigue ).

No ke aha e kū mai ai ka vasculitis rheumatoid?

E like me kā mākou i kamaʻilio ai ma mua, he maʻi autoimmune kēia. ʻO ia hoʻi, hoʻouka kāu ʻōnaehana pale ponoʻī i kou mau kīʻaha koko. Inā ua loaʻa iā ʻoe ka rheumatoid arthritis (RA) koʻikoʻi no ka manawa lōʻihi (ʻoi aku ma mua o 10 mau makahiki), e hoʻomaka paha kāu ʻōnaehana pale e hōʻino i kou mau kīʻaha koko, ʻoiai nā mea ma kou mau lima a me kou mau wāwae. A laila pehu a mānoanoa nā kīʻaha koko i hoʻopilikia ʻia. Hoʻolilo kēia i mea paʻakikī no ke kahe ʻana o ke koko ma o lākou. I ka hala ʻana o ka manawa, hiki i kēia mumū ke hōʻino i nā kīʻaha koko ponoʻī, a me ka ʻili a puni lākou.

He aha nā kumu pilikia? ʻO wai ka mea e loaʻa pinepine ai?

ʻOiai hiki i kekahi me ka rheumatoid arthritis ke loaʻa i ka rheumatoid vasculitis, aia kekahi poʻe i kahi pilikia kiʻekiʻe iki. E nānā kākou iā lākou:

• ʻO nā kānaka me ka rumatika rheumatoid koʻikoʻi (RA koʻikoʻi) .
• ʻO ka poʻe i loaʻa i ka ʻāʻī ma nā hono he nui o ke kino (Polyarthritis).
• ʻO ka poʻe i loaʻa i ka rheumatoid arthritis no ka manawa lōʻihi, ʻo ia hoʻi he 10 mau makahiki a ʻoi aʻe paha .
• ʻO nā kānaka me ke ʻano i kapa ʻia ʻo Felty syndrome. He pilikia kēia o ka rheumatoid arthritis. Hōʻike ʻia ia e ka spleen i hoʻonui ʻia a me ka helu haʻahaʻa o nā cell koko keʻokeʻo.
• ʻO nā kānaka me nā nodules rheumatoid. He mau puʻupuʻu kēia e hana ʻia ma lalo o ka ʻili kokoke i nā hono i ka rheumatoid arthritis.
• ʻO ka poʻe e puhipaka ana a hoʻohana paha i nā huahana paka ʻē aʻe. He mea pilikia kēia no nā maʻi he nui.

He aha nā pilikia e hiki ai i kēia ke hana?

ʻO kēia maʻi, ʻo ia hoʻi ka rheumatoid vasculitis , hiki ke alakaʻi i nā pilikia koʻikoʻi inā ʻaʻole i ʻike pono ʻia a mālama ʻia. He mea kākaʻikahi loa kēia, akā he mea nui e makaʻala iā lākou.

• ʻO ka make ʻana o nā ʻiʻo ʻili a puni nā kīʻaha koko i hoʻopilikia ʻia (necrosis).
• Nā hōʻeha puʻuwai.
• Nā hahau.

Pehea ʻoe e ʻike ai i kēia?

E ʻike ke kauka i ka vasculitis rheumatoid ma ka hana ʻana i kahi hoʻokolokolo kino a me kekahi mau hoʻokolohua. E nīnau ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona, ​​​​e like me ka wā i ʻike mua ai ʻoe iā lākou. Pono nō hoʻi ʻoe e haʻi i kāu kauka i ka lōʻihi o kou loaʻa ʻana i ka rheumatoid arthritis a me kāu mea e hana nei e mālama ai. Hiki i kāu kauka ke hana i kekahi mau hoʻokolohua e ʻike i ke kūlana, e like me:

• Nā hoʻāʻo koko.
• Nā kukuna X.
• Nā scan CT (nā scan Tomography i hoʻopili ʻia)
• Nā hoʻokolohua MRI (Magnetic Resonance Imaging).
• Angiograms - Nānā kēia i ke kūlana o nā kīʻaha koko.
• Electromyography (EMG) - Ke ana kēia i ka hana o nā ʻiʻo a me nā aʻalolo.
• Biopsies - I kekahi manawa lawe ʻia kahi ʻāpana liʻiliʻi o nā ʻiʻo i hoʻopilikia ʻia a hoʻāʻo ʻia.

Pono paha ʻoe e ʻike i kahi rheumatologist, he kauka i loea i ka mālama ʻana i nā maʻi mumū.

Pehea e mālama ʻia ai?

E ʻōlelo aku kāu kauka i nā lāʻau lapaʻau e kāohi i kāu mau hōʻailona. E kōkua ʻo ia iā ʻoe e ʻimi i nā lāʻau lapaʻau e pale aku i ka hōʻino ʻana i kou mau kīʻaha koko a me nā ʻōpū o loko. I nā hihia he nui, ʻo ka kāohi ʻana i kāu mau hōʻailona rheumatoid arthritis e kōkua pū i ka mālama ʻana i kāu rheumatoid vasculitis. E kamaʻilio me kāu kauka e pili ana i nā lāʻau lapaʻau āu e lawe nei no kāu rheumatoid arthritis a inā pono ʻoe e hoʻololi iā lākou. Inā makemake ʻoe i kahi lāʻau lapaʻau kūikawā no kāu rheumatoid vasculitis, hiki i kāu kauka ke ʻōlelo aku i nā lāʻau lapaʻau e like me:

• Corticosteroids - He mau lāʻau lapaʻau ikaika kēia e hōʻemi ana i ka mumū.
• Nā lāʻau pale kino a i ʻole nā ​​​​​​lāʻau biologics - Hoʻomalu kēia i ka hana o ka ʻōnaehana pale kino.
• Nā mea hoʻopaʻa ACE - ʻO kēia kekahi ʻano lāʻau lapaʻau i hāʻawi ʻia e kāohi i ke koko a kōkua i nā kīʻaha koko.

ʻO ka haʻalele ʻana i ka puhipaka (a me ka hoʻohana ʻana i nā huahana paka ʻē aʻe) hiki ke hōʻemi i ke koʻikoʻi o ka vasculitis rheumatoid. Hiki paha iā ia ke kōkua i ka pale ʻana i ke kūlana mai ka ulu ʻana ma kahi mua. E kamaʻilio me kāu kauka e pili ana i nā ala e haʻalele ai i ka puhipaka. Hiki iā ia ke kōkua iā ʻoe e hana pēlā me ka palekana a me ka pono.

Hiki ke pale ʻia kēia?

ʻO kaʻoiaʻiʻo, ʻaʻole hiki ke pale ʻia ka vasculitis rheumatoid. ʻO kēia no ka mea ʻo ke kūlana e hoʻoulu ai i ka wā mua, ʻo ia hoʻi ka rheumatoid arthritis (RA), ʻaʻole hiki ke pale ʻia. ʻAʻohe ala e ʻike pono ai i ka mea e loaʻa ai a i ka wā hea. Eia nō naʻe, inā loaʻa iā ʻoe ka rheumatoid arthritis, hiki i ka mālama pono ʻana ke hōʻemi i kou pilikia o ka loaʻa ʻana o ka vasculitis. Inā ʻoe e puhipaka, hiki i ka haʻalele ʻana ke hōʻemi i kou pilikia o ka rheumatoid vasculitis.

He aha kāu e manaʻo ai i ka wā e noho ai me kēia maʻi?

Loaʻa iā ʻoe kēia maʻi i kapa ʻia ʻo rheumatoid vasculitis.Pono ʻoe e manaʻo e loaʻa ka mālama lōʻihi, a i ʻole paha no ke ola holoʻokoʻa. ʻOiai inā ʻaʻole ʻoe i loaʻa nā hōʻailona koʻikoʻi, pono ʻoe e ʻike pinepine i kāu kauka e nānā i nā loli i loko o kou mau kīʻaha koko. E nīnau i kāu kauka i ka pinepine o kou ʻike ʻana i kāu kauka a me nā hoʻokolohua āu e pono ai.

Pehea ʻoe e mālama ai iā ʻoe iho?

E mālama i kāu mau hōʻailona. E hoʻomaopopo i nā loli āu e ʻike ai. E hahai i ka hoʻolālā lapaʻau āu a me kāu kauka i hoʻomohala ai. Mai hoʻokaʻulua i ka ʻike ʻana i kāu kauka inā manaʻo ʻoe ʻaʻole e holo pono ana kahi lāʻau (a ʻaʻole paha e like me ka wā ma mua).

Āhea wau e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe nā hōʻailona hou, a inā paha e ʻoi aku ka ʻino o kāu mau hōʻailona, ​​e ʻike koke i kāu kauka. E haʻi aku kāu kauka iā ʻoe i ka pinepine o kou pono ʻana i nā nānā maʻamau, nā hoʻāʻo, a i ʻole nā ​​​​​​hoʻāʻo hou.

He aha nā nīnau āu e nīnau ai i kāu kauka?

He mea kōkua paha ka nīnau ʻana i kāu kauka i nā nīnau e like me kēia:

• ʻO wai nā kīʻaha koko i loko o koʻu kino i hoʻopilikia ʻia?
• He aha nā hoʻokolohua e pono ai iaʻu e hana?
• He aha ke ʻano o ka lāʻau lapaʻau e pono ai iaʻu?
• Pono anei e hoʻololi ʻia kaʻu lāʻau lapaʻau no ka rumatika?

ʻO ka mea hope loa, eia kekahi mau leka koʻikoʻi no ʻoukou.

He mea paʻakikī paha ke ʻike, ma waho aʻe o ka ʻeha i kou mau hono, loaʻa iā ʻoe ka mumū i loko o kou mau kīʻaha koko, he ʻano ia āu i mālama ai no nā makahiki. He mea maopopo ia. Akā , mai hopohopo. E kōkua kāu kauka iā ʻoe e hoʻomohala i kahi hoʻolālā lapaʻau no kou rheumatoid arthritis, me nā lāʻau lapaʻau hou āu e pono ai. E haʻi pū ʻo ia iā ʻoe i ka mea e makaʻala ai a pehea e pale aku ai i nā pilikia. E hoʻolohe i kou kino a hilinaʻi i kou mau manaʻo. ʻO ke ala maikaʻi loa e pale aku ai i nā pilikia, ʻo ia ke ʻike i kāu kauka i ka manawa kūpono. Mai makaʻu e kamaʻilio me kāu kauka e pili ana i kekahi mau hōʻailona hou a loli paha āu e ʻike nei. E hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi.