Ua ʻike anei ʻoe i kekahi manawa he ʻano ʻokoʻa iki ka hana a kāu keiki ma mua o nā keiki ʻē aʻe? Malia paha he kānalua iki ʻo ia e hana i mau hoaaloha hou, a i ʻole he pilikia iki paha kona e hoʻomaopopo i nā ʻano helehelena o haʻi. A i ʻole kamaʻilio paha ʻo ia e pili ana i ka mea pāʻani like a i ʻole ke kumuhana like (e like me nā dinosaur, nā kaʻaahi, nā pāʻani kamepiula) me ka hoihoi nui a me ka hoʻomau ʻole. Ma ke ʻano he makua, he mea maʻamau iā ʻoe ke manaʻo iki i ka makaʻu, ka hopohopo, a me ka huikau ke ʻike ʻoe i kēia mau mea. "No ke aha i like ai kaʻu keiki me kēia?" Ke noʻonoʻo nei paha ʻoe. No laila, i kēia lā e kamaʻilio mākou e pili ana i kahi maʻi i kapa ʻia ʻo Asperger's Syndrome , hiki ke hōʻike i kēia mau hōʻailona, akā ʻaʻole ʻike ka nui o ka poʻe e pili ana.
He aha maoli ka maʻi ʻo Asperger?
I ka ʻōlelo maʻalahi, ʻo Asperger's Syndrome kahi maʻi i hāʻule ma lalo o ka māhele ākea o nā maʻi autism spectrum . Ma ke ʻano lapaʻau, kapa mākou iā ia ʻo Autism Spectrum Disorder (ASD) . ʻOiai ua manaʻo mua ʻia ʻo Asperger he maʻi ʻokoʻa, mai ka makahiki 2013 ua hoʻokaʻawale ʻia hoʻi ma lalo o ka malu nui o ASD.
Ua kapa ʻia ʻo ia he "spectrum" no kekahi kumu. E noʻonoʻo i ke ānuenue. Nui nā ʻano kala like ʻole, akā ʻaʻole hiki iā ʻoe ke ʻike pololei i kahi e pau ai kekahi kala a hoʻomaka kekahi, ʻeā? Pēlā nō hoʻi no ka ASD. ʻAʻole like nā kānaka a pau me kēia maʻi. Loaʻa i kekahi poʻe nā hōʻailona palupalu loa, aʻo kekahi poʻe he ʻoi aku ka nui.
Akā, ʻo ka mea kūikawā e pili ana iā Asperger's, he ʻano palupalu ia o ka ASD spectrum. ʻAʻole hōʻike pinepine kēia mau keiki i kekahi lohi i ka ʻōlelo a i ʻole nā mana noʻonoʻo. ʻO kaʻoiaʻiʻo, i kekahi manawa hiki ke kiʻekiʻe aʻe ko lākou pae akamai ma mua o ka awelika. ʻO ia ke kumu e ʻike ai kekahi poʻe i kēia keiki he keiki maʻamau e hana ana i kahi ʻano ʻokoʻa iki (keiki Neurotypical ).
He mea nui loa ka ʻike ʻana i kēia mau hōʻailona, no ka mea, a laila hiki iā mākou ke hāʻawi i ke keiki i ke kākoʻo a me ka lāʻau e pono ai lākou i ka wā hikiwawe loa.
He aha nā hōʻailona o ka maʻi ʻo Asperger?
ʻOkoʻa ke ʻano o ka maʻi Asperger i kēlā me kēia kanaka. Akā, aia kekahi mau ʻano maʻamau. Loaʻa i nā keiki me kēia maʻi nā hiki kūikawā i kekahi mau mea, a ke kū nei hoʻi lākou i nā pilikia i nā mea ʻē aʻe. E nānā kākou i nā mea ʻelua.
| Nā Hiki Kūikawā a me nā Ikaika (Nā Waiwai Kūpono) | Nā Pilikia a me nā Pilikia e Hiki Mai Ana |
|---|---|
| ʻO ka hiki kupaianaha ke kālele i hoʻokahi mea a me ke ahonui. | ʻO ka hypersensitivity i ka mālamalama, nā leo nui, kekahi mau ʻono a me nā ʻala. |
| Loaʻa nā mākau maikaʻi loa i ka ʻike ʻana i nā ʻano hoʻohālike like ʻole. | Ka paʻakikī e hoʻomaopopo a hahai i ke kahe o ke kamaʻilio ʻana. |
| Ka nānā pono ʻana i nā kikoʻī liʻiliʻi loa o kahi mea. | Ke paʻakikī i ka hoʻomaopopo ʻana i nā mākau kamaʻilio waha ʻole e like me nā ʻanā lima a me nā hiʻohiʻona helehelena. |
| Loaʻa ka ʻike hohonu a me ka hoʻomanaʻo e pili ana i kahi kumuhana hoihoi. | Ua kaupalena ʻia ka launa maka a i ʻole he ʻoluʻolu ʻole ke kamaʻilio ʻana. |
| Ma keʻano laulā, pololei a pololei hoʻi . | Nā lohi iki a i ʻole ka palaka i nā mākau neʻe. |
| Ka makemake e hana e like me kahi hana maʻamau a me nā lula i hoʻonohonoho ʻia . | ʻOi aku ka nui o ka ʻike ʻana i nā kūlana e like me ka hopohopo a me ke kaumaha. |
Nā makemake kūikawā a me nā ʻano maʻamau
Hiki i kēia mau keiki ke loaʻa kahi hoihoi ʻē i hoʻokahi kumuhana, e like me ka lewa, ka mōʻaukala, a i ʻole kahi pāʻani wikiō. E kamaʻilio lākou e pili ana i ia mea no nā hola. He ʻano maʻalahi hoʻi lākou i nā loli o ka hana maʻamau.ʻAʻole lākou makemake iki e hoʻololi i kā lākou mau hana maʻamau. Makemake lākou e hele i ke kula ma ke ʻano like i kēlā me kēia lā, ʻai i ka meaʻai like, a hana i ka manawa like. Manaʻo kēia hana maʻamau he palekana iā lākou. Hiki iā lākou ke huhū loa ke loli.
Pehea e hiki ai iaʻu ke loaʻa ka lāʻau lapaʻau a me ke kākoʻo no kēia?
Inā loaʻa iā ʻoe kahi kānalua iki loaʻa i kāu keiki kēia mau hōʻailona, ʻo ka mea maikaʻi loa e hana ai, ʻaʻole ia e hopohopo a kamaʻilio me kahi loea e pili ana i ia mea.
He mea nui ka ʻike ʻana i kēia kūlana i ka wā hikiwawe loa no ka wā e hiki mai ana o ke keiki. ʻOi aku ka maikaʻi o ka loaʻa ʻana o ke kākoʻo e pono ai i nā keiki i ka wā ʻōpiopio o ke ola e holomua ma ke kula a ma hope aku i ke ola ma ke ʻano he poʻe haumāna kūʻokoʻa.
Ke ʻike ʻoe i kāu kauka ʻohana (GP), e kuhikuhi ʻo ia iā ʻoe i kahi loea, e like me ke kauka pediatric, kauka psychiatrist, a i ʻole ke kauka noʻonoʻo lapaʻau .
No ka mea, ʻokoʻa kēlā me kēia keiki me Asperger, e ʻokoʻa ka hoʻolālā lapaʻau mai kekahi keiki a i kekahi. Hoʻopilikino ʻia ka lāʻau lapaʻau i nā pono o ke keiki. Hiki i kēia ke pili i hoʻokahi a ʻoi aku paha o kēia mau lāʻau lapaʻau:
- Ke aʻo ʻana i nā mākau pilikanaka: Ke aʻo ʻana i ke kamaʻilio ʻana me nā poʻe ʻē aʻe, ka loaʻa ʻana o nā hoaaloha, a me ka hana pū ʻana ma ke ʻano he hui.
- ʻO ka Cognitive Behavioral Therapy (CBT): Kōkua kēia iā ʻoe e aʻo pehea e hoʻokele ai i nā manaʻo e like me ka hopohopo a me ka huhū a me ke kū ʻana i nā kūlana paʻakikī.
- Ka hoʻonaʻauao makua: Alakaʻi ʻia nā mākua i ke ʻano e hoʻomaopopo maikaʻi ai a kōkua i kā lākou keiki.
- Ka lapaʻau ʻōlelo a me ka ʻōlelo: Kōkua i ka hoʻomaikaʻi ʻana i nā mea e like me ke kamaʻilio ʻelua ʻaoʻao.
- Lapaʻau Hana: Kōkua i ka hoʻokele ʻana i nā mea e like me ka hypersensitivity a maʻalahi i nā hana o kēlā me kēia lā.
- Lāʻau lapaʻau: I kekahi mau hihia, hiki i ke kauka ke kuhikuhi i ka lāʻau lapaʻau e kāohi i nā kūlana pili ʻē aʻe, e like me ka hopohopo a i ʻole ke kaumaha.
He ʻōlelo aʻoaʻo iki no nā mākua
Hiki i ka mālama ʻana i kahi keiki e like me kēia ke lilo i mea paʻakikī i kekahi manawa. Pono ia i ka nui o ke ahonui, ke aloha, ke aʻo ʻana, a me ka hoʻomaopopo ʻana. Eia kekahi mau mea e hiki ke kōkua iā ʻoe:
- Mai hūnā i kāu keiki mai ke kaiāulu a pale nui paha iā lākou. E ʻae iā lākou e kū i nā kūlana pili kaiaulu. E hana hewa lākou a ʻoluʻolu ʻole, akā e aʻo lākou mai ia mau mea.
- E mahalo i ko lākou noʻeau, nā makemake kūikawā, ka ʻakaʻaka, a me ka ikaika. E hoʻolauleʻa i nā ʻano e hoʻokaʻawale ai iā lākou mai nā poʻe ʻē aʻe a hoʻolilo iā lākou i mea kūikawā.
- Ma kahi o ka hoʻopaʻi koke ʻana i ka wā e kū mai ai kahi pilikia, e hoʻāʻo e hoʻomaha i ke kūlana. E hoʻāʻo e hoʻomaopopo i ke kumu o ka huhū o ke keiki.
- E hāʻawi i nā manaʻo maikaʻi i nā manawa a pau e hiki ai. Ke hana ʻo ia i kahi mea maikaʻi a i ʻole ke hana pololei ʻana, e haʻi iā ia. E hāʻawi kēia iā ia i ka ikaika nui e hana hou i kēlā mau mea.
- E hana pū me kāu keiki e hoʻomohala i nā mākau kamaʻilio. E aʻo iā lākou i nā mea e like me ke ʻano o ka ʻōlelo ʻana a pehea e hoʻomaopopo ai i nā mea ma o nā ʻōuli lima (kamaʻilio waha ʻole) ma ke ʻano maʻalahi a aloha.
ʻAʻole kēia huakaʻi āu e hele ai me ʻoe wale nō. Aia kekahi poʻe e hiki ke kōkua a kākoʻo iā ʻoe. Hiki iā ʻoe ke kamaʻilio me kāu kauka a ʻike e pili ana i nā hui kākoʻo makua a i ʻole nā kumuwaiwai ʻē aʻe i loaʻa ma Sri Lanka. ʻO ka ʻike ka ikaika nui loa.
Leka Lawe-Home
- He ʻano maʻalahi ka maʻi Asperger's Syndrome o ka autism spectrum disorder (ASD). ʻAʻole ia he kīnā noʻonoʻo a he maʻi noʻonoʻo paha.
- ʻO nā ʻano nui, ʻo ia nā pilikia i nā pilina pilikanaka a me ka hoihoi nui a hohonu hoʻi i kahi kumuhana kikoʻī.
- Inā kānalua ʻoe ua loaʻa i kāu keiki kēia mau hōʻailona, he mea nui e ʻimi i ke aʻo lapaʻau me ka hopohopo ʻole. ʻO ka ʻike mua ʻana e alakaʻi i kahi manawa kūpono e holomua ai kāu keiki.
- ʻO ka lāʻau lapaʻau he hana hui e hui pū ana i ke aʻo ʻana i nā mākau pilikanaka, ka cognitive behavioral therapy (CBT), a me ke kākoʻo makua.
- E mahalo i nā ʻokoʻa a me nā hiki kūikawā o kāu keiki. E kākoʻo iā lākou me ke ahonui, ke aloha, a me ka hoʻomaopopo ʻana.
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