Ke manaʻo pinepine nei ʻoe i ka luhi a me ka pau ʻole o ka ikaika ke noho ʻoe i kahi nohona a i ʻole ke kamaʻilio ʻana me nā poʻe ʻē aʻe? I kekahi manawa e noʻonoʻo paha ʻoe, "ʻO wau kēia" a i ʻole "He ʻokoʻa iki wau mai nā poʻe ʻē aʻe." Hiki paha iā ʻoe ke hoʻāhewa iā ʻoe iho no kēia mau ʻokoʻa a me ka pilikia āu e kū nei i ke alo ʻana i ke kaiāulu. Akā ma hope o kēia mau mea, aia paha kekahi kumu lapaʻau āu e noʻonoʻo ʻole ai, ʻo ia hoʻi, ka maʻi autism spectrum , kahi i ʻike ʻia i ka wā makua.
No ke aha i hiki ʻole ai iaʻu ke ʻike i kēia a hiki i koʻu wā makua?
Nui paha ka poʻe e noʻonoʻo nei, "He mea ʻike ʻia ka Autism i ka wā kamaliʻi, ʻeā? Pehea lā e hiki ai ke nalo a hiki i ka wā makua?" ʻOiaʻiʻo, ʻaʻole ka autism he ʻano me hoʻokahi hōʻailona o nā hōʻailona. Ua like ia me kahi spectrum. Ua ʻike ʻia kekahi poʻe i ka wā ʻōpiopio loa no ka mea ua koʻikoʻi loa nā hōʻailona a ua ʻike ʻia i ka wā ʻōpiopio. Akā no kekahi poʻe, he maalea loa kēia mau hōʻailona. Hana maikaʻi lākou i nā hana o kēlā me kēia lā, ke aʻo ʻana, a me ka hana. No laila, hiki ke kuhihewa ʻia kēia mau hōʻailona no ka mea he ʻāpana o ko lākou ʻano a i ʻole no kekahi ʻano ʻē aʻe, no ka laʻana, ka maʻi hyperactivity deficit attention (ADHD) a i ʻole ka hopohopo.
E noʻonoʻo i kahi makuahine i ʻike he autism kāna mau keiki ponoʻī, akā ʻaʻole naʻe i manaʻo he maʻi paha kona. No nā makahiki he nui, ua manaʻo ʻo ia he makaʻu kāna keiki i nā pilina pili kanaka, a i ʻole he mau 'quirks' wale nō nā hana e like me ke nahu ʻana i nā kui a me ka wili ʻana i ka lauoho. Akā, he mau hōʻailona paha kēia o ka autism.
ʻO ka loaʻa ʻana o kahi hōʻailona, ʻaʻole ia he manaʻo e kapa ʻia ʻoe. Ua like ia me ke kī i ka hoʻomaopopo ʻana iā ʻoe iho.
He aha ke ʻano o ka 'Autistic Burnout'?
ʻO kēia luhi nui a me ka paupauaho he pilikia nui ia e kū nei i nā poʻe he nui i ʻike ʻia me ka autism i ka wā makua. Ua kapa ʻia kēia ʻo 'autistic burnout' .
I ka ʻōlelo maʻalahi, eia ka mea e hana ʻia: Ma ke ʻano he kanaka me ka autism, ʻokoʻa iki kāu mau ʻano pilikanaka a me kāu ʻano. Akā mai kou wā ʻōpiopio, hoʻāʻo ʻoe e like me nā poʻe ʻē aʻe. Hoʻāʻo nui ʻoe e "uhi" i kou ʻano maoli, e kūpono, e ʻakaʻaka a kamaʻilio me nā mea a pau, a e komo pū i kā lākou mau ʻakaʻaka.
E noʻonoʻo e like me ke pāʻani ʻana i kahi ʻano āu e makemake ʻole ai i ka lā a pau. Ke noho ʻoe e like me kēia, e hūnā ana i kou ʻano maoli no nā makahiki, ʻike kou noʻonoʻo a me kou kino i kahi ʻeha hiki ʻole ke hoʻomanawanui. ʻO ia ka mea a mākou e kapa nei he ' autism burnout'.
ʻO ia ke kumu e pono ai ʻoe i nā manawa a pau:
- E luhi loa paha ʻoe a nele i ka ikaika .
- Hiki ke ʻike ʻia nā hōʻailona o ke kaumaha .
- Hiki ke hoʻonui ʻia ka hopohopo .
- I kekahi manawa, manaʻo paha ʻoe ua luhi ʻoe i ke ola.
He nui ka poʻe e ʻimi nei i ke kōkua lapaʻau ma muli o kēia 'burnout'. Ke ʻimi nei lākou i ke kōkua ma hope o kahi hanana, e like me ka wā e noʻonoʻo ai lākou, "No ke aha ʻaʻohe oʻu ikaika e like me nā mea ʻē aʻe?" a i ʻole ke aʻo ʻia lākou e kahi luna no ka hala ʻana o kahi hōʻailona pilikanaka ma ka hana.
He aha nā hōʻailona hiki ke nalo i ka autism makua?
Manaʻo paha ʻoe he ʻāpana kēia mau ʻano o kou ʻano. E nānā inā ua kamaʻāina kēia mau mea iā ʻoe.
| Hiʻona/Pilikia | He wehewehe maʻalahi |
|---|---|
| Ka paʻakikī i nā pilina pilikanaka | He paʻakikī ke hoʻomaopopo i nā manaʻo o haʻi, nā helehelena, a me nā ʻakaʻaka. He paʻakikī ke hoʻomaka a hoʻomau i kahi kamaʻilio. He mea luhi loa ke kamaʻilio liʻiliʻi. |
| Nā pilikia sensory | ʻAʻole hiki ke hoʻomanawanui i nā walaʻau nui, nā kukui ʻālohilohi, nā ʻala ikaika, a me kekahi mau ʻano lole. Hiki i kahi hale kūʻai nui a i ʻole kahi wahi piha kanaka ke lilo i mea hopohopo nui iā ʻoe. |
| Hana Hou (Stimming) | Nā mea āu e hana ai e hōʻoluʻolu iā ʻoe iho. Eia kekahi laʻana, ke nahu ʻana i kou mau kui, ka wili ʻana i kou lauoho, ka hana ʻana i nā walaʻau me kou mau manamana lima, ka lūlū ʻana i mua a i mua. |
| Ke kuko no nā mea kikoʻī | Kamaʻilio hohonu a me ke kuko e pili ana i kekahi kumuhana (e.g. nā kaʻaahi, ka mōʻaukala, nā kamepiula). Makemake ʻo ia e kamaʻilio wale no ia mea. |
| Ka hoʻokaʻulua ʻole e loli | Makemake nui au i kaʻu hana maʻamau i kēlā me kēia lā a me nā mea maʻa mau. Inā he loli koke, ʻoluʻolu ʻole wau a hopohopo hoʻi. |
No ke aha i hala ʻole ai nā wāhine i nā hōʻailona?
ʻAʻole wale i loko o ko kākou kaiāulu, akā ma ka honua holoʻokoʻa, ua emi ka ʻike ʻia ʻana o ka autism i nā wāhine a me nā kaikamāhine. ʻO ke kumu nui o kēia, ʻoi aku ka maikaʻi o nā wāhine i ka uhi ʻana/pepehi ʻana i ko lākou mau hōʻailona ma mua o nā kāne. Nānā lākou i ke ʻano o ka hana a ka poʻe i loko o ke kaiāulu a hoʻāʻo e hana like. No laila, ma waho ke ʻano maʻamau nei lākou. Akā ma loko ke ʻeha nei lākou. Ma muli o kēia, pono paha i ka wahine ke hakakā ikaika e loaʻa ai kahi hōʻailona kūpono.
Diagnostics a he aha ka mea e hana ai ma hope?
Inā kānalua ʻoe he mau hōʻailona kēia iā ʻoe, ʻo ka mea maikaʻi loa e hana ai, ʻo ia ke kamaʻilio me kāu kauka hilinaʻi e pili ana i ia mea. Hiki iā ia ke kuhikuhi iā ʻoe i kahi kākāʻōlelo olakino noʻonoʻo, e like me ke kauka psychiatrist a i ʻole psychologist.
Hoʻohana nā kauka i nā alakaʻi DSM-V (Diagnostic and Statistical Manual of Mental Disorders, 5th Edition) a ka American Psychiatric Association e ʻike ai i ka maʻi autism spectrum (ASD). Pili kēia i kahi kūkākūkā piha ʻana o kāu mau hōʻailona, nā ʻano hana, a me nā ʻike kamaliʻi.
Mai makaʻu ma hope o ka loaʻa ʻana o kahi hōʻailona. ʻAʻole ia ka hopena o kou ola; he hoʻomaka hou ia.
1. E hoʻomaopopo iā ʻoe iho: E loaʻa iā ʻoe kahi pane i ka nīnau, "No ke aha lā wau i like ai me kēia no ka manawa lōʻihi?" E nalowale kou huhū a me kou hoʻonāukiuki iā ʻoe iho, a e ʻike ʻoe i ke aloha a me ka hoʻomaopopo ʻana iā ʻoe iho.
2. Kōkua kūpono: Aia kekahi mau mea maʻalahi hiki iā ʻoe ke hana e kōkua i kou mau manaʻo. No ka laʻana, ka hoʻohana ʻana i nā headphone hoʻopau walaʻau i ka wā e hele ai i nā wahi piha kanaka. Ke komo ʻana i nā aniani maka e pale iā ʻoe iho mai ka mālamalama ʻālohilohi.
3. E ʻike i nā ikaika: Hiki i ka poʻe me ka autism ke hoʻohana i ko lākou nānā nui a me ka hoihoi i nā mea kikoʻī ma ke ʻano he ikaika.
4. Ke ʻimi nei i ke kaiāulu: I kēia mau lā, ma o ka pūnaewele, hiki iā ʻoe ke loaʻa i nā poʻe ʻē aʻe i loaʻa nā ʻike like me ʻoe. ʻO ke kamaʻilio ʻana me lākou e hoʻēmi ai i kou manaʻo mehameha.
ʻO ka mea nui loa, ʻo ia ke ʻae iā ʻoe iho no kou ʻano, mai hilahila i ka ʻokoʻa. A laila hiki iā ʻoe ke ola hauʻoli.
Leka Lawe-Home
- Hiki ke ʻike ʻia ka maʻi Autism Spectrum i ka wā makua, ʻoiai inā ʻaʻole i ʻike ʻia i ka wā kamaliʻi.
- ʻO ka luhi mau, ka hoʻowahāwahā i nā pilina pilikanaka, a me nā pilikia sensory (walaʻau, mālamalama) hiki ke lilo i mau hōʻailona o ka autism makua.
- ʻAʻole kēia he mau nāwaliwali i kou ʻano. He kūlana ia i hoʻokumu ʻia e nā loli i loko o ka ʻōnaehana nerve.
- ʻO ka loaʻa ʻana o kahi hōʻailona pololei e hiki ke kōkua iā ʻoe e hoʻomaopopo maikaʻi iā ʻoe iho, e maʻalahi ke ola, a hāʻawi iā ʻoe i ka maluhia o ka noʻonoʻo.
- Inā he kānalua kou e pili ana i kēia, mai makaʻu e kamaʻilio me kāu kauka . E hāʻawi ʻo ia iā ʻoe i ke alakaʻi kūpono.
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