Ke manaʻo nei ʻoe i kekahi manawa ʻaʻohe ou ikaika, a luhi loa ʻoe i kou ala ʻana i ke kakahiaka, a ʻaʻole ʻoe makemake e hana i kekahi mea no ka lā? I nā manawa e like me kēia, nui ka poʻe o mākou e noʻonoʻo nei, "Ke ʻeha nei au i ke kaumaha?" He ʻoiaʻiʻo hiki ke loaʻa kēia mau hōʻailona i kahi kūlana i kapa ʻia ʻo ke kaumaha. Akā, ʻaʻole paha ke kaumaha ponoʻī ke kumu. Malia paha he ʻano ʻokoʻa ke kumu āu e noʻonoʻo ʻole ai, akā he mau hōʻailona like loa me ke kaumaha. I kēia lā, e kamaʻilio mākou e pili ana i ʻelua mau ʻano like ʻole e maʻalahi ke huikau. ʻO ia ka Chronic Fatigue Syndrome a me ke kaumaha.
He aha ka maʻi luhi mau loa (ME/CFS)?
I ka ʻōlelo maʻalahi, ʻo ka maʻi luhi mau loa (ME/CFS) kahi kūlana e loaʻa ai iā ʻoe ka luhi nui a ʻano ʻē me ke kumu ʻole. ʻAʻole ia e like me ka luhi maʻamau. E noʻonoʻo, inā hiamoe maikaʻi ʻoe i ka pō a pau, ala ʻoe me ka luhi nui aʻe i ke kakahiaka. ʻOiai ka hana ʻana i nā hana maʻalahi, e like me ka hele ʻana i ka hale kūʻai a i ʻole ka hoʻomaʻemaʻe ʻana i ka hale, hiki ke waiho iā ʻoe me ka luhi i ka lā a pau.
Hiki i kēia maʻi ke koʻikoʻi loa a hiki i kekahi poʻe ke lilo i mea nāwaliwali loa a hiki ʻole iā lākou ke ala aʻe mai kahi moe, holoi iā lākou iho, a kuke paha i ka meaʻai. Ua like ia me ke kelepona i hoʻopiha piha ʻia akā pau ka pila ma mua o kou hiki ke kāhea aku.
Ma waho aʻe o ka luhi, hiki iā ME / CFS ke loaʻa nā hōʻailona ʻē aʻe he nui:
- ʻEha kino: ʻEha nā ʻiʻo a me nā hono, a me ke poʻo pinepine.
- Nā pilikia hoʻomanaʻo a me ka nānā ʻana: Manaʻo e like me ka noe o kou lolo, poina i nā mea, a ʻaʻole hiki ke nānā aku i kekahi mea.
- Nā pilikia hiamoe: Paʻakikī i ka hiamoe ʻana a i ʻole ke ala ʻana i ka wā hiamoe.
- ʻO nā hōʻailona ʻē aʻe: ka poniuniu, ka pehu ʻana a me ka palupalu o nā lymph node ma ka ʻāʻī a i ʻole nā armpits, ka ʻeha pinepine o ka ʻāʻī, ka ʻeha o ka ʻōpū, ka ʻike pohihihi, ka ʻike i ka mālamalama a i ʻole ke kani, ka puʻuwai puʻuwai kūpono ʻole, a me ka paʻakikī o ka hanu ʻana.
ʻOiai ʻaʻole i loaʻa ke kumu kikoʻī, ua manaʻoʻiʻo ʻia kekahi mau maʻi viral (e laʻa me ka maʻi Epstein-Barr), nā hemahema hormonal, ka hana nui o ka ʻōnaehana pale, a me nā mana genetic e kōkua paha i ia.
No laila he aha ke kaumaha?
He maʻi noʻonoʻo koʻikoʻi ke kaumaha e ʻoi aku ana ma mua o ka manaʻo wale nō o ke kaumaha. He manaʻo lōʻihi ia o ke kaumaha, ka ʻole, a me ka manaʻolana ʻole. Hiki iā ia ke loaʻa ka hopena nui i kou noʻonoʻo ʻana, kou manaʻo, a me kou ʻano.
I ka wā kaumaha, ʻo nā mea leʻaleʻa ma mua, e like me ke kamaʻilio ʻana me kahi hoaaloha, ka nānā ʻana i kahi kiʻiʻoniʻoni, a i ʻole ke komo ʻana i kahi leʻaleʻa, lilo i mea ʻole a luuluu. Hiki i kekahi poʻe ke manaʻo hewa iā lākou iho a manaʻo he mea ʻole. I nā hihia ʻino loa, hiki iā lākou ke luuluu i ke ola a loaʻa pū nā manaʻo e pepehi iā lākou iho.
ʻOiai he maʻi noʻonoʻo ke kaumaha, hoʻoulu pū ia i nā hōʻailona kino.
- Luhi a me nā pilikia hiamoe: Nā mea e like me ka hiki ʻole ke hiamoe, hiamoe nui, a i ʻole ke ala ʻana i kakahiaka nui.
- Nā loli o ka makemake: Ka nalowale o ka makemake a i ʻole ka ʻai nui ʻana. Hiki i kēia ke alakaʻi i ka pohō kaumaha a i ʻole ka piʻi ʻana o ke kaumaha.
- ʻEha kino: ʻeha kua, ʻeha poʻo e hele mai me ke kumu ʻole.
- Nā hōʻailona ʻē aʻe: Uē pinepine, hoʻomaha ʻole, lohi o ka ʻōlelo a me ka neʻe ʻana, ʻeha o ka ʻōpū, a pēlā aku.
ʻAʻohe kumu i ʻike ʻia no ke kaumaha. Hiki ke hana ʻia e nā loli kino i loko o ka lolo, nā kaulike ʻole o nā neurotransmitters e kaohi ana i ke ʻano, nā loli i nā pae hormone (e.g., postpartum, menopause), nā pilikia thyroid, a me ka predisposition genetic. Hiki ke hoʻoulu ʻia ke kaumaha e nā ʻike ola traumatic, e like me ka make ʻana o kahi mea aloha, ka nalowale ʻana o kahi hana, a i ʻole kahi maʻi koʻikoʻi.
He aha nā ʻano like a me nā ʻokoʻa ma waena o kēia mau maʻi ʻelua?
Hiki paha iā ʻoe ke ʻike i kēia manawa he nui nā hiʻohiʻona maʻamau o kēia mau maʻi ʻelua. ʻO ia ke kumu he maʻalahi loa ka huikau ʻana i nā mea ʻelua. E nānā kākou i nā ʻokoʻa nui ma waena o nā mea ʻelua. E nānā i kēia papa.
| Hiʻohiʻona hoʻokaʻawale | ʻO ka maʻi luhi mau loa (ME/CFS) | Kaumaha |
|---|---|---|
| Ka hopena o ka hana kino | Hoʻonui nui ʻia ka luhi a me nā hōʻailona ʻē aʻe ma hope o kahi hoʻoikaika kino liʻiliʻi. | Hoʻomaikaʻi pinepine nā hōʻailona a me ke ʻano ma hope o ka hoʻoikaika kino. |
| Nā hōʻailona nui | He mea maʻamau ka ʻeha pinepine o ka ʻāʻī, nā ʻāʻī pehu a ʻeha, ka ʻeha o nā ʻiʻo a me nā hono. | ʻO ke kaumaha nui, ka hoka, ka hewa, a me ka hoʻowahāwahā i nā mea āu i makemake ai. |
| ʻAno o ka ʻeha | ʻOi aku ka maʻamau o ka ʻeha kino, ʻoiai ka ʻeha o nā ʻiʻo a me nā hono, ma mua o ke kaumaha. | Hiki ke loaʻa ka ʻeha e like me ke poʻo hina a me ke kua i wehewehe ʻole ʻia, akā, ʻaʻole i ʻike nui ʻia e like me ME/CFS. |
| Pehea e ʻike ai ka mea maʻi | Ua manaʻo pinepine ʻia kēia he maʻi kino. | Ua manaʻo pinepine ʻia kēia he maʻi noʻonoʻo. |
ʻO ka mea nui, hiki ke hoʻonui ʻia ka ME/CFS e ka hoʻoikaika kino, akā hiki ke hoʻomaha ʻia ke kaumaha e ka hoʻoikaika kino. He mea nui loa kēia i ka hoʻokaʻawale ʻana ma waena o nā kūlana ʻelua.
Pehea e ʻike pololei ai ke kauka i kēia?
Inā loaʻa iā ʻoe kēia mau hōʻailona, ʻo ka mea maikaʻi loa e hana ai, ʻo ia ke ʻike i ke kauka. E nānā ke kauka iā ʻoe a hoʻoholo pono i kahi o kēia mau kūlana ʻelua āu e loaʻa ai.
1. Ke kamaʻilio ʻana me ʻoe: ʻO ka mea mua, e kamaʻilio pono ke kauka me ʻoe a nīnau iā ʻoe i nā mea āpau e pili ana i kāu mau hōʻailona, me ka lā i hoʻomaka ai lākou, ka wā e hoʻonui ai a emi ai paha, a inā paha ua loaʻa i kekahi o kou ʻohana nā maʻi like.
2. Hoʻokolokolo kino: A laila e hana ʻia kahi hoʻokolokolo kino piha.
3. Nā pae hoʻohālikelike:
- No ME/CFS: Ma keʻano laulā, kānalua ʻia ʻo ME/CFS inā he luhi nui i wehewehe ʻole ʻia e mau ana no nā mahina ʻeono a ʻoi , ʻaʻole i hōʻoluʻolu ʻia e ka hoʻomaha, ua ʻoi aku ka ʻino e ka hana liʻiliʻi, a hele pū ʻia me nā hōʻailona e like me nā pilikia hoʻomanaʻo a i ʻole ka nānā ʻana a i ʻole ka poniuniu i ke kū ʻana.
- No ke kaumaha: Inā hoʻomau kekahi mau hōʻailona no ka liʻiliʻi he 2 mau pule, hiki ke ʻike ʻia he kaumaha.
4. Nā hoʻāʻo koko: Hana ʻia nā hoʻāʻo koko e hōʻoia ʻaʻohe pilikia olakino ʻē aʻe e hiki ke hoʻoulu i ka luhi (e.g. anemia, diabetes, maʻi thyroid).
5.Nā hoʻokolohua ʻē aʻe: Hiki ke kuhikuhi ʻia ʻoe i kahi loea no kahi noiʻi hiamoe e nānā i kāu mau ʻano hiamoe a i ʻole kahi loiloi olakino noʻonoʻo.
He aha ka mea e hana ai i ka wā pilikia?
Inā ʻoe a i ʻole kekahi āu i ʻike ai e loaʻa ana nā manaʻo pepehi kanaka a i ʻole ke loaʻa nei nā manaʻo pepehi kanaka, mai noho hoʻokahi. E haʻi koke aku i kahi āu e hilinaʻi nei. A i ʻole e hele i ka Emergency Treatment Unit (ETU) ma ka haukapila kokoke loa iā ʻoe. Mai makaʻu e kamaʻilio me kāu kauka e pili ana i kēia. Aia mau lākou ma laila e kōkua iā ʻoe.
Leka Lawe-Home
- ʻAʻole nā mea hoʻokalakupua wale nō ka maʻi luhi mau loa (ME/CFS) a me ke kaumaha. He mau kūlana koʻikoʻi maoli lākou e pono e mālama ʻia.
- ʻOiai ua like loa nā hōʻailona, mai ho'āʻo e nānā iā ʻoe iho ma muli o kāu mea i heluhelu ai ma ka pūnaewele a i ʻole e lohe ai mai nā kānaka. Hiki ke lilo i mea weliweli.
- ʻO ka ʻokoʻa nui ma waena o nā maʻi ʻelua pehea e pane ai ke kino i ka hana kino. I ka ME/CFS, ʻoi aku ka ʻino o ke kūlana, ʻoiai i loko o ke kaumaha hiki ke hoʻomaikaʻi.
- Inā ua lōʻihi kou ʻike ʻana i kēia mau hōʻailona, e ʻoluʻolu e kūkākūkā me ke kauka kūpono no ka ʻōlelo aʻo kūpono a me ka mālama ʻana. ʻO ka ʻike pololei ke kaʻina mua i ka hoʻōla ʻana.
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo