Loaʻa i kāu keiki liʻiliʻi kahi pilikia thyroid mai ka hānau ʻana mai? E kamaʻilio kākou e pili ana i ka Congenital Hypothyroidism!

ʻAʻole hiki ke wehewehe ʻia ka hauʻoli a me ke aloha āu e ʻike ai i ka wā e hānau mai ai kāu keiki liʻiliʻi i kēia ao, ʻeā? Manaʻolana nā mākua a pau e ʻike i kā lākou keiki e olakino a hauʻoli. Akā i kekahi manawa, hiki i nā keiki liʻiliʻi ke loaʻa nā pilikia olakino i manaʻo ʻole ʻia. ʻO kekahi ʻano maʻi, i ʻike ʻia i nā pēpē hānau hou, akā hiki ke hoʻomalu loa ʻia inā ʻike mua ʻia a mālama koke ʻia, ua kapa ʻia ʻo 'congenital hypothyroidism'. Kāhea mākou i kēia ʻano ma ke ʻano lapaʻau (Congenital Hypothyroidism) . ʻOiai hiki ke hopohopo ka lohe ʻana i kēia inoa, inā ʻike pono ʻia ʻoe e pili ana i ia mea, e ʻike ʻoe he mea ia e hiki ke mālama ʻia.

He aha kēia 'hypothyroidism hānau'?

I ka ʻōlelo maʻalahi, (Congenital Hypothyroidism) he ʻano hana ʻole o ke kelepa thyroid i ka wā hānau . ʻO ke kelepa thyroid he kelepa liʻiliʻi, ʻano pepeke e kū ana ma ke alo o ko kākou ʻāʻī. Hoʻopuka ia i kahi ʻano hormone he mea nui loa no ko kākou kino, ʻo ia hoʻi ka hormone thyroid. He mea nui kēia mau hormones no ka ulu ʻana o ka lolo o kahi keiki liʻiliʻi, ka ulu ʻana o ke kino, a me nā kaʻina hana metabolic.

No laila, inā ʻaʻole i ulu pono ka ʻōpū thyroid o kahi pēpē hānau hou, a inā ʻaʻole ia e hana pono, ʻaʻole hana ke kino i nā hormones thyroid lawa. ʻO ia ka mea a mākou e kapa nei (Congenital Hypothyroidism).

Inā ʻaʻole mālama ʻia kēia kūlana i ka manawa kūpono, hiki iā ia ke loaʻa ka hopena nui i ka ulu ʻana o ke keiki, ʻoiai ke kīnā noʻonoʻo . ʻO ka ʻoiaʻiʻo, (Congenital Hypothyroidism) ke kumu nui o ke kīnā noʻonoʻo hiki ke pale ʻia. ʻO ia ke kumu ma nā ʻāina he nui a puni ka honua, me Sri Lanka, hana ʻia kahi hoʻāʻo koko liʻiliʻi e nānā i ka hana thyroid o kahi pēpē i loko o kekahi mau lā o ka hānau ʻana. He mea kēia e hana mau ʻia.

Wahi a nā helu helu, hoʻopilikia kēia maʻi i hoʻokahi i loko o 3,000 a 4,000 mau pēpē hānau hou. Ua ʻōlelo ʻia hoʻi he ʻelua ka nui o ka loaʻa ʻana o nā kaikamahine iā ia ma mua o nā keikikāne.

Pono ka hapa nui o nā pēpē me ka hypothyroidism hānau ʻana e lawe i nā pila hormone thyroid no ke koena o ko lākou ola. Eia nō naʻe, loaʻa i kekahi mau pēpē ka hypothyroidism manawa pōkole, kahi e hoʻopau ai iā ia iho i loko o kekahi mau pule a i ʻole mau mahina. Me ka mālama kūpono, hiki i kēia mau keiki ke ola maʻamau a olakino.

He aha nā hōʻailona e hiki ai ke haʻi inā loaʻa i kahi keiki kēia maʻi?

ʻAʻole paha e ʻike koke ʻia he hypothyroidism hānau hou ko kahi pēpē hānau hou. ʻO ia ke kumu he mea nui ka hoʻāʻo nānā thyroid i ʻōlelo ʻia ma mua.

Eia nō naʻe, hiki ke ʻike ʻia kekahi mau hōʻailona maalea i loko o nā pule mua o ke ola. ʻO kēia mau mea:

Nā hōʻailona e hiki ke ʻike ʻia i nā pule mua:

• Ka paʻa ʻana o ka ʻōpū:He paʻakikī i ka pēpē ke hele i ka lua, a ʻaʻole paha e hele no kekahi mau lā.
• Ke kani haʻahaʻa o nā ʻiʻo (Hypotonia): Manaʻo ka kino o ke pēpē he nāwaliwali, make, a he palupalu nā lālā ke hoʻopā ʻia.
• Paʻakikī i ka inu waiū: Hoʻokaʻulua e inu i ka waiū, ʻaʻole hiki ke omo pono iā ia ʻoiai ke inu nei, a i ʻole e luaʻi i ka waiū ma hope o ka inu ʻana.
• ʻO ka jaundice mau loa: ʻO ka jaundice e kū koke ma hope o ka hānau ʻana e emi pinepine i loko o kekahi mau lā. Eia nō naʻe, i kēia hihia, hiki i ka jaundice ke hoʻomau no nā pule.
• Luhi: Me he mea lā e hiamoe mau ana ka pēpē, paʻakikī ke hoʻāla, a me he mea lā ʻaʻole makemake e pāʻani.
• Ka leo hāhā: Ke uē ka pēpē, aia kahi loli i ka leo, he leo hāhā.
• Hypothermia: Manaʻo anuanu ke kino o ke pēpē i nā manawa a pau.

E noʻonoʻo, inā ʻike ʻia kāu pēpē hānau hou e hiamoe mau ana i nā manawa a pau, palaualelo loa e hānai, a me he mea lā ua anu ke pā aku, he mea maikaʻi ke akahele iki i nā manawa e like me kēia.

Inā haʻalele ʻia me ka mālama ʻole ʻia, hiki i nā hōʻailona ke ulu aʻe i ka hala ʻana o ka manawa:

Inā ʻaʻole ʻike ʻia a mālama ʻia kēia mau hōʻailona mua, e ʻike hou ʻia aku paha nā hōʻailona hou aʻe i ka hala ʻana o ka manawa.

• Pehu: ʻIke ʻia ka ʻōpū he nui a pehu.
• Anemia: Hoʻemi ʻia ka nui o ke koko i loko o ke kino.
• Bradycardia: Hoʻolohi ka wikiwiki o ka puʻuwai .
• ʻOʻoleʻa ka lauoho: He ʻoʻoleʻa a maloʻo ka lauoho.
• ʻIli anu a maloʻo: Manaʻo anuanu ka ʻili i ka pā ʻana a manaʻo maloʻo.
• Goiter: He pehu ma ka ʻāʻī kahi i loaʻa ai ka ʻōpū thyroid.
• Hypotension: Ke koko haʻahaʻa .
• ʻAlelo i hoʻonui ʻia (Macroglossia): Lilo ke alelo i mea nui aʻe ma mua o ka maʻamau, i kekahi manawa e puka mai ana mai ka waha.
• Ka pehu ʻana a puni nā maka: Ke nānā aku nei ka ʻāpana a puni nā maka he pehu.

ʻAʻole pono ʻoe e hopohopo inā ʻike ʻoe i hoʻokahi a ʻelua paha o kēia mau hōʻailona, ​​​​​​no ka mea, hiki ke hana ʻia kekahi o kēia mau hōʻailona e nā kumu ʻē aʻe. Akā inā ʻike ʻoe i kahi mea e like me kēia, ʻoi aku ka maikaʻi o ka ʻike ʻana i ke kauka.

No ke aha e ulu ai kēia i kā mākou mau keiki?

ʻO ke kumu nui o ka hypothyroidism hānau ʻana he kīnā i ka ulu ʻana o ka thyroid gland (Thyroid Dysgenesis) . Aia kekahi mau mea e hiki ai ke hana i kēia:

ʻO nā kumu maʻamau:

• ʻO ka ʻōpū thyroid ectopic: Aia paha ka ʻōpū thyroid ma kahi ʻē aʻe ma ka ʻāʻī, ma lalo paha o ke alelo, ma mua o kona wahi maʻamau.
• ʻO ka agenesis thyroid: ʻAʻole paha e nalowale ke kelepa thyroid mai ka hānau ʻana.
• ʻO ka hypoplasia thyroid:ʻOiai ua hoʻokumu ʻia ke kelepa thyroid, he liʻiliʻi loa ia a ʻaʻole i ulu pono.

ʻO kēia mau kūlana ʻekolu nā kumu maʻamau o ka hypothyroidism congenital.

Nā kumu no ka ʻike ʻana i kahi emi iki:

Aia kekahi mau kumu ʻē aʻe ma waho aʻe o kēia, akā ʻaʻole lākou i maʻamau.

• Nā Hoʻololi Hoʻoilina: Hiki ke hana ʻia e kekahi mau loli i loko o nā genes e hoʻopilikia ai i ka hana ʻana o nā hormones thyroid. Hiki ke hoʻoilina ʻia kēia mau mea.
• Ka nele o ka iodine i ka makuahine i ka wā hāpai: He mea nui ka mineral iodine no ka hana ʻana o nā hormones thyroid. Inā ʻaʻole lawa ka iodine i ka makuahine i kāna meaʻai i ka wā hāpai, hiki iā ia ke hoʻopilikia i ka thyroid o ke pēpē.
• ʻO kekahi mau lāʻau lapaʻau i lawe ʻia e ka makuahine i ka wā hāpai: Inā hoʻohana ka makuahine i nā lāʻau lapaʻau no kekahi mau maʻi noʻonoʻo, e like me ka lithium, a i ʻole nā ​​​​lāʻau lapaʻau no ka hyperthyroidism, e like me nā lāʻau antithyroid, i ka wā hāpai, hiki iā lākou ke hoʻopilikia i ka hana ʻana o ka hormone thyroid o ka pēpē.
• ʻO ka makuahine e loaʻa ana i ka lāʻau lapaʻau no ke kanesa thyroid i ka wā hāpai: Inā loaʻa i ka makuahine ka lāʻau lapaʻau no ke kanesa thyroid (e like me ka iodine radioactive) i ka wā hāpai, hiki iā ia ke hoʻopilikia i ka pēpē.

He aha nā pilikia e hiki mai ana inā ʻaʻole mālama ʻia?

E like me kā mākou i kūkākūkā ai ma mua, inā ʻaʻole i mālama ʻia i ka wā mua, (Congenital Hypothyroidism) hiki ke alakaʻi i nā pilikia koʻikoʻi . ʻO nā mea nui o kēia mau mea:

• Nā kīnā noʻonoʻo: ʻOiai he mea nui nā hormones thyroid no ka ulu ʻana o ka lolo, hiki i ka hemahema o ka hormone ke alakaʻi i ka ulu ʻana o ka noʻonoʻo.
• Ka lohi o ka ulu ʻana: Ua lohi nā mea e like me ka piʻi ʻana o ke kiʻekiʻe a me ka ulu ʻana o ke kino.
• Ka hemahema o ka lohe: Hiki i kekahi mau keiki ke hiki i kahi o ka hiki ʻole ke lohe.
• Anemia
• Nā kūlana puʻuwai e like me ka hāʻule ʻana o ka puʻuwai
• Nā pilikia ʻike

ʻO ia ke kumu e ʻōlelo ai mākou he mea nui loa ka ʻike ʻana i kēia kūlana i ka wā mua a hoʻomaka i ka mālama ʻana i ka wā hikiwawe loa ma lalo o ke aʻo ʻana a ke kauka. ʻO ka hana ʻana pēlā e hiki ai ke pale aku i nā pilikia he nui.

Pehea e ʻike ai nā kauka i kēia maʻi?

Ma nā ʻāina he nui, me Sri Lanka, hāʻawi ʻia kēlā me kēia pēpē hānau hou i kahi hoʻāʻo thyroid. Pili kēia i ka lawe ʻana i kekahi mau kulu koko liʻiliʻi mai ke kuʻekuʻe wāwae o ka pēpē a me ka nānā ʻana i ʻelua pae hormone.

• TSH (Hōmona Hoʻoulu Thyroid): He hormone kēia i hoʻokuʻu ʻia e ka pituitary gland e hoʻoulu ai i ka thyroid gland e hana i nā hormones thyroid. Inā hana ʻole ka thyroid, piʻi pinepine nā pae TSH.
• T4 (Thyroxine): ʻO kēia ka hormone nui i hana ʻia e ka thyroid gland. Kōkua kēia i ka ulu ʻana o ka pēpē a me ka metabolism. I loko o (Congenital Hypothyroidism), haʻahaʻa kēia pae T4.

Inā ʻano ʻē nā hopena o kēia hoʻāʻo koko, ʻo ia hoʻi he kiʻekiʻe loa ka TSH a he haʻahaʻa loa ka T4, hiki i ke kauka ke hana i nā hoʻokolohua hou aʻe. No ka laʻana, hiki ke hana ʻia kahi scan thyroid a i ʻole ultrasound e ʻike inā aia ke kelepa thyroid i ke kūlana kūpono, pehea kona nui, a inā he mau loli i kona ʻano. ʻO kēia wale nō nā ala e hana ai i kahi hōʻailona paʻa.

He aha nā lāʻau lapaʻau no kēia?

ʻO ka lāʻau lapaʻau no ka hypothyroidism hānau ʻana, ʻo ia ke pani ʻana i ka hormone thyroid i nele i ke kino. ʻO ka lāʻau lapaʻau i hoʻohana pinepine ʻia ʻo levothyroxine . He hormone T4 synthetic kēia. Loaʻa ia ma ke ʻano he pila. No laila, i ka hāʻawi ʻana iā ia i kahi pēpē liʻiliʻi, pono ʻoe e kuʻi i ka pila a kāwili me ka waiū umauma, ka waiū waiū, a i ʻole ka wai. E haʻi pololei ke kauka endocrinologist o kāu keiki iā ʻoe pehea e hāʻawi ai. Hiki i kekahi mau waiū waiū soy ke hoʻopilikia i ka omo ʻana o nā hormones thyroid, no laila he manaʻo maikaʻi e kamaʻilio me kāu kauka e pili ana i nā mea like.

ʻO ka mea nui loa, ʻo ia ka hoʻomaka ʻana i kēia lāʻau lapaʻau i loko o ka mahina mua ma hope o ka hānau ʻana o ke pēpē. A laila wale nō e hiki ai iā mākou ke pale mau loa i ka hemahema o ka noʻonoʻo a mākou i kamaʻilio ai.

Ma hope o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e nānā mau ke kauka i nā pae hormone thyroid i loko o ke koko o kāu pēpē e hōʻoia i ka loaʻa ʻana o ka nui kūpono o ka lāʻau lapaʻau. Hana pinepine ʻia kēia mau hoʻāʻo koko no:

• I kēlā me kēia mahina a ʻelua paha mahina a hiki i ka piha ʻana o ke keiki i 6 mahina.
• I hoʻokahi manawa i kēlā me kēia ʻelua a ʻekolu paha mahina ma hope o ka piha ʻana o ke keiki i 6 mahina.

Pono ka hapa nui o ka poʻe me ka hypothyroidism hānau e lawe i kēia lāʻau lapaʻau no ke koena o ko lākou ola. Eia nō naʻe, e like me kaʻu i ʻōlelo ai ma mua, pono paha kekahi poʻe i ka lāʻau lapaʻau no kekahi manawa wale nō. E wehewehe kāu kauka iā ʻoe pehea ke kūlana o kāu keiki a pehea ka lōʻihi e pono ai lākou e lawe i ka lāʻau lapaʻau.

ʻEhia ka lōʻihi e hiki ai i kahi keiki me kēia maʻi ke ola?

He mea weliweli paha kēia, akā ua like ke ola o ke keiki me ka hypothyroidism hānau me ko kekahi me ka ʻole o ke ʻano. ʻO ka mea nui loa, ʻo ia ka hoʻomaka ʻana i ka lāʻau lapaʻau i ka wā hikiwawe loa. Inā ʻoe e hana i kēia, ʻaʻohe ou mea e makaʻu ai no ka wā e hiki mai ana.

Ke ulu aʻe kāu keiki, hiki iā ia ke hana i nā hana āna e makemake ai, hoʻomaka i kahi ʻohana inā makemake ʻo ia, a hana i nā mea āpau ma ke ʻano maʻamau. Ke pau kāna lawe ʻana i nā pila hormone thyroid i kēlā me kēia lā, e hiki iā ia ke ola i kahi ola maʻamau loa.

Aia kekahi ala e pale aku ai i kēia?

Ma muli o ke ʻano hoʻoilina nō hoʻi, ʻaʻole hiki ke pale ʻia ka hypothyroidism congenital. Akā inā hāpai ʻoe, e nīnau i kāu kauka pehea e hiki ai iā ʻoe ke hōʻemi i ka pilikia i kāu pēpē. Hiki iā ia ke hoʻāʻo i kāu mau pae iodine a ʻike inā pono ʻoe e hana i kekahi mau hoʻololi i kāu mau lāʻau lapaʻau.

I ka manawa hea ʻoe e pono ai e ʻike i ke kauka?

Inā loaʻa i kāu pēpē ka hypothyroidism hānau, e nānā mau kahi endocrinologist i kona pae hormone thyroid. Eia nō naʻe, inā manaʻo ʻoe e hoʻi mai ana nā hōʻailona o kāu pēpē ma hope o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e hōʻoia e hoʻomaopopo i kāu kauka. Pono paha e hoʻoponopono ʻia ka nui o ka lāʻau lapaʻau.

Nā nīnau koʻikoʻi e pono ai ʻoe e nīnau i kāu kauka

Ma ke ʻano he makua, nui paha nā nīnau ma kou manaʻo. He mea maʻamau ia. Hiki iā ʻoe ke nīnau i ke kauka e mālama nei i kāu keiki i nā nīnau e like me:

• Hiki iā ʻoe ke haʻi pololei mai iaʻu i ke kumu o kēia maʻi i loko o kaʻu pēpē?
• He kūlana manawa pōkole wale nō kēia a he kūlana mau loa paha?
• Pono anei ʻo ia e lawe i ka lāʻau lapaʻau no ke koena o kona ola?
• Pehea e hoʻoholo ai i ka nui pololei o ka lāʻau lapaʻau?
• Pehea e hāʻawi ai i kēia lāʻau lapaʻau i kaʻu keiki?
• He aha inā ʻaʻole hiki iā ʻoe ke hāʻawi i kahi mahele o ka lāʻau lapaʻau?
• ʻEhia pinepine e hana ʻia ai nā hoʻāʻo thyroid?

Mai makaʻu e nīnau i ke kauka i kāu mau nīnau.

ʻO ka mea hope loa aʻu e ʻōlelo ai, ʻo kēia (Leka Lawe-Home)

Ma ke ʻano he makua, he nui kou mau manaʻolana no kāu pēpē hānau hou i kona wā e hānau ʻia ai i ke ao nei. No laila, he mea maʻamau ka makaʻu a me ke kānalua ke lohe ʻoe he maʻi olakino ko kāu pēpē. "Pehea lā e pili ai i kaʻu pēpē inā wau e haʻi aku iā ia (Congenital Hypothyroidism)?" "Pehea lā kona wā e hiki mai ana?" He nui paha kāu mau nīnau ma kou manaʻo.

Mai makaʻu. Aia kāu kauka ma laila e pane i kēia mau nīnau a pau a kōkua iā ʻoe. E noi iā ia no nā ʻike a me nā kumuwaiwai āpau āu e pono ai. ʻO ka nūhou maikaʻi, inā ʻoe e hoʻomaka i ka lāʻau lapaʻau i ka manawa kūpono a lawe i ka lāʻau lapaʻau kūpono, hiki i kāu keiki ke ola i kahi ola hauʻoli a olakino e like me nā mea ʻē aʻe. No laila e noho ikaika a e hahai i ka ʻōlelo aʻo a kāu kauka. ʻO ia ka mea maikaʻi loa hiki iā ʻoe ke hana no kāu keiki.

ʻO ka hypothyroidism hānau ʻole, ka ʻōpū thyroid, nā maʻi kamaliʻi, nā hormones thyroid, ka ulu ʻana o ke keiki, Levothyroxine