Ua manaʻo paha ʻoe ua like nā puʻupaʻa ʻelua i loko o ko kākou kino me kahi ʻōnaehana kānana super? ʻO ia ka mea e hana ʻia. ʻO ka hana nui o nā puʻupaʻa, ʻo ia ke kānana i nā huahana ʻōpala i makemake ʻole ʻia i loko o ko kākou koko a hoʻokuʻu iā lākou mai ke kino ma ke ʻano he mimi. Akā e noʻonoʻo, pehea inā e hōʻino kekahi mea i kēia kānana waiwai nui? ʻO ia ka manawa e hoʻomaka ai nā pilikia. I kēia lā, e kamaʻilio mākou e pili ana i kahi kūlana i ʻike ʻole ʻia, akā he mea nui loa e hōʻino ana i nā kānana i loko o nā puʻupaʻa. ʻO ia ka FSGS.
I ka ʻōlelo maʻalahi, he aha ka FSGS?
ʻO Focal Segmental Glomerulosclerosis ka inoa piha no FSGS. ʻOiai paha he paʻakikī iki ke kani ʻana o ka inoa, he maʻalahi loa ka moʻolelo. E wehewehe kākou a e hoʻomaopopo.
Loaʻa i kēlā me kēia o ko kākou mau puʻupaʻa ma kahi o hoʻokahi miliona mau kānana liʻiliʻi e kōkua i ke kānana ʻana i ko kākou koko. Ma nā ʻōlelo lapaʻau, ua kapa ʻia kēia mau mea he glomeruli . E noʻonoʻo iā lākou e like me kahi kānana kī ma ka lumi kuke. Ke hele ke koko ma o kēia mau kānana, mālama lākou i nā mea maikaʻi e pono ai ke kino (nā meaʻai, nā minelala) i loko o ke koko, a kānana i nā huahana ʻōpala i makemake ʻole ʻia a me ka wai keu. ʻO ka mea i hoʻokaʻawale ʻia ʻo ia ka mea e puka mai ana ma ke ʻano he mimi.
I loko o FSGS, lilo kēia mau kānana liʻiliʻi (glomeruli) i ʻeha a paʻakikī paha. Ua kapa ʻia kēia he "sclerosis." Ke loaʻa kēia ʻeha, ʻaʻole hiki i nā kānana ke hana pono i kā lākou hana.
I kēia manawa, e nānā kākou i nā huaʻōlelo ʻē aʻe ma ka inoa:
- Focal: ʻO ke ʻano kēia, ʻaʻole e hoʻopilikia kēia pōʻino i nā kānana āpau i loko o ka puʻupaʻa, hoʻopilikia wale kekahi o lākou .
- ʻĀpana: ʻO ke ʻano kēia, ʻoiai i nā kānana i hōʻino ʻia, he hapa wale nō o ke kānana i hōʻino ʻia, ʻaʻole ka kānana holoʻokoʻa .
I ka ʻōlelo maʻalahi, ʻo ka FSGS kahi kūlana kahi e hōʻino ʻia ai kekahi o nā kānana i loko o nā puʻupaʻa, e hōʻino ai i kā lākou hana.
He aha nā ʻano nui o FSGS?
Hiki ke hoʻokaʻawale ʻia nā FSGS i ʻekolu ʻano nui. E nānā kākou i ke ʻano o lākou.
| ʻAno FSGS | Wehewehena |
|---|---|
| FSGS mua | ʻAʻohe kumu maopopo no kēia ʻano. Hiki mai kēia kūlana me ke kumu ʻole. |
| FSGS Lua | Hoʻokumu ʻia kēia ʻano e kekahi maʻi ʻē aʻe, maʻi, lāʻau lapaʻau, a i ʻole kekahi kumu waho ʻē aʻe. No ka laʻana, hiki ke hoʻokumu ʻia e nā mea e like me ka maʻi diabetes, ka momona, nā maʻi e like me ka HIV, kekahi mau lāʻau lapaʻau, a me ka hoʻohana ʻana i nā lāʻau lapaʻau. |
| FSGS Genetic (ʻOhana) | Hoʻokumu ʻia kēia ʻano e kahi kīnā genetic, ʻo ia hoʻi hiki ke hoʻoilina ʻia mai nā mākua a i nā keiki. |
He aha nā hōʻailona o kekahi me FSGS?
ʻO ka pilikia nui me FSGS, ʻaʻohe ona hōʻailona maopopo i nā pae mua . ʻIke pinepine ʻia ia i ka wā o kahi hoʻokolohua lapaʻau maʻamau a i ʻole i ka wā e hoʻāʻo ʻia ai no kekahi maʻi ʻē aʻe. Eia nō naʻe, aia kekahi mau hōʻailona maʻamau.
- ʻEdema: Ka pehu ʻana, ʻoiai ma nā wāwae, nā kuʻekuʻe wāwae, nā lima, a me ke alo. ʻO kēia ka hōʻailona mua a ka poʻe he nui e ʻike ai.
- Proteinuria: Ke hōʻino ʻia nā kānana o nā puʻupaʻa, kānana ʻia nā protein e pono ai ke kino a hoʻokuʻu ʻia i loko o ka mimi. Hiki i kēia ke hana i kou mimi e ʻike ʻia he huʻa (e like me ka wai kopa).
- Hoʻonui ʻia nā pae cholesterol koko.
- Ka emi ʻana o ka protein albumin i loko o ke koko.
- Ka piʻi koke ʻana o ke kaumaha: Ma muli kēia o ka paʻa ʻana o ka wai i loko o ke kino.
- Ke koko kiʻekiʻe (Hypertension).
Ke hui pū ʻia kekahi o kēia mau hōʻailona (ʻoiai ka pehu ʻana, ka protein i loko o ka mimi, a me ka haʻahaʻa o ka protein i loko o ke koko), kapa nā kauka i kēia ʻano he nephrotic syndrome .
Nā kūlana weliweli (nā pilikia) e hiki ke kū mai ma muli o kēia maʻi
Inā ʻaʻole mālama pono ʻia ka FSGS, hiki ke ulu mai nā pilikia koʻikoʻi i ka hala ʻana o ka manawa. ʻO ka pilikia koʻikoʻi a weliweli loa, ʻo ia ka hāʻule ʻana o nā puʻupaʻa . ʻO kēia ka manawa hiki ʻole i nā puʻupaʻa ke hana pono. He pilikia hoʻoweliweli kēia i ke ola.
Inā loaʻa iā ʻoe ka FSGS a ʻike ʻoe i nā hōʻailona ma lalo nei, pono ʻoe e hele koke i ka ʻoihana pilikia o ka haukapila (ETU) :
- Ke koko kiʻekiʻe hiki ʻole ke kāohi.
- Ka nalowale o ke koko (anemia).
- Ka luaʻi, ka luaʻi ʻana, a me ka nalowale o ka makemake e ʻai.
- Pehu nui o nā lima, nā wāwae, a me ka maka.
Pehea e ʻike ai ke kauka i ka FSGS?
Ma hope o ka hoʻolohe ʻana i kāu mau hōʻailona, e kuhikuhi ke kauka iā ʻoe no kekahi mau hoʻokolohua.
- Nā hoʻāʻo koko: E nānā i nā pae o ka protein, nā huahana ʻōpala, a me nā momona i loko o ke koko.
- Nā hoʻāʻo mimi: E ana i ka nui o ka protein a me ke koko i loko o ka mimi.
- Hoʻāʻo hana puʻupaʻa (Glomerular Filtration Rate - GFR): Ana kēia i ka maikaʻi o ka hana ʻana o kou mau puʻupaʻa.
Akā ʻoiai hiki i kēia mau hoʻokolohua āpau ke hōʻike i ke alo o FSGS, aia kekahi hoʻokolohua e pono e hana ʻia e hōʻoia i ka maʻi 100% : he biopsy kidney .
He aha ka biopsy puʻupaʻa?
ʻO kēia ke kumu o ka lawe ʻana i kahi ʻāpana liʻiliʻi loa o ka ʻiʻo mai kou puʻupaʻa me ka hoʻohana ʻana i kahi nila liʻiliʻi. A laila e nānā ʻia ka ʻiʻo ma lalo o kahi microscope e ʻike inā he ʻeha ma nā kānana o ka puʻupaʻa. Ua manaʻo ʻia kēia ke kūlana gula no ka ʻike ʻana i ka FSGS.
He aha nā lāʻau lapaʻau no FSGS?
ʻOkoʻa ka mālama ʻana no ka FSGS mai kēlā me kēia mea maʻi a i kēia mea maʻi. Aia ia i nā mea e like me ke ʻano o ka FSGS āu i loaʻa ai, kou mau makahiki, a me nā kūlana olakino ʻē aʻe āu i loaʻa ai. ʻO nā pahuhopu nui o ka mālama ʻana, ʻo ia ke kāohi i nā hōʻailona, mālama i kahi ola maikaʻi, a hoʻēmi i ka hōʻino ʻana i nā puʻupaʻa a pale i ka hāʻule ʻana o nā puʻupaʻa.
ʻO ka mea nui, ʻo ka hōʻino ʻana i nā puʻupaʻa i hana ʻia e FSGS he mea hiki ʻole ke hoʻihoʻi ʻia. ʻO ke ʻano kēia, ʻaʻole ia he maʻi hiki ke hoʻōla piha ʻia. Eia nō naʻe, hiki i ka lāʻau lapaʻau ke hoʻolohi i ka holomua o ka maʻi.
Hiki i ke kauka ke ʻōlelo i kēia mau lāʻau lapaʻau:
Nā ʻano lāʻau lapaʻau
- Nā lāʻau lapaʻau e kāohi ana i ke koko a hōʻemi i ka hoʻokuʻu ʻia ʻana o ka protein i loko o ka mimi. Nā laʻana: `(Angiotensin-converting enzyme inhibitors - ACE-Is)`, `(Angiotensin receptor blockers - ARBs)`.
- ʻO nā diuretics nā lāʻau lapaʻau e hōʻemi ana i ka paʻa ʻana o ka wai i loko o ke kino.
- ʻO nā lāʻau immunosuppressive nā lāʻau e kaohi ai i ka hana o ka ʻōnaehana pale.
- Nā steroid e like me `(Corticosteroids)`.
- I kekahi mau hihia, nā lāʻau lapaʻau kūikawā e like me `(Plasmapheresis)`.
Nā loli o ke ʻano o ka nohona
E like me nā lāʻau lapaʻau, he mea nui loa nā hoʻololi āu e hana ai i kou nohona.
- ʻAi: He mea nui loa ia e kaupalena i ka nui o ka paʻakai (sodium) a me ka protein i kāu ʻai. E kūkākūkā me kāu kauka a me kahi meaʻai meaʻai e pili ana i kēia.
- Hoʻoikaika Kino: E hana i nā hoʻoikaika kino i kēlā me kēia lā.
- E pale i ka puhipaka: Inā he mea puhipaka ʻoe, he mea nui ka haʻalele koke ʻana no ke olakino o nā puʻupaʻa.
He aha ka mea e hiki mai ana no kekahi e noho nei me FSGS?
He maʻi mau ka FSGS me ka ʻole o ka lāʻau lapaʻau. ʻOkoʻa ka wānana mai kēlā kanaka a kēia kanaka. Hiki i kekahi poʻe ke ola me ka maʻi i kāohi maikaʻi ʻia me ka lāʻau lapaʻau a ʻaʻohe pilikia no nā makahiki. No kekahi poʻe, hiki i ka maʻi ke ʻoi aku ka maʻi a alakaʻi i ka hāʻule ʻana o nā puʻupaʻa.
Inā hana ʻia kēlā, pono paha ʻoe i ka dialysis a i ʻole kahi hoʻoili puʻupaʻa e ola ai.
Akā, ʻoiai ke ʻano o ka hihia, me ka mālama pono ʻana, ka hahai ʻana i nā ʻōlelo a kāu kauka, a me ka mālama ʻana i kahi nohona olakino, hiki i ka hapa nui o ka poʻe me FSGS ke alakaʻi i nā ola hana a holomua. ʻO ka mea nui loa, ʻo ia ke noho ma luna o kou kūlana ma o ka loaʻa ʻana o nā nānā lapaʻau maʻamau.
Leka Lawe-Home
- He maʻi ka FSGS e hoʻoulu ai i ka ʻeha o nā kānana palupalu i loko o nā puʻupaʻa, ka mea e pale ai i nā puʻupaʻa mai ke kānana pono ʻana i ke koko.
- Inā pehu kou mau wāwae, lima, a i ʻole kou maka me ke kumu ʻole, a inā ʻike ʻoe i ka mimi huʻa, mai hoʻowahāwahā. E ʻike koke i kāu kauka.
- ʻOiai ʻaʻole hiki ke ho'ōla loa ʻia kēia maʻi, me ka mālama pono ʻana a me nā hoʻololi ʻana i ke ʻano o ka nohona, hiki ke kāohi ʻia ka maʻi a hiki ke hoʻēmi ʻia ka hōʻino ʻana i nā puʻupaʻa.
- He mea nui e hoʻohana pono i ka lāʻau lapaʻau i kauoha ʻia e ke kauka a e kaohi pono i kāu ʻai.
- ʻAʻole he mea e makaʻu ai ka FSGS, akā he kūlana ia e hopohopo ai. Me ka nānā pono ʻana o ke kauka, hiki iā ʻoe ke ola i kahi ola maikaʻi.
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo