Loaʻa iā ʻoe a i ʻole kekahi āu i ʻike ai ka Neuromyelitis Optica Spectrum Disorder (NMOSD)? Inā pēlā, ua haʻi aku paha kāu kauka iā ʻoe e pili ana i kahi lāʻau pale i kapa ʻia ʻo Inebilizumab (puana ʻia: ee-ne-bi-li-su-mab). Hiki ke hopohopo iki ka lohe ʻana i kahi inoa e like me ia. Akā, mai hopohopo. I kēia lā, e kamaʻilio mākou e pili ana i kēia lāʻau, kāna hana, a me nā mea āu e pono ai e makaʻala i ka wā e hoʻohana ai.
No laila, he aha kēia lāʻau i kapa ʻia ʻo Inebilizumab?
I ka ʻōlelo maʻalahi, ʻo `Inebilizumab` (inoa inoa: UPLIZNA) he protein kūikawā. I ka ʻepekema lapaʻau, kapa mākou i kēia he `monoclonal antibody`. ʻO kāna hana nui ka kaohi ʻana i ke ʻano maʻi `Neuromyelitis Optica Spectrum Disorder (NMOSD)`.
ʻO NMOSD kahi kūlana kahi e hoʻouka ai ka ʻōnaehana pale o ko mākou kino i kāna mau hunaola nerve ponoʻī, ʻoiai nā mea i loko o nā maka a me ke kaula kuamoʻo. No laila, ʻo ka hana a kēia lāʻau lapaʻau ʻInebilizumab ʻo ia ke kuhikuhi i kēlā hana ʻōnaehana pale hewa, hoʻōki iā ia, a hoʻēmi i ka pōʻino i hana ʻia e ka maʻi.
Hiki i kāu kauka ke kuhikuhi i kēia lāʻau lapaʻau no nā kūlana ʻē aʻe, no laila inā he mau hopohopo kāu, e ʻoluʻolu e nīnau i kāu kauka e pili ana i ia mea.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui loa ia e hoʻomaopopo i kāu kauka e pili ana i kou mōʻaukala olakino piha. Ma ke ʻano kūikawā, pono ʻoe e haʻi iā ia e pili ana i kēia mau mea.
| Nā mea e pono ai ʻoe e ʻike | No ke aha mai kēlā? (ʻAʻole maopopo) |
|---|---|
| Nā pilikia o ka ʻōnaehana pale: Inā he mau nāwaliwali ʻē aʻe kou. | Ma muli o ka hoʻololi ʻana o kēia lāʻau lapaʻau i ka hana o ka ʻōnaehana pale, he mea nui e makaʻala i nā pilikia e kū nei. |
| Nā maʻi o kēia manawa: Inā loaʻa iā ʻoe ke kuni, ke anu, ka ʻūhā, a i ʻole kahi maʻi viral e like me ka chickenpox a i ʻole herpes. | Hoʻemi kēia lāʻau lapaʻau i kou hiki ke hakakā i nā maʻi, no laila e ʻoi aku ka ʻino o kahi maʻi e kū nei. |
| Nā maʻi ʻaleka: Inā he maʻi ʻaleka kou i ka Inebilizumab a i ʻole nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, a i ʻole nā mea hoʻoluʻu. | He mea nui kēia e pale ai i kahi hopena alerika koʻikoʻi e hiki mai ana i ka wā e lawelawe ʻia ai ka lāʻau lapaʻau. |
| Hāpai keiki: Inā hāpai ʻoe, e hoʻāʻo ana e hāpai, a hānai waiū paha. | Hiki i kēia lāʻau lapaʻau ke hoʻopilikia i ka pēpē i loko o ka ʻōpū, no laila he mea nui loa ke kamaʻilio e pili ana i kēia. |
Pehea e hiki ai iaʻu ke hāʻawi iā ʻoe i kēia lāʻau lapaʻau?
ʻAʻole ʻo "Inebilizumab" he lāʻau lapaʻau e lawe ʻia ma ka home. He inikini ia i hāʻawi ʻia ma o kahi aʻa me ka saline (infusion intravenous) . Hāʻawi ʻia kēia lāʻau lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau ma lalo o ka nānā ʻana o nā limahana lapaʻau i aʻo ʻia.
Ma mua o ka mālama ʻana, hiki ke hāʻawi ʻia iā ʻoe nā lāʻau lapaʻau ʻē aʻe (no ka laʻana, nā lāʻau lapaʻau allergy) e hōʻemi i ka pilikia o nā hopena allergic i ka lāʻau.
Ma mua o kēlā me kēia kau lapaʻau, e hāʻawi ʻia ʻoe i kahi pepa ʻike kūikawā (`MedGuide`) e pili ana i kēia lāʻau lapaʻau. He mea nui e heluhelu a hoʻomaopopo pono iā ia i kēlā me kēia manawa.
He aha inā e piʻi aʻe ka nui o ka lāʻau?
Hāʻawi ʻia kēia ma kahi haukapila, no laila ua haʻahaʻa loa ka manawa e hiki ai kēia. Eia nō naʻe, inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau, e hoʻomaopopo koke i nā limahana lapaʻau. A i ʻole, e kelepona i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo . A i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
He aha inā e hala wau i ka lā e lawe ai i ka lāʻau lapaʻau?
Hāʻawi ʻia kēia lāʻau lapaʻau ma ke ʻano i hoʻonohonoho ʻia. No laila, he mea nui loa ka loaʻa ʻana o ka lāʻau lapaʻau i ka manawa kūpono. Inā no kekahi kumu ʻaʻole hiki iā ʻoe ke hele i kāu lā i hoʻonohonoho ʻia, e kelepona koke i kāu kauka a i ʻole ka haukapila a e hoʻomaopopo iā lākou, i hiki iā lākou ke hoʻonohonoho i kahi manawa no ka lā e hiki mai ana.
Nā mea āu e makaʻala nui ai i ka wā e lawe ana i ka lāʻau lapaʻau
E nānā pono kāu kauka iā ʻoe i kou wā e lawe ana i kēia lāʻau lapaʻau, a he mea nui iā ʻoe e makaʻala i kēia mau mea.
- Ka pilikia o ka maʻi: No ka mea, ua kāohi kēia lāʻau i kāu ʻōnaehana pale i kekahi ʻano, hiki iā ʻoe ke piʻi aʻe ka pilikia o ka maʻi . Inā loaʻa iā ʻoe kekahi mau hōʻailona o ka maʻi e like me ke kuni, ke anu, ka ʻāʻī ʻeha, ke kuni, nā hōʻailona anu, a i ʻole ka ʻeha i ka wā e mimi ai,E haʻi koke aku i kāu kauka. Mai hoʻōla ponoʻī. E hoʻāʻo e noho mamao aku mai ka poʻe maʻi.
- Nā hopena maʻi koʻikoʻi: Loaʻa paha i kekahi poʻe kahi hopena maʻi koʻikoʻi i kēia lāʻau lapaʻau. Inā loaʻa iā ʻoe kekahi ʻulaʻula ʻili, maneʻo, pehu o ka maka, nā lehelehe, a i ʻole ke alelo i ka wā a ma hope koke iho paha o ka inikini ʻana, e hoʻomaopopo koke i ke limahana lapaʻau.
- Ke pale ʻana i ka hāpai ʻana: Inā he wahine ʻoe, e pale i ka hāpai ʻana i ka wā e lawe ana i kēia lāʻau lapaʻau a no 6 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau . Hiki i kēia lāʻau lapaʻau ke hōʻeha nui i kahi pēpē i hānau ʻole ʻia. Inā ʻoe e hoʻolālā ana e hāpai, e kamaʻilio me kāu kauka e pili ana i ia mea.
Hoʻomaopopo Kūikawā: He mea kākaʻikahi loa, hiki i kēia lāʻau lapaʻau ke hoʻoulu i kahi maʻi koʻikoʻi a hoʻoweliweli i ke ola o ka lolo (i kapa ʻia ʻo 'Progressive Multifocal Leukoencephalopathy - PML`) i kekahi poʻe. No laila, inā loaʻa iā ʻoe kekahi pilikia a loli paha i kou ʻike, noʻonoʻo, ʻōlelo, hele wāwae, a i ʻole ke kaulike , e haʻi koke i kāu kauka .
Nā hopena ʻaoʻao o ka lāʻau lapaʻau
E like me nā lāʻau lapaʻau āpau, hiki i ka ʻInebilizumab ke hana i kekahi mau hopena ʻaoʻao. Pono e hōʻike koke ʻia kekahi o kēia mau mea, a ʻo kekahi ʻaʻole koʻikoʻi loa.
| Nā hopena ʻaoʻao e pono ʻoe e hōʻike koke i kāu kauka | |
|---|---|
| Nā maʻi ʻaleʻale koʻikoʻi | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo, paʻakikī ka hanu ʻana. |
| Nā hōʻailona o ka maʻi | Kuni, anu, ʻeha ka ʻāʻī, kuʻi, maʻi ʻōpū mimi. |
| ʻAʻole maʻamau ka koʻikoʻi (akā e haʻi i kāu kauka inā hoʻomau ia) | |
| ʻEha kino | ʻEha kua, ʻeha hono. |
| ʻEha poʻo | ʻEha poʻo iki a kaulike. |
| ʻO ka ʻoluʻolu ʻole ma kahi i hoʻokomo ʻia | ʻEha, ʻulaʻula, a pehu paha ma kahi i inikini ʻia. |
ʻAʻole i loko o kēia papa inoa nā hopena ʻaoʻao āpau. Eia kekahi, inā loaʻa iā ʻoe kekahi mea ʻē, e kamaʻilio me kāu kauka e pili ana i ia mea.
Leka Lawe-Home
- He lāʻau lapaʻau kūikawā ʻo `Inebilizumab` i hāʻawi ʻia ma o kahi aʻa koko ma kahi haukapila no `Neuromyelitis Optica Spectrum Disorder (NMOSD).`
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kou mau maʻi āpau, nā maʻi allergies, a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- Inā loaʻa iā ʻoe nā hōʻailona o ka maʻi e like me ke kuni a me ke kuni i ka wā e lawe ana i kēia lāʻau lapaʻau, e ʻimi koke i ke kōkua lapaʻau.
- Mai hāpai i ka wā o ka lāʻau lapaʻau a no 6 mau mahina ma hope o ka hoʻōki ʻana. E kamaʻilio me kāu kauka e pili ana i kēia.
- Mai makaʻu e noi i kāu kauka no ka wehewehe ʻana i nā pilikia a kānalua paha āu e loaʻa ai. Aia lākou ma laila e kōkua iā ʻoe.
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