ʻEhia mau ʻano virus e noho ana i loko o ko kākou kino me ka ʻike ʻole ʻia e kākou? ʻO ka virus JC kekahi o lākou. ʻO ka ʻoiaʻiʻo, noho kēia virus i loko o ke kino o ka hapalua o nā pākeke ma ka honua. Akā ʻo ka mea kupaianaha, ʻaʻole ia e hōʻeha a pilikia paha i ka hapa nui o ka poʻe. No laila, i kēia lā e kamaʻilio kikoʻī mākou e pili ana i ke ʻano maoli o kēia, i ka wā e lilo ai i pilikia, a inā paha e makaʻu kākou.
He aha maoli ka maʻi JC?
I ka ʻōlelo maʻalahi, he maʻi maʻamau loa ka maʻi JC. Ua ʻike mua ʻia i ka makahiki 1971. Ua loaʻa i kekahi kauka kēia maʻi i loko o ka lolo o ke kanaka e loaʻa ana i ka maʻi kanesa i kapa ʻia ʻo Hodgkin's lymphoma. Ua kapa ʻia ka maʻi ma muli o ka inoa mua o ka mea maʻi (John Cunningham).
Akā, ʻaʻole maopopo i nā loea pehea e laha ai mai ke kanaka a i ke kanaka. Eia nō naʻe, manaʻo ka poʻe he nui e komo ka maʻi i loko o ko kākou kino i ko kākou wā ʻōpiopio ma o ka wai a i ʻole ka meaʻai i haumia. Ke komo i loko, hiki i ka maʻi ke noho moe i loko o ko kākou ala mimi, ka iwi iwi, nā tonsils, a i ʻole ka lolo no nā makahiki, me ka ʻole o nā pilikia. ʻO ka hopena, ʻaʻole ʻike ka poʻe he nui he maʻi ko lākou.
No laila ʻo wai ka mea i pilikia mai kēia?
Eia ka mea nui. Inā maikaʻi a ikaika kou ʻōnaehana pale , ʻaʻole e hoʻopilikia ka maʻi JC iā ʻoe. Ua like ia me ka hiamoe.
Eia nō naʻe, inā no kekahi kumu e nāwaliwali loa ai ka ʻōnaehana pale o ke kanaka, e ala koke mai kēlā maʻi hiamoe a hoʻomaka e hana.
Ke lilo ka maʻi i mea hana ma kēia ʻano, hiki iā ia ke hana i kahi maʻi lolo koʻikoʻi i kapa ʻia ʻo Progressive Multifocal Leukoencephalopathy , a i ʻole PML .
He aha ka PML?
Hoʻopōʻino kēia i ka uhi pale a puni ko kākou mau hunaola nerve . Ua like ia me ka uhi palaki ma luna o kahi uea uila e heheʻe ana. Hoʻopilikia loa kēia i ke kaʻina hana o ka hoʻouna ʻana i nā leka ma o nā aʻalolo. Hiki i kēia ke alakaʻi i ke kīnā mau loa a i kekahi manawa hiki i ka make .
ʻO ka pilikia nui loa o ka hoʻomohala ʻana i ka PML:
- No nā poʻe maʻi HIV/AIDS .
- ka maʻi Hodgkin), nā poʻe me nā maʻi kanesa e like me ka leukemia a me ka lymphoma.
- No nā poʻe me nā maʻi e like me ka Multiple Sclerosis (MS) , Rheumatoid Arthritis , a i ʻole ka poʻe e lawe ana i kekahi ʻano lāʻau lapaʻau e kāohi ana i ka pale ʻana ma hope o ka hoʻoili ʻana o ke kino .
He aha nā hōʻailona o ka PML?
Hoʻomaka koke kēia mau hōʻailona a lilo i mea ʻino i ka hala ʻana o ka manawa. Hiki ke ʻokoʻa nā hōʻailona ma muli o ka wahi o ka lolo i hōʻino ʻia. Eia nō naʻe, ʻo ia nā hōʻailona maʻamau.
| Hōʻailona | Wehewehena |
|---|---|
| Ka palaualelo | Nā mea e like me ka paʻakikī i ka hana ʻana i nā mea, ke kuʻia ʻana i ka hele ʻana, a me ka hāʻule ʻana mai waho o nā lima. |
| Ka nāwaliwali e lilo i mea ʻino | Hoʻonui mālie ʻia ka nāwaliwali ma ka lima, ka wāwae, a i ʻole kekahi ʻaoʻao o ke kino. |
| Nā loli i ke ʻano | Nā loli e like me ka huhū koke, ka hopohopo, a me ka nalowale o ka hoʻomanaʻo. |
| Pilikia i ka ʻōlelo ʻana | Piʻoloke nā huaʻōlelo, a ʻaʻole hiki iaʻu ke ʻōlelo aku i kaʻu mea e makemake ai e ʻōlelo. |
| Nā pilikia ʻike | Lilo ka ʻike i mea pōwehiwehi, a me nā pilikia e like me ka ʻike ʻana i ʻelua mau mea i ka manawa hoʻokahi. |
Pehea ʻoe e ʻike ai i kēia?
ʻO ka mea mua, hiki iā ʻoe ke hoʻāʻo ʻia e ʻike inā loaʻa iā ʻoe ka maʻi JC. Pili kēia i ka lawe ʻana i kahi hoʻāʻo koko a i ʻole kahi hāpana ʻiʻo . He mea nui loa kēia inā ʻoe e lawe ana i nā lāʻau lapaʻau e kāohi ana i kāu ʻōnaehana pale .
Eia nō naʻe, inā manaʻo kāu kauka he PML kou, ʻokoʻa ke kaʻina hana hoʻāʻo.
1. MRI scan: ʻO ka hoʻāʻo mua āu e hana ai he MRI (Magnetic Resonance Imaging) scan. Hoʻohana kēia i nā magnet ikaika a me nā nalu lekiō e kiʻi i nā kiʻi kikoʻī o kou lolo a nānā i nā ʻano ma ka ʻiʻo lolo e like me ka PML.
2. Spinal Tap : A laila, e hoʻoholo paha kāu kauka e hana i kahi spinal tap (lumbar puncture) . Mai hopohopo, pili kēia i ka lawe ʻana i kahi nila liʻiliʻi a me ka lawe ʻana i kahi liʻiliʻi o ka wai spinal mai kou kua i lalo. Hoʻāʻo ʻia kēia wai no ke alo o ka maʻi JC. Inā loaʻa ka maʻi JC i loko o kēia wai, hōʻoia ia i ke alo o PML.
3. Biopsy o ka lolo: Inā ʻaʻole i maopopo nā hoʻokolohua i luna, pono paha e lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka lolo no ka hoʻāʻo ʻana (biopsy).
ʻO ka pilina ma waena o nā lāʻau lapaʻau i hoʻohana ʻia e mālama i kekahi mau maʻi a me ka maʻi JC
ʻO ka Sclerosis Multiple (MS) a me ka maʻi o Crohn
Ua ʻike ʻia kekahi mau lāʻau lapaʻau i hoʻohana ʻia e mālama i nā kūlana e like me ka Multiple Sclerosis (MS) a me ka maʻi ʻo Crohn (no ka laʻana, Natalizumab, Dimethyl fumarate, Fingolimod, Ocrelizumab ) e pili ana me PML.
No laila, ma mua o ka hoʻomaka ʻana i kēia ʻano lāʻau lapaʻau, e hoʻāʻo pono kāu kauka iā ʻoe e ʻike inā loaʻa iā ʻoe ka maʻi JC. Hiki paha iā ʻoe ke lawe i kēia lāʻau lapaʻau ʻoiai inā loaʻa iā ʻoe ka maʻi, akā pono ʻoe e kūkākūkā i nā pilikia a me nā pono me kāu kauka ma mua o ka hoʻoholo ʻana.
HIV/AIDS
ʻO kekahi mau lāʻau lapaʻau hou i hāʻawi ʻia i ka poʻe me ka maʻi HIV/AIDS e kōkua i ka hoʻoikaika ʻana i ka ʻōnaehana pale. He kōkua nui kēia i ka pale ʻana i ka ulu ʻana o ka PML mai ka maʻi JC. ʻO ka hopena, ua emi nui ka nui o ka PML i waena o nā poʻe maʻi HIV/AIDS i nā makahiki i hala iho nei.
He aha nā lāʻau lapaʻau no PML?
I kēia manawa, ʻaʻohe lāʻau lapaʻau kikoʻī i ʻae ʻia e hoʻōla loa i ka PML, a ke noiʻi nei nā kānaka ʻepekema i kēia.
ʻO ka lāʻau lapaʻau maikaʻi loa i loaʻa i kēia manawa, ʻo ia ke kōkua i ka ʻōnaehana pale o ke kino e hakakā i ka maʻi ma o ke kūkulu hou ʻana iā ia. Eia kekahi laʻana, inā e lawe ana kekahi kanaka i kahi lāʻau lapaʻau e kāohi ana i kā lākou ʻōnaehana pale, hiki i kā lākou kauka ke hoʻoholo e hoʻōki a hoʻololi paha i kēlā lāʻau lapaʻau.
Leka Lawe-Home
- He maʻi maʻamau loa ka maʻi JC ʻaʻohe mea ʻino i ka hapa nui o nā kānaka. No laila, mai makaʻu pono ʻole iā ia.
- ʻO ka pilikia maoli wale nō mai kēia no ka poʻe me nā ʻōnaehana pale nāwaliwali loa, hiki iā lākou ke hoʻomohala i kahi maʻi lolo koʻikoʻi i kapa ʻia ʻo PML.
- Inā ʻike ʻoe i nā hōʻailona e like me ka nāwaliwali maʻamau ʻole, ka paʻakikī i ka hele ʻana a i ʻole ka ʻōlelo ʻana, a i ʻole ka loli koke o ke ʻano, ʻoiai inā ʻoe e lawe ana i nā lāʻau lapaʻau e kāohi ana i kāu ʻōnaehana pale, e ʻike koke i kāu kauka.
- Ma mua o ka hoʻomaka ʻana i kekahi mau lāʻau lapaʻau no nā maʻi e like me MS a me Crohn's, e kamaʻilio me kāu kauka e pili ana i ka pilikia o ka maʻi JC a me PML.
- Inā he mau nīnau a kānalua paha kāu e pili ana i kēia, ʻo ka mea maikaʻi loa e hana ai, ʻo ia ke kamaʻilio akāka me kāu kauka e pili ana i ia mea a e hoʻomaopopo pono ʻia.
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