Ke ʻike koke nei ʻoe i nā ʻulaʻula a i ʻole ka eczema ma kou ʻili e hoʻoluhi nei iā ʻoe? He hōʻailona paha kēia o kahi maʻi i kapa ʻia ʻo lupus . Makaʻu ka poʻe he nui ke lohe lākou i ka inoa, akā inā ʻike ʻoe, ʻaʻole paʻakikī ka mālama ʻana i kēia maʻi. E nānā kākou i ke ʻano o kēia mau ʻulaʻula lupus , no ke aha lākou e kū mai ai, a me nā mea a mākou e hana ai.
He aha nā ʻōhū lupus? No hea mai lākou?
I ka ʻōlelo maʻalahi, ʻo ka ʻulaʻula lupus kahi wahi o ka mumū , ka maneʻo, nā puʻupuʻu, a i ʻole ke kala ʻana o ke kala ma kou ʻili. Hiki ke ʻike ʻia kēia mau mea ma nā wahi āpau o kou kino. Akā ʻike pinepine ʻia lākou ma:
- Ma nā lima ʻelua
- Ma ke kua
- Ma ka maka
- Nā pāma a me nā lima
- Ma ka ʻāʻī
ʻO kekahi o nā hōʻailona kaulana loa o ka lupus ʻo ia ka ʻulaʻula i ke ʻano o ka pulelehua . ʻO ka pololei, he ʻulaʻula ia e like me ka pulelehua e hohola ana i kona mau ʻēheu, e hoʻomaka ana mai kou ihu a hohola i lalo i kou mau papālina. Ua ʻike ʻia kēia ma ke ʻano lapaʻau he 'malar rash'. Akā, ʻaʻole kēia wale nō, aia kekahi mau ʻano ʻulaʻula ʻē aʻe e hiki ke kū mai ma muli o ke ʻano o ka lupus āu.
ʻO ka mea nui loa, ʻo ke kumu nui o kēia ʻōhū ka ʻike ʻia ʻana i ka lā . Hiki i kou ʻili ke lilo i mea maʻalahi loa i nā kukuna ultraviolet (UV) mai ka lā a i ʻole ke kukui hana. Hiki i kēia ke hana i kahi ʻōhū a i ʻole e hoʻonui i ka ʻōhū e kū nei.
He aha nā ʻano nui o nā ʻōhū lupus?
Aia nā ʻano lupus like ʻole, a ʻokoʻa nō hoʻi ka ʻulaʻula o ka ʻili e kū mai ana. E nānā kākou i nā ʻano nui.
| ʻAno ʻulaʻula | Nā hiʻohiʻona nui | Nā ʻōpala/nā loli ʻili |
|---|---|---|
| ʻO ka Discoid Lupus Rash (DLE) | ʻO kēia ke ʻano maʻamau o ka lupus e hoʻopilikia ai i ka ʻili. Hoʻopilikia pinepine ia i ka maka a me ke poʻo. He mau ʻōhū poepoe, mānoanoa, unahi kēia i ke ʻano e like me ke kālā. ʻAʻole lākou he ʻānai a ʻeha paha. | Hiki ke kū mai nā ʻōpala ma hope o ka ho'ōla ʻana. Hiki ke loli mau ke kala o ka ʻili (lilo i keʻokeʻo/ʻeleʻele). Inā loaʻa ia ma ke poʻo, hiki ke hāʻule pū ka lauoho. |
| ʻO ka ʻōpala Lupus Subacute (SCLE) | ʻIke pinepine ʻia lākou ma nā wahi i hōʻike ʻia e ka lā e like me nā lima, nā poʻohiwi, ka umauma, a me ka ʻāʻī. Hiki iā lākou ke nānā aku e like me nā apo i hoʻopili ʻia kekahi i kekahi. ʻAʻole lākou e ʻeha a ʻāʻī paha. | ʻAʻohe māka i ka wā e ho'ōla ai, akā hiki ke loli mau ke kala o ka ʻili. |
| ʻO ka ʻeha Lupus ʻili koʻikoʻi (ACLE) | Hana ʻia kēia i ka wā o ka hoʻāla ʻana o ka lupus ikaika. ʻO ka ʻōhū ʻano pepeke (Malar Rash) i ʻōlelo ʻia ma mua no kēia ʻano. Hiki ke ʻike ʻia he mau puʻupuʻu poni/ʻulaʻula, a hiki ke hele pū me ka ʻeha (muhū). | ʻAʻole ia e waiho i nā ʻeha, akā hiki ke hoʻomau kēia ʻulaʻula a hiki i ka wā e kaohi ʻia ai ka maʻi. |
E aʻo kākou e pili ana i nā ʻano ʻē aʻe kakaʻikahi
Ma waho aʻe o kēia mau ʻano nui ʻekolu, aia kekahi mau ʻano ʻē aʻe o nā ʻōhū kakaʻikahi.
- ʻO Chilblain lupus : Nā ʻōpū ʻeha a ʻānai e kū mai ana ma muli o ke anu a me ka makū.
- Lupus erythematosus tumidus: Nā puʻupuʻu i piʻi aʻe ma ka ʻili. ʻAʻole kēia e waiho i nā ʻeha ke ho'ōla ʻia.
- Lupus panniculitis: He ʻano e hoʻopilikia ai i nā papa hohonu o ka ʻili. ʻO ia ke kumuHiki i nā ʻōpū a me nā ʻōpala e kū mau ana ma ke ʻano he mau lua ma ka ʻili ke hana ʻia i ko lākou ho'ōla ʻana.
- Lupus Neonatal: He ʻano e kū mai ana i nā pēpē hānau hou. Hiki ke ʻike ʻia nā kiko poepoe ma ke poʻo, ka maka, a me ka ʻāʻī.
No ke aha lā e puka koke mai ai kēia ʻulaʻula lupus?
Aia kekahi mau kumu e hiki koke mai ai ka ʻulaʻula lupus a i ʻole ka ʻino aʻe. Kāhea mākou i kēia mau mea 'nā mea hoʻoulu'.
I ka ʻōlelo maʻalahi, ʻo ka lupus kahi maʻi autoimmune kahi e hoʻouka ai ko kākou ʻōnaehana pale ponoʻī i ko kākou kino ponoʻī. No laila, ke hōʻike ʻia kākou i ka lā, lilo kēia mau hunaola pale i mea hana nui, e hoʻoulu ai i ka mumū i loko o ka ʻili. ʻO kēia ka hopena a kākou e ʻike ai he ʻulaʻula.
Ma waho aʻe o ka lā, aia kekahi mau kumu maʻamau:
- Maʻi
- Ka ʻeha i ke kino
- Kekahi mau lāʻau lapaʻau
- Puhipaka (ʻIke ʻia ka uahi)
- Kaumaha nui
- Nā loli o ka mahana
Hiki iā ʻoe ke kamaʻilio me kāu kauka e ʻike i ke kumu maoli o kou ʻulaʻula.
He aha nā lāʻau lapaʻau no kēia?
Aia nā ʻano lāʻau like ʻole e loaʻa ana no ka mālama ʻana a me ka ho'ōla ʻana i nā ʻōpala lupus. Na kāu kauka e kuhikuhi i ka mea kūpono loa ma muli o ke ʻano o ka ʻōpala i loaʻa iā ʻoe a me ke koʻikoʻi o ke kūlana.
- Nā kirimina ʻili - e.g. kirimina corticosteroid
- Lāʻau lapaʻau antimalarial
- Nā lāʻau lapaʻau
- Nā ʻano retinoid (A retinoid)
- Nā lāʻau pale kino
- Nā lāʻau lapaʻau olaola (Biologics)
ʻO ka mea nui loa: ʻO kāu kauka wale nō ke koho i ka lāʻau lapaʻau kūpono loa iā ʻoe.Hoʻoholo ʻia ka lāʻau lapaʻau e ke ʻano o ka ʻulaʻula i loaʻa iā ʻoe a me ke ʻano o ke kūlana. No laila, e ʻimi pono i ke aʻo lapaʻau.
He aha nā manawa kūpono loa e ʻike ai i ke kauka?
Inā loaʻa iā ʻoe ka lupus a manaʻo paha he loaʻa iā ʻoe, he mea nui loa e ʻike i ke kauka a loaʻa ka ʻōlelo aʻoaʻo kūpono.
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Hiki ke pale ʻia nā ʻōhū lupus?
ʻOiai ʻaʻole hiki ke pale piha ʻia kekahi mau ʻōhū lupus, hiki i ka pale ʻana i nā mea hoʻonāukiuki ke hāʻawi i ka hōʻoluʻolu nui. He mea nui loa ka pale ʻana i ka lā.
- E kau i kahi pale lā ākea maikaʻi i kēlā me kēia lā, ʻoiai inā ʻoe i loko . E hoʻopili hou i kēlā me kēia ʻelua hola.
- E hōʻemi i ka ʻike ʻana i ka lā ikaika ma waena o 10 a.m. a me 4 p.m. ʻO ia ka manawa e ikaika loa ai nā kukuna o ka lā.
- Inā ʻoe e hele ana i ka lā, e uhi i kou ʻili me nā mea e like me nā lole lima lōʻihi a me ka pāpale ākea.
- Mai hoʻohana i nā moena ʻili lāʻau.
- He mea maikaʻi inā hiki iā ʻoe ke hoʻopili i nā uhi puka makani pale i nā puka makani o kou home e pale aku iā lākou mai nā kukuna UV.
He maʻi paʻakikī ka mālama ʻana iā Lupus. ʻO nā pilikia ʻili, ʻoi aku hoʻi, hiki ke lilo i mea kaumaha loa, ma ka noʻonoʻo a me ke kino. Akā, ʻaʻole pono ʻoe e ʻeha wale i kēia mau mea. Hiki i kahi dermatologist kūpono a i ʻole kāu kauka ʻohana ke kōkua iā ʻoe e mālama i kēia maʻi.
Leka Lawe-Home
- He mea maʻamau ka ʻili ʻana i ka lupus. ʻO kahi ʻili ʻano pepeke ma ka maka (malar rash) kahi hōʻailona nui.
- ʻO ka lā ke kumu nui o kēia ʻōhūhū, no laila he mea nui ka pale ʻana i ka lā.
- Inā loaʻa iā ʻoe kahi ʻulaʻula a i ʻole nā kiko ma kou ʻili, mai hoʻoholo ponoʻī a mālama paha, akā e ʻike pono i ke kauka.
- Me ka mālama kūpono, hiki ke kāohi ʻia nā ʻōhū lupus a hiki ke hoʻēmi ʻia nā ʻōpala. No laila, mai makaʻu e ʻimi i ke aʻo lapaʻau.
👩🏽⚕️ Nā nīnau hou aku (FAQs)
💬 Pono anei ʻoe e hopohopo inā loaʻa koke iā ʻoe kahi ʻulaʻula, ʻano pepeke (Lupus Rash) ma kou maka?
Inā ʻike pinepine ʻoe i kahi ʻulaʻula nui ma kou mau papālina a me kou ihu (butterfly rash), ʻaʻole ia he mea maʻamau. Hiki iā ia ke lilo i hōʻailona nui o kahi maʻi weliweli i kapa ʻia ʻo 'Lupus (SLE).' No laila, inā loaʻa i kahi pākeke kēia ʻulaʻula ʻē, e ʻike koke i ke kauka.
💬 Ke hōʻino nei ka lā i ka ʻulaʻula i hoʻokumu ʻia e ka lupus?
ʻAe! ʻO ka poʻe me ka lupus ka mea i hoʻopilikia nui ʻia e ka lā (Photosensitivity). ʻOiai he manawa pōkole i ka lā hiki ke hana i kahi ʻulaʻula nui a me ka mumū e like me ka lā ma ke kino holoʻokoʻa. No laila, he mea nui loa ka hoʻopili ʻana i ka sunscreen i ka wā e hele ai i waho.
💬 Hiki ke ho'ōla ʻia kēia ʻulaʻula ma ka ʻili?
He maʻi autoimmune ʻo Lupus ʻaʻole hiki ke ho'ōla loa ʻia. Eia nō naʻe, me ke kōkua o nā kirīmi kūikawā (Steroid creams / Hydroxychloroquine) i kuhikuhi ʻia e nā kauka a me ka pale ʻana mai ka lā, hiki iā ʻoe ke hoʻopau i nā ʻulaʻula a me nā ʻeha ma kou ʻili a ola i ke ola maʻamau.
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