Ua ʻike anei ʻoe i ka Lupus (Systemic Lupus Erythematosus - SLE) ? E kamaʻilio kākou e pili ana i ia mea!

Ke manaʻo nei ʻoe i kekahi manawa i ka luhi hiki ʻole ke noʻonoʻo ʻia, nā ʻeha kino, nā ʻeha hui, a i ʻole ka ʻulaʻula ma kou ʻili? Inā ʻike ʻoe i kēia mau mea ʻaʻole i hoʻokahi a ʻelua paha manawa, akā he mau manawa i ka manawa hoʻokahi, ʻo ke kumu paha he maʻi i kapa ʻia ʻo lupus. Mai hopohopo, ʻoiai ke kani nei kēia inoa me he mea nui lā, he ʻano ia e hiki ke hoʻomalu ʻia i kahi nui inā ʻike pono ʻia ʻoe a loaʻa ka lāʻau lapaʻau kūpono. I kēia lā, e kamaʻilio mākou e pili ana i ka lupus ma ke ʻano maʻalahi hiki iā ʻoe ke hoʻomaopopo.

He aha ʻo Lupus? E hoʻomaopopo maʻalahi kākou.

I ka ʻōlelo maʻalahi, ʻo ka lupus kahi maʻi i hoʻokumu ʻia e kahi hana hewa i loko o ka ʻōnaehana pale o ko mākou kino. ʻO ka maʻamau, pale kā mākou ʻōnaehana pale iā mākou mai nā maʻi a me nā germs. Akā ʻo ka mea e hana nei i loko o ke kino o ke kanaka me ka lupus, ʻo ia ka hoʻouka hewa ʻana o kēia ʻōnaehana pale i nā cell olakino a me nā ʻiʻo o ko lākou kino ponoʻī. E noʻonoʻo, ʻo ka mea e hana nei ma ʻaneʻi e like me ka pūʻali koa e pale ana i ko mākou ʻāina, e hoʻouka hewa ana i nā kānaka o ko mākou ʻāina ponoʻī. Ua kapa nā kauka i kēia he 'maʻi autoimmune '.

Ke hoʻouka ka ʻōnaehana pale ma kēia ʻano, hiki ke loaʻa ka mumū , ʻo ia hoʻi ka pehu ʻana, ka ʻulaʻula, a me ka ʻeha, ma nā ʻāpana like ʻole o ke kino. Hiki i kēia ke hoʻopilikia i kekahi ʻāpana o ke kino. Eia kekahi laʻana:

• Kou ʻili
• Koko
• Nā Huina
• nā puʻupaʻa
• lolo
• Puʻuwai
• Nā māmā

He mea nui loa ke ʻike ʻana i ke kauka inā ʻike ʻoe i kekahi ʻeha hou, he ʻulaʻula ʻili, a i ʻole nā ​​loli i kou ʻili, lauoho, a i ʻole nā ​​maka.

He aha nā ʻano nui o ka lupus?

Ke kamaʻilio nā kauka e pili ana i ka lupus, kapa pinepine lākou iā ia he "Systemic Lupus Erythematosus (SLE)". ʻO kēia ke ʻano maʻamau o ka lupus. ʻO ke ʻano o ka "SLE" e pili ana kēia maʻi i kou kino holoʻokoʻa. Aia kekahi mau ʻano ʻē aʻe:

• ʻO ka ʻili lupus erythematosus: Ma kēia ʻano lupus, hoʻopilikia wale ke ʻano i kou ʻili .
• Lupus i hoʻoulu ʻia e ka lāʻau lapaʻau: Hiki i kekahi mau lāʻau lapaʻau ke hana i nā hōʻailona lupus ma ke ʻano he hopena ʻaoʻao. Eia nō naʻe, he manawa pōkole kēia . ʻO ke ʻano kēia e nalowale paha nā hōʻailona ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau.
• Lupus hānau hou: He mea kākaʻikahi loa kēia. I kekahi manawa hiki i nā pēpē hānau hou ke loaʻa ka lupus. ʻAʻole nā ​​​​pēpē a pau i hānau ʻia e nā makuahine me ka lupus e loaʻa ka lupus, akā aia paha kahi pilikia liʻiliʻi.

He aha nā hōʻailona o ka lupus?

He maʻi ʻo Lupus e hōʻike ʻia ana ma nā ʻano like ʻole. ʻO ke ʻano kēia, hiki ke ʻokoʻa nā hōʻailona mai kēlā kanaka a kēia kanaka , a ʻokoʻa nō hoʻi ke koʻikoʻi o ka maʻi. Loaʻa i kekahi poʻe nā hōʻailona koʻikoʻi loa, aʻo kekahi poʻe he mau hōʻailona ʻoluʻolu aʻe.

ʻAʻole mau nā hōʻailona Lupus.Hele mai lākou a hele aku. Kāhea mākou i nā wā o ka hoʻonui ʻia ʻana o nā hōʻailona he "flare-up." I loko o kēia mau wā, hiki i nā hōʻailona ke koʻikoʻi loa a hiki ʻole iā ʻoe ke hana i kāu mau hana o kēlā me kēia lā. Aia kekahi mau wā o ka emi ʻana a i ʻole ka ʻole o nā hōʻailona. Ua kapa ʻia kēia he "remission."

Hoʻomaka mālie nā hōʻailona. I ka wā mua, hoʻokahi a ʻelua paha mau hōʻailona e ʻike ʻia, akā ma hope aku e ʻike hou ʻia aku nā hōʻailona a i ʻole e loli paha nā mea i hala.

Eia kekahi o nā hōʻailona maʻamau:

• ʻEha hui, ʻeha ʻiʻo, ʻeha umauma (ʻoi aku hoʻi i ka wā e hanu hohonu ai)
• ʻEha poʻo
• ʻŌhūhū ʻili (pinepine he ʻōhūhū ʻano pepeke e holo ana ma nā papālina a me ka ihu ma nā ʻaoʻao ʻelua o ka maka - "ʻŌhūhū pepeke" - hiki ke ʻike ʻia)
• kuni
• Pohō lauoho
• ʻEha waha
• Luhi mau loa (luhi mau i nā manawa a pau)
• Paʻakikī ka hanu ʻana ((Dyspnea))
• Nā ʻōpū pehu
• Ka pehu ʻana o nā lima, nā wāwae, a i ʻole ka maka
• Ka huikau
• Nā ʻūpā koko

Hiki i ka Lupus ke hana i kekahi mau pilikia olakino ʻē aʻe, e like me:

• Photosensitivity ( ʻike i ka lā)
• Maka maloʻo
• Kaumaha a i ʻole nā ​​pilikia olakino noʻonoʻo ʻē aʻe
• Nā kūlana epileptic ('Seizures')
• Ua emi ka hemoglobin i loko o ke koko (anemia)
• ʻO ka maʻi Raynaud (ka palale, ka uliuli o nā manamana lima a me nā manamana wāwae i ke anuanu)
• ʻO ka Osteoporosis (ka lahilahi o nā iwi)
• Maʻi puʻuwai
• Maʻi puʻupaʻa

He aha ke kumu o ka lupus?

ʻAʻole ʻike maopopo nā loea i ke kumu kikoʻī o ka lupus , akā ua ʻike ʻia e ka noiʻi hiki i kekahi mau mea ke kōkua i ka ulu ʻana o ka lupus.

• Nā kumu hoʻoilina: ʻOi aku ka nui o kou loaʻa ʻana o ka lupus inā loaʻa iā ʻoe kekahi mau loli (nā hoʻololi hoʻoilina) i loko o kāu mau genes. ʻO ke ʻano kēia inā loaʻa i kekahi o kou ʻohana, he liʻiliʻi kou manawa e loaʻa ai iā ia.
• Nā Hormone: Manaʻo ʻia ka pane a ke kino i kekahi mau hormones, ʻoiai ka estrogen, he kuleana ko ia i ka ulu ʻana o ka lupus. ʻO ia ke kumu i ʻoi aku ka maʻamau o ka lupus i nā wahine.
• Nā kumu o ke kaiapuni: ʻO nā mea i ke kaiapuni āu e noho nei, no ka laʻana, ka haumia o ka ea a me ka ʻike ʻana i ka lā, hiki ke hoʻopilikia i kou pilikia o ka lupus.
• Kou moʻolelo olakino: Inā he mea puhi paka ʻoe, nui ke kaumaha, a i ʻole he mau maʻi autoimmune ʻē aʻe, hiki ke piʻi aʻe kou pilikia o ka hoʻomohala ʻana i ka lupus.

ʻO wai ka mea i ʻoi aku ka nui o ka pilikia o ka hoʻomohala ʻana i ka lupus?

Hiki i kekahi ke loaʻa i ka lupus, akā ʻoi aku ka nui o ka pilikia o kekahi mau hui:

• Nā wāhine: ʻOi aku hoʻi nā wāhine ma waena o nā makahiki 15 a me 44.
• Nā kānaka ʻeleʻele.
• Nā Hispanika.
• Nā ʻĀkia (no kēia hui pū mākou).
• Nā ʻōiwi ʻAmelika, nā ʻōiwi Alaska, a me nā lāhui mua.
• Nā kamaʻāina o ka Pākīpika.
• ʻO ka poʻe i loaʻa i kekahi makua me ka lupus.

Pehea e ʻike ʻia ai ka lupus?

Hiki i kekahi manawa ke paʻakikī iki ka ʻike ʻana i ka lupus. No ka mea, pili ia i nā ʻāpana like ʻole o ke kino, hiki ke ʻokoʻa loa nā hōʻailona. E ʻike ke kauka i ka lupus ma ka hana ʻana i kahi hoʻokolokolo kino a me kekahi mau hoʻokolohua .

E hoʻolohe pono ke kauka a kahu maʻi paha i kāu mau hōʻailona. E haʻi iā lākou i nā mea āpau āu i ʻike ai e pili ana i ka wā i hoʻomaka mua ai ʻoe e loaʻa nā hōʻailona, ​​​​nā loli āu i ʻike ai, a me nā maʻi ma mua āu i loaʻa ai a me nā lāʻau lapaʻau āu e lawe nei.

Mai makaʻu e haʻi aku i kāu kauka i kekahi mea āu e manaʻo nei he mea ʻē, ʻoiai inā he mea liʻiliʻi ia. ʻAʻohe mea i ʻike maikaʻi i kou kino ma mua o ʻoe.

He aha nā hoʻokolohua e hana ʻia e ʻike ai i ka lupus?

ʻAʻohe hoʻāʻo hoʻokahi e hiki ke hōʻoia i kou loaʻa ʻana o ka lupus. Hoʻohana pinepine nā kauka i kahi "diagnosis differential" e kāpae i nā maʻi ʻē aʻe . ʻO ke ʻano kēia, hana lākou i kekahi mau hoʻāʻo e ʻike i ke kumu o kāu mau hōʻailona a e hōʻoia ʻaʻole nā ​​maʻi ʻē aʻe ke kumu ma mua o ka hoʻoholo ʻana he lupus kou. ʻO kekahi o nā hoʻāʻo e hiki ke hoʻohana ʻia no kēia:

• Nā hoʻāʻo koko: Nānā kēia i ke ʻano o ka hana ʻana o kāu ʻōnaehana pale, inā he mau maʻi kou, nā maʻi e like me ka anemia, a i ʻole ka helu haʻahaʻa o nā cell koko.
• Urinalysis: Kōkua kēia i ka nānā ʻana i kāu mimi no nā hōʻailona o ka maʻi a i ʻole nā ​​​​​​kūlana olakino ʻē aʻe.
• Hoʻāʻo antibody antibody (ANA): Hoʻāʻo kēia no nā antibodies. ʻO nā antibodies nā māka protein e hōʻike ana i ka mōʻaukala o ko mākou kino i ke kaua ʻana i nā maʻi. He nui ka poʻe me ka lupus i loaʻa nā pae kiʻekiʻe o kēia mau antibodies ANA. Hōʻike kēia ua hana nui ka ʻōnaehana pale.
• ʻO ka biopsy ʻili a i ʻole ka puʻupaʻa: I kekahi manawa lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka ʻili a i ʻole ka puʻupaʻa a nānā ʻia ma lalo o kahi microscope e ʻike ai inā ua hōʻino ʻia e ka ʻōnaehana pale.

He aha nā lāʻau lapaʻau no ka lupus?

E paipai kāu kauka i ka lāʻau no ka lupus e kāohi a mālama i kāu mau hōʻailona . ʻO nā pahuhopu nui ma aneʻi:

• Ka hoʻēmi ʻana i ka hōʻino ʻana i nā ʻōkana o ke kino.
• Hoʻemi i ka hopena o ka lupus i kou ola o kēlā me kēia lā.
• Ke pale ʻana i nā lapalapa ʻana.
• Hoʻemi i ke koʻikoʻi o nā hōʻailona i ka wā o ka exacerbation koʻikoʻi.

Pono ka nui o nā poʻe maʻi lupus i ka hui pū ʻana o kekahi mau lāʻau lapaʻau.Pono paha ʻoe i kekahi o nā lāʻau lapaʻau:

• Hydroxychloroquine: He lāʻau lapaʻau kēia i loko o kahi papa i kapa ʻia he lāʻau antirheumatic hoʻololi maʻi (DMARD). Kōkua ia i ka hōʻoluʻolu ʻana i nā hōʻailona lupus a kāohi i ka holomua o ka maʻi.
• Nā lāʻau anti-inflammatory nonsteroidal (NSAIDs): Loaʻa kēia mau lāʻau lapaʻau ma luna o ke kauka (OTC) e hōʻemi ana i ka ʻeha a me ka mumū (pehu). E haʻi aku kāu kauka iā ʻoe i ke ʻano o ka NSAID kūpono iā ʻoe a me ka lōʻihi o kou lawe ʻana. Mai lawe i kēia mau mea no nā lā he 10 a ʻoi aku i ka manawa me ka ʻole o ka ʻōlelo aʻoaʻo a kāu kauka.
• Corticosteroids: He mau lāʻau lapaʻau ikaika kēia i kuhikuhi ʻia e ke kauka e hōʻemi i ka mumū. ʻO Prednisone kahi corticosteroid i hoʻohana pinepine ʻia no ka lupus. Hiki ke hāʻawi ʻia iā lākou ma ke ʻano he pila a i ʻole he inikini pololei i loko o kahi hui.
• Nā Immunosuppressants: Hana kēia mau lāʻau lapaʻau ma ka hōʻemi ʻana a me ka kaohi ʻana i ka hana o kāu ʻōnaehana pale, e kōkua ana i ka pale ʻana i ka hōʻino ʻana o nā ʻiʻo a me ka mumū.

Ma waho aʻe o kēia mau ʻano lāʻau lapaʻau nui, pono paha ʻoe i nā lāʻau lapaʻau kaʻawale no nā hōʻailona kikoʻī āu i loaʻa ai a i ʻole no nā pilikia olakino ʻē aʻe i hoʻokumu ʻia e ka lupus (e.g. anemia, ke koko kiʻekiʻe, nā iwi lahilahi).

He aha kāu e manaʻo ai inā loaʻa iā ʻoe ka lupus?

He maʻi ola mau ʻo Lupus ('mau') . ʻO ke ʻano kēia, pono ʻoe e hoʻoponopono a mālama i nā hōʻailona lupus i kou ola a pau.

He mea hiki ʻole ke wānana ʻia ʻo Lupus. ʻO ia hoʻi, hiki ke loli ke ʻano o kona hoʻopilikia ʻana iā ʻoe i kēlā me kēia manawa. No laila, pono ʻoe e ʻike pinepine i kāu kauka e nānā i nā loli o kāu mau hōʻailona.

I kou aʻo ʻana e noho me ka lupus, pono ʻoe e hana pū me kahi hui o nā kauka . E ʻōlelo aku kāu kauka ʻohana (mea mālama mua) i nā loea āu e pono ai. ʻO ka hapa nui, e ʻike ʻoe i kahi rheumatologist - he kauka loea i ka ʻike ʻana a me ka mālama ʻana i nā maʻi autoimmune. ʻO nā loea ʻē aʻe āu e pono ai e hilinaʻi ʻia i kāu mau hōʻailona a pehea lākou e hoʻopilikia ai i kou kino.

Hiki ke ho'ōla loa ʻia ka lupus?

ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau no ka lupus i kēia manawa . Eia nō naʻe, hiki i kāu kauka ke kōkua iā ʻoe e ʻimi i kahi hui pū ʻana o nā lāʻau lapaʻau e kōkua i ka kaohi ʻana i kāu mau hōʻailona a kōkua iā ʻoe e hoʻokō i kahi manawa o ke kala ʻana - kahi manawa i loaʻa ʻole ai iā ʻoe a i ʻole kakaikahi loa nā hōʻailona.

Hiki ke pale ʻia ka lupus?

No ka mea, ʻaʻole maopopo i nā loea ke kumu o ka lupus, ʻaʻohe ala e pale aku ai . Inā loaʻa kekahi o kou mau mākua i ka lupus, e kamaʻilio me kāu kauka e pili ana i kou pilikia.

Pehea e pale aku ai i ka hoʻomaka ʻana o ka lupus?

ʻOiai ʻaʻole hiki ke pale ʻia ka lupus, aia kekahi mau mea hiki iā ʻoe ke hana e hōʻemi a pale aku i nā ʻōhū. Hoʻokomo pū kēia i ka pale ʻana i nā mea e hoʻonui ai i kou mau hōʻailona.

• E pale i ka lā: No kekahi poʻe, ʻo ka lōʻihi o ka lā e hiki ke hoʻonui i nā hōʻailona lupus. No laila, e kaupalena i kou manawa ma waho i nā hola kiʻekiʻe o ka lā (ma waena o 10 a.m. a me 4 p.m.). Inā ʻoe e hele i waho, e ʻaʻahu i nā pālule lima lōʻihi, ka pāpale, a me nā lole pale lā. E hoʻohana i kahi sunscreen me ka SPF o 50 ma ka liʻiliʻi .
• E noho hana: Hiki i ka ʻeha o nā hono ke hoʻolilo i ka neʻe ʻana a i ʻole ka hoʻoikaika kino i kekahi manawa. Eia nō naʻe, ʻo ka neʻe mālie a me ka hoʻoikaika kino nā ala maikaʻi loa e hōʻemi ai i nā hōʻailona e like me ka ʻeha a me ka ʻoʻoleʻa. ʻO ka hele wāwae, ke kaʻa paikikala, ka ʻauʻau ʻana, ka yoga, a me ka tai chi nā ala maikaʻi a pau e hoʻoneʻe ai i kou kino me ka ʻole o ke kaomi nui ʻana i kou mau hono. E nīnau i kāu kauka e pili ana i nā hoʻoikaika kino e palekana iā ʻoe e hana.
• E hiamoe nui a mālama i kou olakino noʻonoʻo: Hiki i ka noho ʻana me ka lupus ke hopohopo i kekahi manawa. ʻO ka loaʻa ʻana o ka hiamoe nui (7-9 mau hola no kahi pākeke) a me ka hōʻemi ʻana i ke kaumaha e hiki ke kōkua i kekahi poʻe e pale aku i nā ʻōhū. Hiki i kahi psychologist a i ʻole kekahi kākāʻōlelo olakino noʻonoʻo ke kōkua iā ʻoe e hoʻomohala i nā ʻano hana hoʻoponopono.

Āhea wau e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe kekahi mau hōʻailona hou, a inā manaʻo ʻoe e loli ana kāu mau hōʻailona, ​​e ʻike koke i ke kauka. ʻOiai nā loli liʻiliʻi i kāu mau hōʻailona he mea nui ia.

Inā manaʻo ʻoe ʻaʻole ke kāohi nei kāu lāʻau lapaʻau i kāu mau hōʻailona lupus, e haʻi i kāu kauka . Inā ʻoi aku ka nui o nā hōʻailona a i ʻole e ʻoi aku ka ʻino o kāu mau hōʻailona, ​​e haʻi i kāu kauka. Hiki i kāu kauka ke kōkua iā ʻoe e hoʻoponopono i kāu lāʻau lapaʻau e like me ka mea e pono ai.

I kahi pilikia, ʻo ia hoʻi, inā ʻike ʻoe i nā hōʻailona e like me kēia, e hele koke i ka haukapila a kāhea aku paha i ka 1990:

• Inā ʻaʻole hiki iā ʻoe ke hanu.
• Inā he ʻeha nui.
• Inā manaʻo ʻoe he mau hōʻailona o ka hōʻeha puʻuwai kou.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

Ke ʻike ʻoe i ke kauka, he mea maikaʻi ke nīnau i nā nīnau e like me kēia:

• Loaʻa iaʻu ka lupus a i ʻole kekahi maʻi autoimmune ʻē aʻe?
• He aha ke ʻano o nā lāʻau lapaʻau e pono ai iaʻu?
• ʻEhia pinepine e pono ai iaʻu ke ʻike iā ʻoe ('nā manawa hoʻopaʻa')?
• Pono anei au e ʻike i nā loea ʻē aʻe?
• Hiki iā ʻoe ke haʻi mai iaʻu e pili ana i nā hui kākoʻo a i ʻole nā ​​​​lawelawe olakino noʻonoʻo ʻē aʻe e kōkua paha iaʻu?

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

Hiki i ka Lupus ke lilo i mea hoʻonāukiuki a hoʻonāwaliwali i kekahi manawa. ʻAʻole maʻalahi ka noho ʻana me ka ʻeha, ka mumū, a me ka ʻoluʻolu ʻole ma kou kino holoʻokoʻa. Akā, mai poina e mahalo iā ʻoe iho . He hana paʻakikī ka noho ʻana me kahi maʻi mau loa, no laila pono ʻoe e hoʻomaopopo ʻia no ka hoʻoikaika ʻana āu e hoʻokomo ai i ka mālama ʻana i kāu mau hōʻailona i kēlā me kēia lā.

Inā manaʻo ʻoe he mea kōkua ke kamaʻilio me kekahi e pili ana i kou mau manaʻo a me kou mau manaʻo, e nīnau i kāu kauka e pili ana i nā lawelawe olakino noʻonoʻo a me nā hui kākoʻo.

Mai makaʻu e kamaʻilio me kāu kauka a nīnau i nā nīnau. ʻOiai nā loli liʻiliʻi i kāu mau hōʻailona he hōʻailona paha ia e hoʻopilikia ʻokoʻa ana ka lupus iā ʻoe. E hoʻomanaʻo, inā manaʻo ʻoe he hewa kekahi mea me kou kino, ʻo ʻoe ka luna kānāwai maikaʻi loa.

ʻLupus , SLE, nā maʻi autoimmune, ʻeha hono, ʻūlū ʻili, mālama ʻana i ka lupus, nā hōʻailona lupus