Loaʻa i kāu keiki liʻiliʻi kēia ʻano pilikia maka? E kamaʻilio kākou e pili ana i ka 'Morning Glory Syndrome'

Ke nānā ʻoe i nā maka o kāu keiki liʻiliʻi, ua ʻike anei ʻoe he mea ʻokoʻa kekahi e pili ana i kekahi maka? Malia paha he ʻano ʻē iki ke ʻano o loko o ka maka, a i ʻole ua huli ke poʻo o ka pēpē i kekahi ʻaoʻao, a i ʻole ua puʻupuʻu kekahi maka. He mea maʻamau no ka makua ke makaʻu iki i ka wā e ʻike ai lākou i nā mea e like me kēia. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi e hiki ke hoʻopilikia i nā maka, he mea kakaikahi iki akā he mea nui loa ia e ʻike. ʻO ia kahi maʻi i kapa ʻia ʻo 'Morning Glory Syndrome '.

He aha kēia 'Morning Glory Syndrome'?

I ka ʻōlelo maʻalahi, ʻo 'Morning Glory Syndrome' kahi maʻi e kū mai ana i ka wā e ulu pono ʻole ai ka ʻāpana o kou maka i loko o kou maka, ʻo ke kua. E noʻonoʻo, ʻo ke aʻalolo nui e pili ana i ka ʻike ʻana aia i loko o ko kākou maka, kahi e pili ai i ka maka, ʻo ia hoʻi, ka ʻāpana i kapa ʻia ʻo ke aʻa nerve optic, aia ma kēia kūlana, aia ke ʻano o kahi funnel. Me he pua lā i kapa ʻia ʻo 'Morning Glory', a i ka wā e nānā ai ke kauka i loko o ka `(Retina)' o kou maka, me he mea lā e nānā ana ʻo ia i loko o kēlā pua. ʻO ia ke kumu i kapa ʻia ai ʻo 'Morning Glory Syndrome'.

Hoʻokumu ʻia kēia e kahi pilikia me ka ulu ʻana o ka maka ʻoiai ke pēpē i loko o ka ʻōpū . Hoʻomaopopo pinepine ʻia i ka wā mua loa, i kekahi manawa ma mua o ka piha ʻana o ke keiki i ʻelua makahiki. ʻO kēia 'Morning Glory Syndrome' (MGS) ke kumu o nā loli kūkulu i loko o ka maka e hiki ke hoʻopilikia i kou ʻike. Hoʻonui pū ia i ka pilikia o ka hoʻomohala ʻana i nā pilikia maka like ʻole i ke ola holoʻokoʻa. Hoʻopilikia pinepine ia i hoʻokahi maka wale nō, akā he kakaikahi loa hiki ke hoʻopilikia i nā maka ʻelua.

ʻO kekahi mea ʻē aʻe, i kekahi manawa he ʻokoʻa wale nō paha ke ʻano o kēia maka, ʻo ia hoʻi, me ka ʻole o nā hōʻailona. I kēlā hihia, kapa ʻia e nā loea ʻo 'Morning Glory Disk Anomaly'. Eia nō naʻe, inā hele pū kēia ʻokoʻa o ke ʻano me nā hōʻailona, ​​a laila kapa ʻia ʻo 'Morning Glory Syndrome'.

Pehea ka maʻamau o kēia kūlana?

He maʻi laha ʻole ka Morning Glory Syndrome. Ma ka honua holoʻokoʻa, ua manaʻo ʻia e hoʻopilikia i kahi o 63,000 mau keiki ma lalo o 20 mau makahiki. ʻO kekahi mea hoihoi ʻē aʻe, ʻelua ka nui o kona maʻamau i nā kaikamahine ma mua o nā keikikāne. Ua ʻōlelo ʻia hoʻi ʻaʻole ia he mea maʻamau i nā poʻe ʻeleʻele.

He aha nā hōʻailona o kēia?

ʻAʻole e ʻike nā kānaka a pau me ka Morning Glory Syndrome (MGS) i nā hōʻailona like. Eia nō naʻe, aia kekahi mau hōʻailona maʻamau. ʻOi aku ka pālua o ka pilikia o ka maʻi i ka maka hema ma mua o ka ʻākau.

Nā hōʻailona e pili ana i ka maka:

• Ka mamaoMyopia : ʻO ke ʻano kēia, ʻoiai hiki ke ʻike maopopo ʻia nā mea kokoke, ʻike ʻia nā mea mamao he blurry.
• Nā pilikia ʻike maka maopopo: Hiki iā ʻoe ke loaʻa nā hakahaka a i ʻole nā ​​​​kiko makapō (scotomas) i kāu kahua ʻike. ʻOiai he mea maʻamau no kēlā me kēia kanaka ke loaʻa kahi kiko makapō liʻiliʻi maoli i kēlā me kēia maka, ʻoi aku paha ka nui o kēia kiko makapō ma mua o ka maʻamau i ka maka i hoʻopilikia ʻia o kahi mea me MGS.
• Strabismus: Huli kekahi a i ʻole nā ​​maka ʻelua i nā ʻaoʻao ʻokoʻa. ʻŌlelo mākou "nā maka keʻa."
• ʻO ka cornea keʻokeʻo, kālā, melemele, a keʻokeʻo hina paha (Leukocoria): ʻO ke kikowaena o ka maka, ka mea maʻamau e ʻike ʻia he ʻeleʻele, hiki ke ʻike ʻia he kala ʻokoʻa. Inā ʻike ʻoe i kēia, pono ʻoe e ʻike koke i ke kauka.

Nā hōʻailona e kū mai me nā kūlana pili ʻē aʻe:

Ma waho aʻe o kēia mau hōʻailona e pili ana i ka maka, aia kekahi mau kūlana olakino ʻē aʻe e hiki ke hana pū me ka Morning Glory Syndrome (MGS). ʻO kēia mau kūlana:

• ʻO ka Encephalocele (kahi ʻāpana o ka lolo e puka mai ana mai ke poʻo)
• ʻO ka maʻi Moyamoya (ka lahilahi o nā kīʻaha koko e hoʻolako koko i ka lolo)
• ʻO ka maʻi PHACE
• ʻO ke ʻano neurofibromatosis ʻano 2 (NF2)
• ʻO ka maʻi ʻAicardi
• ʻAno maʻi Chiari ʻano I
• ʻO ka maʻi ʻo Duane (i kekahi manawa i kapa ʻia ʻo 'Okihiro syndrome')

He mea paʻakikī paha kēia mau inoa iā ʻoe, akā inā kānalua ke kauka iā MGS, e ʻimi pū lākou i nā kūlana ʻē aʻe e like me kēia.

He aha ke kumu o kēia?

ʻO kaʻoiaʻiʻo, ʻaʻole maopopo i nā loea ke ʻano o ka ulu ʻana o ka Morning Glory Syndrome (MGS). ʻO ke kumu nui o kēia no ka mea he maʻi laha ʻole loa ia a ua wehewehe mua ʻia i ka makahiki 1969.

Eia naʻe, ʻo ka mea a nā loea i ʻike ai, ʻo ke kumu o MGS e pili ana i kekahi hoʻopilikia ʻana i ka ulu ʻana o ka maka ʻoiai ke pēpē i loko o ka ʻōpū . Ua manaʻo ʻia kēia e pili ana i nā kīʻaha koko e hoʻolako ana i ke koko i ka maka ʻaʻole e ulu pono ana, a i ʻole i nā hoʻopilikia ʻana i ka ulu ʻana o ka maka a me ke aʻalolo optic.

ʻO kekahi o nā hōʻike nui e hōʻike ana he pilikia nā kīʻaha koko, ʻo ia ka ʻelua o ka nui o ka hopena o MGS i ka maka hema. ʻO ka maʻamau, he mau puka liʻiliʻi ko kahi pēpē e ulu ana i loko o ka ʻōpū ma waena o nā ʻaoʻao hema a me ka ʻākau o ka puʻuwai. ʻO ka maʻamau, pani ʻia kēia mau mea ma mua koke a i ʻole kekahi mau lā ma hope o ka hānau ʻana.

Eia nō naʻe, inā he maʻalahi ka embryo i ka hoʻomohala ʻana i nā ʻōpū koko liʻiliʻi (microemboli), hiki i kēlā mau puka ke ʻae i kahi ʻōpū koko e hele mai ka ʻaoʻao hema o ka puʻuwai a i ka ʻaoʻao ʻākau. Mai laila mai, hiki iā ia ke hele i ka lolo. Inā he mau mea e hoʻopilikia ai i ka ulu ʻana o nā kīʻaha koko, hiki i ka ʻōpū koko ke paʻa ma laila, e ālai ana i ke kahe koko a pale i ka ulu pono ʻana o ke kino. ʻO kēia mau ʻano hanana i hōʻike mai ai he mea kōkua nā mea e hoʻopilikia ai i ka ulu ʻana o nā kīʻaha koko i ka MGS.

ʻOiai hiki ke loaʻa ka MGS me nā kūlana genetic a me nā kūlana hoʻoilina, ʻaʻole i hōʻike ʻia e ka noiʻi ʻana ua hoʻokumu pololei kēia mau kūlana i ka MGS. ʻOiai ua loaʻa nā hōʻike no kekahi mau lālā o ka ʻohana hoʻokahi e hoʻomohala ana i ka MGS, ʻaʻole ia he mea maʻamau.

He aha nā pilikia e hiki ke hana?

ʻO ka pilikia maʻamau o ka Morning Glory Syndrome (MGS) ʻo ia ka retinal detachment . Hiki i kēia kūlana ke hiki i ka 40% o ka poʻe me MGS. He pilikia olakino kēia.

ʻO nā pilikia ʻē aʻe paha:

• ʻIke haʻahaʻa: Ua emi nui ka ʻike.
• Maka palaualelo (Amblyopia): Ma muli o ka ulu pono ʻole o ka ʻike ma kekahi maka, hoʻomaka ka lolo e hoʻowahāwahā i nā hōʻailona mai kēlā maka.
• Neovascularization o ka maka: Hiki i kēia ke hoʻopilikia i ka ʻike.
• Ka hemo ʻana o ka retina (Retinoschisis) .

Pehea ʻoe e ʻike ai i kēia?

Hiki i ke kauka maka, ʻoiai he loea retina, ke ʻike i ka Morning Glory Syndrome (MGS) me ka hoʻohana ʻana i ka hui pū ʻana o nā ʻano hana, me ka nīnau ʻana e pili ana i nā hōʻailona āu a kāu keiki e ʻike nei a me nā hopena āu e ʻike nei.

E nānā pū ke kauka i kou ʻike (a i ʻole kāu keiki), e nānā pololei i ka maka i hoʻopilikia ʻia, a e kiʻi paha i nā kiʻi o ka retina. Hiki i kekahi mau scan retinal kiʻi kūikawā ke kōkua nui.

ʻO nā hoʻokolohua e hiki ke kōkua i ka hōʻoia ʻana:

• He hoʻokolohua maka: Hoʻokomo pū ʻia kēia me nā mea e like me ka hoʻāʻo ʻike maka, ka hoʻāʻo kahua ʻike maka, a me ka hoʻokolohua kukui slit.
• ʻO ka Optical Coherence Tomography (OCT): Hiki i kēia ke lawe i nā kiʻi ʻokiʻoki o loko o ka maka.
• Fluorescein Angiography: Nānā kēia i ke kūlana o nā kīʻaha koko i loko o ka maka.
• ʻIke Resonance Magnetic (MRI): Kōkua kēia i ka ʻike ʻana i nā ʻano a puni ka lolo a me nā maka.

Hiki ke ho'ōla ʻia kēia? He aha nā lāʻau lapaʻau?

ʻO ka Morning Glory Syndrome (MGS) kahi maʻi e kū mai ana i ka wā e ulu pono ʻole ai ka ʻaoʻao o loko o kou maka. ʻAʻole hiki ke hoʻoponopono a mālama ʻia paha nā loli ulu, a ʻaʻohe lāʻau lapaʻau . ʻO ia hoʻi, ʻaʻohe lāʻau lapaʻau pololei no ka Morning Glory Syndrome.

Akā, mai hopohopo. ʻOiai ʻaʻohe lāʻau lapaʻau pololei no MGS, hiki ke mālama ʻia nā hōʻailona a me nā pilikia e hoʻoulu ai .

ʻO nā pahuhopu nui o ka lāʻau lapaʻau penei:

• Ke hoʻohuli nei i kahi pilikia: No ka laʻana, inā hemo ka retina, hiki ke hoʻoponopono ʻia ma ke ʻoki ʻana.
• Ke kaupalena ʻana i ka hopena o kahi pilikia: Ke kau nei i kahi pale maka e pale ai i ka maka palaualelo mai ka lilo ʻana i mea ʻino.
• Ke pale ʻana i nā pilikia hou aʻe: Inā loaʻa kahi hemo ʻana o ka retina, he mea nui e hoʻoponopono koke iā ia e pale ai i ka hōʻino mau loa a me ka nalowale o ka ʻike.

Aia nā koho lapaʻau i kāu (mau) pilikia kikoʻī a me nā kumu ʻē aʻe he nui. Hiki i kāu kauka ke haʻi iā ʻoe i nā lāʻau lapaʻau kūpono no kou kūlana a me kā lākou e ʻōlelo nei.

He aha ke ʻano o ka wā e hiki mai ana e hiki i kekahi me kēia maʻi ke manaʻo?

Hoʻomaopopo pinepine ʻia ka Morning Glory Syndrome (MGS) i ka wā kamaliʻi. He maʻi mau loa ia no ke ola holoʻokoʻa . ʻAʻole hiki ke ho'ōla ʻia, hoʻohuli ʻia, a hoʻoponopono ʻia paha. ʻAʻole ia he mea hoʻoweliweli i ke ola, akā hiki iā ia ke hoʻopilikia nui i ka ʻike. ʻOi aku ma mua o ka hapakolu o ka poʻe me MGS e ʻike i ka retinal detachment.

Loaʻa paha i kekahi poʻe me MGS ka ʻike maka "maʻamau" (20/20) a kokoke paha i ka ʻike maka maʻamau (ma waena o 20/20 a me 20/70). Eia naʻe, ʻaʻole nui ka poʻe . ʻO ka hapa nui o ka poʻe me MGS e hāʻule i loko o ka māhele o "ʻike maka hapa" (20/70 a 20/200) a i ʻole "makapō kānāwai" (20/200 me nā hoʻoponopono e like me nā aniani).

Ma ka ʻaoʻao ʻē aʻe, pono e nānā pono ʻia ka maka o ka poʻe me MGS ma kekahi ʻaoʻao, no ka mea, ʻoi aku ka nui o ka pilikia o kēlā maka i ka loaʻa ʻana o kekahi mau pilikia. Ma muli o ka MGS ke kumu o ka ʻike kokoke (myopia), aia kahi pilikia o ka hemo ʻana o ka retina, a ʻo ka myopia kahi kumu nui o ka hemo ʻana o ka retina, inā paha aia ka MGS a ʻaʻole paha. Hiki i ka maka i hoʻopilikia ʻia ke loaʻa i ka cataracts.

Ma muli o ka ʻike ʻia ʻana o MGS i ka wā ʻōpiopio, hana pinepine ʻia nā hoʻoholo lapaʻau e nā mākua a i ʻole nā ​​kahu. He kuleana koʻikoʻi ko lākou i ka makaʻala i nā hōʻailona a i ʻole nā ​​​​ʻano e hōʻike ana he pilikia ʻike ko kahi keiki e pili ana iā MGS.

Hiki ke pale ʻia kēia?

ʻAʻole hiki ke pale ʻia ka Morning Glory Syndrome (MGS), a ʻaʻohe ala e hōʻemi ai i ka pilikia o ia hanana.

Pehea wau e mālama ai iaʻu iho/i kaʻu keiki?

Inā loaʻa iā ʻoe a i ʻole kāu keiki ʻo MGS, ʻo ka mea maikaʻi loa hiki iā ʻoe ke hana, ʻo ia ka mālama ʻana i kou ʻike e like me ka hiki iā ʻoe . Na kāu loea maka e alakaʻi iā ʻoe i ke ʻano e hana ai i kēia. He mea nui loa ia e hahai pono i kāu mau ʻōlelo aʻoaʻo lapaʻau, e hoʻohana i kāu mau aniani i kuhikuhi ʻia a i ʻole nā ​​​​lāʻau lapaʻau ʻē aʻe e like me ka mea i ʻōlelo ʻia, a e ʻike i kāu loea no nā nānā mau ʻana.

Āhea ʻoe e pono ai e ʻike koke i ke kauka?

Inā loaʻa iā ʻoe ʻo MGS, aia ʻoe i ka pilikia kiʻekiʻe o ka hoʻomohala ʻana i ka retinal detachment. He pilikia olakino kēia. No laila, he mea nui e ʻimi koke i ka lāʻau lapaʻau inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona. Hiki i ka lāʻau lapaʻau koke ke pale pinepine i ka hōʻino mau loa a hoʻihoʻi i ka ʻike ma ka maka i hoʻopilikia ʻia.

ʻO nā hōʻailona o ka wehe ʻana o ka retinal:

• Nā ʻālohilohi koke o ke kukui (Photopsia): E like me ka uila.
• Nā kiko ʻeleʻele e lana ana a i ʻole nā ​​​​mea lana e ʻike ʻia ma mua o hoʻokahi manawa: (He mea maʻamau ka ʻike ʻana i kekahi mau mea lana i mua o nā maka, akā inā e piʻi koke lākou, pono ʻoe e makaʻala).
• ʻIke pōwehiwehi: Manaʻo paha kēia me he nalu ʻeleʻele a pale paha e hele mai ana a ke ālai nei i kāu ʻike.
• ʻIke pōwehiwehi koke.

Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, ​​e hele koke i ka haukapila .

He aha nā nīnau āu e nīnau ai i ke kauka?

Hiki paha iā ʻoe ke nīnau i kāu loea maka i kēia mau nīnau:

• Pehea ke koʻikoʻi o ka MGS o kaʻu (a o kaʻu keiki paha)?
• Pehea lā e pili ai i ka ʻike o kaʻu (a i ʻole kaʻu keiki)?
• He aha nā mea e pono iaʻu e nānā inā manaʻo wau he pilikia ʻike ko kaʻu keiki e pili ana i kāna MGS?
• Aia kekahi mau kūlana olakino ʻē aʻe e hiki ke kōkua i ka MGS i loko oʻu (a i ʻole kaʻu keiki)? Pono anei au e kuhikuhi i kahi loea ʻē aʻe?

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai

Ke ʻike ʻoe ua loaʻa i kāu keiki a i ʻole kekahi āu e mālama nei ka Morning Glory Syndrome (MGS), kahi maʻi laha ʻole kahi i ulu pono ʻole ai ka retina ma ke kua o ka maka, e kaumaha a hoʻohoka paha ʻoe. ʻAʻohe lāʻau lapaʻau pololei no kēia maʻi.

Eia nō naʻe, ʻoiai ʻaʻole hiki ke ho'ōla ʻia ka MGS, hiki ke mālama ʻia nā pilikia he nui i hoʻokumu ʻia . Inā loaʻa i kāu keiki ka MGS, e kamaʻilio me kā lākou kauka maka. Aia kekahi mau mea hiki iā ʻoe ke hana e kaupalena i nā hopena o kēia ʻano a pale i ka ʻino ʻana. ʻO ka mālama ʻana i kou ʻike ka mea nui loa . Me nā holomua i ke ʻoki maka a me nā lāʻau lapaʻau ʻē aʻe i kēia lā, ʻoi aku ka hiki ma mua o ka wā ma mua. No laila, mai haʻalele i ka manaʻolana. Me ka ʻōlelo aʻoaʻo lapaʻau kūpono a me ka mālama ʻana, hiki ke mālama ʻia kēia ʻano.

`ʻO ka Morning Glory Syndrome, MGS, Nā Maʻi Maka, Retina, Nā Maʻi Maka Pediatric, Ka ʻIke ʻole ʻia, Retinal Detachment