Ua ʻike anei ʻoe i kahi pēpē nani e ʻano ʻokoʻa iki kona ʻano, me ka minoʻaka mau ma kona maka? Ua noʻonoʻo paha ʻoe, 'No ke aha i ʻokoʻa ai kēia pēpē mai nā mea ʻē aʻe?' ʻO Down Syndrome kahi maʻi e hoʻopilikia ana i nā keiki he nui. ʻO ka mea mua e hoʻomaopopo ai, ʻaʻole kēia he maʻi. He maʻi genetic ia. No laila, e hoʻopau kākou i nā manaʻo kuhihewa e pili ana i kēia a aʻo hou e pili ana i kēia mau pēpē nani a me ko lākou ao.
I ka ʻōlelo maʻalahi, he aha ka Down Syndrome?
I mea e hoʻomaopopo ai i kēia, pono mua kākou e kamaʻilio e pili ana i ka ʻāpana liʻiliʻi loa o ko kākou kino. Hana ʻia ko kākou kino e nā miliona o nā cell. I loko o kēlā me kēia o kēia mau cell, aia kahi hoʻonohonoho o nā "kuhikuhi" e kāohi ana i nā mea āpau i loko o ko kākou kino, e hoʻoholo ana i kēlā me kēia ʻano o ko kākou kino, e like me ko kākou kiʻekiʻe, ke kala o nā maka, a me ke kala o ka lauoho. Kāhea mākou i kēia mau hoʻonohonoho o nā kuhikuhi he chromosomes .
ʻO ka maʻamau, he 23 mau pālua o kēia mau chromosome i loko o kēlā me kēia cell o ke kanaka olakino, no ka huina o 46 mau chromosome. Eia nō naʻe, he kope keu o ka chromosome 21 ko ke keiki me Down syndrome ma kahi o ʻelua, akā ʻekolu. Hoʻokumu kēia chromosome keu i kekahi mau ʻokoʻa i ka ulu kino a me ka noʻonoʻo o kēia mau keiki.
ʻO ka mea nui, ʻaʻole kēia ka hewa o ka makuahine a i ʻole ka makuakāne. He loli hoʻoilina maoli kēia. No laila, ʻaʻohe kumu e hoʻāhewa ai i kekahi a kaumaha paha no kēia.
ʻOiai ua ʻike ʻia e ka noiʻi ʻana ʻo nā keiki i hānau ʻia e nā makuahine ma luna o 35 mau makahiki he nui ka loaʻa ʻana o kēia maʻi, hiki i kahi makuahine o kēlā me kēia makahiki ke loaʻa kahi keiki me Down syndrome.
He aha nā ʻano maʻamau o kēia mau keiki?
ʻAʻole like nā keiki a pau me Down syndrome. Akā, aia kekahi mau ʻano maʻamau i ʻike ʻia ma waena o lākou. ʻAʻohe mea e makaʻu ai ke ʻike ʻoe i kēia mau mea, ʻo kēia kekahi hapa o ko lākou ʻano.
| ʻAno hiʻohiʻona | Wehewehena |
|---|---|
| ʻAno helehelena | Hiki iā ʻoe ke ʻike i kahi helehelena pālahalaha iki, nā maka ʻalemona i kūlou i luna, ka ihu liʻiliʻi, a me nā pepeiao liʻiliʻi. I kekahi manawa e puka iki mai ke alelo mai ka waha. |
| Nā ʻano kino | He kino pōkole ko lākou a he ʻāʻī pōkole. He nui ka poʻe he laina hohonu hoʻokahi (Simian Crease) e holo ana ma ka pālima. Hiki ke ʻike ʻia ke kino he palupalu iki ma muli o ke kani haʻahaʻa o nā ʻiʻo. |
| Ka ulu ʻana a me ka hoʻomohala ʻana | Hiki paha iā lākou ke lōʻihi iki aʻe e hōʻea i nā pae holomua kino a me ka noʻonoʻo ma mua o nā keiki ʻē aʻe. Eia kekahi laʻana, hiki paha iā lākou ke lohi iki i ka noho ʻana i luna, ka hele wāwae ʻana, a me ka hoʻomaka ʻana e kamaʻilio. |
| ʻAno pilikino | ʻO kēia ka mea kūikawā loa. He nui nā keiki me Down syndrome he poʻe aloha, launa pū, a hauʻoli hoʻi. He mea laha loa kā lākou ʻakaʻaka. |
E makaʻala hoʻi kākou i nā pilikia olakino e hele mai me Down syndrome.
ʻOi aku ka nui o ka pilikia o kēia mau keiki i ka loaʻa ʻana o kekahi mau pilikia olakino ma mua o nā poʻe ʻē aʻe. Eia naʻe, ʻaʻole e loaʻa i nā kānaka a pau kēia mau kūlana āpau. ʻO ka mea nui loa, ʻo ia ka makaʻala i kēia, e mālama mau i ka launa pū ʻana me ke kauka o kāu keiki, a e loaʻa i nā hoʻokolohua lapaʻau a me ka lāʻau lapaʻau e pono ai i ka manawa kūpono.
- Nā Kīnā Puʻuwai Hānau: Kokoke i ka hapalua o nā keiki me Down syndrome kekahi ʻano kīnā puʻuwai hānau. Hiki ke mālama pono ʻia ka hapa nui o kēia mau mea me ke ʻoki kino.
- Nā pilikia hoʻoheheʻe: Loaʻa paha i kekahi mau keiki kekahi mau pilikia me kā lākou ʻōnaehana hoʻoheheʻe.
- Nā pilikia lohe a me ka ʻike: Aia kahi hiki ke loaʻa ka ʻike a me ka hemahema o ka lohe. No laila, he mea nui e nānā pinepine ʻia.
- Nā pilikia thyroid: Aia kahi pilikia o ka hypothyroidism, kahi kūlana i hana ʻole ai ka metabolism o ke kino.
- ʻApnea hiamoe: ʻO ia ke ʻano e kū ai ka hanu no kekahi manawa i ka wā hiamoe.
- Nā maʻi pinepine: Ma muli o kekahi mau nāwaliwali o ka ʻōnaehana pale kino, hiki ke loaʻa pinepine nā mea e like me ke anu a me nā maʻi pepeiao.
Mai hopohopo ke ʻike ʻoe i kēia mau mea. He mau lāʻau lapaʻau maikaʻi loa no kēia mau mea a pau i ka ʻepekema lapaʻau holomua o kēia wā. ʻO ka mea wale nō e pono ai, ʻo ia ka nānā ʻana o nā mākua a me nā kahu a me ke alakaʻi lapaʻau kūpono.
Pehea lā e hiki ai iā kākou ke kākoʻo i kēia mau keiki?
ʻO kēia ka ʻāpana koʻikoʻi loa. Nui nā mea hiki iā kākou ke hana e kōkua i kahi keiki me Down syndrome e ola i kahi ola holomua a hauʻoli hoʻi.
1. Ke komo mua ʻana
ʻO ke ʻano kēia o ke kōkua ʻana i ke keiki e ulu i ka wā ʻōpiopio. Ma muli o nā pono o ke keiki,
- Hoʻōla Kino: Hoʻoikaika i nā ʻiʻo a kōkua iā ʻoe e hele, holo, a lele.
- Lapaʻau ʻŌlelo: Kōkua iā ʻoe e ʻōlelo akāka a hoʻokaʻaʻike i nā manaʻo.
- ʻO ka Lapaʻau Hana: Ke aʻo aku nei iā ʻoe pehea e hana ai i nā hana o kēlā me kēia lā e like me ka ʻai ʻana a me ke kāhiko ʻana iā ʻoe iho.
Ma o kēia mau mea, hiki iā ʻoe ke hoʻonui i ka hiki o kāu keiki. E nīnau i kāu kauka e pili ana i ke ʻimi ʻana i ke kōkua o nā mea hoʻōla kūpono no kēia.
2. Ka hoʻonaʻauao a me nā manawa kūpono like
He wahaheʻe loa ia ʻaʻole hiki i nā keiki me Down syndrome ke aʻo. Aʻo lākou ma ko lākou wikiwiki ponoʻī. ʻO ka hoʻonaʻauao hoʻokomo, ka mea e hiki ai iā lākou ke aʻo ma nā kula maʻamau me nā keiki ʻē aʻe, kōkua iā lākou e hoʻomohala i kā lākou mau mākau pilikanaka. Hiki i ka poʻe he nui ke heluhelu, kākau, a paʻa i nā hana maʻamau.
3. Aloha, ʻae a me ka hoʻoikaika
ʻAʻole pono kēia mau keiki i ko kākou aloha. Pono lākou i ke aloha, ke ahonui, ka ʻae ʻia, a me ka hoʻoikaika. E hoʻolauleʻa i ko lākou mau lanakila liʻiliʻi. Inā lōʻihi ka manawa e hana ai i kekahi mea, e ahonui a e ʻae iā lākou e hana. Pono kākou ma ke ʻano he kaiāulu e aʻo e aloha iā lākou me ko lākou ʻokoʻa, ʻaʻole e ʻakaʻaka iā lākou.
E noʻonoʻo ʻoe aia kekahi keiki me Down syndrome ma kou kaiāulu. Mai hoʻokaʻawale iā ia, e hui pū me ia i ka pāʻani ʻana me kāu keiki. E lilo i kumu no ka ikaika noʻonoʻo i nā mākua o kēlā keiki. Hiki i kā mākou hoʻololi liʻiliʻi ke lilo i ikaika nui i kēlā ʻohana.
I kēia lā, mahalo i ka mālama olakino maikaʻi a me ke kākoʻo kaiāulu, ua piʻi ka awelika o ke ola o ka poʻe me Down syndrome i 55-60 mau makahiki. Noho kūʻokoʻa ka nui o lākou.
Leka Lawe-Home
- ʻAʻole he maʻi ka Down Syndrome. He ʻano hoʻoilina ia e kū wale ana a ʻaʻole i hana ʻia e ka hewa o kekahi.
- ʻOiai ua lohi iki ka ulu ʻana o ke kino a me ka noʻonoʻo o kēia mau keiki, loaʻa iā lākou ka hiki piha e aʻo, e hoʻomohala i ko lākou mau talena, a e noho hauʻoli.
- ʻAʻole lākou makemake i ke aloha, akā, i ke aloha, ka ʻae ʻia, ke ahonui, a me nā manawa kūpono like e like me nā poʻe ʻē aʻe o ke kaiāulu.
- Inā loaʻa i kāu keiki ka Down syndrome, mai manaʻo hoʻokahi. E kamaʻilio mau me kāu kauka a e loaʻa ke kākoʻo lapaʻau a me ke alakaʻi e pono ai.
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo