Ke nalowale koke nei nā lālā o kāu keiki? Pono anei mākou e makaʻala i kēia AFM (Acute Flaccid Myelitis)?

E noʻonoʻo, ua pāʻani kāu keiki kolohe mai ke kakahiaka mai, a i ke ahiahi ua ʻōlelo koke ʻo ia, 'E Māmā/Pāpā, ʻaʻole hiki iaʻu ke hāpai i koʻu lima', a i ka wā e hele ana, ua mae koke kona wāwae a huki iā ia i ka honua. Hiki iā ʻoe ke noʻonoʻo i ke ʻano o ia manawa? I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi neurological kakaʻikahi akā koʻikoʻi loa e hiki koke ai a me ka ʻole o ka ʻōlelo aʻo mua ke hoʻolilo i nā lālā o kā mākou mau keiki, a i kekahi manawa nā pākeke, i mae. Ua kapa ʻia kēia ʻo AFM (Acute Flaccid Myelitis) . He mea hou paha kēia iā ʻoe ke lohe ʻoe i kēia. No laila e kamaʻilio kākou e pili ana i nā kikoʻī.

He aha kēia maʻi hou, ʻo AFM (Acute Flaccid Myelitis)?

I ka ʻōlelo maʻalahi, ʻo ka AFM (Acute Flaccid Myelitis) he maʻi neurological kakaʻikahi akā koʻikoʻi loa. ʻO ka mea e hana ʻia ma kēia, ʻo ia ka nāwaliwali koke ʻana o kekahi o ko mākou mau ʻiʻo a me nā reflexes. I ka pololei, lilo lākou i 'flaccid' , ʻo ia hoʻi, lilo lākou i mea ola ʻole. Hiki ke ʻike koke ʻia kēia mau hōʻailona, ​​a i kekahi manawa hiki ke hoʻopilikia i ka hiki ke hanu. ʻO ia ke kumu he mea weliweli loa ia.

Ua ʻike anei ʻoe ua like ko kākou iwi kuamoʻo me ke kikowaena kamaʻilio nui o ko kākou kino? He ʻelua ona ʻāpana, ʻo kekahi ka 'hina hina' a ʻo kekahi ka 'keʻokeʻo keʻokeʻo'. Ma kēia kūlana i kapa ʻia ʻo AFM, ʻo ka hina hina ka mea nui e hoʻopilikia ʻia. ʻO kēia hina hina kahi e loaʻa ai nā hunaola aʻalolo e hoʻomalu i nā neʻe ʻana o kā kākou mau ʻiʻo. No laila e noʻonoʻo i ka mea e hana ʻia ke loaʻa kahi mea e like me ka mumū, ʻo ia hoʻi, ka pehu ʻana, ma kahi koʻikoʻi? ʻO ia ka manawa ʻaʻole loaʻa i nā ʻiʻo nā leka kūpono, a lilo koke lākou i nāwaliwali a make. ʻO ka ʻoiaʻiʻo, ʻo ko kākou ʻōnaehana nerve waena , ʻo ia hoʻi kēia hina hina i loko o ka lolo a me ke iwi kuamoʻo, ʻo ia ka ʻāpana koʻikoʻi loa no kā mākou hana maʻamau.

He mea hou kēia maʻi ʻike, ʻo AFM. Ua wehewehe mua nā kauka a me nā mea noiʻi iā ia i ka makahiki 2014. Ma mua o kēlā, ua hoʻokaʻawale ʻia ka poʻe i hōʻike i nā hōʻailona e like me kēia me he maʻi neurological ʻē aʻe i kapa ʻia ʻo "Transverse Myelitis."

Ua like anei ʻo AFM me ka Guillain-Barré Syndrome (GBS) a ka poʻe he nui i kamaʻāina ai? He ʻokoʻa anei?

ʻAe, he nīnau koʻikoʻi kēia. ʻO ka AFM a me ka Guillain-Barré Syndrome (GBS) he mau maʻi neurological kakaʻikahi e hoʻonāwaliwali ana i nā ʻiʻo. Akā, aia nā ʻokoʻa maopopo ma waena o nā mea ʻelua.

I loko o GBS , ʻo kā mākou ʻōnaehana pale ponoʻī, ka ʻōnaehana e pale aku iā mākou mai ka maʻi, e hoʻouka hewa ana i kā mākou mau aʻalolo peripheral ponoʻī. ʻO kēia mau aʻalolo peripheral nā aʻalolo e hele ana mai kā mākou ʻōnaehana nerve waena i ko mākou mau lālā a me nā ʻōpū ʻē aʻe. Ua kapa ʻia kēia he pane autoimmune . Akā i loko o AFM, hoʻopilikia pololei ia i ka mea hina i loko o ke kaula spinal.

ʻO kekahi ʻokoʻa ʻē aʻe, ʻo ia ka maʻamau i ka GBS, hoʻomaka ka nāwaliwali o nā ʻiʻo ma nā wāwae a laila laha i ke kino o luna. I ka AFM, hiki ke hoʻomaka ka nāwaliwali o nā ʻiʻo ma nā lima a i ʻole nā ​​wāwae. I kekahi manawa, hiki ke hoʻopilikia i hoʻokahi lima a wāwae paha ma kekahi ʻaoʻao.

ʻO ka mea nui, hoʻopilikia pinepine ka AFM i nā keiki ʻōpio , ʻoiai ka poʻe ma waena o 1 a me 7 mau makahiki. ʻO ka GBS ka mea maʻamau i nā pākeke ma luna o 40 mau makahiki. No laila he mea nui e hoʻomanaʻo i kēia mau ʻokoʻa.

ʻO wai ka mea e kūpono loa e hoʻomohala i ka AFM?

E like me kaʻu i ʻōlelo ai ma mua, ma kahi o 90% o nā maʻi AFM he mau keiki ʻōpio . Hoʻopilikia nui ia i nā keiki ma waena o hoʻokahi a me ʻehiku mau makahiki. Eia naʻe, ʻaʻole ia he manaʻo ʻaʻole hiki i nā pākeke ke loaʻa. ʻOiai he mea kakaikahi loa, hiki i nā pākeke ke loaʻa pū kekahi AFM. No laila, he mea maikaʻi i nā mea a pau ke makaʻala i nā hōʻailona.

Pehea ka maʻamau o kēia? Pehea ke kūlana ma Sri Lanka?

He maʻi laha ʻole ka AFM. No ka laʻana, ua manaʻo nā kānaka noiʻi ma ʻAmelika Hui Pū ʻIa he emi ma mua o hoʻokahi i loko o hoʻokahi miliona mau kānaka e loaʻa i ka AFM i kēlā me kēia makahiki. Eia nō naʻe, ʻoiai kona laha ʻole, ua piʻi iki ka nui o nā hihia AFM i hōʻike ʻia i kēia manawa.

ʻO ka maʻamau, hōʻike pinepine ʻia kēia maʻi ma nā hui ma kekahi mau wahi honua. Eia kekahi, ua ʻike ʻia kekahi ʻano kau, ʻoiai he ʻano biennial. No ka laʻana, ua hōʻike ʻia kēlā mau hui o nā maʻi ma Kaleponi i ka makahiki 2012 a ma Colorado i ka makahiki 2014. Inā mākou e kamaʻilio e pili ana i ke kūlana ma Sri Lanka, ʻoiai he mea kakaikahi loa kēia, aia nō ka nele o ka ʻikepili maopopo e pili ana i nā hōʻike ma ko mākou ʻāina. Eia nō naʻe, inā e piʻi aʻe kekahi mea e like me kēia ma kekahi wahi o ka honua, he mea nui iā mākou ke makaʻala iā ia.

He aha nā hōʻailona o ka AFM? Pehea e ʻike ʻia ai?

ʻIke pinepine ʻia nā hōʻailona o ka AFM me ka koke . Hiki iā lākou ke lilo i mea koʻikoʻi i loko o kekahi mau lā, i kekahi manawa he mau hola. ʻO nā hōʻailona nui:

• Ka nalowale koke ʻana o ka ʻike ma nā lima a i ʻole nā ​​wāwae: ʻO kēia ka hōʻailona koʻikoʻi a weliweli loa. Hiki ke lilo i hoʻokahi lima a wāwae paha, a i ʻole nā ​​​​lima ʻelua a i ʻole nā ​​​​wāwae ʻelua.
• Nalowale loa ke kani o nā ʻiʻo i ka pā ʻana.
• Nalowale o nā reflexes / areflexia: Hoʻopā nā kauka i ke kuli me ka hāmare liʻiliʻi, a nalowale kēlā mau reflexes.
• Ka nalowale o ka hoʻonohonoho ʻana a me ke kaulike: Manaʻo ʻoe ua kūpaʻa ʻole ʻoe i ka wā e hele ana a ʻaʻole hiki ke hoʻomalu pono i kou kino.

ʻO kēia nā hōʻailona nui i ʻike ʻia. Ma waho aʻe o kēia, hiki ke ʻike ʻia nā hōʻailona ʻē aʻe:

• Ka paʻakikī i ka hoʻoneʻe ʻana i nā maka a i ʻole nā ​​lihilihi e kulou ana.
• Ke kulou ʻana o kekahi ʻaoʻao o ka maka a i ʻole ka nāwaliwali o nā ʻiʻo o ka maka.
• Ka paʻakikī i ke ale ʻana (dysphagia).
• ʻŌlelo ʻūlū.
• ʻEha ma nā lima, nā wāwae, ka ʻāʻī, a i ʻole ke kua.
• Ka nalowale o ke kaohi ma luna o ka mimi a me ka luaʻi.

Hiki i ka AFM ke hoʻopilikia i kekahi o kou mau lima, nā wāwae, a i ʻole nā ​​​​lālā ʻehā. Eia nō naʻe, ʻo ka hapa nui o ia mea e hoʻopilikia ai i nā lālā o luna , ʻo ia hoʻi nā lima.

Paʻakikī ka hanu ʻana - he mea weliweli loa kēia!

I kekahi manawa, hiki i ka AFM ke hoʻopilikia i nā ʻiʻo e pono ai no ko kākou hanu ʻana . Inā hana ʻia kēia, hiki iā ia ke alakaʻi i kahi kūlana weliweli loa i kapa ʻia ʻo ka hāʻule ʻana o ka hanu . He mea hoʻoweliweli kēia i ke ola, no laila pono koke ke kōkua lapaʻau .

ʻO nā hōʻailona o ka lawa ʻole o ka hanu:

• Ka hanu wikiwiki a pāpaʻu.
• Ka luhi nui a me ka hiamoe.
• Hoʻomaha ʻole.

Inā loaʻa iā ʻoe a i ʻole kāu keiki kekahi mau hōʻailona o AFM, e ʻimi koke i ke kōkua lapaʻau. Mai kali, no ka mea, hiki i kēia ke lilo koke i mea koʻikoʻi.

No ke aha e hana ʻia ai kēia AFM? He aha ke kumu?

ʻAʻole maopopo loa i nā kānaka noiʻi ke kumu o ka AFM. Eia nō naʻe, manaʻoʻiʻo lākou he pili nā virus , ʻoiai nā enterovirus non-polio . He nui ka poʻe i loaʻa i ka AFM i kahi maʻi hanu iki, e like me ke anu maʻamau a i ʻole ka maʻi flu, ma mua o ka loaʻa ʻana o nā hōʻailona.

Ua ʻike nā kānaka noiʻi a me nā kauka i ʻelua ʻano o nā maʻi, ʻo Enterovirus D68 a me Enterovirus A71, i loko o nā poʻe maʻi AFM he nui. ʻO ka maʻamau, ʻo Enterovirus D68 ke kumu o nā maʻi hanu a ua ʻike ʻia e laha ma kahi o kēlā me kēia ʻelua makahiki i ke kauwela a me ka hāʻule ma nā ʻāina e like me ʻAmelika Hui Pū ʻIa.

Pehea e ʻike pololei ai i ka AFM? (Diagnosis)

Hiki i nā kauka ke paʻakikī i ka ʻike ʻana i ka AFM no ka mea he maʻi laha ʻole ia a ua like kona mau hōʻailona me nā maʻi neurological ʻē aʻe e like me Transverse Myelitis, Guillain-Barré Syndrome (GBS), a me Polio .

E nīnau aku kāu kauka iā ʻoe e pili ana i kou mau hōʻailona a me kou mōʻaukala olakino. A laila e kauoha paha lākou a hana paha i kekahi mau hoʻokolohua e hōʻoia i ka AFM a kāpae i nā kūlana ʻē aʻe. ʻO kēia mau hoʻokolohua:

• Hoʻokolohua kino.
• Hoʻokolohua neurological.
• MRI (Magnetic Resonance Imaging) o ka iwi kuamoʻo a me ka lolo: ʻO kēia ka hoʻāʻo koʻikoʻi loa e hōʻoia i ka AFM. Hiki iā ia ke nānā i nā loli (e like me ka mumū) i loko o ka mea hina o ke kaula kuamoʻo.
• ʻO ke kī ʻana o ka iwi kuamoʻo/Lumbar Puncture: Pili kēia i ka lawe ʻana i kahi hāpana o ka wai o ka lolo spinal (CSF) a nānā iā ia no nā hōʻailona o ka mumū.
• Nā hoʻokolohua pane aʻalolo:Eia kekahi laʻana `(Nā haʻawina hoʻoili aʻalolo)`.
• Nā hoʻokolohua pane ʻiʻo: No ka laʻana, Electromyography (EMG).

Hoʻoholo ke kauka ma hope o ka hana ʻana i kēia mau hoʻokolohua a pau.

He aha nā lāʻau lapaʻau no AFM? Hiki ke ho'ōla ʻia?

ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau no ka AFM i kēia manawa . No laila, ʻo ka pahuhopu nui o ka mālama ʻana, ʻo ia ka mālama ʻana i nā hōʻailona a kōkua iā ʻoe e hoʻōla i ka hiki. Inā hiki, ʻoi aku ka maikaʻi o ke ʻike ʻana i kahi neurologist i loaʻa ka ʻike me ka AFM a noiʻi iā ia.

He mea nui ka hoʻōla kino a me ka hoʻōla hana no ka nāwaliwali o nā lālā. Kōkua kēia i ka hoʻoikaika ʻana i nā ʻiʻo a me ka hoʻomaikaʻi ʻana i ka neʻe ʻana. Paipai pinepine nā neurologists i nā lāʻau lapaʻau ʻē aʻe e pili ana i nā pono o kēlā me kēia mea maʻi. No ka laʻana, ua holomua ke ʻoki ʻana i ke aʻalolo peripheral, ka mea e pale ai i ka nalowale ʻana o nā ʻiʻo, i kekahi mau maʻi AFM.

Ma muli o ka AFM he maʻi laha ʻole a he mea hou ia, nui nā mea e pono ai i nā kānaka ʻepekema a me nā kauka ke aʻo e pili ana i ka maʻi a me kāna mau lāʻau lapaʻau. No laila, ke hoʻomau nei ka noiʻi.

Aia kekahi ala e pale aku ai i ka ulu ʻana o AFM?

ʻOiai ʻaʻole ʻike ʻia ke kumu kikoʻī o AFM, ʻaʻohe ala kikoʻī e pale aku ai .

Eia nō naʻe, ʻoiai ua manaʻo ʻia he nui nā virus, me nā enterovirus, e pili ana me AFM, hiki iā mākou ke hōʻemi i ka pilikia i kekahi ʻano ma o ka hana ʻana i nā hana e pale aku iā mākou iho mai nā maʻi viral. ʻO kēia mau mea:

• E holoi mau i kou mau lima me ke kopa a me ka wai. ʻOi aku hoʻi ma mua a ma hope o ka ʻai ʻana, ma hope o ka hoʻohana ʻana i ka lua, ma hope o ka hoʻopā ʻana i kahi holoholona, ​​a ma hope o ka mālama ʻana i kahi mea maʻi.
• Mai hoʻopā i kou maka me nā lima holoi ʻole ʻia.
• E pale i ka launa pū ʻana me ka poʻe maʻi.
• E kiʻi i nā lāʻau pale āpau i ʻōlelo ʻia i ka manawa kūpono.
• E hoʻomaʻemaʻe i nā ʻili i hoʻopā pinepine ʻia (e like me nā pākaukau, nā ʻūpā puka) a hoʻohana i ka disinfectant.

ʻO ka hahai ʻana i kēia mau hana olakino maʻalahi e kōkua iā ʻoe e pale iā ʻoe mai nā maʻi he nui.

He aha ka wā e hiki mai ana inā hoʻomohala ʻoe i ka AFM? (Prognosis)

Ma muli o ka maʻi hou i ʻike ʻia ʻo AFM, ʻaʻole maopopo i nā kānaka noiʻi ke ʻano o ka wānana lōʻihi no ka poʻe i loaʻa i ka maʻi.

Eia nō naʻe, nui nā maʻi e holomua mālie i ka hala ʻana o ka manawa me ka hoʻomau ʻana o ka mālama ʻana, e like me ka hoʻōla kino . ʻAʻole i hiki i ka 10% o nā maʻi AFM ke ho'ōla piha. Eia nō naʻe, nui ka poʻe e hōʻike i ka holomua, no laila ʻaʻole ia he manaʻo maikaʻi e haʻalele i ka manaʻolana.

He aha nā pilikia ʻē aʻe e hiki ke hana ma muli o AFM?

E like me kaʻu i ʻōlelo ai ma mua, hiki i ka AFM ke hoʻopilikia i nā ʻiʻo e pono ai no ka hanu ʻana. Hiki i kēia ke alakaʻi i ka hāʻule ʻana o ka hanu , kahi kūlana e pono ai ka mālama olakino ulia pōpilikia. Pono paha ka poʻe me ka hāʻule ʻana o ka hanu i nā mīkini ('ventilators') e kōkua iā lākou e hanu. Ma kahi o ka hapakolu o ka poʻe me AFM e pono ai ka intubation a me ka mechanical ventilation .

Eia kekahi, hiki i ka AFM ke hoʻoulu i nā pilikia neurological koʻikoʻi, e like me nā loli o ka mahana o ke kino, ka paʻa ʻole o ke koko, a me nā hewa o ka helu o ka puʻuwai. Hiki i kēia mau mea ke hoʻoweliweli i ke ola.

No laila, he mea nui e ʻimi koke i ke kōkua lapaʻau inā ʻike ʻoe a kāu keiki paha i kēia mau hōʻailona.

Āhea ʻoe e ʻike ai i ke kauka?

Inā loaʻa koke iā ʻoe a i ʻole kāu keiki ka nāwaliwali o nā ʻiʻo ma kekahi lima, hoʻokahi wāwae, a i ʻole kekahi mau lālā , e ʻimi koke i ke kōkua lapaʻau . He maʻi ka AFM e hiki ke holomua koke a alakaʻi i ka paʻakikī o ka hanu ʻana. No laila he mea nui e hana koke, ʻaʻole e hopohopo.

Inā ʻike ʻia ʻoe a i ʻole kāu keiki me AFM, pono ʻoe e ʻike i kāu hui lapaʻau i nā manawa a pau e loaʻa ai ka lāʻau lapaʻau, e like me ka hoʻoikaika kino, a nānā i kāu mau hōʻailona.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

ʻAe, no laila ke lana nei koʻu manaʻo mai kā mākou i kūkākūkā ai, ua loaʻa iā ʻoe kekahi ʻike o AFM (Acute Flaccid Myelitis). E hoʻomanaʻo, ʻoiai he maʻi laha ʻole kēia, he mea nui loa ia e makaʻala i ia mea.

• ʻAʻole ia he mea e lawe māmā ʻia ai ka nāwaliwali koke o nā ʻiʻo , ʻoiai hoʻi i nā keiki ʻōpio. I ia mau hihia, e ʻike koke i ke kauka.
• ʻOiai ʻaʻohe lāʻau lapaʻau kūikawā no AFM, aia nā lāʻau lapaʻau e hoʻokele i nā hōʻailona a hoʻomaikaʻi i ke ʻano o ke ola . He mea nui loa nā mea e like me ka hoʻōla kino.
• Ke aʻo nei nā kānaka noiʻi a me nā kauka e pili ana i ka AFM, no laila ʻoi aku ka maikaʻi o ka hilinaʻi ʻana i nā ʻōlelo aʻoaʻo a kāu kauka a hahai i kā lākou mau ʻōlelo aʻoaʻo lapaʻau .

E mālama kākou a pau i ke olakino o kā kākou mau keiki a me ko kākou olakino ponoʻī. ʻO ka ʻike ʻana i nā maʻi laha ʻole e like me kēia e hiki ai iā kākou ke hana wikiwiki i ka wā e pono ai.

ʻAFM , Myelitis Flaccid ʻĀkiu, Nāwaliwali o nā ʻIʻo, Nā Maʻi Neurological, Nā Maʻi o nā Keiki, Spinal Cord, Viruses, Enteroviruses, ʻEha Hanu, Paralysis