Aloha nui kākou a pau i kā kākou mau keiki. Pehea ka nui o ko kākou makaʻu i kahi anu liʻiliʻi mai iā lākou? E noʻonoʻo inā haʻi mai ke kauka iā kākou he maʻi ko kāu keiki e like me ke kanesa he paʻakikī ke ho'ōla ... ʻaʻohe o kākou makemake e lohe i kēlā. Akā i kekahi manawa i ke ola, pono kākou e kū i nā ʻoiaʻiʻo paʻakikī. I kēia lā, ke kamaʻilio nei kākou e pili ana i kahi kumuhana paʻakikī ke hoʻoholo i ko kākou manaʻo, akā pono kākou e kamaʻilio e pili ana. ʻO ia hoʻi, pehea lā e hiki ai iā kākou ke hoʻolilo i ke koena o ke ola o kahi keiki e ʻeha nei i kahi maʻi hiki ʻole ke hoʻōla ʻia i mea ʻeha ʻole a ʻoluʻolu hoʻi.
ʻO kēia moʻolelo e pili ana i kahi keikikāne ʻōpio i kapa ʻia ʻo Gabriel. Ua hoʻohana ʻo ia i ke kauwela hope loa o kona ola e like me nā keikikāne ʻōpio ʻē aʻe. Ua launa pū ʻo ia me kāna mau hoaaloha, hele i kahi hoʻomoana, a hoʻoweliweli i kona mau mākua ma ka hana ʻana i nā mea e like me ka lele ʻana i ka lewa. A laila, ma hope o kēlā makahiki, ua pepehi ʻo ia i kona ola ponoʻī.
ʻAʻole he mea kupanaha ka make ʻana o Gabriel. Ua hakakā ʻo ia me ka make i ke kauwela holoʻokoʻa. Ma hope o ka ʻike ʻia ʻana he leukemia lymphocytic acute i ka makahiki 7, ua hana ʻo Gabriel i ʻelua mau puni o ka chemotherapy a me ka radiation therapy i kona wā he 15. Akā, ʻaʻohe o ia mau mea i lawa e kāohi i ke kanesa. I kekahi mau mahina ma hope mai, ua hoʻi hou mai ke kanesa.
Ua hana ʻia kahi hoʻoili iwi iwi ma ke ʻano he koho hope loa. Akā i ka wā i hāʻule ʻole ai kēlā a hoʻi mai ke kanesa, ua nalowale nā manaʻolana āpau no ka ho'ōla piha ʻana. I loko o kahi au o ka ʻepekema lapaʻau holomua kahi e hiki ai ke ho'ōla ʻia ʻekolu o nā keiki ʻehā me ke kanesa, hoʻokahi pahuhopu ʻeha akā haʻahaʻa ko nā kauka a me nā mākua o Gabriel.
"ʻAʻole lākou e hoʻāʻo nei e ho'ōla i ka maʻi. Ke hoʻāʻo nei lākou e kāohi iā ia a kōkua iā ia e ola i ke ola maikaʻi loa." - Makuakāne o Gabriel.
Akā, ua ola ʻo Gabriel i ka lōʻihi a me ka hauʻoli ma mua o ka mea i manaʻo ʻia. No ʻelima mahina, ua holo jet-ski ʻo ia, lele mai ka lewa mai, a pāʻani me kāna ʻīlio. I ka hopena, ua hiki ʻole i kāna ʻōnaehana pale maʻi nāwaliwali ke pale aku i kahi maʻi fungal koʻikoʻi.
He aha ka Mālama Palliative?
Ua lawe mai nā hanana e like me kā Gabriel i ka manaʻo o ka honua i ke koʻikoʻi o ka mālama palliative no nā keiki. I ka ʻōlelo maʻalahi, ʻo ka mālama palliative ka mālama ʻana a me ka mālama i hāʻawi ʻia e hōʻemi i ka ʻeha a me ka ʻeha o kekahi me ka maʻi make a hoʻomaikaʻi i ko lākou ola .
ʻAʻole kēia e pili ana i ka hoʻāʻo ʻana e hoʻōla i ka maʻi. Akā, e pili ana i ka kaohi ʻana i nā hōʻailona i hoʻokumu ʻia e ka maʻi (e like me ka ʻeha, ka paʻakikī o ka hanu ʻana, ka luaʻi), ka hāʻawi ʻana i ka hōʻoluʻolu naʻau i ke keiki, a me ke kōkua ʻana iā lākou e hoʻolilo i ke koena o ka manawa me ka ʻoluʻolu a me ka hauʻoli e like me ka hiki.
ʻO ka mea nui loa: ʻAʻole pili ka mālama palliative i ka "haʻalele ʻana i ka manaʻolana." E pili ana ia i ka hoʻohui ʻana i ka waiwai a me ka hōʻoluʻolu i nā lā i koe o ke ola o kahi keiki.
No ke aha lā he mea paʻakikī ke kamaʻilio e pili ana i kēia?
I ka manawa pinepine, he mea paʻakikī i nā kauka a me nā mākua ke noʻonoʻo e pili ana i ka mālama palliative . ʻO ke kumu nui o kēia, ʻo ia ka manaʻo hewa "ʻo ka hele ʻana i ka mālama palliative ʻo ia hoʻi ua haʻalele mākou i ke kaua."
Ua ʻike ʻia ma ka noiʻi ua ʻike nā kauka i ka ʻoiaʻiʻo "ʻaʻole hiki ke ho'ōla ʻia kēia keiki" ma kahi o ʻekolu mahina ma mua o nā mākua. Akā, he mea paʻakikī loa ke haʻi aku i nā mākua i kēlā, e hoʻomākaukau iā lākou no ia mea. No ka mea, aia ka manaʻolana o nā kānaka a pau no ka lāʻau lapaʻau i loko o ko lākou mau naʻau.
I kēia lā, hiki ke ho'ōla ʻia he 75% o nā keiki me ke kanesa. He hoʻokō nui kēlā. Ma muli o kēia, ua kau nui nā kauka i ka mālama ʻana i ka maʻi . No laila, ʻaʻole i nui ka nānā ʻana i ka mea e hana ai i nā hihia kahi hiki ʻole ke ho'ōla ʻia.
Akā ʻo ka ʻoiaʻiʻo, ʻeha nui nā keiki e make ana i ka maʻi kanesa i nā mahina hope loa o ko lākou ola mai nā hōʻailona koʻikoʻi e like me ka ʻeha nui, ka pōkole o ka hanu , ka luhi nui, a me ka nausea . Hiki ke hoʻomalu nui ʻia kēia mau mea me ka mālama palliative.
He aha ka mea e hana maoli ʻia ana i ka mālama palliative?
ʻAʻole hoʻokahi wale nō ka mālama palliative. He ʻano ākea ia e hoʻohui i nā mea like ʻole. ʻO ka mea e hana nei ma ʻaneʻi, ʻo ia ka hāʻawi ʻana i ka hōʻoluʻolu i ke keiki, ma ke kino a me ka noʻonoʻo.
| ʻAno mālama | Nā laʻana a me nā wehewehena |
|---|---|
| Kaohi ʻeha | Ke hāʻawi nei i nā lāʻau ʻeha ikaika e like me ka morphine a i ʻole fentanyl. Ke hāʻawi nei i nā lāʻau antidepressants haʻahaʻa no ka ʻeha o nā ʻiʻo a me nā hono. |
| Ke kāohi nei i nā hōʻailona ʻē aʻe | Ke hāʻawi nei i ka oxygen no nā pilikia hanu, nā lāʻau lapaʻau no ka nausea a me ka luaʻi, a me nā ʻōlelo aʻoaʻo meaʻai no ka luhi nui a me ka anemia. |
| Lapaʻau ma ka home | I kekahi manawa, ma kahi o ka chemotherapy i hāʻawi ʻia ma ke ʻano intravenous, hāʻawi ʻia nā pila e hiki ke lawe ʻia ma ka home. Hiki i kēia mau mea ke kōkua i ka kaohi ʻana i ke kanesa me ka hōʻemi ʻana i nā hopena ʻaoʻao. Aia kekahi mau lawelawe e hele mai i kou home (mālama hospice) hiki ke kōkua me nā mea e like me ka hāʻawi koko. |
| Kākoʻo noʻonoʻo | Ke aʻo ʻana i ke keiki a me nā mākua. Ke hoʻohana nei i nā ʻano hana e like me ka heluhelu ʻana i kahi puke, ka hypnosis, a i ʻole nā kiʻi i alakaʻi ʻia e hoʻohuli i ke keiki i ka wā o nā hoʻokolohua ʻeha. |
Kākoʻo no nā mākua
He manawa paʻakikī loa kēia no ke keiki a me nā mākua. ʻAʻole maʻalahi ke ʻae ʻana "ʻaʻole hiki ke ho'ōla ʻia kāu keiki." Hiki i nā limahana psychosocial ke kōkua i nā mākua e ʻae i kēia ʻoiaʻiʻo ʻino. Ua hōʻoia ʻia e ka noiʻi ʻoi aku ka maopopo o nā mākua i ka ʻoiaʻiʻo ke kamaʻilio lākou me ia mau kākāʻōlelo ma mua o ke kamaʻilio wale ʻana me nā kauka.
Ma ka moʻolelo a Gabriel, i loko o kāna mau pule ʻelua hope loa, ua hele mai kekahi kahu maʻi hospice i kona home. Ua hāʻawi ʻia ʻo ia i kahi mea liʻiliʻi e hiki ai iā ia ke hoʻohana e hoʻokomo iā ia iho me nā lāʻau ʻeha (Fentanyl) i kēlā me kēia manawa āna e makemake ai. Ua hāʻawi ʻo ia i ke koko ma ka home. ʻO kēia mau mea a pau i hiki ai iā Gabriel ke hoʻolilo i kona mau lā hope loa ma kona home ponoʻī, me ka ʻeha ʻole, me kona ʻohana.
I ka hopena, ua nāwaliwali mālie ʻo Gabriel, ua oki ka ʻai ʻana, a ua hoʻi hou ka ʻike. ʻOiai he manawa kaumaha ia, ua wehewehe kona makuakāne i ka make ʻana he "maʻalahi a maluhia." I kekahi awakea, ʻoiai ʻo ia e moe ana ma ka sofa, ua paʻa ʻo Gabriel i ka lima o kona makuakāne a pani i kona mau maka no ka wā pau ʻole.
I kēlā pō, ua moeʻuhane ke kaikuahine o Gabriel e pili ana i kona kaikunāne.
"He mea maʻalahi anei ka make?" i nīnau ai ʻo ia.
"ʻAe, ua like ia me ka maʻalahi o ka hanu ʻana," i pane mai ai ʻo ia. "He mea maikaʻi loa ka hiki ke hele hou."
Leka Lawe-Home
- ʻAʻole ka manaʻo o ka mālama palliative e haʻalele i ka manaʻolana.E pili ana i ka hoʻomaikaʻi ʻana i ke ʻano o ke ola o kahi keiki e ʻeha nei i kahi maʻi hiki ʻole ke hoʻōla ʻia.
- ʻAʻole wale kēia mālama e hōʻemi i ke kaumaha kino e like me ka ʻeha, ka paʻakikī o ka hanu ʻana, a me ka luaʻi , akā hāʻawi pū i ka hōʻoluʻolu noʻonoʻo no ke keiki a me ka ʻohana.
- Hiki ke hāʻawi ʻia ka mālama palliative me ka lāʻau lapaʻau. Hiki ke lilo i mea pono i kēlā me kēia kūlana maʻi.
- Inā ʻeha kāu keiki i kahi maʻi koʻikoʻi, e kamaʻilio ākea me kāu kauka e pili ana i ia mea. Mai makaʻu, e nīnau e pili ana i ka mālama palliative. He ikaika nui ia no kāu keiki a nou hoʻi.
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo