Ke ʻeha nei kāu keiki i ka ʻeha iwi? E aʻo kākou e pili ana i kēia maʻi ʻaʻai iwi weliweli (Osteosarcoma)!

Ua hoʻopiʻi anei kāu keiki no ka ʻeha o ka wāwae a i ʻole ka lima i kēia mau lā? Manaʻo paha ʻoe ua hāʻule lākou i ka wā e pāʻani ana, a i ʻole ua luhi loa lākou. Akā i kekahi manawa, aia paha kekahi mea ʻoi aku ka koʻikoʻi ma hope o kēia ʻeha mau o ka iwi. No laila, mai hoʻowahāwahā iā ia. I kēia lā, e kamaʻilio mākou e pili ana i kekahi ʻano maʻi koʻikoʻi, ʻo osteosarcoma, kahi ʻano maʻi ʻaʻai iwi e hoʻopilikia pinepine i nā keiki a me nā ʻōpio.

I ka ʻōlelo maʻalahi, he aha ka osteosarcoma?

He ʻano maʻi ʻaʻai ka Osteosarcoma e ulu ana i loko o nā iwi . Hoʻomaka ia ma ke ʻano he mau hunaola iwi maʻamau. Akā i ka hala ʻana o ka manawa, lilo kēia mau hunaola i mau hunaola ʻino (cancerous), hui pū, a hana i nā puʻupuʻu i loko a i ʻole ma luna o ka iwi. Hoʻonāwaliwali kēia mau puʻupuʻu a hoʻololi i ke ʻano o ka iwi olakino.

I kekahi manawa, kapa pū nā kauka i kēia ʻo osteogenic sarcoma. Maanei, ʻo 'sarcoma' kahi inoa maʻamau no nā maʻi ʻaʻai e ulu ana i loko o nā ʻiʻo pili o ko mākou kino, e like me nā iwi, nā cartilage, a me nā ʻiʻo. ʻO ka huaʻōlelo 'osteo' ʻo ia hoʻi 'iwi'. ʻO 'Osteogenic' ʻo ia hoʻi ke hana ʻana i nā hunaola iwi.

ʻO kēia ʻano maʻi kanesa ka mea maʻamau i nā keiki a me nā ʻōpio . ʻOi aku ka kiʻekiʻe o ka pilikia o ka loaʻa ʻana i nā wā o ka ulu wikiwiki a me ka hoʻomohala ʻana.

ʻO wai nā iwi i kūpono loa e loaʻa ai kēia maʻi kanesa?

ʻO ka hapa nui o ka maʻi ʻaʻai Osteosarcoma e ulu pinepine i loko o nā iwi lōʻihi o ko kākou kino. ʻO ia hoʻi, i loko o nā iwi lōʻihi o nā lima a me nā wāwae. He mea maʻamau ia ma nā wēlau o kēia mau iwi, ʻo ia hoʻi, kokoke i nā hono. E noʻonoʻo i nā wahi e like me ke kuli, ka ʻūhā, a me ka poʻohiwi.

E wehewehe hou aku kākou i kēia me ka papa ma lalo nei.

He aha ke ʻano o ke 'papa' o ka maʻi kanesa?

Hoʻokaʻawale nā ​​kauka i ke kanesa osteosarcoma ma ka mea a lākou e kapa nei he 'grading'. Pili kēia i ka wikiwiki o ka laha ʻana o ke kanesa. ʻO ia hoʻi, kona hiki ke laha (metastasize) i nā ʻāpana ʻē aʻe o ke kino. ʻEkolu mau papa nui.

• Haʻahaʻa ke ʻano: Ulu mālie loa kēia ʻano maʻi kanesa. ʻO ka hapa nui o ka manawa, noho ia ma kahi i hoʻomaka ai a ʻaʻole laha maʻalahi.
• Kiʻekiʻe kiʻekiʻe: ʻO kēia ke ʻano weliweli loa. Ulu koke kēia mau maʻi kanesa a ʻoi aku ka nui o ka laha ʻana i nā ʻāpana ʻē aʻe o ke kino (e like me nā māmā).
• Papa waena: He kūlana kēia ma waena o nā ʻano ʻelua i ʻōlelo ʻia ma luna.

He aha nā hōʻailona o ka osteosarcoma?

ʻAʻole ʻike koke ʻia nā hōʻailona o kēia maʻi. Hoʻomohala mālie lākou. I kekahi manawa ua like kēia mau hōʻailona me kahi ʻeha maʻamau a i ʻole ka ʻeha ʻana, no laila ʻaʻole nui ka poʻe e nānā iā lākou i ka wā mua. Akā he mea nui loa ka makaʻala i kēia mau hōʻailona.

No ke aha e ulu ai kēia ʻano maʻi kanesa?

ʻAʻole hiki i nā loea ke ʻōlelo pololei i ke kumu o kēia. Eia nō naʻe, ua ʻike lākou i kekahi mau mea pilikia i manaʻo ʻia e kōkua i ka ulu ʻana o kēia maʻi kanesa.

Ka ulu wikiwiki ʻana o ka iwi

I ka wā o ka ulu wikiwiki ʻana, i ka wā e ulu koke ai ke keiki i ke kiʻekiʻe a ulu nui, ulu koke pū ko lākou mau iwi. I kēia manawa, māhele koke nā pūnaewele. Ua manaʻoʻiʻo ʻia he hewa kekahi mea i ka wā o kēia māhele wikiwiki ʻana o nā pūnaewele, e hoʻonui ana i ka manawa kūpono o ka hoʻokumu ʻana o nā pūnaewele kanesa. ʻO kēia kekahi kumu nui i maʻamau ai kēia maʻi i nā poʻe ʻōpio.

Ka hōʻike ʻia ʻana i ka radiation

Inā ua loaʻa iā ʻoe ka radiation therapy ma mua no kekahi maʻi kanesa ʻē aʻe, aia kahi pilikia liʻiliʻi o ka hoʻomohala ʻana i ka osteosarcoma i nā iwi ma nā wahi i loaʻa ai ka radiation.

Nā kumu hoʻoilina

He mea paʻakikī iki kēia. I ka ʻōlelo maʻalahi, aia nā genes kūikawā i loko o ko kākou kino e kāohi ana i ke kūkulu ʻia ʻana o ka maʻi kanesa. E like me nā pale o ko kākou kino ponoʻī. Ua kapa ʻia kēia mau mea he 'tumor suppressor genes'. ʻO 'p53' kekahi o ia mau genes. Inā he loli i loko o kēia mau genes, ʻo ia hoʻi, he 'mutation', piʻi ka pilikia o ka loaʻa ʻana o ka maʻi kanesa. Eia kekahi, ua ʻike ʻia he gene i kapa ʻia ʻo 'retinoblastoma (Rb)', ka mea e pili ana i ka maʻi kanesa o ka maka i nā keiki ʻōpio, e pili ana i kēia.

Eia kekahi, ʻo ka poʻe me nā kūlana genetic kakaikahi e hiki mai ana ke piʻi aʻe ka pilikia o ka hoʻomohala ʻana i ka osteosarcoma:

• ʻO ka maʻi Li-Fraumeni
• ʻO ka maʻi o Paget o ka iwi (osteitis deformans)
• ʻO ka retinoblastoma hoʻoilina
• ʻO ka maʻi Bloom
• ʻO ka anemia Diamond-Blackfan
• ʻO ka maʻi Rothmund-Thomson
• ʻO ka maʻi Werner

Ka hoʻopaʻa ʻana o ka iwi

Inā ʻoki ʻia ke kahe koko i kahi ʻāpana o ka iwi no kekahi kumu, make nā ʻāpana o ia ʻāpana. Manaʻo ʻia hoʻi kēia ke kumu e hiki ai i nā ʻāpana kanesa ke hoʻokumu ʻia i kekahi manawa.

Pehea e ʻike ai ke kauka i kēia maʻi?

Ke ʻike ʻoe i ke kauka me nā hōʻailona āu i ʻōlelo ai ma luna, e hahai ʻo ia i kekahi mau ʻanuʻu e hoʻoholo ai i ke ʻano pololei o ka maʻi.

1. Ke nīnau ʻana e pili ana i nā hōʻailona: ʻO ka mea mua, e nīnau kāu kauka iā ʻoe a me kāu keiki e pili ana i nā hōʻailona (i ka wā i hoʻomaka ai ka ʻeha, pehea kona manaʻo, aia kekahi pehu, a pēlā aku) a inā paha ua loaʻa i kekahi o kou ʻohana ka maʻi kanesa.

2. Hoʻokolokolo kino: A laila, hana ʻia kahi hoʻokolokolo piha e nānā i kekahi mau puʻupuʻu a pehu paha.

3. Kuhikuhi no nā hoʻokolohua: Ma hope o kēlā, e kuhikuhi ʻia ʻoe no kekahi mau hoʻokolohua e hōʻoia i ka maʻi.

• Ka hoʻokolokolo ʻana o X-ray: Hiki i kēia ke hāʻawi i kahi manaʻo mua inā he loli kanesa i ka iwi.
• MRI a i ʻole CT scan: Hiki i kēia ke hāʻawi i kahi kiʻi maopopo loa o ka nui o ka puʻu kanesa a me ka mamao o kona laha ʻana i nā ʻiʻo a puni.
• ʻO kahi biopsy: ʻO kēia ka hoʻāʻo koʻikoʻi loa e hōʻoia i ka hōʻoia 100% . Maanei, lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo mai kahi i loaʻa ai ke kanesa a nānā ʻia ma lalo o kahi microscope. E kōkua kēia i ka hoʻoholo ʻana inā he osteosarcoma a i ʻole kekahi ʻano kanesa ʻē aʻe, a he aha ke ʻano o ke kanesa.
• Nā hoʻāʻo koko: Kōkua kēia i ka hoʻoholo ʻana i ke kūlana olakino laulā a me kekahi mau hōʻailona maʻi kanesa.

Ke hōʻoia ʻia ka maʻi he osteosarcoma, ʻo ka hana aʻe e ʻike inā ua laha ka maʻi ʻaʻai i nā ʻāpana ʻē aʻe o ke kino. Ua kapa ʻia kēia ʻo 'staging' . Hiki i kēia ke pili i kahi 'bone scan' a i ʻole kahi 'PET scan', kahi e nānā ai i nā iwi o ke kino holoʻokoʻa.

He aha nā lāʻau lapaʻau?

Hana pinepine ʻia ka mālama ʻana no ka osteosarcoma e kahi hui. ʻO ia hoʻi, he nui ka poʻe e hui pū ana, me nā oncologists, nā kauka ʻokiʻoki, a me nā physiotherapists. ʻElua mau ʻano lapaʻau nui.

1. Chemotherapy: ʻO kēia ka hāʻawi ʻana i ke kino i nā lāʻau lapaʻau ikaika e pepehi ai i nā hunaola kanesa. No ka mea, hele kēia mau lāʻau lapaʻau ma ke kino holoʻokoʻa ma o ke kahe koko, hiki iā lākou ke pepehi i nā hunaola i loko o ka puʻupuʻu nui a me nā hunaola kanesa liʻiliʻi i laha i nā ʻāpana ʻē aʻe o ke kino (ʻaʻole hiki iā mākou ke ʻike ma nā scan). Hiki i ka Chemotherapy i hāʻawi ʻia ma mua o ke ʻoki ʻana ke hoʻēmi i ka puʻupuʻu a maʻalahi ka ʻoki ʻana. Hiki i ka Chemotherapy i hāʻawi ʻia ma hope o ke ʻoki ʻana ke pepehi i nā hunaola kanesa i koe a pale i ka hoʻi hou ʻana mai o ka maʻi.

2. ʻO ke ʻoki kino: ʻO ka pahuhopu nui ma ʻaneʻi, ʻo ia ka wehe loa ʻana i ka puʻupuʻu kanesa. Wehe ke kauka ʻoki kino i ka puʻupuʻu me kekahi mau ʻiʻo olakino a puni. Hana ʻia kēia e hōʻoia ʻaʻole e waiho ʻia kekahi hunaola kanesa. Nui nā ʻano ʻoki kino.

I kekahi mau hihia, hiki ke hāʻawi ʻia ka radiation therapy inā ua pālahalaha ke kanesa i nā wahi i hiki ʻole ai ke ʻoki.

Aia kekahi mau hopena ʻaoʻao ma hope o ka lāʻau lapaʻau?

ʻAe, he ikaika kēia mau lāʻau lapaʻau, ʻoi aku ka chemotherapy, a hiki ke hana i nā hopena ʻaoʻao pōkole a me ka wā lōʻihi. Hiki i nā mea e like me ka nausea, ka luaʻi ʻana, ka nalowale o ka lauoho, a me ka luhi ke hana i ka wā o ka lāʻau lapaʻau. Eia kekahi, i ka wā lōʻihi,

• Ka pilikia o ka hoʻomohala ʻana i kahi ʻano maʻi ʻē aʻe
• Ka hopena i ka hiki ke loaʻa nā keiki ('Infertility')
• Nā hopena ma ka hana o nā ʻōpū e like me ka puʻuwai, nā māmā, nā puʻupaʻa, a me nā pepeiao
• Nā hopena ma ka noʻonoʻo a me ka hoʻomanaʻo

Hiki ke hana ʻia nā mea e like me kēia. No laila, he mea nui loa e hoʻomau i ka nānā ʻana me kāu kauka ma hope o ka lāʻau lapaʻau.