He aha kēia mau PANDA a me nā PANS? He loli nui koke!
I ka ʻōlelo maʻalahi, ʻo PANDAS a me PANS ʻelua mau kūlana kahi e ulu koke ai nā hōʻailona o ka Obsessive Compulsive Disorder (OCD) i kahi keiki. Hōʻike ʻia ka OCD e nā manaʻo mau e pili ana i kekahi mea (obsessions) a me nā koi hou e hana i kekahi mau mea (compulsions). I loko o PANDAS/PANS, hiki koke mai kēia mau hōʻailona OCD a koʻikoʻi. ʻAʻole wale ia, akā e ʻike paha ʻoe i nā loli koke ʻē aʻe i ke ʻano o kāu keiki. Wahi a kekahi mau mākua ua "loli loa kā lākou keiki i ka pō hoʻokahi." Akā aia ka nūhou maikaʻi. Aia nā lāʻau lapaʻau a me nā hoʻōla no nā PANDAS a me PANS. Hiki i nā kauka a me nā loea olakino noʻonoʻo ke hāʻawi iā ʻoe a me kou ʻohana i ke alakaʻi a me ke kākoʻo āu e pono ai e hala i kēia manawa paʻakikī.He aha nā hōʻailona o PANDAS a me PANS?
Hiki i kekahi keiki me PANDAS a i ʻole PANS ke ʻike koke a koʻikoʻi loa i kekahi a i ʻole nā mea ʻelua o kēia mau mea:Nā mea i hoʻopilikia ʻia
Hiki i kēia ke hoʻoulu i ke keiki e hoʻomohala i nā makaʻu hou a ikaika loa. A i ʻole, hopohopo paha lākou e pili ana i nā mea e like me nā mea āpau e pono ai ke maʻemaʻe, maʻemaʻe, a lepo. Hiki i nā manaʻo hoʻopilikia a me nā kiʻi ke hoʻomau i ka noʻonoʻo. Hiki i kēia mau makaʻu, nā manaʻo, a me nā hopohopo ke ikaika loa a hiki ke paʻakikī loa ke hōʻoluʻolu i ke keiki. E noʻonoʻo, he keiki i loaʻa ʻole nā pilikia ma mua e hoʻomaka koke e makaʻu nui i nā germs a me ka maʻi. A i ʻole, hopohopo paha lākou e pono nā mea āpau e "pololei" a lilo i mea hopohopo nui no ka mea liʻiliʻi loa.Nā mea hiki ʻole iā ʻoe ke hoʻōki i ka hana ʻana (Compulsions - Rituals)
I kēia hihia, hiki i ke keiki ke hoʻowalewale ʻia e holoi, hoʻopā, hana, a ʻōlelo paha i kekahi mau mea i nā manawa he nui. Hiki paha iā lākou ke hoʻōki i ka hana ʻana iā lākou a lilo i mea hoʻopili iā lākou. No ka laʻana, hiki i ke keiki ke komo a puka i waho o ka puka i nā manawa he nui, me ka manaʻo e pono lākou e hana "pololei." A i ʻole, hiki iā lākou ke noi pinepine i ko lākou mau mākua no ka hōʻoia e pili ana i ka mea like, "Pololei anei? Pololei anei?" ʻO kekahi laʻana, ʻo ka holoi lima. Holoi lākou i ko lākou mau lima i kēlā me kēia ʻelima mau minuke, akā manaʻo mau lākou ua lepo ko lākou mau lima. Ma waho aʻe o kēia mau hōʻailona OCD, hiki i nā keiki me PANDAS a me PANS ke loaʻa nā hōʻailona hou ʻē aʻe. ʻO kekahi o kēia mau mea:- ʻO nā tics, a i ʻole nā neʻe ʻūlū, e like me ka ʻimo ʻana o ka maka a i ʻole ka hāpai ʻana i ka poʻohiwi.
- Hopohopo , kaumaha , a i ʻole nā loli o ka naʻau - hauʻoli i kekahi manawa, a laila kaumaha i kekahi manawa aʻe , a i ʻole huhū koke.
- Ke hana ʻino a i ʻole ka "hyper," e hōʻike ana i ka hiki ʻole ke noho ma kahi hoʻokahi .
- Ke kamaʻilio ʻana e like me ke keiki liʻiliʻi (kamaʻilio pēpē), ke pili pono ʻana i nā mākua, a i ʻole ka makaʻu hou i ka hiamoe ʻana i ka pō .
- Ka pilikia koke me ke kākau lima ʻana a i ʻole nā mākau neʻe lima maikaʻi ʻē aʻe . No ka laʻana, ʻo ke keiki i kākau nani ma mua, hiki ke loaʻa koke kahi kākau lima palaka.
- Nā pilikia hou me ka hoʻomanaʻo ʻana, ka heluhelu ʻana, a i ʻole ka hana makemakika .
- Hoʻomaka hou ka mimi moe i ka pō, ʻaʻole hiamoe pono.
- He makaʻu hou i ka meaʻai a me ka mea inu, no ka paʻa ʻana; ʻaʻole ʻai.
- ʻO ka ʻike hou ʻana i nā leo, ka hoʻopā ʻana, nā lole, a me waho . No ka laʻana, ʻo kahi lepili liʻiliʻi ma mua ma kahi ʻāpana lole hiki ke lilo i mea hoʻonāukiuki nui i ke keiki.
E noʻonoʻo, inā ʻike ʻia kēia mau hōʻailona ʻaʻole hoʻokahi a ʻelua paha, akā he mau i ka manawa hoʻokahi, i loko o kekahi mau lā, ʻo ia ka mea kūikawā e pili ana iā PANDAS/PANS.
He aha ke kumu o PANDAS a me PANS?
He mea paʻakikī iki ia, akā eia ka wehewehe maʻalahi: Manaʻo nā loea ua hana ʻia nā PANDAS a me nā PANS e kahi hana hewa i ka pane a kā mākou ʻōnaehana pale i kahi maʻi . ʻO ka maʻamau, ke komo kahi germ i loko o ko mākou kino, hakakā kā mākou ʻōnaehana pale a luku iā ia. Akā i loko o PANDAS/PANS, ma kahi o ka hoʻouka ʻana i nā germs, hoʻouka hewa ka ʻōnaehana pale i kahi ʻāpana kikoʻī o ka lolo . Ua kapa ʻia kēia ʻāpana ʻo ka basal ganglia . Kōkua kēia ʻāpana o ka lolo i ka hoʻomalu ʻana i ko mākou mau manaʻo, nā manaʻo, nā neʻe ʻana, a me nā ʻano hana ʻē aʻe. No laila, manaʻo nā loea ʻo kēia "hoʻonāukiuki" i loko o kēia ʻāpana o ka lolo ke kumu o nā hōʻailona i ʻōlelo ʻia ma luna.He aha ka ʻokoʻa ma waena o PANDAS a me PANS?
ʻO ke kumu nui o ka hoʻāla koke ʻana o nā hōʻailona OCD a me nā tics he maʻi bacteria i kapa ʻia ʻo Group A Streptococcus (a i ʻole "strep") . ʻO kēia ka bacteria e hoʻoulu ai i ka mea a mākou e kapa pinepine ai ʻo "strep throat." No laila, inā pili pono nā hōʻailona o ke keiki i kahi maʻi strep, ʻo ia ke ʻano i kapa ʻia ʻo PANDAS.ʻO PANDAS ke kū nei no Pediatric Acute -onset Neuropsychiatric Disorders Associated with Streptococcus . He hoʻomaka koke ia o nā maʻi neuropsychiatric i nā keiki e pili ana i ka maʻi streptococcus . ʻO PANS ka hoʻomaka koke ʻana o nā hōʻailona OCD e pili ana me kahi maʻi ʻē aʻe . ʻO ke ʻano kēia, ʻaʻole hiki ke hana ʻia e ka strep wale nō, akā, e nā maʻi ʻē aʻe e like me ka influenza (flu), chickenpox, mycoplasma infections, a me ka maʻi Lyme . ʻO PANS ke kū nei no Pediatric Acute -onset Neuropsychiatric Syndrome . He hoʻomaka koke ia o ka neuropsychiatric syndrome i nā keiki. I ka ʻōlelo maʻalahi, hoʻokumu ʻia ʻo PANDAS e kahi maʻi strep. Hoʻokumu ʻia ʻo PANS e kahi maʻi non-strep. Ua like loa nā hōʻailona ma nā hihia ʻelua.Pehea e ʻike ai a mālama ai nā kauka i nā PANDA a me nā PANS?
He mea nui loa kēia. ʻAʻole nā keiki āpau me OCD i loaʻa iā PANDAS a i ʻole PANS. Hiki ke hana ʻia ka OCD e nā kūlana ʻē aʻe. No ka ʻike ʻana i nā PANDAS a i ʻole PANS, e hoʻolilo kāu kauka i ka manawa nui e kamaʻilio me ʻoe a nīnau iā ʻoe i nā nīnau he nui e pili ana i nā hōʻailona o kāu keiki. E nānā lākou i kāu keiki a hana paha i kekahi mau hoʻokolohua e nānā i nā maʻi. No ka laʻana, hiki iā lākou ke lawe i kahi swab e nānā i ka strep throat. Hoʻomaka ka mālama ʻana me ka mālama ʻana i ka maʻi . ʻO ia hoʻi, inā he maʻi bacteria, hiki ke hāʻawi ʻia nā antibiotics. ʻO ka Cognitive Behavioral Therapy (CBT) kahi lāʻau koʻikoʻi no OCD. Hana ʻia kēia e kahi mea lawelawe olakino noʻonoʻo i aʻo ʻia. Hiki i ke kauka o kāu keiki ke kuhikuhi iā ʻoe i kahi mea kūpono. Loaʻa i ka CBT no OCD kahi ʻāpana kūikawā i kapa ʻia ʻo Exposure and Response Prevention (ERP) . Kōkua kēia lāʻau i ke keiki e hōʻemi i nā hana maʻamau a lākou i maʻa mau ai. I ka ʻōlelo maʻalahi, ua hōʻike mālie ʻia ke keiki i ka mea makaʻu ma ke ʻano i kāohi ʻia, a ua aʻo ʻia ʻaʻole e komo i nā compulsions. Hiki i ka Therapy ke hoʻoponopono i nā hōʻailona ʻē aʻe o ke ʻano a me ke ʻano e hiki ke lilo i ʻāpana o PANDAS a i ʻole PANS. Eia kekahi laʻana, inā he tics ke keiki, ʻo ka Habit Reversal TherapyNā lāʻau lapaʻau e like me: hiki ke kōkua. Hana pū nā mea hoʻōla me nā mākua. Hāʻawi lākou i ke aʻo ʻana i nā mākua i ke ʻano e kōkua ai i ka hoʻomaikaʻi ʻana i nā hōʻailona o kā lākou keiki. Hāʻawi pū lākou i ke alakaʻi i ke ʻano e hoʻokele ai i nā hōʻailona hoʻopilikia o kā lākou keiki a hiki i ko lākou nalo ʻana.He mau maʻi lele anei nā PANDAS a me nā PANS?
ʻAʻole. ʻAʻole laha nā PANDAS a me nā PANS. ʻAʻole hiki i ke keiki ke loaʻa i kēia mau maʻi mai kekahi kanaka ʻē aʻe. He mau maʻi kakaikahi nā PANDAS a me nā PANS. Eia nō naʻe, hiki ke laha ka maʻi kumu (e like me ka strep throat). Eia nō naʻe, ʻaʻole laha nā PANDAS/PANS.Pehea e hiki ai iaʻu ke kōkua i kaʻu keiki?
Inā manaʻo ʻoe he PANDAS a PANS paha kāu keiki, e ʻike koke i ke kauka o kāu keiki. ʻOi aku ka maikaʻi o ka hoʻomaka ʻana i ka lāʻau lapaʻau i ka wā hikiwawe. Hiki i kāu kauka ke kōkua iā ʻoe e loaʻa i kahi mea lapaʻau olakino noʻonoʻo maikaʻi. A i ʻole, hiki iā ʻoe ke hoʻohana i nā kumuwaiwai e like me ka pūnaewele International OCD Foundation e ʻimi i kahi loea i aʻo ʻia e hāʻawi i ka lāʻau lapaʻau cognitive behavioral (CBT) no OCD i nā keiki. Eia kekahi mau mea hiki iā ʻoe ke hana e kōkua i kāu keiki e hoʻōla:- E hoʻomaka e hana me kahi mea hoʻoponopono i ka hikiwawe loa. ʻO ka wikiwiki o ka hoʻomaka ʻana o ka hoʻoponopono , ʻoi aku ka maikaʻi o nā hopena.
- E hōʻoia ʻaʻole ʻoe e poina i kekahi o nā kau hoʻōla a kāu keiki. He mea nui kēlā me kēia kau.
- E nīnau i kāu mea hoʻoponopono e pili ana i nā ala maikaʻi loa e hōʻoluʻolu a hōʻoluʻolu i kāu keiki, no ka mea, i kekahi manawa hōʻoluʻolu iā lākou e like me kā mākou e manaʻo nei hiki ke hoʻonui i ka ʻino o kā lākou mau hōʻailona OCD .
- E hāʻawi i kāu keiki i nā lāʻau lapaʻau a pau a kāu kauka e kuhikuhi ai. He mea nui loa ka hāʻawi ʻana i ka lāʻau lapaʻau i ka manawa kūpono.
- Inā he maʻi kēia i hana ʻia e ia, e hāʻawi i kāu keiki i kahi pulumu niho hou e hōʻoia ai ua pau nā germs .
ʻO ka nānā ʻana i kahi keiki e ʻeha ana i nā hōʻailona o PANDAS a i ʻole PANS hiki ke lilo i mea kaumaha a paʻakikī hoʻi no nā mākua. ʻOiaʻiʻo nō. Aia kāu hui mālama ma laila e kākoʻo a alakaʻi iā ʻoe. Mai kānalua e ʻimi i kā lākou kōkua a me nā ʻōlelo aʻoaʻo.
ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)
- ʻO PANDAS a me PANS nā kūlana e hoʻololi koke ai i ke ʻano a me ka naʻau o nā keiki.
- Hoʻopilikia nui ʻia kēia e nā mea e like me nā hōʻailona OCD a me nā tics .
- ʻO ke kumu he pane kūpono ʻole o ka ʻōnaehana pale i kahi maʻi.ʻO kēia no ka mea ua hoʻopilikia ʻia kekahi ʻāpana o ka lolo (Basal Ganglia).
- Inā pili ia me kahi maʻi strep , kapa ʻia ia ʻo PANDAS, a inā pili ia me nā maʻi ʻē aʻe, kapa ʻia ia ʻo PANS.
- ʻAʻole kēia he mau maʻi lele.
- ʻO ka ʻike mua ʻana, ka mālama ʻana i ka maʻi, a me ka hāʻawi ʻana i ka lāʻau lapaʻau (ʻoiai ʻo CBT no OCD) hiki ke kōkua i ke keiki e hoʻōla.
- Ma ke ʻano he mau mākua, ʻaʻole ʻoe hoʻokahi. E kiʻi i ke kōkua mai nā kauka a me nā mea hoʻōla.
` PANDAS, PANS, OCD, pediatrics, nā loli koke o ke ʻano, nā maʻi strep, olakino noʻonoʻo
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