Loaʻa i kāu keiki kēia mau hōʻailona? E makaʻala kākou i ka Reye's Syndrome!

Ua ʻike anei ʻoe ua loaʻa i kāu keiki liʻiliʻi ke kuni a i ʻole ke anu, a laila loli koke kā lākou ʻano, e luaʻi pinepine ana, a hiamoe loa paha? Inā ʻike ʻoe i kēlā mau loli, mai hoʻowahāwahā iā lākou e like me ka mea maʻamau. No ka mea, he hōʻailona paha ia o kahi maʻi kakaikahi akā weliweli paha i kapa ʻia ʻo "Reye's Syndrome." E kamaʻilio kākou e pili ana i kēia i kēia lā.

He aha ka Reye's Syndrome?

I ka ʻōlelo maʻalahi, he maʻi kakaikahi akā he maʻi koʻikoʻi paha ka Reye's Syndrome. Hana ia i ka wā e pehu ai ka lolo o ke keiki a pau koke ka hana o ke akepaʻa ma hope o kahi maʻi viral, ʻo ia hoʻi ke anu, ka maʻi palū, a i ʻole ka moa. ʻIke pinepine ʻia kēia maʻi i ka wā e hāʻawi ʻia ai ka aspirin i nā keiki e kāohi i nā hōʻailona o kahi maʻi viral. Hiki ke ʻike ʻia kēia mau hōʻailona i loko o hoʻokahi pule o ka hoʻomaka ʻana o ka maʻi viral.

ʻO wai ka mea e loaʻa pinepine ai ka Reye's Syndrome?

Ua manaʻo nui ʻia kēia he maʻi kamaliʻi. Eia nō naʻe, hiki ke loaʻa i kēlā me kēia makahiki. Eia nō naʻe, ʻike pinepine ʻia i waena o nā keiki ma lalo o 18 makahiki. Ua hōʻike ʻia kēia ʻano maʻi i ka wā o ke kau hāʻule a me ka hoʻoilo (ma ko mākou ʻāina, i ka wā ua, i ka wā e laha ai nā maʻi viral).

Pehea ka maʻamau o kēia kūlana?

ʻO kaʻoiaʻiʻo, he maʻi laha ʻole ka Reye's Syndrome i kēia manawa. No ka laʻana, ma ʻAmelika Hui Pū ʻIa, ʻelua wale nō hihia o kēia maʻi i hōʻike ʻia i kēlā me kēia makahiki.

ʻO ke kumu nui o kēia, ʻo ia ka ʻike nui ʻana o ka poʻe i kēia maʻi. ʻOi aku ka nui o nā mākua i ʻike ʻaʻole ia he manaʻo maikaʻi ke hāʻawi i ka aspirin i kahi keiki e mālama i nā hōʻailona ke loaʻa iā lākou ke kuni. Eia kekahi, ua hōʻemi nā lāʻau pale i nā maʻi viral e like me ka maʻi influenza a me ka chickenpox i ka laha ʻana o kēia maʻi.

Pehea ka hopena o ka Reye's Syndrome i ke kino o kahi keiki?

Ma hope o kahi maʻi viral, e like me ke anu a i ʻole ka moa moa, e hoʻomaka paha kāu keiki e hoʻomohala i nā hōʻailona hou i loko o kekahi mau lā (malia paha i hoʻokahi pule). ʻO ka mea nui e hoʻomanaʻo ai, ʻaʻole loa e hāʻawi i kāu keiki i ka aspirin no ko lākou mau hōʻailona me ka ʻole o ke aʻo ʻana a ke kauka. ʻO ka hana ʻana pēlā e hoʻonui ai i ka pilikia o Reye's Syndrome.

Hoʻoulu ka Reye's Syndrome i ka piʻi koke ʻana o ke kaomi i loko o ka lolo o ke keiki, hiki ke alakaʻi i nā loli koke i ke ʻano a me ke ʻano. E noʻonoʻo i kāu keiki pāʻani a hauʻoli e nalowale koke ana ka hoihoi i kā lākou mau mea pāʻani punahele, a i ʻole e huhū koke a hoʻonāukiuki i nā mea liʻiliʻi. ʻO kēia mau loli i ke ʻano he mau hōʻailona mua o Reye's Syndrome. Inā ʻike ʻoe i kēia mau hōʻailona i ka wā mua, hiki iā ʻoe ke hoʻomaka koke i ka lāʻau lapaʻau a kōkua i kāu keiki e hoʻōla.

He aha nā hōʻailona o ka Reye's Syndrome?

Hiki ke ʻokoʻa nā hōʻailona mai kēlā kanaka a kēia kanaka, a ʻokoʻa nō hoʻi lākou ma muli o ke koʻikoʻi o ka maʻi. ʻO nā hōʻailona mua, ʻo ia nā hōʻailona o kahi maʻi viral maʻamau. ʻO ia hoʻi, ke anu, ka ʻāʻī ʻeha, ke kuni, a i ʻole ka moa. Ma hope o ʻelima a ʻehiku mau lā o nā hōʻailona o kēia maʻi viral, hoʻomaka nā hōʻailona e pili ana i ka Reye's Syndrome e ʻike ʻia. ʻO lākou:

• Ka luaʻi pinepine ʻana.
• Ke manaʻo nei i ka luhi loa a me ka hiamoe .
• Nā mea e like me ka hopohopo, ka nalowale o ka hoʻomanaʻo, ka huikau, a me nā hallucinations .
• Nā loli o ke ʻano: paʻakikī, huhū wikiwiki, hakakā.
• Ka hanu wikiwiki ʻana.

ʻO kēia mau loli i ka hana o ka lolo e hana ʻia ma muli o ka hoʻonui ʻia o ke kaomi i loko o ke poʻo (`(Intracranial pressure)`). I ka manawa like, ua pilikia pū ka hana o ke akepaʻa. Inā ʻoi aku ka koʻikoʻi o ka maʻi, hiki iā ʻoe ke ʻike i nā hōʻailona e like me:

• Nā ʻōʻili.
• ʻO Coma kahi kūlana o ka ʻike ʻole, e like me ka hāʻule ʻana i loko o ka hiamoe nui.
• Ka nalowale piha ʻana o ka ʻike.
• Nā pilikia o ke kāpili ʻana o ke koko.
• Hoʻonui ʻia ka nui o ka ammonia i loko o ke koko.

Mea nui: Inā hōʻike kāu keiki i hoʻokahi a ʻoi aku paha o kēia mau hōʻailona, ​​​​inā paha i ka wā o ke kuni viral a i ʻole kekahi mau lā ma hope o ka emi ʻana o ke kuni, pono ʻoe e ʻimi koke i ke kōkua lapaʻau, no ka mea, hiki i kēia ke hoʻoweliweli i ke ola.

He aha ke kumu o ka Reye's Syndrome?

ʻO kaʻoiaʻiʻo, ʻaʻole i ʻike ʻia ke kumu maoli o ka Reye's Syndrome.

Eia nō naʻe, hoʻoulu pinepine ʻia kēia ʻano ma ka hāʻawi ʻana i ka aspirin a i ʻole salicylates i kahi keiki me kahi maʻi viral (e like me ka maʻi flu a i ʻole ka chickenpox) e kāohi i nā hōʻailona. ʻO kekahi mau maʻi viral e hiki ai ke hoʻoulu i ka Reye's Syndrome:

• Flu
• Maʻi puʻupuʻu
• Maʻi hanu
• Anu maʻamau

ʻO nā hōʻailona o ka Reye's Syndrome ke kumu o ka hōʻiliʻili ʻana o ka wai a i ʻole ka hoʻonui ʻia ʻana o ke kaomi i loko o ka ʻiʻo o ka lolo (cerebral edema) a me nā loli i loko o ke ake.

Manaʻo kekahi mau haʻawina ua hana ʻia kēia ʻano ma ke akepaʻa ma muli o ka hōʻino ʻia ʻana o ka mitochondria (`(Mitochondria)`) i loko o nā pūnaewele. ʻO ka Mitochondria (`(Mitochondria)`), i ka ʻōlelo maʻalahi, ʻo ia nā mea hana mana liʻiliʻi e hāʻawi i ka ikehu i kā mākou mau pūnaewele. Ke hōʻino ʻia kēia mau mea, ua pilikia ka hana o ke akepaʻa a ʻike ʻia nā hōʻailona. Eia naʻe, ʻaʻole maopopo i ke kumu i hōʻino ʻia ai kēia mau mitochondria (`(Mitochondria)`).

Ke kumu nei ʻo Aspirin i ka Reye's Syndrome?

Ua hōʻike ʻia nā haʻawina e hiki i ka aspirin a i ʻole kahi mea i kapa ʻia ʻo salicylate ke hoʻoulu i ka Reye's Syndrome a hoʻonui i ke koʻikoʻi o nā hōʻailona. Eia naʻe, e like me ka mea i ʻōlelo ʻia ma mua, he mea pohihihi ke kumu pololei. No laila, e kamaʻilio me ke kauka ma mua o ka hāʻawi ʻana i kāu keiki i ka aspirin ke loaʻa iā ia kahi maʻi viral e like me ka maʻi flu. E heluhelu pono i ka lepili o kekahi lāʻau lapaʻau āu e hāʻawi ai i kahi keiki, e hōʻoia i kūpono i kona mau makahiki a pehea e hāʻawi ai. E nīnau i kāu kauka inā he mau nīnau kāu.

Pehea e hana ai ka Reye's Syndrome i ke kino (Pathophysiology)

ʻAʻole i maopopo piha ʻia nā kikoʻī piha (`(Pathophysiology)`) o ke ʻano o ka hana ʻana o kēia maʻi i loko o ke kino o ke keiki.

Eia nō naʻe, ua hōʻike nā haʻawina e ulu ana kēia ʻano ke hui pū nā pūnaewele mitochondria (`(Mitochondria)`) i hōʻino ʻia me kahi maʻi viral. Inā komo ka aspirin i ke kino o ke keiki i kēia manawa, piʻi ka pōʻino i ka mitochondria (`(Mitochondria)`) a ʻoi aku ka ʻino o nā hōʻailona. Ma muli o ka mitochondria i hōʻino ʻia (`(Mitochondria)`), piʻi ka pae ammonia i loko o ke koko. A laila hoʻomaka ka lolo e pehu (`(Cerebral edema and intracranial pressure)`). Ke piʻi nui ke kaomi ma ka lolo, hoʻomaka ka ʻiʻo momona i loko o nā puʻupaʻa e hōʻino ʻia (`(Fatty degeneration)`), a emi pū ka hana o nā pūnaewele nerve (`(Neurons)`).

Pehea e ʻike ʻia ai ka Reye's Syndrome? (Diagnosis)

Hiki i nā kauka ke kānalua i ka Reye's Syndrome inā loaʻa i kahi keiki kahi maʻi viral a laila hōʻike i nā hōʻailona e kūlike me ka Reye's Syndrome, e like me ka luaʻi a me nā loli o ke ʻano (e like me ka hoʻonāukiuki, ka huikau). A laila e hana lākou i nā hoʻokolohua like ʻole e kāpae i nā kūlana ʻē aʻe e hiki ke hoʻoulu i nā hōʻailona like.

Inā ua ʻike ʻia kāu keiki me ka Reye's Syndrome, e hoʻokaʻawale ʻia ia i nā pae ma muli o kona koʻikoʻi. Ua hōʻailona ʻia kēia mau pae me nā helu Roma mai I (hoʻokahi - ʻoi aku ka liʻiliʻi o ke koʻikoʻi) a i V (ʻelima - ʻoi loa ke koʻikoʻi).

He aha nā hoʻokolohua e hoʻohana ʻia e ʻike ai i ka maʻi?

Hiki i ke kauka ke hana i kekahi mau hoʻokolohua e hōʻoia i ka hōʻailona. ʻO kēia mau mea:

• Nā hoʻāʻo koko: E nānā i ka pae ammonia i loko o ke koko a nānā i nā mea ʻawahia i loko o ka mimi.
• Nā hoʻāʻo kiʻi: He MRI a i ʻole CT scan o ka lolo.
• Biopsy akepaʻa: Ke lawe ʻana i kahi ʻāpana liʻiliʻi o ke akepaʻa no ka hoʻokolokolo ʻana.
• Spinal tap: Ka nānā ʻana i ke kahe e hoʻopuni ana i ka lolo a me ke kaula spinal (wai cerebrospinal).

Hiki ke kuhi hewa ʻia ka Reye's Syndrome?

Ma muli o ke ʻano like o nā hōʻailona o ka Reye's Syndrome me nā maʻi ʻē aʻe he nui, hiki ke kuhi hewa ʻia i kekahi manawa. Eia naʻe, ʻaʻole kēia he mea maʻamau. ʻO kekahi o nā maʻi i hiki ke kuhi hewa ʻia:

• ʻEncephalitis (kuni lolo)
• ʻO ka maʻi ʻōpū (`(Meningitis)`)
• Maʻi diabetes (`(Maʻi diabetes)`)
• Ka nui o ka lāʻau lapaʻau
• Ka lāʻau make (`(Ka lāʻau make)`)
• ʻO ka maʻi make koke o nā pēpē (`(ʻO ka maʻi make koke o nā pēpē)`)
• Maʻi noʻonoʻo

Pehea e mālama ʻia ai ka Reye's Syndrome?

ʻO ka pahuhopu nui o ka lāʻau lapaʻau, ʻo ia ka pale ʻana i ka lolo o ke keiki. ʻO ia hoʻi ka hoʻēmi ʻana i ka pehu ʻana o ka lolo, ka hoʻoponopono ʻana i ka pōʻino o ke akepaʻa a me nā kaʻina hana metabolic (`(Metabolic injury)`), a me ka pale ʻana i nā pilikia o ka māmā. Hiki i ka lāʻau lapaʻau ke komo pū me kēia mau mea:

• I mea e maʻalahi ai ka hanu ʻana, e hoʻokomo i kahi ʻōmole i loko o ka paipu makani (endotracheal intubation) a i ʻole e hoʻopili i kahi ventilator.
• Ke hoʻokiʻekiʻe nei i ke poʻo o ke pēpē.
• Ke hāʻawi ʻana i nā lāʻau lapaʻau e hōʻemi i nā pae ammonia i loko o ke koko (`(Ammonia detoxicants)`).
• Ke hāʻawi nei i ka lāʻau lapaʻau e kāohi i ke kō koko (`(Glucose)`).
• E hāʻawi i ka wikamina K a i ʻole ka plasma e hoʻomaikaʻi i ke kāpili ʻana o ke koko.

Inā ua ʻike ʻia kāu keiki me ka Reye's Syndrome, e hoʻokomo koke ʻia lākou i ka Intensive Care Unit (ICU) a e hoʻomaka ka lāʻau lapaʻau. E nānā mau ana ke kime lapaʻau i nā mea āpau, me ka mahana o ke kino o ke keiki a me ka hana koʻikoʻi o nā ʻōpū, e ʻike inā ua holomua ka lāʻau lapaʻau.

Aia kekahi mau hopena ʻaoʻao o ka lāʻau lapaʻau?

Hoʻōla piha ka hapa nui o nā keiki i ʻike ʻia me ka Reye's Syndrome. Eia nō naʻe, inā koʻikoʻi loa ka pehu ʻana o ka lolo o ke keiki, hiki ke loaʻa kekahi mau hopena ʻaoʻao. ʻO kēia mau mea:

• Poho hoʻomanaʻo (`(Poho hoʻomanaʻo)`)
• Nā pilikia aʻo (`(Paʻakikī ke aʻo ʻana)`)
• Ka nalowale o ka ʻike a me ka lohe
• Ka pilikia me ka ʻōlelo a me ka ʻōlelo
• Ke paʻakikī i ka hoʻoneʻe ʻana i ke kino a me ka hana ʻana i nā hana o kēlā me kēia lā, e like me ke komo ʻana i ke kapa.

I nā hihia e like me kēia, pono ke hāʻawi ʻia i ke keiki ke kākoʻo kūikawā a me ka mālama e pono ai iā lākou i ko lākou ulu ʻana.

Pehea ka wikiwiki o ka ho'ōla ʻana o ke keiki ma hope o ka lāʻau lapaʻau?

Ma hope o ka mālama ʻana, ke pau ka pehu ʻana o ka lolo o kāu keiki, e hoʻomaka ana ʻo ia e hoʻōla. Hiki ke hala i kekahi mau lā a i kekahi mau pule no kāu keiki e hoʻōla pono ai e haʻalele i ka haukapila. E hoʻomau ka hui lapaʻau iā ʻoe e hōʻike i ka holomua o kāu keiki.

He aha kaʻu e manaʻo ai inā loaʻa i kaʻu keiki ʻo Reye's Syndrome?

ʻO ka wānana o ka maʻi o ke keiki e pili ana i ke koʻikoʻi o ka hōʻailona, ​​ʻoiai ke ʻano o ka pehu ʻana o ka lolo a me ka nui o ka ammonia i loko o ke koko. Inā holomua koke ka maʻi a hāʻule ke keiki i loko o ka coma, ua liʻiliʻi ka manawa e hoʻōla ai. Eia nō naʻe, inā ʻike ʻia a mālama ʻia ka maʻi i ka wā mua, ua kiʻekiʻe loa ka manawa e hoʻōla ai.

ʻO ka nui o ka make no nā keiki i ʻike ʻia me ka Reye's Syndrome ma kahi o 21%. Loaʻa kēia mai ka liʻiliʻi ma mua o 2% o nā keiki me ka maʻi pae I (ʻoluʻolu) a i 80% o nā keiki me ka pae V (coma). ʻO ka ʻike mua ʻana a me ka mālama ʻana e hoʻonui nui i nā manawa e ola ai.

ʻO nā keiki e ʻike nei i nā hōʻailona koʻikoʻi o ka Reye's Syndrome e loaʻa paha nā hopena ʻaoʻao e mau ana a hiki i ka wā makua. Eia kekahi laʻana, ka hōʻino ʻana o ka lolo, nā pilikia ulu ʻana o ka noʻonoʻo, ka maʻi epilepsy, ka nāwaliwali o nā ʻiʻo, a me nā pilikia neurological.

Aia kekahi lāʻau lapaʻau kūikawā no ka Reye's Syndrome?

ʻAʻohe lāʻau lapaʻau kūikawā no kēia. Eia nō naʻe, hoʻōla piha ka hapa nui o nā keiki, ma muli o ka hōʻailona. ʻO ka pahuhopu o ka lāʻau lapaʻau e hōʻemi i nā hōʻailona a pale i nā pilikia lōʻihi a i ʻole ka make.

Pehea e pale aku ai i ka Reye's Syndrome?

ʻO kēia ka mea nui loa e pono ai kākou a pau e ʻike. No ka mea, aia kahi pilina ma waena o ka aspirin a me Reye's Syndrome, hiki ke pale ʻia kēia maʻi ma ka pale ʻana i ka hāʻawi ʻana i ka aspirin i nā keiki, ʻoiai nā keiki ma lalo o 16 mau makahiki. Inā pono kāu keiki i ka aspirin e mālama i kahi maʻi, mai hāʻawi i ka aspirin me ka ʻole o ke kamaʻilio ʻana me ke kauka e pili ana i ia mea.

E heluhelu pono i ka lepili ma mua o ka hāʻawi ʻana i kekahi lāʻau lapaʻau i ke keiki, e nānā i ke kūpono o ka lāʻau lapaʻau i kona makahiki, a e nānā i nā kuhikuhi no ke ʻano o ka hāʻawi ʻana. Inā kānalua, e nīnau i kāu kauka a kauka lāʻau paha.

Āhea wau e ʻike ai i ke kauka?

Inā hōʻike kāu keiki i kekahi mau hōʻailona o Reye's Syndrome ma hope o ke kuni viral a i ʻole ka maʻi, a inā ua hāʻawi ʻoe i kāu keiki i ka aspirin a i ʻole kahi lāʻau lapaʻau i loaʻa ka salicylate me ka ʻole o ke aʻo ʻana a ke kauka, e ʻike koke i ke kauka.

Āhea wau e hele ai i ka ʻOihana Pōpilikia (ETU) ?

Inā loaʻa i kāu keiki kahi hopu ʻana (`(Seizures)`), ʻo ia hoʻi, nalowale lākou i ka ʻike no kekahi manawa, hoʻoluliluli i ko lākou mau lima a me nā wāwae me ke kāohi ʻole ʻia, hopohopo, a hōʻike paha i nā hōʻailona o ka huikau, e kāhea koke i ka 911, a lawe paha i kāu keiki i ka lumi pilikia kokoke loa. ʻO ka maʻamau, mau ka hopu ʻana mai 30 kekona a i ʻelua mau minuke.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

• Hiki i kaʻu keiki ke loaʻa nā hōʻailona o Reye's Syndrome ma hope o ka haʻalele ʻana i ka haukapila?
• Pehea e pili ai ka hopena o ka maʻi Reye's Syndrome i ka wā e hiki mai ana o kaʻu keiki?
• He aha nā lāʻau lapaʻau e pono ʻole iaʻu e hāʻawi i kaʻu keiki i kona wā maʻi?

Hiki i kahi mahele hoʻokahi o Pepto-Bismol® ke kumu o ka Reye's Syndrome?

Loaʻa iā Pepto-Bismol® kahi mea i kapa ʻia ʻo salicylate, he mea like ia me ka aspirin. No laila, ʻaʻole ʻōlelo ʻia e hāʻawi iā ia i nā keiki me ka ʻole o ke aʻo ʻana a ke kauka. ʻO ka hāʻawi ʻana i ka aspirin i ka wā o kahi maʻi viral e like me ka maʻi flu hiki ke hana i nā hōʻailona o Reye's Syndrome. Eia naʻe, e like me ka mea i ʻōlelo ʻia ma mua, ʻaʻole ʻike ʻia ke kumu pololei o Reye's Syndrome. E heluhelu mau i ka lepili a nīnau paha i kāu kauka lāʻau lapaʻau a kauka paha ma mua o ka hāʻawi ʻana i kekahi lāʻau lapaʻau i kahi keiki.

ʻO ka mea hope loa, ʻo ka leka koʻikoʻi loa

Inā ʻike ʻoe i nā hōʻailona o ka Reye's Syndrome a ʻike i kahi loli i ke ʻano o kāu keiki a i ʻole nā ​​​​hōʻailona hou ma hope o kahi maʻi viral, ʻoi aku ka maikaʻi o ka ʻike ʻana i ke kauka i ka hikiwawe loa. E hoʻomau i kāu keiki i kā lākou mau lāʻau pale. He mea nui loa kēia i nā manawa i maʻamau ai nā maʻi viral (e like me ke kau ua). Inā ʻike ʻia kāu keiki me Reye's Syndrome, e hoʻomaopopo kāu hui lapaʻau iā ʻoe e pili ana i ke kūlana olakino o kāu keiki a hāʻawi iā ʻoe i ke kākoʻo e pono ai. ʻO ka mea nui loa, ʻo ia ke noho mālie a hana naʻauao.

ʻO ka maʻi Reye, aspirin, nā maʻi kamaliʻi, ke kuni viral, ka maʻi akepaʻa, ka pehu ʻana o ka lolo, ka luaʻi