ʻO Tasimelteon: He hopena no nā pilikia hiamoe i hoʻokumu ʻia e ka Smith-Magenis Syndrome

No kekahi poʻe, ʻoiai ka poʻe e noho nei me nā maʻi e like me Smith-Magenis Syndrome, hiki i ka hiamoe ke lilo i mea paʻakikī nui. Hiki ke luhi i ka hiki ʻole ke hiamoe pono i ka pō a me ka hiamoe i ke ao. No laila, i nā hihia e like me kēia, ʻo Tasimelteon kahi lāʻau lapaʻau kūikawā a nā kauka e ʻōlelo ai e kōkua i ka hoʻoponopono ʻana i ke ʻano hiamoe maoli o ke kino. I kēia lā, e kamaʻilio mākou e pili ana i kēia lāʻau lapaʻau ma nā ʻōlelo maʻalahi, pehea e hoʻohana ai, a me nā mea e makaʻala ai.

He aha ka mea e hana maoli me kēia lāʻau lapaʻau?

I ka ʻōlelo maʻalahi, ʻo Tasimelteon kahi lāʻau lapaʻau e kōkua i ka hoʻoponopono ʻana i ka hiamoe maoli a me ke kaʻina ala o kou kino. Loaʻa i ko mākou lolo kahi ʻōnaehana e hana ana e like me ka uaki kūlohelohe. I nā kūlana e like me ka maʻi Smith-Magnesium, hiki ke hoʻopilikia ʻia kēia uaki, e hoʻoulu ai i ka insomnia i ka pō a me ka hiamoe nui i ke ao. Hana kēia lāʻau lapaʻau ma ka hoʻihoʻi ʻana i kēlā ʻano hiamoe i hoʻopilikia ʻia a kōkua iā ʻoe e hiamoe i ka manawa kūpono. Hoʻohana pinepine ʻia ia ma ke ʻano he hoʻomaha, a loaʻa pū kekahi ma lalo o ka inoa inoa ʻo HETLIOZ LQ.

Nā mea āu e haʻi aku ai i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau

Ma mua o ka hāʻawi ʻia ʻana iā ʻoe i ka Tasimelteon, he mea nui loa ia e ʻike pono kāu kauka i kou kūlana olakino. E hōʻoia e haʻi i kāu kauka inā loaʻa iā ʻoe kekahi o kēia mau mea:

• Inā he maʻi kou i ke akepaʻa .
• Inā he mea puhi paka ʻoe.
• Inā ua loaʻa iā ʻoe kahi hopena maʻi i ka Tasimelteon a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
• Inā hāpai ʻoe a ke manaʻolana nei paha e hāpai i ka wā e hiki mai ana .
• Inā he makuahine hānai waiū ʻoe.

Ma muli o kēia ʻike, e hoʻoholo ke kauka inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha a me ka nui e hāʻawi ʻia.

Pehea pololei kaʻu e hoʻohana ai i kēia lāʻau lapaʻau?

No ka loaʻa ʻana o ka hopena maikaʻi loa mai kēia lāʻau lapaʻau, he mea nui loa ia e hoʻohana pono.

• Lāʻau lapaʻau waha: He lāʻau lapaʻau waha kēia e hele mai ana ma ke ʻano he wai (suspension).
• I ka manawa kūpono: Pono ʻoe e inu i kēia i ka manawa like i kēlā me kēia pō ma mua o ka hiamoe ʻana .
• E lulu maikaʻi: Pono e lulu maikaʻi ʻia ka ʻōmole lāʻau lapaʻau ma mua o ka hoʻohana ʻana.
• Ana pololei: E hoʻohana i ka syringe waha, puna, a i ʻole ka kulu wai i hōʻailona kūikawā ʻia e hele mai me ka lāʻau lapaʻau e ana. Mai ana me nā tīpune a i ʻole nā ​​punetēpē āu i loaʻa ai ma ka home, no ka mea, ʻaʻole pololei kēia mau mea.
• Ma ka ʻōpū ʻole: Lawe ʻia kēia lāʻau lapaʻau ma ka ʻōpū ʻole.ʻOi aku ka maikaʻi o ka inu ʻana. ʻO ia hoʻi, pono ʻoe e inu ia mea ma ka liʻiliʻi he hapalua hola ma mua o ka ʻai ʻana, a i ʻole ʻelua hola ma hope o ka ʻai ʻana.
• E hoʻomau i ka hoʻohana ʻana: E hoʻomau i ka hoʻohana ʻana i ka lāʻau lapaʻau e like me ke kuhikuhi ʻana a hiki i ka wā e ʻōlelo ai kāu kauka e hoʻōki.

He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau?

Inā poina iā ʻoe ke lawe i kāu lāʻau lapaʻau i kekahi lā, e kāpae i kēlā mahele lāʻau. Mai hopohopo. E lawe wale i kāu mahele lāʻau maʻamau i ka lā aʻe i kou manawa maʻamau. Mai lawe i ʻelua mahele lāʻau i ka manawa hoʻokahi e hoʻopiha ai i kahi mahele lāʻau i poina.

Nā pilina me nā lāʻau lapaʻau

Hiki iā Tasimelteon ke launa pū me kekahi mau lāʻau lapaʻau a me nā meaʻai ʻē aʻe. No laila, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei (i kauoha ʻia e nā kauka ʻē aʻe, nā lāʻau lapaʻau ma luna o ke kauka, nā huahana lāʻau, nā huaora).

Nā mea e hoʻomanaʻo ai i ka wā e lawe ai i ka lāʻau lapaʻau

• Hiamoe a me ka poniuniu: Hiki iā ʻoe ke hiamoe a poniuniu paha ma hope o ka lawe ʻana i kēia lāʻau. No laila, mai komo i kekahi hana ʻē aʻe ma mua o ka hoʻomākaukau ʻana no ka hiamoe ma hope o ka lawe ʻana i ka lāʻau. Mai hoʻokele a hoʻohana paha i nā mīkini a hiki i kou ʻike ʻana i ke ʻano o ka hopena o kēia lāʻau iā ʻoe.
• Mai ala koke: Mai ala koke mai kahi noho a i ʻole mai kahi moe, ʻoiai inā ʻelemakule ʻoe. Hoʻemi kēia i ka pilikia o ka poniuniu a me ka hāʻule ʻana.
• E pale i ka waiʻona: E pale loa i ka waiʻona i ka wā e lawe ana i kēia lāʻau. Hiki i ka waiʻona ke hoʻopilikia i ka pono o ka lāʻau.
• Puhipaka: E haʻi i kāu kauka inā ʻoe e puhipaka. Hiki i kēia lāʻau lapaʻau ke hoʻopilikia i kou olakino i nā mea puhipaka. Eia kekahi, inā hoʻoholo ʻoe e haʻalele i ka puhipaka, e haʻi i kāu kauka.
• Ka nui loa o ka lāʻau lapaʻau: Inā manaʻo ʻoe ua lawe ʻoe i ka lāʻau lapaʻau ma mua o kou manaʻo, e kāhea koke aku i ke Kikowaena ʻIke ʻAihue Lahui ma ka Halemai Lahui ʻo Colombo, a i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.

Nā hopena ʻaoʻao e hiki mai ana ma muli o ka lāʻau lapaʻau

E like me nā lāʻau lapaʻau āpau, hiki i ka Tasimelteon ke hana i nā hopena ʻaoʻao i kekahi poʻe. ʻOiai he liʻiliʻi ka hapa nui o kēia mau mea, aia kekahi mau mea e makaʻala ai.

Pehea e mālama ai a hoʻolei aku i ka lāʻau lapaʻau me ka palekana?

• Ka mālama ʻana: E mālama i ka ʻōmole lāʻau lapaʻau i loko o ka pahu hau . Mai mālama i loko o ka pahu hau , no ka mea hiki i kēia ke hōʻino i ka lāʻau lapaʻau. E mālama ʻia mai ka hiki ʻana aku o nā keiki a me nā holoholona.
• Pau: Ke wehe ʻia ka ʻōmole, ʻokoʻa ka lōʻihi o ka mālama ʻana ma muli o ka nui o ka ʻōmole (e.g. 5 pule no ka ʻōmole 48 ml, 8 pule no ka ʻōmole 158 ml). Inā ua hala kēia wā a i ʻole ka lā pau ma ka ʻōmole, e hoʻolei i ke koena o ka lāʻau lapaʻau.
• Ka Hoʻolei ʻana: ʻO ke ala maikaʻi loa e hoʻolei aku ai i nā lāʻau lapaʻau i hoʻohana ʻole ʻia a i ʻole nā ​​lāʻau lapaʻau i pau ka manawa, ʻo ia ke hāʻawi aku iā lākou i kahi papahana lawe lāʻau lapaʻau aupuni. E nīnau i kāu kauka e pili ana i kēia. Inā ʻaʻole hiki kēlā, e kāwili i ka lāʻau lapaʻau me kahi mea e like me ka ʻōpala pōpoki, ka lepo, a i ʻole ka lepo kope, e waiho i loko o kahi ʻeke i hoʻopaʻa pono ʻia, a hoʻolei i loko o ka ʻōpala.