E kamaʻilio kākou e pili ana i ka maʻi make - ʻAʻole ʻoe hoʻokahi.

Ua ʻike au he paʻakikī ke kamaʻilio ʻana e pili ana i ia ʻano kumuhana koʻikoʻi i kekahi manawa. Eia nō naʻe, pono kākou e kamaʻilio a e makaʻala i kekahi o nā mea maoli o ke ola. No ka mea, hiki i kēia ʻike ke kōkua iā kākou a me kā kākou poʻe aloha. No laila, i kēia lā, e kamaʻilio kākou e pili ana i ka `(Maʻi Kino)`, a i ʻole ke ʻano e kokoke mai ana i ka hopena o ke ola.

He aha kēia "Maʻi Kino Loa"? E hoʻomaopopo maʻalahi kākou, ʻeā?

I ka ʻōlelo maʻalahi, ʻo ka "Maʻi Kino" he maʻi hiki ʻole ke hoʻōla ʻia e nā kauka e wānana e pau i ka make. ʻO ke ʻano kēia, ʻaʻole hiki ke hoʻohuli ʻia a hoʻōla loa ʻia paha ka maʻi āu i loaʻa ai. I nā huaʻōlelo ʻē aʻe, ʻaʻole e nalowale ka maʻi.

I kekahi manawa hiki i kēia ʻano maʻi ke lilo i mea ʻino loa me ka wikiwiki. A i ʻole, aia kekahi mau maʻi e ulu mālie ana, e hoʻonui mālie ana i nā hōʻailona i ka hala ʻana o ka manawa a hoʻonāwaliwali i ke kino. E noʻonoʻo iā ia e like me ke kukui e pio ana a pio ana.

ʻO ka ʻike ʻana ua loaʻa iā ʻoe kahi maʻi make, hiki ke manaʻo ʻia ua like ke ao nei me he mea lā ua hiolo mai ma luna ou. ʻAʻole hiki iā ʻoe ke wānana pololei i nā manaʻo āu e manaʻo ai i ka manawa e like me kēia. Hiki iā ʻoe ke manaʻo kaumaha, huhū, makaʻu, a i ʻole he mea hoʻomaha iki. Hiki iā ʻoe ke manaʻo he mae wale, he mae wale, a he hakahaka paha. Hiki iā ʻoe ke manaʻo i kēia mau mea a pau i ka manawa hoʻokahi. He aha ia mea, pono ʻoe e hoʻomaopopo he mea maʻamau ia. E lōʻihi ka manawa e hoʻomaopopo ai i kēia mau manaʻo.

Inā he kanaka ʻoe me kēia maʻi a he mea mālama paha, ʻaʻole maʻalahi ke kamaʻilio e pili ana i ka make. Eia nō naʻe, ʻo ka ʻike i ka mea e manaʻo ai hiki ke hāʻawi iā ʻoe a me kou ʻohana i ka ikaika a me ka hoʻomākaukau .

He aha nā "Maʻi Kino Loa" i maʻa mau loa ʻia?

ʻOiaʻiʻo, he mea paʻakikī ke hāʻawi i kahi papa inoa o "ʻO kēia nā 'Maʻi Kino' no ka mea ʻo ka maʻi like ke hoʻopilikia nei i nā poʻe like ʻole. Aia kekahi mau maʻi i ʻoi aku ka nui o ka lilo ʻana i 'Terminal' i ko lākou mau pae hope loa.

E hāʻawi i kekahi mau laʻana:

• Ka maʻi ʻaʻai holomua
• Ka maʻi o Alzheimer
• Nā hihia koʻikoʻi o ka hāʻule ʻana o ka puʻuwai (Congestive Heart Failure)
• Ka hāʻule ʻana o ka puʻupaʻa
• Ka hāʻule ʻana o ke akepaʻa
• Ka maʻi ʻaʻai i laha a puni ke kino (Metastatic Cancer)
• Nā hihia koʻikoʻi o ka Multiple Sclerosis, kahi maʻi o ka ʻōnaehana nerve
• Ka maʻi o Parkinson

Akā e hoʻomanaʻo, ʻoiai he maʻi kou ma kēia papa inoa, ʻaʻole ia he manaʻo he "Maʻi Loa" ʻoe. ʻOi aku ka maikaʻi o ke kamaʻilio ʻana me kāu kauka e ʻike pono i kou ʻano a pehea e pili ai i kou ola.

He aha ka ʻokoʻa ma waena o ka "Maʻi Kino Loa" a me ka "Maʻi Mau"?

He mau kūlana ola kēia mau mea ʻelua. Eia naʻe, ʻo ka `(Maʻi Mau)` a i ʻole he maʻi mauNo kekahi kanaka me ke ʻano (e like me ka maʻi diabetes, ka hānō, a i ʻole kekahi mau maʻi autoimmune), hiki i ka lāʻau lapaʻau ke kōkua iā lākou e kaohi i ke ʻano a alakaʻi i kahi ola maʻamau.

Eia nō naʻe, ʻaʻole hiki i nā lāʻau lapaʻau i hāʻawi ʻia i kahi kanaka me ka "Maʻi Kino" ke ho'ōla i ka maʻi. Hoʻemi wale lākou i ka ʻoluʻolu ʻole āu e manaʻo ai a kōkua iā ʻoe e ʻoluʻolu e like me ka hiki. Akā, ʻaʻole hiki iā lākou ke pale aku i ka make.

ʻEhia ka lōʻihi e ola ai kekahi kanaka me ka maʻi make?

ʻOkoʻa maoli kēia mai kēlā kanaka a kēia kanaka. ʻO ka lōʻihi o kou ola ʻana ma muli o kekahi mau kumu, me kou kūlana olakino, kou olakino kino, a me ka lāʻau lapaʻau āu e loaʻa ai.

E hoʻāʻo kāu kauka e kuhi i ka lōʻihi o kou ola ʻana. Akā, he mea paʻakikī loa ke ʻōlelo maopopo. Hiki i ka poʻe me ka maʻi make ke ola no nā lā, nā pule, nā mahina, a i ʻole nā ​​makahiki. E haʻi wale aku kāu kauka iā ʻoe i kēia ʻike inā makemake ʻoe e ʻike. Inā ʻaʻole ʻoe makemake e ʻike, loaʻa iā ʻoe ke kuleana e haʻi aku i kāu kauka.

He aha nā hōʻailona o ka `(Maʻi Kino)`?

ʻOkoʻa nā hōʻailona ma muli o ka maʻi āu e loaʻa nei. Eia nō naʻe, i kou hoʻokokoke ʻana aku i ka hopena o kou ola, e ʻike paha ʻoe i kekahi o kēia mau hōʻailona:

• Ka huikau, ka nalowale o ka ʻike
• Ke ʻike ʻana a lohe ʻana paha i nā mea ʻaʻole ma laila (Hallucinations)
• Ka paʻakikī i ka ale ʻana i ka meaʻai a i ʻole nā ​​​​wai
• Luhi
• Ka nalowale o ka makemake
• Ka emi ʻana o ka mimi ma mua o ka maʻamau
• Pōkole o ka hanu
• Hoʻonāukiuki
• ʻAʻole hiki ke kāohi i ka mimi a i ʻole ka ʻōpala (Urinary a i ʻole Bowel Incontinence)

Mea nui: Inā loaʻa iā ʻoe kekahi mau hōʻailona hou a inā e ʻoi aʻe ka ʻino o kahi hōʻailona, ​​e haʻi koke i kāu kauka. Aia nā lāʻau lapaʻau a me nā lāʻau lapaʻau e hiki ke kōkua i ka kaohi ʻana i kēia mau hōʻailona.

Pehea ʻoe e mālama ai i kahi `(Maʻi Kino)`?

ʻO ka pahuhopu nui o ka mālama ʻana ma ʻaneʻi, ʻo ia ka hoʻoluʻolu iā ʻoe a loaʻa ke ʻano ola maikaʻi loa, ma mua o ka hoʻōla ʻana iā ʻoe. E kālele ana kāu hui lapaʻau i ka mea i kapa ʻia ʻo "Palliative Care" . ʻO kēia kekahi:

• E hoʻomaikaʻi i kou ola kino i ka hiki.
• Ke kaohi nei i kāu mau hōʻailona (e like me ka ʻeha a me ka pōkole o ka hanu).
• Ke kākoʻo nei i kou olakino noʻonoʻo, noʻonoʻo a me ka ʻuhane.

Hiki i kāu hui mālama palliative ke kōkua pū me ka hoʻolālā kānāwai. Eia kekahi laʻana, hiki iā lākou ke aʻo iā ʻoe e pili ana i nā mea e like me nā Palapala Kauoha Ola, nā Kuhikuhi Mua, a me nā Mana o ka Loio.

Eia nō naʻe, ʻo ka loaʻa ʻana o ka "Palliative Care" ʻaʻole ia he manaʻo mau ua loaʻa iā ʻoe kahi "Maʻi Kino." Hiki i nā kauka ke ʻōlelo aku i ka "Palliative Care" i kēlā me kēia pae o kekahi maʻi koʻikoʻi .

Pehea ʻoe e ʻike ai i ka wā e pono ai ʻoe i nā lawelawe `(Hospice Care)`?

Hiki i nā poʻe he nui me ka maʻi make ke kūpono no ka mālama hospice. ʻO ka mālama hospice kahi ʻano mālama kūikawā e kālele ana i ka hōʻoluʻolu a me ka hoʻokele ʻeha. Hiki ke hāʻawi ʻia kēia mālama ma kou home ponoʻī, ma kahi kikowaena hospice, home hānai, a i ʻole ka haukapila. Hiki i ka hui hospice ke kōkua iā ʻoe e hoʻoholo i kahi kūpono loa iā ʻoe. ʻO ka maʻamau, inā ʻeono mahina a emi mai paha kou ola, kūpono ʻoe no ka mālama hospice.

ʻAʻohe kānāwai e ʻōlelo ana e hoʻomaka ʻoe i ka mālama hospice "i kēia manawa." Eia naʻe, hiki i kāu kauka ke kōkua iā ʻoe e hoʻoholo i ka manawa kūpono e hoʻomaka ai.

Pehea wau e mālama ai iaʻu iho? (Inā maʻi ʻoe)

Ke ʻike ʻoe he maʻi make kou, hiki i nā tausani mea ke holo i loko o kou manaʻo. He mea maʻamau ka hopohopo, ka hopohopo, a me ke kaumaha. He mea maʻamau nō hoʻi ke kaumaha ma nā ʻano he nui. I kēia manawa, ʻoi aku ka nui o ka mālama ʻana iā ʻoe iho ma mua o ka wā ma mua. Eia kekahi mau manaʻo e kōkua paha iā ʻoe:

• E ʻae i kou ʻoiaʻiʻo: He mea maʻamau ke haʻalulu ke lohe ʻoe i kēia ʻano nūhou. He manawa pōkole e hoʻomaopopo pono ai. ʻO ka ʻae ʻana i ka ʻoiaʻiʻo e make ana ʻoe, ʻo ia hoʻi ke haʻalele ʻana i ka wā e hiki mai ana āu i noʻonoʻo ai. ʻAʻole ia he mea maʻalahi. Akā, ʻo ka hoʻomaopopo ʻana i ka ʻoiaʻiʻo o kou kūlana a me ka ʻae ʻana me ka hanohano e kōkua iā ʻoe e ola i kēia manawa a hoʻohana pono i kēlā me kēia manawa .
• E noʻonoʻo e kamaʻilio me kahi "Death Doula": He poʻe loea mālama ola kino kēia e hāʻawi ana i ke kākoʻo noʻonoʻo a me ka naʻau iā ʻoe a me kāu poʻe aloha. Hiki iā lākou ke hoʻonohonoho i nā kipa, kōkua me nā palapala kānāwai, a hana ma ke ʻano he hoa/hoaaloha.
• E huli i kahi kanaka e kamaʻilio pū me (inā makemake ʻoe): ʻO ke kamaʻilio ʻana me kāu poʻe aloha e hiki ke kōkua iā ʻoe e hoʻoponopono i kēia mau manaʻo paʻakikī. Hāʻawi pū ia iā lākou i kahi manawa e kākoʻo iā ʻoe. Inā ʻaʻole ʻoe makemake e kamaʻilio me kekahi, ua maikaʻi nō hoʻi. E hana ia i ka wā āu e makemake ai. I kēia manawa, ʻo ke kākau ʻana e pili ana i kou mau manaʻo i loko o kahi puke pai a i ʻole ke kamaʻilio ʻana me kahi mea lapaʻau e hiki ke kōkua iā ʻoe e hoʻoponopono i kou mau manaʻo.
• E mālama i kāu hana maʻamau: Inā maikaʻi kou manaʻo, e hoʻolālā i kou mau lā e like me ka mea maʻamau. E kākau i kāu mau hana e hiki mai ana ma kahi kalena. E ho'āʻo e hoʻomau i ka hana ʻana i nā mea āu e makemake ai.
• E hoʻoikaika i ka hauʻoli:Ke loaʻa iā kākou kahi `(Maʻi Kino)`, ua koi ʻia kākou, makemake paha kākou a ʻaʻole paha, e noho i kēia manawa. E hoʻolilo i kēia i mea pono nou. E komo i nā mea liʻiliʻi e lawe mai iā ʻoe i ka hauʻoli. Hiki ke maʻalahi e like me ka inu ʻana i kahi kīʻaha tī wela, ka heluhelu ʻana i kahi puke punahele, a i ʻole ka hoʻolohe ʻana i nā manu e mele ana ma ka māla.
• E hoʻāʻo i nā lāʻau lapaʻau kōkua: Hiki i ka Acupuncture, Reiki, yoga, massage, a me ka noʻonoʻo ʻana ke kōkua nui. Eia nō naʻe, e nīnau pono i kāu kauka e pili ana i nā lāʻau lapaʻau kūpono ʻole iā ʻoe.

Pehea ʻoe e mālama ai i kekahi me ka `(Maʻi Kino)`? (Inā ʻo ʻoe ke kanaka e mālama ana iā lākou)

Ke ʻike ʻoe ua loaʻa i kahi mea aloha kahi maʻi make, manaʻo ʻoe i ke kaumaha ma mua o ko lākou make ʻana. Kāhea mākou ia he kaumaha anticipatory. He mea paʻakikī ke noʻonoʻo e pili ana i ka make, pehea e hiki ai, a me ka wā e hiki ai.

Inā ʻo kou manawa mua kēia e nalowale ai kekahi mea kokoke iā ʻoe, ʻaʻole paha ʻoe e ʻike i ka mea e hana ai a ʻōlelo paha. He mea maʻamau ka hopohopo no nā mea e like me kēia. Akā, ʻaʻole paʻakikī ka mālama ʻana i kahi mea me ka maʻi make e like me kou manaʻo. Makemake ka poʻe e make ana i nā mea like a mākou e makemake ai - e ʻike ʻia, e lohe ʻia, e aloha ʻia. Eia kekahi mau ala e hiki ai iā ʻoe ke kōkua:

• E lilo i mea hoʻolohe maikaʻi: ʻOiai inā ʻaʻohe āu mea e ʻōlelo ai, e hoʻokaʻawale i kahi no lākou. E hoʻolohe i ko lākou manaʻo, a e wehe i ka puka no ke kamaʻilio ʻana. He manawa weliweli kēia no ʻolua ʻelua. E noho pū kekahi me kekahi.
• E Noho Pū: ʻO ka noho pū ʻana me lākou he mea hōʻoluʻolu nui ia iā lākou. E nānā pū i kahi kiʻiʻoniʻoni. E lawe iā lākou no kahi kaʻa. E hoʻolohe i kā lākou album punahele. E heluhelu i kahi puke iā lākou. ʻAʻole ka hana ka mea nui, ʻo ka ʻoiaʻiʻo o kou noho ʻana ma laila.
• Kōkua ma mua o kou noi ʻana: ʻO ka poʻe e kokoke ana i ka hopena o ko lākou ola e kānalua paha e noi i ke kōkua no ka mea ʻaʻole lākou makemake e lilo i mea kaumaha i nā poʻe ʻē aʻe. Inā ʻike ʻoe i kahi ala e kōkua ai, e hana. Hiki ke lilo i mea e like me ka holo ʻana i nā hana, ka hoʻomākaukau ʻana i ka ʻaina ahiahi, a i ʻole ka holoi lole.
• E hoʻokomo pū iā lākou: Mai manaʻo ʻaʻole makemake kāu mea aloha e komo i ka leʻaleʻa no ka mea he maʻi make ko lākou. E kono pū iā lākou, a e ʻae iā lākou e hoʻoholo.
• E hāʻawi i ka ʻoiaʻiʻo a me ka hōʻoiaʻiʻo: E kamaʻilio maopopo a pololei e pili ana i ko lākou maʻi. E ʻoiaʻiʻo me lākou e pili ana i kā lākou "Terminal Diagnosis". Mai hana me he mea lā ʻaʻole ia e hana ʻia. I ka manawa like, hiki iā ʻoe ke hāʻawi iā lākou i ka manaʻolana. E nīnau i kā lākou mau makemake no ka hopena o ko lākou ola, a hoʻokomo iā lākou i loko o kēlā mau hoʻolālā. E hōʻike iā lākou aia ʻoe ma laila no lākou a ʻaʻole ʻoe e haʻalele iā lākou.
• E mahalo i ko lākou mau palena:E hoʻolohe i kā lākou makemake, a me ko lākou mau pono. E kōkua iā lākou e like me kā lākou e pono ai ke kōkua, ʻaʻole ma ke ʻano āu e makemake ai e kōkua iā lākou .

ʻO ka "Terminal Diagnosis" kahi mea e hoʻololi koke i kou ola. He mea paʻakikī loa ka noʻonoʻo ʻana e haʻi aku i kāu poʻe aloha a haʻalele i nā hoʻolālā no ka wā e hiki mai ana. E ʻoi aku ka maikaʻi o kekahi mau lā ma mua o nā mea ʻē aʻe. Inā luhi ʻoe, e hoʻomaha. Mai poina e haʻi i kāu kauka inā loaʻa iā ʻoe kekahi mau hōʻailona hou. Ma waena o ka hōʻailona a me ka make, aia ke ola. E hoʻolilo i kēlā mau lā e like me kou makemake, me ka poʻe āu e aloha ai.

Nā mea nui e hoʻomanaʻo (Leka Lawe-Home)

• ʻO ka "Maʻi Kino" he maʻi hiki ʻole ke hoʻōla ʻia e pau ana i ka make.
• He mea maʻamau ke manaʻo i nā ʻano manaʻo like ʻole ke loaʻa iā ʻoe nā lono e like me kēia. ʻAʻole ʻoe hoʻokahi.
• ʻO ka pahuhopu nui o ka mālama ʻana, ʻo ia ke kāohi i nā hōʻailona a hoʻomaikaʻi i ka ʻoluʻolu a me ke ʻano o ke ola. He mea nui loa nā lawelawe i kapa ʻia ʻo "Palliative Care" a me "Hospice Care" no kēia.
• Inā ʻoe e ʻeha nei i kahi maʻi, he mea nui e mālama iā ʻoe iho a noʻonoʻo e pili ana i kou olakino noʻonoʻo.
• Inā he mea mālama ʻoe, he mea nui loa e hoʻolohe i ka mea maʻi, e hoʻolilo manawa me lākou, a e mahalo i ko lākou mau pono.
• E ʻimi i ke kākoʻo o nā kauka, nā kahu maʻi, nā kākā'ōlelo, a me nā poʻe aloha ma kēia huakaʻi.

ʻO ka maʻi hope loa, ka mālama palliative, ka hopena o ke ola, ke kākoʻo noʻonoʻo, ke kākoʻo ʻohana, ka mālama ʻana i ka mea maʻi, ka hoʻokele ʻeha