Ua ʻike anei ʻoe i kāu keiki liʻiliʻi e ʻūlū koke, ʻoʻoleʻa , a kūlou paha i ko lākou poʻo? I kekahi manawa hana ʻia kēia mau mea i nā manawa he nui i ka lālani. He mea maʻamau no ka makua ke makaʻu nui i ka ʻike ʻana i kēia mau mea. E hopohopo paha ʻoe inā he mau spasms maʻamau kēia a i ʻole kekahi mea koʻikoʻi. I kēia lā ke kamaʻilio nei mākou e pili ana i ka 'Infantile Spasms', kahi maʻi koʻikoʻi e hiki ke hana i nā pēpē e hōʻike ana i kēia mau hōʻailona. Ua kapa ʻia hoʻi kēia ʻo 'West Syndrome'.
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Pehea maoli ke ʻano o kēia mau spasms?
ʻAʻole lōʻihi kēia mau haʻalulu, a i ʻole nā hopu ʻana,. Pau lākou i loko o kekahi mau kekona. Akā aia kekahi mea kūikawā e pili ana i kēia. Hele mai lākou i nā puʻupuʻu . ʻO ia hoʻi, i ka pau ʻana o kekahi, hiki mai kekahi.
Hiki i kēia mau haʻalulu ke maʻalea loa i kekahi manawa. I kekahi manawa, hiki ke koʻikoʻi loa. Hiki i kāu pēpē ke ʻike i nā ʻano ʻelua i nā manawa like ʻole.
- Ma kahi neʻe mālie: Me he mea lā e hoʻokiʻekiʻe ana ke pēpē i kona poʻo.
- I loko o kahi haʻalulu nui: Hiki ke ʻoʻoleʻa koke ke kino, hiki ke hoʻolei ʻia nā lima i nā ʻaoʻao, a hiki ke kūlou nā kuli i ka ʻōpū. A i ʻole e hoʻolei ʻia ke poʻo i hope a hiki ke hoʻopololei ʻia nā lima a me nā wāwae.
- I kekahi manawa hiki i kēia mau haʻalulu ke hoʻopilikia i hoʻokahi ʻaoʻao wale nō o ke kino.
- Hiki i ke pēpē ke uē ma mua a ma hope paha o nā ʻōʻō ʻana.
Nā hōʻailona ʻē aʻe āu e ʻike ai
Ma waho aʻe o kēia mau ʻūlū, e ʻike paha ʻoe i kahi ʻūlū a ʻūlū paha i nā ʻiʻo o kāu pēpē. Kāhea nā kauka i kēia ʻo 'Myoclonus'. Hiki ke hana ʻia kēia ma nā ʻano ʻelua.
| ʻAno Myoclonus | He aha ka mea e hana nei? |
|---|---|
| ʻO ka Myoclonus maikaʻi | Hiki mai ka spasm ma muli o ka ʻūmiʻi koke ʻana o nā ʻiʻo. |
| ʻO ka Myoclonus maikaʻi ʻole | Hiki mai ka spasm ma muli o ka hoʻomaha koke ʻana o nā ʻiʻo. |
He pēpē kēia.ʻAʻole ia he mea i manaʻo ʻia . Ua like ia me kākou e ala koke ana i ka wā e kokoke ana kākou e hiamoe, kahi mea hiki ʻole i ka pēpē ke kaohi.
Hiki i ka West Syndrome ke hoʻopilikia i ka ʻōnaehana nerve autonomic o ka pēpē. ʻO kēia ke kumu o nā mea hiki ʻole iā mākou ke kaohi, e like me ka helu o ko mākou puʻuwai a me ka hoʻonui ʻana o kā mākou mau haumāna. No laila hiki ke ʻike ʻia kēia mau hōʻailona ke loaʻa kahi hopu.
- Lilo ka ʻili o ke pēpē i ke keʻokeʻo a ʻulaʻula paha.
- Ka hou ʻana
- Ka hoʻonui ʻia ʻana o ka haumāna o ka maka
- Nā waimaka e puka mai ana mai nā maka
- Hoʻonui a hoʻemi paha i ka nui o ka hanu ʻana
- Hoʻonui a emi paha ka helu o ka puʻuwai
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Check Availability →E hoʻopilikia anei kēia i ka ulu ʻana o ka pēpē?
ʻAe, he mea nui loa kēia. I ka ulu ʻana o kahi pēpē, hele ʻo ia i kekahi mau pae hoʻomohala. Nā mea e like me ka ʻōwili ʻana, ka ʻike ʻana i kou leo, a me ke kau ʻana i nā mea i loko o kona waha. Akā, ʻo kahi pēpē me West Syndrome e lōʻihi paha ka manawa e hiki ai i kēia mau pae hoʻomohala ma mua o kahi pēpē maʻamau. Ua kapa nā kauka i kēia ulu lohi .
ʻO ka mea hopohopo hou aku, i kekahi manawa hiki i kahi pēpē ke poina i nā mea a lākou i aʻo mua ai . Eia kekahi laʻana, e ʻike paha ʻoe ʻaʻole hiki i kahi pēpē i noho maikaʻi ma mua ke hana hou. Ua kapa ʻia kēia he developmental regression . Inā ʻike ʻoe i kahi mea e like me kēia, mai hoʻowahāwahā iā ia.
He aha nā loli e hana ʻia ana i loko o ka lolo?
Ke hana mau nei ka hana uila i loko o ka lolo o kāu pēpē. Inā lilo kēia hana i mea ʻē, hiki iā ia ke hoʻoulu i nā hopu. Hiki i kāu kauka ke kauoha i kahi hoʻāʻo EEG (Electroencephalography) e ana i ka hana o ka lolo o kāu pēpē.
Hoʻopili kēia i ke kau ʻana i nā 'electrodes' e like me ka sticker i ke poʻo o ka pēpē, e hoʻopili iā lākou i kahi mīkini, a hoʻopaʻa i nā ʻano nalu uila o ka lolo. ʻIke pinepine ʻia kahi ʻano kūikawā a chaotic i kapa ʻia ʻo 'Hypsarrhythmia' i nā moʻolelo EEG o nā pēpē me nā Infantile Spasms.
Eia kekahi, hiki i ke kauka ke ʻōlelo aku i nā scan lolo e like me CT (Computed Tomography) a me MRI (Magnetic Resonance Imaging) . Hiki i kēia mau kiʻi ke kōkua i ka hoʻoholo ʻana inā e ulu pono ana ka lolo a inā he pōʻino, maʻi, a i ʻole ka ʻeha i ka lolo.
He aha ke kumu o kēia kūlana?
I ka ʻōlelo maʻalahi, ʻo nā mea e hōʻino ai i ka lolo o ka pēpē hiki ke hana i nā spasms pēpē. Loaʻa kekahi mau kumu ma mua o ka hānau ʻana o ka pēpē, aʻo kekahi ma hope o ka hānau ʻana.
| Kumu | He wehewehe pōkole |
|---|---|
| ʻO ka hui pū ʻana o ka Tuberous Sclerosis | ʻO kēia ke kumu maʻamau. He kūlana hoʻoilina. Hoʻokumu ʻia nā puʻupuʻu ʻaʻole kanesa ma nā wahi e like me ka lolo, ka ʻili, a me nā puʻupaʻa. |
| Nā kūlana hoʻoilina | Nā kūlana e like me Down Syndrome. |
| ʻEha o ka lolo | Nā ʻeha o ka lolo i ka wā hānau a ma hope paha. |
| Ka hāʻule ʻana o ka lolo | ʻAʻole i hoʻokumu pono ʻia ke ʻano o ka lolo i loko o ka ʻōpū. |
| Ka nele o ka oxygen | Ua emi ka lako o ka oxygen i ka lolo i ka wā hānau. |
| Nā maʻi lolo | Nā maʻi e like me ka meningitis a i ʻole ka encephalitis. |
| Ka nele o ka wikamina B | ʻOi aku hoʻi ka nele o ka wikamina B6. |
I kekahi manawa, ʻaʻole hiki i nā kauka ke loaʻa kahi kumu kikoʻī no kēia. Akā hoʻokahi mea i maopopo. ʻAʻohe hōʻike e pili ana i ka pilina ma waena o nā lāʻau pale i hāʻawi ʻia i nā pēpē a me kēia maʻi. No laila, mai makaʻu nui ʻoe no ia mea.
No ke aha ʻoe e ʻike koke ai i ke kauka?
ʻO kēia ka mea nui loa. Inā ʻike ʻoe i kekahi o nā haʻalulu, ka ʻoʻoleʻa , a i ʻole nā loli ʻē aʻe i ka ulu ʻana o kāu pēpē i ʻōlelo ʻia ma kēia ʻatikala, e lawe koke iā ia i kahi kauka pediatric me ka hoʻokaʻulua ʻole.
ʻAʻole kēia he mau mea maʻalahi e like me ka ʻūlū maʻamau o kahi pēpē. He maʻi koʻikoʻi kēia e hoʻopilikia ai i ka lolo. He mea nui loa ka ʻike mua ʻana a me ka mālama mua ʻana no ka ulu ʻana o ka lolo o ka pēpē i ka wā e hiki mai ana.
No ka hana ʻana i kahi hōʻailona, hiki i ke kauka ke kauoha i nā hoʻokolohua koko a me ka mimi, kahi EEG, kahi scan lolo, a me kahi puncture lumbar paha e nānā i nā maʻi e like me ka meningitis.
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- Inā hoʻomaka koke kāu pēpē e ʻoniʻoni, hoʻoʻoleʻa i kona kino, a i ʻole e hoʻokuʻi i kona poʻo i loko o kahi puʻu, mai hoʻowahāwahā iā ia.
- ʻAʻole kēia he mau ʻūmiʻi maʻamau, akā he mau hōʻailona paha ia o kahi maʻi koʻikoʻi e pono ai ke kōkua koke ʻia e ke kauka.
- Inā manaʻo ʻoe e lohi ana ka ulu ʻana o kāu pēpē, a inā paha e poina ana iā ia nā mea āna i aʻo ai (e like me ke noho ʻana i luna, ka minoʻaka ʻana), e haʻi koke aku i kāu kauka.
- ʻOiai ke kumu, he mea nui ka ʻike mua ʻana a me ka mālama ʻana no ka ulu ʻana o ka lolo o ka pēpē.
- ʻAʻohe pilina i hōʻoia ʻia ma waena o kēia maʻi a me nā lāʻau pale. No laila, mai hōʻole i nā lāʻau pale e loaʻa i kāu pēpē ma ke ʻōlelo aʻoaʻo lapaʻau.
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