Ke luhi pinepine nei ʻoe a ʻeha nā hono? I kekahi manawa manaʻo mākou he mea maʻamau kēia a hoʻowahāwahā iā lākou. Akā hiki i kēia mau mea ke lilo i mau hōʻailona o ka nui o ka hao i loko o ko mākou kino. I kēia lā ke kamaʻilio nei mākou e pili ana i kekahi ʻano maʻi, ʻo "Hemochromatosis". ʻOiai he inoa maʻamau ʻole kēia, he mea nui loa ia e ʻike e pili ana i ia mea.
I ka ʻōlelo maʻalahi, he aha ka hemochromatosis?
ʻO ka Hemochromatosis
kahi maʻi e hōʻiliʻili nui ai kou kino i ka hao. Ua kapa pū kekahi poʻe iā ia he "iron overload." ʻO ka maʻamau, ʻo ko mākou ʻōpū wale nō ka mea e pono ai ko mākou kino mai nā meaʻai a mākou e ʻai ai. Akā i ka poʻe me ka hemochromatosis, ʻoi aku ka nui o ka hao i omo ʻia e ke kino ma mua o ka mea e pono ai. ʻO ka pilikia, ʻaʻohe ala e hoʻopau ai i kēia hao keu. No laila, mālama ke kino i kēia hao keu i loko o kou mau hono a me nā ʻōpū koʻikoʻi e like me ke akepaʻa, ka puʻuwai, a me ka pancreas.
E like me ka piha ʻana o ka pahu wai, ke nui loa ka hao i loko o ko kākou kino, hoʻomaka ia e hōʻiliʻili i loko o ko kākou mau kino. Ke hana ʻia kēia i ka hala ʻana o ka manawa, hiki iā ia ke hōʻino i kēlā mau kino. Inā ʻaʻole mālama ʻia, hiki iā ia ke hoʻōki i ka hana ʻana o kēlā mau kino.
ʻElua ʻano nui o kēia maʻi.
Hiki ke hoʻokaʻawale ʻia kēia ʻano i ʻelua ʻano nui. 1.
Hemochromatosis mua: He
ʻano hoʻoilina kēia. ʻO ia hoʻi, ua hoʻoili ʻia ma o nā lālā o ka ʻohana ma o nā genes. I mea e pololei ai, i mea e loaʻa ai kēia maʻi, pono ʻoe e loaʻa i ka gene kīnā mai kou makuahine a me kou makuakāne. 2.
Hemochromatosis lua: Hana ʻia kēia ma muli o nā kumu ʻē aʻe. No ka laʻana, hiki ke hana ʻia kēia ʻano i nā poʻe i loaʻa i kahi maʻi e pono ai ke hoʻoili koko pinepine (e.g., thalassemia) a i ʻole i nā poʻe me nā maʻi akepaʻa ʻē aʻe.
He aha nā kumu o ka hemochromatosis?
Nā kumu hoʻoilina
Hoʻomalu ka gene HFE i ka nui o ka hao e omo ai ko kākou kino mai ka meaʻai. ʻElua mau mutations i loko o ka gene HFE, ʻo C282Y lāua ʻo H63D, ke kuleana no ka hapa nui o nā hihia hemochromatosis hoʻoilina. Hiki i nā gene ʻē aʻe ke hana i kahi helu liʻiliʻi o nā hihia (ma kahi o 10%-15%). Ua kapa ʻia kēia mau mea he hemochromatosis non-HFE. Inā he mau mutations i loko o nā genes e like me HJV a i ʻole HAMP, ʻike pinepine ʻia nā hōʻailona i ka wā ʻōpiopio. I kekahi manawa, hiki ke hōʻino ʻia ke akepaʻa
a me ka cirrhosis i ka wā ʻōpiopio.ʻO ke kūlana paha e kū mai ana.
Nā kumu waho ʻē aʻe (Nā Kumu Lua)
ʻO ka maʻamau, hiki mai kēia ʻano ke loaʻa i ke kanaka kahi maʻi e like me ka anemia koʻikoʻi a pono e hoʻoili pinepine ʻia ke koko. ʻO kēia no ka mea he nui ka hao i loko o nā hunaola koko ʻulaʻula i hāʻawi ʻia iā lākou mai waho mai. ʻOiai ʻaʻohe ala o ke kino e wehe ai i kēia hao, hoʻomaka ia e hōʻiliʻili. Hiki ke hoʻonui ʻia ka hōʻiliʻili hao ke hōʻino ʻia ke akepaʻa e nā maʻi e like me ka cirrhosis a i ʻole ka hepatitis B a i ʻole C mau.
ʻO wai ka mea i pilikia nui no kēia?
Inā loaʻa iā ʻoe nā kumu aʻe, ʻoi aku kou pilikia o ka loaʻa ʻana o ka hemochromatosis. E nānā kākou i kahi papa e hoʻomaopopo pono ai i kēia.
| Kumu pilikia | Wehewehena |
|---|
| Loaʻa iā ʻelua mau genes HFE kīnā ʻole | ʻO kēia ke kumu pilikia nui. Pono e hoʻoilina ʻia ka gene mai ka makuahine a me ka makuakāne. |
| Moʻolelo ʻohana | Inā loaʻa kēia maʻi i kekahi o kou mau mākua a i ʻole kou mau hoahānau, aia nō hoʻi ʻoe i ka pilikia. |
| ʻOiai he kāne | ʻElima manawa ʻoi aku ka nui o ka loaʻa ʻana o kēia maʻi i nā kāne ma mua o nā wahine. |
| Ka hoʻopau ʻana o ka wahine | Ua nalowale ka nui o ka hao mai ko lākou kino i nā wāhine ma o ke kahe ʻana o ke koko i kēlā me kēia mahina. Hoʻōki kēia ma hope o ka menopause a i ʻole ma hope o ka hysterectomy, kahi e hoʻonui ai i ka pilikia o ka hao nui. |
He aha nā hōʻailona o ka hemochromatosis?
Ma kahi o ka hapalua o ka poʻe me ka hemochromatosis ʻaʻole lākou e ʻike i kekahi mau hōʻailona. No nā kāne, hoʻomaka pinepine nā hōʻailona ma waena o 30 a me 50 mau makahiki. No nā wahine, ʻike pinepine ʻia nā hōʻailona ma hope o 50 mau makahiki, a ma hope paha o ka menopause. Eia kekahi o nā hōʻailona nui:
ʻO ka mea nui, hiki ke hoʻonui ʻia kēia kūlana inā ʻoe e lawe i nā pila huaora C a ʻai paha i nā meaʻai waiwai i ka huaora C. ʻO kēia no ka mea hoʻonui ka huaora C i ka omo ʻana o ke kino i ka hao mai ka meaʻai.
I kekahi manawa, ʻaʻole hōʻike ka maʻi i kēia mau hōʻailona, akā hōʻike ʻia ma ke ʻano he mau pilikia ʻē aʻe. Eia kekahi laʻana:
- nā pilikia o ke ake, ʻoiai ka cirrhosis
- Maʻi diabetes
- Nā ʻano ʻino o ka puʻuwai
- ʻO ka ʻāʻī o ke kino
- ʻO ka hana ʻino ʻana o ka erectile
Pehea ʻoe e ʻike ai i kēia, e Kauka?
No ka mea hiki ke ʻike ʻia kēia mau hōʻailona i nā maʻi ʻē aʻe, i kekahi manawa hiki ke paʻakikī iki ka hōʻailona. Akā inā loaʻa iā ʻoe nā hōʻailona, nā kumu pilikia, a i ʻole he lālā o ka ʻohana i loaʻa ka maʻi, e nānā kāu kauka iā ia. Eia kekahi o nā ala nui e hōʻoia ai i ka maʻi:
- Ke nīnau nei e pili ana i kāu mōʻaukala olakino a me kou ʻohana: E nīnau ke kauka inā loaʻa i kekahi o kou ʻohana kēia maʻi, maʻi akepaʻa, a i ʻole ka ʻāʻī.
- Hoʻokolokolo kino: E hoʻokolokolo ʻia kou kino.
- Nā hoʻāʻo koko: Hana ʻia ʻelua mau hoʻāʻo nui.
1.
Ka saturation Transferrin: Hōʻike kēia i ka nui o ka hao i hoʻopaʻa ʻia i ka transferrin, kahi protein e lawe ana i ka hao i loko o ke koko. 2.
Ferritin serum: Ke ana kēia i ka pae o ka ferritin, kahi protein e mālama i ka hao i loko o ke kino. Inā hōʻike kēia mau hoʻokolohua i nā pae hao kiʻekiʻe, hiki i kāu kauka ke kuhikuhi iā ʻoe no ka hoʻāʻo genetic e hoʻoholo ai inā loaʻa iā ʻoe ka gene e hoʻoulu ai i ka hemochromatosis.- Biopsy akepaʻa: Lawe ʻia kahi ʻāpana liʻiliʻi loa o ke akepaʻa a nānā ʻia ma lalo o kahi microscope e ʻike ai inā he pōʻino i ke akepaʻa.
- MRI scan: Hoʻohana i nā magnet a me nā nalu lekiō e hana i nā kiʻi maopopo o kou mau kino.
He aha nā lāʻau lapaʻau?
Inā loaʻa iā ʻoe ka hemochromatosis hoʻoilina, ʻo ka phlebotomy ka lāʻau nui. I ka ʻōlelo maʻalahi, ʻo ia ka wehe ʻana i ke koko mai kou kino i nā manawa maʻamau. Ua like ia me ke ʻano o kā mākou hāʻawi ʻana i ke koko ma Sri Lanka. Hoʻokomo ke kauka a kahu maʻi paha i kahi nila i loko o kahi aʻa koko ma kou lima a wehe i kahi nui o ke koko. ʻO ka pahuhopu nui o kēia, ʻo ia ka hoʻihoʻi ʻana i nā pae hao i loko o kou koko i ka maʻamau. Hana ʻia kēia ma nā ʻāpana ʻelua:- Lapaʻau mua: Pono ʻoe e hele i ka haukapila a i ʻole ke keʻena lapaʻau i hoʻokahi a ʻelua paha i ka pule e huki ʻia ke koko a hiki i ka hoʻi ʻana o kou pae hao i ka maʻamau. Hiki ke hala i hoʻokahi makahiki a ʻoi aku paha.
- Ka mālama ʻana: Ke hoʻi hou ka pae hao i ka maʻamau, e hoʻemi ʻia ke alapine o ke kahe koko. Hana pinepine ʻia kēia i ʻelua a ʻehā manawa i ka makahiki.
Inā loaʻa iā ʻoe ka hemochromatosis lua, a inā ʻaʻole ikaika kou mau aa koko e wehe i ke koko, hiki i kāu kauka ke ʻōlelo aku i kahi lāʻau i kapa ʻia ʻo chelation therapy . Pili kēia i ka hāʻawi ʻana iā ʻoe i nā lāʻau lapaʻau e kōkua i kou kino e hoʻopau i ka hao keu ma o kou mimi a me ka ʻōpala. He aha nā hoʻololi e hiki ke hana ʻia ma ka home a ma kou nohona?
Inā ʻoe e hana ana i ka phlebotomy, ʻaʻole pono ʻoe e hahai i kahi papaʻai paʻa no ka mea kōkua ia i ka hoʻomalu ʻana i kāu mau pae hao. Eia nō naʻe, hiki iā ʻoe ke hana i kēia mau mea e hōʻemi ai i kou pilikia o nā pilikia:- E hōʻalo loa i ka waiʻona. Hiki i ka waiʻona ke hoʻonui i ka hōʻino ʻana o ke ake.
- E pale i ka ʻai ʻana i ka iʻa maka a i ʻole ka iʻa paʻi. Loaʻa paha iā lākou nā bacteria e hiki ai ke hoʻoulu i nā maʻi i ka poʻe me nā pae hao kiʻekiʻe.
- Mai lawe i nā mea hoʻohui huaora C. Eia nō naʻe, ʻaʻohe pilikia i ka ʻai ʻana i nā meaʻai kūlohelohe i loaʻa ka huaora C (e like me nā ʻalani, nā tangerine).
- E hōʻalo i ka lawe ʻana i nā mea hoʻohui hao a i ʻole nā multivitamins i loaʻa ka hao.
- E hōʻalo i nā cereals ʻaina kakahiaka i hoʻohui ʻia ka hao (i hoʻoikaika ʻia).
- E hōʻemi i kāu ʻai ʻana i nā meaʻai waiwai i ka hao (e.g., oysters, ʻiʻo duck, spinach). E nīnau i kāu kauka e pili ana i kēia.E hoʻolohe a e ʻike hou aku.
Leka Lawe-Home
- ʻO ka Hemochromatosis kahi maʻi e hōʻiliʻili nui ai ka hao i loko o ke kino. He maʻi genetic ia i hoʻoili ʻia ma o nā hanauna.
- ʻO nā hōʻailona paha e komo pū me ka luhi, ka ʻeha o nā hono, a me ke kala ʻana o ka ʻili. ʻAʻohe hōʻailona iki o kekahi poʻe.
- Inā loaʻa iā ʻoe nā hōʻailona a i ʻole kekahi o kou ʻohana i loaʻa i kēia maʻi, e ʻike koke i kāu kauka no ka ʻōlelo aʻo.
- Hiki i ka ʻike mua a me ka mālama ʻana (Phlebotomy) ke kaohi i nā pae hao i loko o ke kino a pale i ka hōʻino ʻana o nā ʻōkana.
- ʻAʻole kēia he kūlana e makaʻu ai. Me ka mālama lapaʻau kūpono a me nā ʻōlelo aʻoaʻo, hiki iā ʻoe ke ola i kahi ola maʻamau a olakino.
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