Koj puas yog ib tug neeg uas muaj tus kab mob Hemophilia A? Los yog puas muaj ib tug neeg hauv koj tsev neeg muaj tus mob no? Yog tias muaj, tej zaum koj yuav paub tias nws tseem ceeb npaum li cas los tswj kev los ntshav thaum nws los. Hnub no peb yuav tham txog cov tshuaj tiv thaiv tseem ceeb heev uas siv rau lub hom phiaj no, tshuaj tiv thaiv Antihemophilic Factor (AHF) lossis Factor VIII. Cia peb tham txog nws yog dab tsi, nws siv li cas, thiab yam dab tsi yuav tsum ceev faj txog.
Cov tshuaj no hu ua Factor VIII li cas?
Hais yooj yim xwb, cov neeg uas muaj mob hemophilia A muaj tsawg heev los yog tsis muaj Factor VIII, uas yog ib qho protein uas xav tau rau kev txhaws ntshav. Yog li ntawd, txawm tias raug mob me me los kuj tuaj yeem ua rau los ntshav loj heev. Cov tshuaj tiv thaiv kab mob no ua haujlwm los ntawm kev muab Factor VIII uas tsis txaus rau lub cev.
Qhov no feem ntau yog siv rau:
- Txhawm rau tiv thaiv lossis tswj kev los ntshav rau cov neeg mob uas muaj tus kab mob hemophilia A.
- Yog koj tab tom phais, tswj cov ntshav uas yuav tshwm sim rau lub sijhawm ntawd.
- Muaj tej lub sij hawm, qee hom tshuaj no kuj siv los kho lwm yam mob los ntshav hu ua von Willebrand's disease.
Cov tshuaj no yuav muaj ntau hom npe sib txawv xws li Advate, Kogenate, Humate-P, XYNTHA, thiab lwm yam. Txawm koj tau lub npe dab tsi los xij, nws muaj tib yam Factor VIII.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej noj tshuaj
Ua ntej pib kho mob no, nws yog ib qho tseem ceeb heev uas yuav tsum tham txog cov teeb meem no kom meej nrog koj tus kws kho mob.
- Kev Ua Xua: Nco ntsoov qhia rau peb yog tias koj tau ua xua rau tib neeg lossis tsiaj (xws li nqaij nyuj, hamster, nas, npua) cov protein, lwm yam tshuaj, khoom noj, tshuaj tiv thaiv, lossis xim.
- Cev Xeeb Tub: Yog tias koj cev xeeb tub lossis tab tom sim cev xeeb tub, qhia rau koj tus kws kho mob.
- Yog tias koj yog niam pub niam mis: Yog tias koj yog niam pub niam mis, koj kuj yuav tsum hais txog qhov ntawd.
Raws li cov ntaub ntawv no, tus kws kho mob yuav txiav txim siab seb txoj kev kho mob twg zoo tshaj plaws thiab muaj kev nyab xeeb tshaj plaws rau koj. Yog li ntawd, tsis txhob zais dab tsi.
Kuv yuav tsum siv cov tshuaj no li cas?
Qhov no yog kev txhaj tshuaj rau hauv cov leeg ntshav . Feem ntau qhov no yog muab los ntawm tus kws kho mob uas tau kawm tiav hauv tsev kho mob lossis chaw kho mob. Txawm li cas los xij, qee tus neeg mob tau qhia txog yuav ua li cas txhaj tshuaj no hauv tsev. Yog tias koj tau txhaj tshuaj no hauv tsev, koj yuav tsum ua raws li cov lus qhia kom meej . Yog tias koj tsis paub meej txog yuav ua li cas sib tov cov tshuaj lossis txhaj tshuaj, nug koj tus kws kho mob dua.
Thaum twg muab rau cov menyuam yaus me?
Cov tshuaj no muab tau rau cov menyuam yaus txhua lub hnub nyoog, raws li qhov xav tau. Txawm li cas los xij, nws xav tau kev saib xyuas tshwj xeeb. Yog li ntawd, yog tias koj muab cov tshuaj no rau koj tus menyuam, nrog koj tus kws kho mob menyuam tham txog nws thiab tau txais kev qhia.
Yuav ua li cas yog tias koj noj tshuaj ntau dhau?
Yog koj xav tias koj tau noj cov tshuaj no ntau dhau los ntawm qhov yuam kev, hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Lub Tsev Kho Mob Hauv Tebchaws hauv Colombo tam sim ntawd . Lossis mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm lub tsev kho mob ze tshaj plaws. Tsis txhob nkim sijhawm.
Cov ntsiab lus tshwj xeeb uas yuav tsum tau them sai sai rau
- Nqa daim npav ID: Yog tias koj muaj tus kab mob hemophilia, nws yog ib qho tseem ceeb heev uas yuav tsum nqa daim npav ID nrog koj txhua lub sijhawm. Nws tuaj yeem cawm koj txoj sia thaum muaj xwm txheej ceev. Daim npav yuav tsum muaj koj lub npe, lub npe thiab qhov ntau npaum li cas ntawm cov tshuaj uas koj noj, lub npe thiab tus xov tooj ntawm koj tus kws kho mob, thiab cov ntaub ntawv ntawm ib tus neeg uas koj tuaj yeem tiv tauj yog tias muaj xwm txheej ceev.
- Qhov chaw ntawm cov tshuaj: Qee cov tshuaj no yog ua los ntawm cov ntshav plasma tib neeg. Muaj kev pheej hmoo me me ntawm kev kis tus kab mob lossis cov kab mob los ntawm cov no. Txawm li cas los xij, tag nrho cov khoom no tau ua tiav zoo heev los tua feem ntau cov kab mob thiab cov kab mob. Yog tias koj muaj lus nug txog qhov no, tsis txhob yig tham nrog koj tus kws kho mob.
- Tsis txhob muab cov tshuaj no faib rau lwm tus: Cov tshuaj no tsuas yog rau koj xwb. Tsis txhob muab faib rau lwm tus.
Tej zaum yuav muaj tej yam tshwm sim tsis zoo ntawm cov tshuaj no
Ib yam li lwm yam tshuaj, cov tshuaj no muaj qee yam kev phiv. Nws yog ib qho tseem ceeb kom paub tias lawv yog dab tsi thiab yuav ua li cas yog tias lawv tshwm sim.
| Cov teebmeem sab | Kev piav qhia thiab yuav ua li cas |
|---|---|
| Yog tias muaj cov tsos mob no, qhia rau koj tus kws kho mob tam sim ntawd. | |
| Kev Ua Xua | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj lossis tus nplaig, ua pa nyuaj. |
| Mob hauv siab | Mob hauv siab nrog lub plawv dhia ceev lossis tsis xwm yeem. |
| Kiv taub hau thiab tsaus muag | kiv taub hau tam sim ntawd, pom tsis meej, lossis xav tias tsaus muag. |
| Kub taub hau thiab cov tsos mob zoo li mob khaub thuas | Cov tsos mob xws li kub taub hau, mob khaub thuas thiab tshee hnyo. |
| Kev tsis muaj zog hauv cov ceg | Tsis muaj zog lossis tsis hnov mob hauv tes lossis taw. |
| Qhov muag lossis daim tawv nqaij daj | Daj ntawm cov dawb ntawm lub qhov muag lossis daim tawv nqaij. |
| Yog tias cov no tseem muaj lossis ua rau koj mob siab, qhia rau koj tus kws kho mob. | |
| Mob taub hau, xeev siab, ntuav | Mob taub hau me ntsis, xeev siab, lossis ntuav. |
| Pom kev tsis meej | Pom kev tsis meej me ntsis. |
Yuav khaws cov tshuaj li cas?
Yog siv hauv tsev, nws yog ib qho tseem ceeb heev uas yuav tsum khaws cov tshuaj kom zoo.
- Khaws cia kom deb ntawm cov menyuam yaus.
- Feem ntau cov khoom yuav tsum tau khaws cia rau hauv lub tub yees ntawm qhov kub ntawm 2 thiab 8 degrees Celsius (2-8 °C). Tsis txhob khaws cia rau hauv lub tub yees khov.
- Pov tseg cov tshuaj uas twb tas sij hawm lawm yam tsis siv.
- Thaum cov kua tshuaj txhaj tiv thaiv kab mob sib xyaw lawm, yuav tsum siv tsis pub dhau 1 txog 3 teev. Pov tseg cov kua uas seem.
Yog tias muaj cov lus qhia tshwj xeeb txog cov khoom koj tau txais, ua raws li lawv kom meej.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Factor VIII yog ib yam tshuaj tseem ceeb heev uas kho cov ntshav txhaws uas tsis muaj nyob hauv lub cev ntawm cov neeg mob hemophilia A thiab tswj kev los ntshav.
- Qhia rau koj tus kws kho mob txog tag nrho koj cov kev ua xua thiab cov ntaub ntawv kev noj qab haus huv ua ntej pib kho mob.
- Ua raws li cov lus qhia rau kev siv thiab khaws cov tshuaj kom raug. Yog tias tsis paub meej, nug dua.
- Nco ntsoov nqa daim npav ID uas lees paub tias koj yog tus neeg mob hemophiliac.
- Yog tias koj muaj teeb meem loj xws li ua xua hnyav, mob hauv siab, lossis ua pa nyuaj, nrhiav kev pab kho mob tam sim ntawd.
- Cov tshuaj no tsuas yog siv rau koj tus kheej xwb. Tsis txhob muab faib rau lwm tus.
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