Koj puas tau hnov txog neuromyelitis optica , lossis NMO raws li peb hu ua luv? Tej zaum tsis tau. Vim tias nws tsis yog ib yam kab mob uas pom ntau heev hauv ntiaj teb. Tab sis nws yog ib yam mob loj heev uas tuaj yeem cuam tshuam ncaj qha rau peb lub zeem muag thiab cov hlab ntsha caj qaum. Yog li, nws yog ib qho tseem ceeb heev uas yuav tsum paub txog qhov no. Hnub no, peb yuav tham txog nws hauv txoj kev yooj yim uas koj tuaj yeem nkag siab.
Hais yooj yim xwb, NMO yog dab tsi?
NMO muaj ntau lub npe ntxiv. Ib txhia hu ua Neuromyelitis Optica Spectrum Disorder (NMOSD), thaum lwm tus hu ua Devic's Disease. Qhov no yog ib qho txawv txawv heev uas tshwm sim. Peb lub cev tiv thaiv kab mob, lub cev tiv thaiv kab mob, pib tawm tsam peb cov hlwb noj qab haus huv tsis raug. Nws zoo li peb cov tub rog tawm tsam peb lub tebchaws. Qhov kev tawm tsam no feem ntau tsom mus rau ob feem ntawm peb lub paj hlwb hauv nruab nrab: lub paj hlwb optic, uas nqa cov ntaub ntawv los ntawm lub qhov muag mus rau lub hlwb, thiab lub hlwb qaum, uas khiav mus rau hauv qaum.
Kab mob no tuaj yeem tshwm sim hauv ob txoj kev tseem ceeb:
1. Mob NMO Ib Zaug Xwb: Hauv qhov no, cov tsos mob tshwm sim sai sai hauv ib hnub lossis ob peb lub lis piam thiab ploj mus hauv ib qho kev tawm tsam.
2. Kab mob NMO rov qab los dua: Qhov no yog hom kab mob uas feem ntau tshwm sim. Hauv qhov no, cov tsos mob yuav tshwm sim thiab ploj mus raws li lub sijhawm. Tab sis tom qab ntawd, ntau lub hlis lossis ntau xyoo tom qab, tej zaum yuav muaj lwm yam mob tshwm sim. Cov tsos mob yuav hnyav zuj zus txhua zaus uas mob.
Txawm hais tias hom thawj zaug tuaj yeem cuam tshuam rau txiv neej thiab poj niam, hom thib ob, lossis NMO rov qab los, feem ntau pom muaj rau cov poj niam dua li cov txiv neej. Nws kuj tseem tuaj yeem cuam tshuam rau cov menyuam yaus.
Cov tsos mob ntawm NMO yog dab tsi?
Cov tsos mob ntawm NMO muaj ob pawg tseem ceeb. Yog tias koj muaj ib qho ntawm cov no, nws yog ib qho tseem ceeb heev uas yuav tsum mus ntsib kws kho mob sai li sai tau.
| Mob nkeeg | Kev piav qhia thiab cov tsos mob |
|---|---|
| Mob hlwb qhov muag | Qhov no yog thaum cov hlab ntsha hauv lub qhov muag pib o. Tej zaum koj yuav hnov mob heev hauv koj lub qhov muag . Qhov no tuaj yeem ua rau pom kev tsis meej, thiab qee zaum txawm tias tsis pom kev kiag li. Feem ntau nws cuam tshuam rau ib lub qhov muag, tab sis qee zaum nws tuaj yeem cuam tshuam rau ob lub qhov muag. |
| Kab mob myelitis hla | Qhov no yog thaum cov hlab ntsha hauv tus txha nqaj qaum o. Qhov no tuaj yeem ua rau mob, tsis muaj zog, tsis muaj zog, lossis tuag tes tuag taw hauv caj npab thiab ceg. Koj kuj tseem yuav tsis tswj tau koj lub zais zis thiab plab hnyuv. Tsis tas li ntawd, cov tsos mob xws li xeev siab, ntuav, mob taub hau tas li, caj dab nruj, thiab mob taub hau kuj tseem yuav tshwm sim. |
Yog cov menyuam yaus muaj tus kab mob NMO, lawv tuaj yeem pom cov tsos mob hnyav xws li kev hloov pauv tus cwj pwm, tsis nco qab, qaug dab peg, lossis tsis nco qab.
Puas yog NMO zoo ib yam li MS (Multiple Sclerosis)?
Tsis yog. Qhov no yog ib qho chaw uas ntau tus neeg tsis meej pem. MS, uas sawv cev rau Multiple Sclerosis, yog lwm yam kab mob uas cuam tshuam rau lub paj hlwb thiab yog los ntawm kev ua haujlwm ntawm lub cev tiv thaiv kab mob. Yav dhau los, cov kws kho mob xav tias NMO yog ib hom MS. Tab sis tam sim no kev tshawb fawb tau pom tias ob yam kab mob no txawv kiag li.
Nov yog qee qhov kev hloov pauv ntawd:
| Qhov tseem ceeb | NMO (Neuromyelitis Optica) | MS (Multiple Sclerosis) |
|---|---|---|
| Qhov ceev ntawm qhov pib ntawm tus kab mob | Cov tsos mob feem ntau yog sai heev thiab hnyav heev. | Cov tsos mob feem ntau tshwm sim qeeb dua, dhau sijhawm ntev dua. |
| Kev kuaj ntshav | Muaj ib qho kev kuaj ntshav tshwj xeeb (kev kuaj tshuaj tiv thaiv kab mob) los kuaj mob NMO. | Tsis muaj kev kuaj ntshav tshwj xeeb zoo li no los kuaj mob MS. |
| Kev kuaj MRI ntawm lub hlwb | Thaum pib muaj tus kab mob, kev luam theej duab MRI ntawm lub hlwb yuav zoo li qub. | Hauv MS, cov kev hloov pauv feem ntau pom ntawm MRI scans ntawm lub hlwb. |
| Lwm yam nta | Cov tsos mob xws li xeev siab, ntuav, thiab mob ntsws yog ib qho uas pom ntau. | Cov tsos mob no feem ntau tsis pom muaj nyob rau hauv MS. |
Dab tsi ua rau muaj NMO?
Qhov tseeb, cov kws kho mob tseem tsis tau paub qhov ua rau muaj NMO. Tsis muaj pov thawj tias nws tau kis los ntawm ib tiam dhau ib tiam. Tab sis muaj ib qho meej. Muaj ntau tus neeg uas muaj NMO muaj lwm yam kab mob autoimmune , lossis lawv tsev neeg muaj lawv. Hais yooj yim, nws yog ib qho mob uas peb lub cev tiv thaiv kab mob, lub cev tiv thaiv kab mob, ua yuam kev tawm tsam peb cov hlwb noj qab haus huv. Mob ntshav qab zib (Hom 1 Mob ntshav qab zib), mob pob qij txha rheumatoid, mob psoriasis, thiab vitiligo tsuas yog ob peb yam piv txwv ntawm cov kab mob zoo li no.
Yuav kuaj mob li cas?
Tom qab koj nug txog koj cov tsos mob, koj tus kws kho mob yuav kuaj koj. Qhov no yuav suav nrog kev kuaj koj lub peev xwm xav, qhov muag pom kev, kev hais lus, lub zog ntawm lub cev, thiab kev xav.
Tsis tas li ntawd xwb, cov kev ntsuam xyuas no kuj tseem yuav ua tau:
- Kev kuaj ntshav: Ntau tshaj 70% ntawm cov neeg uas muaj NMO muaj ib hom protein tshwj xeeb, hu ua antibody, hauv lawv cov ntshav. Qhov no tuaj yeem kuaj pom los ntawm kev kuaj ntshav.
- Kev kuaj cov kua ntawm tus txha nqaj qaum: Qee zaum nws yuav tsim nyog yuav tsum tau muab cov kua ntawm tus txha nqaj qaum thiab kuaj nws.
- Kev kuaj mob MRI: MRI ( kev kuaj mob sib nqus resonance imaging)) yog ib txoj kev kho mob uas siv lub hlau nplaum loj thiab lub khoos phis tawj los thaij duab kom meej ntawm sab hauv koj lub cev. Qhov no tuaj yeem pab pom seb koj tus txha caj qaum puas o.
- Kev kuaj qhov muag: Koj yuav raug xa mus rau tus kws kho qhov muag, uas yuav ua cov kev kuaj tshwj xeeb xws li OCT (Optical Coherence Tomography) los xyuas seb puas muaj kev puas tsuaj rau cov hlab ntsha optic.
Cov kev kho mob rau NMO yog dab tsi?
Qhov no yog qhov tseem ceeb tshaj plaws. Tseem tsis tau muaj tshuaj kho tau tus kab mob NMO. Tiam sis muaj cov kev kho mob zoo heev uas tuaj yeem pab tswj cov tsos mob thiab tiv thaiv kev mob yav tom ntej.
- Cov tshuaj tiv thaiv kev qaug dab peg: Muaj ntau cov tshuaj tshiab uas nyuam qhuav pom zoo rau NMO. Eculizumab (Soliris), inebilizumab-cdon (Uplizna), thiab satralizumab-mwge (Enspryng) yog qee cov tshuaj no. Cov tshuaj no ua haujlwm los ntawm kev tsom mus rau cov tshuaj tua kab mob uas tawm tsam peb cov hlwb noj qab haus huv thiab tiv thaiv lawv kom tsis txhob ua haujlwm. Tsis tas li ntawd, koj tus kws kho mob yuav sau ntawv rau lwm cov tshuaj uas tiv thaiv lub cev tiv thaiv kab mob.
- Cov tshuaj steroids: Cov tshuaj steroid yog muab los txo qhov o ntawm lub cev. Feem ntau cov no yog muab los ntawm cov hlab ntsha (IV).
- Kev pauv ntshav hauv cov ntshav: Kuj hu ua plasmapheresis, qhov no zoo li lub tshuab ntxuav ntshav. Muaj ib lub tshuab tshwj xeeb cais cov ntshav hauv koj cov ntshav, uas muaj cov tshuaj tua kab mob uas ua rau puas tsuaj, thiab tshem nws tawm. Tom qab ntawd, ib yam khoom hloov pauv raug ntxiv rau hauv thiab cov ntshav uas tau ntxuav lawm raug muab rov qab rau hauv koj lub cev.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- NMO yog ib yam kab mob autoimmune uas tsis tshua muaj tab sis loj heev uas cuam tshuam rau peb lub qhov muag thiab tus txha nqaj qaum.
- Yog koj muaj cov tsos mob xws li mob qhov muag tam sim ntawd, pom tsis meej, tsis muaj zog lossis loog ntawm koj ob txhais ceg, nrhiav kev kho mob sai li sai tau.
- Kab mob NMO yog ib yam kab mob txawv ntawm MS (Multiple Sclerosis). Kev kuaj ntshav tshwj xeeb tuaj yeem paub qhov txawv ntawm ob yam no.
- Txawm hais tias nws tsis tuaj yeem kho tau tag nrho los xij, muaj kev kho mob zoo heev niaj hnub no los tswj cov tsos mob thiab tiv thaiv kev mob yav tom ntej.
- Yog koj lossis ib tug neeg koj paub muaj lus nug lossis kev tsis ntseeg txog qhov no, thov nrog koj tus kws kho mob tham.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus