Koj tus me nyuam puas muaj ib qho liab/ntshav ntawm lawv daim tawv nqaij? Tej zaum nws yog ib qho "Port Wine Stain"!

Koj puas tau pom ib qho chaw lossis qhov tsis zoo ntawm koj tus menyuam mos lossis tus menyuam yaus daim tawv nqaij? Qee zaum cov no tshwm sim ntawm lub ntsej muag thiab caj dab. Nws yog ib qho ib txwm muaj rau ntau tus niam txiv kom txhawj xeeb me ntsis thaum lawv pom ib yam dab tsi zoo li no. Yog li, hnub no peb yuav tham txog hom cim yug no. Hauv cov lus kho mob, qhov no kuj hu ua '(Port Wine Stain)' lossis '(Nevus Flammeus)'. Lub npe yuav suab me ntsis txawv, tab sis cia peb piav qhia nws yooj yim.

Qhov no yog dab tsi (Port Wine Stain)? Peb puas yuav piav qhia meej?

Hais yooj yim xwb, "Port Wine Stain" yog ib qho cim yug mus tas li . Qhov no txhais tau tias nws tsis ploj ntawm nws tus kheej. Thaum xub thawj nws tshwm sim ua ib qho chaw tiaj tus, du, xim liab, liab, lossis xim ntshav ntawm daim tawv nqaij ntawm tus menyuam mos. Txawm li cas los xij, dhau sijhawm, qhov chaw no qee zaum tuaj yeem tsaus dua thiab me ntsis tsa thiab pob .

Lub npe no yog los ntawm qhov tseeb tias nws zoo li me ntsis cawv liab tau nchuav rau ntawm daim tawv nqaij. Xav txog, qee zaum qhov chaw no tuaj yeem loj rau ib sab ntawm lub ntsej muag. Nws kuj tuaj yeem tshwm sim ntawm caj npab, ceg, lossis lwm qhov chaw ntawm lub cev. Txawm li cas los xij, nws feem ntau pom ntawm lub ntsej muag, caj dab, thiab taub hau.

Qhov mob no hu ua "Port Wine Stain" ntau npaum li cas?

Qhov no tsis yog ib qho uas tshwm sim ntau heev. Feem ntau, kwv yees li 3 ntawm 1,000 tus menyuam mos uas yug los yuav muaj qhov "Port Cawv Xim Av". Nws tuaj yeem tshwm sim rau cov menyuam mos ntawm txhua haiv neeg, tsis hais poj niam txiv neej. Yog li, yog tias koj tus menyuam muaj hom qhov no, tsis txhob txhawj thiab xav tias, "Vim li cas tsuas yog kuv tus menyuam xwb?" Koj tsis yog tib leeg xwb.

Cov cim qhia hnub yug no puas yuav ploj mus ntawm lawv tus kheej?

Qhov no yog ib qho teeb meem uas ntau tus niam txiv muaj. Raws li tau hais ua ntej lawm, "Port Wine Stain" yog ib qho cim yug mus tas li. Qhov no txhais tau tias nws yuav tsis ploj mus ntawm nws tus kheej yog tsis muaj kev kho mob. Txawm hais tias qee qhov cim yug me me yuav ploj me ntsis raws sijhawm, "Port Wine Stain" tsis tshua muaj.

Qhov chaw no puas yuav phem zuj zus thaum koj laus zuj zus?

Yog, qee zaum nws ua tau. Raws li lub sijhawm dhau mus, ntau qhov chaw '(Port Wine Stain)' yuav tsaus dua thiab tuab dua, nce siab tshaj daim tawv nqaij. Txawm hais tias lawv yuav tiaj tus thiab du thaum xub thawj, raws li lub sijhawm daim tawv nqaij qhov chaw ntawd tuaj yeem ua zoo li pob zeb thiab pob. Tsis tas li ntawd, qee zaum yog tias muaj kev raug mob me me tshwm sim hauv cov chaw ntawd, lawv yuav los ntshav ntau dua li qub thiab yuav nyuaj me ntsis rau kev tswj hwm.

Ua cas tus menyuam mos thiaj li muaj qhov "Port Wine Stain" no?

Qhov ua rau qhov no tsis paub meej. Txawm li cas los xij, cov kws tshawb fawb ntseeg tias qhov ua rau tseem ceeb yog kev loj hlob tsis zoo ntawm cov hlab ntsha me me hauv qab peb daim tawv nqaij.Cov hlab ntsha no yeej qhib dav, txhais tau tias lawv loj dua li qub thiab zoo li raug ncab. Qhov no yog vim li cas daim tawv nqaij thiaj li muaj xim ntawd.

Tseem tab tom tshawb nrhiav seb vim li cas cov hlab ntsha no thiaj li ua haujlwm tsis zoo li no. Qee zaum, ntau tus tswv cuab ntawm tsev neeg yuav muaj tus mob no. Txawm li cas los xij, nws tsis yog ib txwm hais tau tias nws muaj kev sib txuas ntawm caj ces. Qee zaum, nws tuaj yeem tshwm sim yam tsis muaj qhov tsis zoo ntawm caj ces (kev hloov pauv caj ces).

Lub cim yug no "Port Wine Stain" zoo li cas?

Zoo li peb tau tham txog ua ntej lawm, "Port Wine Stain" yog ib qho xim liab, liab, lossis ntshav ntawm daim tawv nqaij. Nws muaj ciam teb meej. Yog li ntawd, peb tuaj yeem paub meej tias qhov chaw pib thiab xaus qhov twg.

Txawm hais tias cov cim yug no tuaj yeem tshwm sim txhua qhov chaw ntawm lub cev, feem ntau lawv pom ntawm:

• Ntawm lub ntsej muag
• Nyob rau ntawm lub caj dab
• Tawv taub hau (ntawm taub hau)

Rau cov menyuam yaus, cov pob zeb '(Port Wine Stain)' no feem ntau yog du. Thaum tus menyuam loj hlob tuaj, cov cim yug no kuj loj hlob tuaj. Txawm li cas los xij, nws loj hlob raws li qhov loj ntawm lub cev. Raws li tau hais ua ntej, dhau sijhawm, cov pob zeb no tuaj yeem tsaus dua thiab tuab dua, zoo li cov pob zeb hauv qab daim tawv nqaij. Tsis tas li ntawd, cov chaw no yuav los ntshav txawm tias muaj kev raug mob me me los xij.

Cov xim av cawv hauv Port Wine puas ua rau mob?

Feem ntau, cov xim av ntawm '(Port Wine Stain)' tsis ua rau muaj kev phom sij rau kev noj qab haus huv. Qhov ntawd yog, lawv tsis ua rau mob lossis lwm yam kab mob loj. Txawm li cas los xij, rau qee tus menyuam, tshwj xeeb tshaj yog thaum lawv muaj cov xim no ntawm lub ntsej muag, tshwj xeeb tshaj yog thaum nws loj thiab tsaus ntuj, nws tuaj yeem ua rau muaj kev ntxhov siab loj. Kev xav txog lawv qhov tsos tuaj yeem ua rau txaj muag thiab ntshai, uas tuaj yeem ua rau lawv tsis muaj kev ntseeg tus kheej thiab txo qis lawv txoj kev xav sib raug zoo nrog lwm tus.

Tsis tshua muaj, cov xim av "Port Wine Stain" no tuaj yeem cuam tshuam nrog cov mob hnyav xws li "Klippel-Trenaunay syndrome" lossis "Sturge-Weber syndrome." Cov neeg yug los nrog cov mob no kuj muaj qhov tsis zoo ntawm cov hlab ntsha hauv lwm qhov ntawm lawv lub cev. Yog li ntawd, lawv yuav tsum tau kuaj xyuas los ntawm kws kho mob kom pom tias puas muaj teeb meem loj.

Tsis tas li ntawd xwb, yog tias cov xim cawv txiv hmab loj dua thiab pom tseeb dua tom qab ntawd, nws tuaj yeem yog ib qho cim ntawm lwm yam teeb meem kev noj qab haus huv lossis ua rau muaj lwm yam teeb meem. Piv txwv li, yog tias qhov chaw raug mob, nws yuav los ntshav yooj yim dua li daim tawv nqaij ib txwm muaj. Tsis tas li ntawd xwb, cov neeg uas muaj cov xim cawv txiv hmab nyob ib puag ncig lub qhov muag muaj feem yuav mob qhov muag hu ua glaucoma ntau dua.

Yuav ua li cas koj thiaj paub tias koj muaj "Port Wine Stain"?

Feem ntau kws kho mob tuaj yeem qhia tau tias tus menyuam mos muaj "Port Wine Stain" los ntawm kev kuaj xyuas daim tawv nqaij ntawm tus menyuam. Feem ntau, cov no raug kuaj pom thaum yug los.Tus kws kho mob kuj tseem yuav nug koj txog keeb kwm kev mob nkeeg ntawm koj tsev neeg.

Feem ntau, qhov xim av cawv txiv hmab tsuas yog ib qho teeb meem zoo nkauj uas cuam tshuam rau daim tawv nqaij xwb. Txawm li cas los xij, koj tus menyuam tus kws kho mob yuav ua qhov kev kuaj mob kom paub seb nws puas yog ib qho cim ntawm tus mob hnyav dua, xws li Sturge-Weber syndrome.

Yog tias tus kws kho mob muaj kev tsis ntseeg, lossis xav txiav txim siab seb puas muaj lwm yam mob, nws yuav pom zoo kom kuaj ntxiv. Piv txwv li:

• Kev kuaj qhov muag uas ntsuas qhov siab ntawm qhov muag
• Kev kuaj duab xws li X-rays, CT scans, lossis MRIs
• Ib qho kev kuaj uas suav nrog kev siv ib daim tawv nqaij me me (Kev kuaj tawv nqaij)

Cov kev kho mob rau `(Port Wine Stain)` yog dab tsi?

Cov xim av cawv uas tsis muaj feem cuam tshuam nrog ib qho teeb meem kev noj qab haus huv tsis tas yuav tsum tau kho mob. Txawm li cas los xij, qee tus neeg xaiv nrhiav kev kho mob. Muaj ntau yam laj thawj rau qhov no:

• Kev pheej hmoo ntawm kev los ntshav ntau dhau thiab kev kis kab mob yog tias raug mob.
• Tom qab ntawd, daim tawv nqaij yuav tuab zuj zus, ua pob, thiab hloov xim.
• Kev cuam tshuam rau kev hwm tus kheej thiab kev sib raug zoo hauv zej zog .

Kev kho mob uas siv ntau tshaj plaws thiab zoo tshaj plaws yog kev siv laser. Qhov no ua haujlwm los ntawm kev ua kom cov hlab ntsha loj zuj zus, txo cov xim ntawm lub cim yug me nyuam. Kev kho mob no zoo tshaj plaws yog tias pib thaum tseem hluas, thaum cov hlab ntsha tseem me.

Kev kho mob laser feem ntau yog luv luv xwb, tsuas yog siv sijhawm ob peb feeb xwb. Muaj coob tus neeg yuav tsum rov ua qhov kev kho mob txhua ob peb lub hlis. Tom qab kev kho mob laser, daim tawv nqaij yuav liab thiab zoo li nws tau raug kub hnyiab. Yog tias kev kho mob tsis xis nyob, koj tuaj yeem thov koj tus kws kho mob kom muab tshuaj tsuag lossis tshuaj pleev rau koj. Cov menyuam yaus me me qee zaum raug muab tshuaj loog dav dav, yog li lawv tuaj yeem pw tsaug zog thaum lub sijhawm kho mob.

Puas tuaj yeem tiv thaiv tau qhov Port Wine Stain?

Vim tias cov kws tshawb fawb tseem tsis tau paub qhov tseeb ua rau muaj "Port Wine Stains", tsis muaj txoj hauv kev los tiv thaiv lawv. Cov cim yug me nyuam no tsis yog los ntawm txhua yam uas tshwm sim thaum cev xeeb tub. Yog li ntawd, tsis txhob txhawj, xav tias, "Qhov no puas yog vim qee yam kuv tau ua?"

Yog tias kuv muaj '(Nevus Flammeus)', kuv yuav tsum xav li cas?

Cov xim av cawv txiv hmab uas lo rau ntawm qhov chaw nres nkoj tsis ploj mus li. Yog tias tsis kho, cov xim ntawd yuav loj dua, tsaus dua, tuab dua, thiab ua pob thaum lub sijhawm dhau mus.

Rau feem ntau ntawm cov neeg, cov cim yug me nyuam no tsuas yog ua kom zoo nkauj xwb thiab tsis ua rau muaj teeb meem loj rau kev noj qab haus huv. Txawm li cas los xij, yog tias koj lossis koj tus menyuam muaj "Port Wine Stain", nws yog ib lub tswv yim zoo kom tus kws kho mob kuaj xyuas nws qee zaum.

Txawm hais tias kev kho mob laser tuaj yeem txo cov xim ntawm cov cim yug me nyuam no, cov txiaj ntsig tuaj yeem txawv ntawm ib tus neeg mus rau ib tus neeg. Txawm tias tom qab kev kho mob zoo, qee zaum ntau xyoo tom qab, cov pob "(Nevus Flammeus)" no tuaj yeem rov tshwm sim lossis tsaus dua.

Kuv yuav pab kuv tus menyuam li cas nrog "Port Wine Stain"?

Ib qho "Port Cawv Xim Av", tshwj xeeb tshaj yog rau ntawm lub ntsej muag, tuaj yeem ua rau tus menyuam txaj muag thiab tsis muaj kev ntseeg tus kheej. Ib txhia neeg yuav saib nws txawv txawv thiab hais cov lus mob siab. Sim cov no los pab koj tus menyuam daws qhov teeb meem no:

• Tham nrog koj tus menyuam txog qhov cim yug no hauv cov lus yooj yim.
• Ua rau nws nkag siab tias qhov "Port Cawv Xim" no yog ib feem ntawm nws lub cev, ib yam dab tsi tshwj xeeb, tshwj xeeb, thiab muaj yeeb yuj .
• Yog koj tus menyuam nyiam, pab lawv siv ib hom tshuaj pleev kom npog qhov chaw ntawd kom tsis pom qhov chaw ntawd.
• Tham nrog cov neeg uas koj tus menyuam sib tham nrog (piv txwv li cov xib fwb, cov phooj ywg) txog qhov cim yug me nyuam. Xyuas kom tseeb tias lub tsev kawm ntawv muab ib qho chaw txhawb nqa uas koj tus menyuam tuaj yeem kawm thiab sib tham nrog lwm tus yam tsis muaj kev ntxub ntxaug lossis kev cais tawm .
• Xyaum teb cov lus nug thaum muaj ib tug neeg nug txog qhov ntawd. Piv txwv li, xyaum hais ib yam dab tsi yooj yim xws li, "Nov yog kuv lub cim yug los."
• Qhia koj tus menyuam kom kho qhov cim yug no zoo li lwm yam ntxwv ntawm lawv lub cev , ib yam li xim qhov muag.

Puas yog '(Port Wine Stain)' xav tau kev saib xyuas tawv nqaij tshwj xeeb?

Qee zaum daim tawv nqaij yuav qhuav qhov twg muaj "Port Wine Stain". Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum tau ua kom noo noo rau thaj chaw ntawd.

Yog tias daim tawv nqaij raug mob (piv txwv li, khawb, txiav), nws yuav los ntshav ntau dua li daim tawv nqaij ib txwm muaj. Yog li ntawd, ntxuav qhov chaw ntawd kom huv si los ntawm kev ntxuav nws kom huv si nrog xab npum thiab dej. Tom qab ntawd, muab daim ntaub qhwv huv si nias rau thaj chaw ntawd.

Thaum twg koj yuav tsum nrhiav kev pab kho mob rau tus mob '(Nevus Flammeus)'?

Yog tias koj lossis koj tus menyuam muaj cov tsos mob ntawm "Port Wine Stain", mus ntsib kws kho mob tam sim ntawd:

• Yog tias koj los ntshav, tshwj xeeb tshaj yog tias qhov ntshav ntawd tsis tuaj yeem nres tau.
• Yog tias nws zoo li muaj kab mob (piv txwv li liab, o, puv nrog kua qaub ).
• Yog tias muaj mob.
• Yog koj khawb.
• Yog tias muaj ib yam dab tsi zoo li kua dej ntws.

Thaum kawg, tej yam yuav tsum nco ntsoov (Cov Lus Coj Mus Tsev)

`(Port Wine Stain)` los yog `(Nevus Flammeus)` yog ib qho cim yug mus tas li uas feem ntau tshwm sim rau ntawm lub ntsej muag. Nws zoo li ib qho chaw tiaj tus, xim liab, liab lossis ntshav ntawm daim tawv nqaij ntawm tus menyuam mos, tab sis dhau sijhawm nws tuaj yeem loj dua, tuab dua, thiab tsaus dua. Txawm hais tias nws feem ntau tsis muaj teeb meem, nws tsis tshua muaj feem cuam tshuam nrog lwm yam mob. Yog li ntawd, yog tias koj lossis koj tus menyuam muaj lub cim yug zoo li no, nws yog qhov zoo tshaj plaws mus ntsib kws kho mob kom tau txais lus qhia. Kev kho mob laser tuaj yeem txo lawv qhov tsos. Nws tseem ceeb heev uas yuav pab tus menyuam daws qhov teeb meem no hauv kev xav.