Yu gɛt di smɔl smɔl saspek bak se yu gɛt ‘Acute Hepatic Porphyria’, ɔ AHP as wi kin kɔl am fɔ shɔt? We yu tink bɔt am, i rili nɔmal fɔ fil bad bad wan ɛn fred, nɔ no wetin fɔ du nɛks, udat fɔ si. Bikɔs dis na tin we kɔmplikt smɔl, ɛn i nɔto sik we dɛn kin tɔk bɔt bɔku tɛm na wi kɔntri. Na dat mek i kin at fɔ fɛn infɔmeshɔn bɔt am. Bɔt nɔ wɔri, lɛ wi tɔk bɔt dis klia wan ɛn simpul wan.
Aw fɔ mek pɔsin no di sik kɔrɛkt wan?
Wan pan de big prɔblɛm wit AHP na dat in sik dɛn kin rili fiba di wan dɛn we bɔku ɔda kɔmɔn sik dɛn kin gɛt. Fɔ ɛgzampul, yu kin si bad bad bɛlɛ pen, vɔmit, nɔs, yu an ɛn fut dɛn we nɔ gɛt bɛtɛ trɛnk, ɛn we di mɔsul dɛn wik na AHP. Naw, ɔmɔs ɔda sik dɛn ya kin apin? So i at fɔ tink wantɛm wantɛm se na AHP kin mek dɛn tin ya. Sɔmtɛm dɛn sik ya kin apia na di pat dɛm na di bɔdi we nɔ gɛt ɛnitin fɔ du wit dɛnsɛf, so i kin tek tɛm fɔ no se dɛn ɔl na pat dɛm na di sem sik.
Di impɔtant tin na dat AHP na wan sik we nɔ kin apin so ɔltɛm . So, nɔto ɔl dɔktɔ dɛn kin gɛt bɔku ɛkspiriɛns wit am. Dat nɔto di dɔktɔ in fɔlt, na di kayn we aw di sik de.
Bɔku tɛm, ɛni dɔktɔ kin tɛl yu fɔ du di bɛsis tɛst (urine ɛn blɔd tɛst) fɔ no if yu gɛt AHP. Bɔt fɔ luk dɛn tɛst ripɔt dɛn de, ɔndastand dɛn rizɔlt, ɛn mek yu no se "Yɛs, dis na AHP," yu kin nid spɛshal dɔktɔ fɔ ɛp yu . Yu famili dɔktɔ go rifer yu to spɛshal dɔktɔ, lɛk:
- Wan dɔktɔ we de mɛn blɔd
- Gastroenterɔlɔjis we de mɛn di bɔdi
- Jɛnɛral Dɔktɔ
So di fɔs tin we yu fɔ du na fɔ tɔk to yu famili dɔktɔ opin wan bɔt di sik dɛn we yu gɛt.
Na dis na aw fɔ pripia bifo yu go si dɔktɔ
Di tɛm we yu de spɛn wit dɔktɔ nɔ bɔku. Fɔ mek yu go ansa ɔl yu kwɛstyɔn dɛn ɛn gi di dɔktɔ klia pikchɔ bɔt yu sik insay da shɔt tɛm de, i rili impɔtant fɔ go wit smɔl pripia. Na dis na aw fɔ pripia.
| Wetin yu nid fɔ du | Wetin mek i impɔtant? |
|---|---|
| Mek wan list fɔ ɔl yu sayn dɛm. | Ivin tin dɛm wae kin tan lɛk se nɔr gɛt natin fɔ du wit dɛnsɛf lɛk "bɛlɛ at" ɛn "numbness in the hand" kin bi sayn dɛm fɔ di sem sik. We yu rayt dɛn ɔl togɛda, i kin izi fɔ mek di dɔktɔ ɔndastand di wan ol pikchɔ. |
| Rayt di ditel dɛm fɔ ɔl di mɛrɛsin dɛm (inklud di vaytamɛn dɛm) we yu de tek naw. | Sɔm mɛrɛsin kin mek yu gɛt AHP, so i impɔtant fɔ mek yu dɔktɔ no bɔt ɔl di mɛrɛsin dɛn we yu de tek. |
| Bring yu fɔs mɛdikal tɛst ripɔt dɛn. | Dis kin mek dɛn nɔ du tɛst bɔku tɛm we nɔ nid fɔ du dat ɛn i kin mek dɛn nɔ spɛn bɔku tɛm. |
| Rayt di kwɛstyɔn dɛn we yu want fɔ no pan pepa bifo tɛm. | Di gladi gladi we yu kin gɛt we yu mit di dɔktɔ kin mek yu fɔgɛt bɔt yu kwɛstyɔn dɛn. We yu rayt dɛn, yu nɔ go fɔgɛt fɔ aks di kwɛstyɔn dɛn we impɔtant pas ɔl. |
| Mɛmba if ɛnibɔdi na yu famili gɛt dɛn abit dɛn ya. | AHP na sik we kin gɛt sɔntin fɔ du wit yu jɛnɛtiks, so infɔmeshɔn bɔt yu famili in mɛdikal istri kin rili impɔtant to yu dɔktɔ. |
Kwɛstyɔn dɛn we yu fɔ rili aks yu dɔktɔ
Yu gɛt ɔl di rayt fɔ aks kwɛstyɔn bɔt yu sik. Nɔ fred fɔ aks ɛn fɛn ɔltin we de na yu maynd. I go gi yu bɔku trɛnk fɔ liv wit dis kɔndishɔn. Na sɔm impɔtant kwɛstyɔn dɛn we yu kin aks.
Lan di bɛsis bɔt AHP sik
Dɛn kwɛstyɔn ya go ɛp yu fɔ ɔndastand wetin na dis sik, wetin mek i kin apin, ɛn aw i kin woke.
- Wetin mek ɛksaktɔli a gɛt AHP? Wetin na di rizin we mek dis de apin?
- Us kayn AHP a gɛt? Pɔsin kin gɛt pas wan kayn we di sem tɛm?
- I pɔsibul fɔ mek dɛn pas dis sik to mi pikin dɛn?
- Us impak dis sik kin gɛt pan mi layf?
Bɔt AHP ɛn yu liva
di wɔd ‘Epatik’ min "rilayt to di liva." So, i rili impɔtant fɔ no bɔt di rilayshɔn bitwin AHP ɛn di liva.
- Dis sik dɔn afɛkt mi liva?
- Us tɛst dɛn a fɔ du fɔ chɛk if mi liva de wok fayn?
- Us patikyula tin dɛn a fɔ du fɔ protɛkt mi liva? (e.g., it ɛn drink, mɛrɛsin dɛn we a fɔ stɔp fɔ tek)
Bɔt tritmɛnt ɛn aw fɔ mɛn am
Wae dɛn dɔn no bɔt de sik, de tin wae impɔtant pas ɔl na aw fɔ liv wit am.
- Wetin na de tritmɛnt fɔ dis sik?
- Aw yu kin kɔntrol wan atak we di sayn dɛn de sho?
- Us chenj dɛn a fɔ mek na mi layf ɛn di tin dɛn we a de it?
- Ustɛm a fɔ kam si di dɔktɔ nɛks?
Dɛn kwɛstyɔn ya na jɔs di biginin. Nɔ ɛva shem fɔ aks yu dɔktɔ bɔt ɛni kwɛstyɔn we kam na yu maynd, ilɛksɛf i tan lɛk se i smɔl.
Mɛsej we dɛn kin kɛr go na os
- Bikɔs AHP na sik we nɔ kin bɔku, i kin tek sɔm tɛm fɔ no if i gɛt am. So i impɔtant fɔ peshɛnt.
- Bifo yu go to dɔktɔ, rɛdi gud gud wan bay we yu mek wan list fɔ di sik dɛn we yu gɛt, di mɛrɛsin dɛn we yu de tek, ɛn di kwɛstyɔn dɛn we yu want fɔ aks.
- Nɔr ɛva fred fɔ aks kwɛstyɔn ɛn lan bɔt yu sik. Yu gɛt ɔl di rayt fɔ no bɔt yu wɛlbɔdi biznɛs.
- Wok klos ɛn opin wan wit yu dɔktɔ. Fɔ fala in instrɔkshɔn dɛn di rayt we.
- Wit di rayt manejmɛnt ɛn tritmɛnt, yu kin liv fayn fayn wan wit AHP. So tek yu at.
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