Sɔntɛnde wi kin gɛt difrɛn sik dɛn we gɛt fɔ du wit di lɔng dɛn . pan dεm, wan we dεn nכ kin yεri bכt, bכt imכtant, na di lכng sik we de kכz fכ di εnzym we dεn nכ gεt di εnzym we dεn kכl alfa-1 antitrypsin. Dis na wan sik we pɔsin kin gɛt we i kam pan jɛnɛtiks. So tide wi de tɔk bɔt wan spɛshal tritmɛnt fɔ dis sik. Lɛ wi jɔs tɔk bɔt ɔltin we yu nid fɔ no bɔt dis tritmɛnt.
Wetin na dis Alfa-1-proteinase Inhibitor?
Fɔ tɔk am simpul wan, dis na tritmɛnt we de mek wan impɔtant ɛnzaym we nɔ de na yu bɔdi kam bak. Wi bɔdi gɛt wan ɛnzaym we dɛn kɔl Alpha-1 Antitrypsin (ATA) we de protɛkt wi lɔng dɛn. Sɔm pipul dɛn kin gɛt dis ɛnzaym we rili smɔl na dɛn bɔdi. Dis kin pwɛl dɛn lɔng dɛn izi wan.
Imajin se yu bɔdi dɔn lɔs dis impɔtant ɛnzaym we de protɛkt yu lɔng. wetin dis `Alpha-1-proteinase Inhibitor` vaksin de du na fכ gi bak da εnzym we dεn lכs to yu bכdi. I tan lɛk se yu put sɔm ɔyl na motoka we nɔ bɔku.
Bɔt wan tin we wi fɔ mɛmba. Dis nɔto mɛrɛsin fɔ di sik. Bɔt i kin ɛp fɔ kɔntrol mɔ damej pan di lɔng dɛn we di sik kin mek. Wi kin kɔl dis riplesmɛnt tɛrapi.
Tin dɛm fɔ tɛl yu dɔktɔ bifo yu yuz dis mɛrɛsin
Bifo yu bigin dis tritmɛnt, i rili impɔtant fɔ gi yu dɔktɔ kɔmplit diskripshɔn bɔt yu wɛlbɔdi kɔndishɔn. Speshali, yu fɔ rili tɛl am bɔt dɛn tin ya.
- If yu gɛt wan sik we dɛn kɔl IgA dɛfisiɛns (Immunoglobulin A dɛfisiɛns) .
- If yu gɛt alɛji to dis mɛrɛsin we dɛn kɔl `Alpha-1-proteinase Inhibitor` ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ .
- If yu na mama we de gi pikin in bɛlɛ .
Bay dis infɔmeshɔn, yu dɔktɔ go ebul fɔ disayd if dis tritmɛnt fayn fɔ yu ɔ nɔ rayt.
Aw yu kin yuz dis mɛrɛsin?
Dɛn kin gi dis mɛrɛsin as infushɔn insay wan vein. Dɛn kin gi dis wan tɛm insay di wik.
Fɔs, dɛn kin gi dis vaysin na ɔspitul ɔ klinik. Bɔt sɔm tɛm, afta yu dɔn gɛt di trenin we yu nid, yu dɔktɔ kin alaw yu fɔ gɛt dis vaysin na os. If na so i bi, yu fɔ fala di instrɔkshɔn dɛn we di dɔktɔ ɔ di nɔs wokman dɛn gi yu di rayt we. Nɔ yuz mɔ pas di doz we dɛn tɛl yu fɔ yuz.
Wetin yu kin du wit nidul we yu dɔn yuz?
Dis rili impɔtant. I nɔ fayn fɔ trowe nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti. Dɛn fɔ put dɛn insay spɛshal kɔntena we gɛt shap tin dɛn. If yu nɔ gɛt wan, aks yu dɔktɔ fɔ wan.
Wetin a go du if a tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek dis mɛrɛsin pasmak, nɔ panik. Wantɛm wantɛm kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital . Ɔ go na di ETU (Emergency Treatment Unit) na di ɔspitul we de nia yu.
Wetin yu kin du if yu mis apɔntinmɛnt fɔ tek mɛrɛsin?
Dis na tritmɛnt we dɛn kin gi wan tɛm insay di wik, so i rili impɔtant fɔ tek am di rayt tɛm. If yu mis wan doz, nɔ panik ɛn kɔl yu dɔktɔ fɔ advays. If yu de tek yu mɛrɛsin na os, tek am jɔs lɛk aw yu mɛmba ɛn go bak to yu rɛgyula wik. Bɔt i go fayn fɔ mek yu tɔk to yu dɔktɔ bɔt dis bak.
Tin dɛn we yu fɔ tek tɛm wit we yu de tek mɛrɛsin
Kip yu yay pan yu sayn dɛm wae yu de tek dis mɛrɛsin. If yu sik nɔr de bɛtɛ ɔr i tan lɛk se yu de wɔs, tɛl yu dɔktɔ.
- Alɛji: Sɔntɛnde dis mɛrɛsin kin mek yu gɛt siriɔs alɛji. So, aks yu dɔktɔ if yu nid fɔ kip sɔntin lɛk epinephrine pen na yu an if yu gɛt alɛji.
- Risk fɔ gɛt infɛkshɔn: Bikɔs dɛn mek dis mɛrɛsin wit mɔtalman blɔd plasma, smɔl risk de fɔ mek i gɛt vayrɔs ɔ baktri. Bɔt nɔ wɔri, dɛn kin yuz spɛshal we fɔ kil dɛn kayn jem dɛn ya we dɛn de mek dɛn tin ya. If yu gɛt ɛni kwɛstyɔn bɔt dis, nɔ fred fɔ tɔk to yu dɔktɔ.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sɔm bad bad tin dɛn . Lɛ wi tek wan luk pan wetin dɛn bi.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Siriɔs alɛji dɛn | Skin rash, it, swel na di fes, lip ɔ tong. |
| I nɔ kin izi fɔ yu fɔ blo | I nɔ izi fɔ blo, yu nɔ de blo fayn. |
| Chɛst de pen ɔ tayt | Chɛst tayt, pen. |
| Diziz ɔ fɔdɔm | Diziz , fɔdɔm, fɔdɔm. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf, trot we de at. |
| Leg we de swel | Di ankles ɔ di leg dɛn we de swel. |
| Taya we nɔ kɔmɔn | Taya pasmak na di bɔdi. |
| Kɔmɔn sayd ɛfɛkt dɛn | Daya, diziz, ed pen, fil wam, joyn ɔ mɔsul pen, nɔs, pen ɔ rɛd na di say we dɛn injekt, nɔs we de rɔn. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn. If yu gɛt ɛni difrɛn tin, tɔk to yu dɔktɔ bɔt am.
Aw yu fɔ kip yu mɛrɛsin?
- Nɔ lɛf dis mɛrɛsin usay pikin dɛn go ebul fɔ rich .
- Stɔr di vayl dɛn we nɔ opin na frij na 2-8 °C. Nɔ friz .
- Yu kin kip am na rum tɛmpracha (dɔwn 25 digri sɛlshiɔs) fɔ te wan mɔnt. Bɔt nɔ put am na frij bak afta dɛn dɔn kip am na rum tɛmpracha.
- Nɔ shek di mɛrɛsin bɔtul.
- Trowe di mɛrɛsin we dɔn pas ɛn yu nɔ yuz am.
If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis mɛrɛsin, nɔ shek fɔ tɔk to yu dɔktɔ ɛn sɔlv am.
Mɛsej we dɛn kin kɛr go na os
- Dis mεdisin na tritmεnt f כ lכng sik dεm we dεn kin kכz fכ `Alpha-1 Antitrypsin` deficiency, bכt i nכto mεdisin we de kכl di sik kכmplit wan.
- Bifo yu yuz di mɛrɛsin, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin ɛn alɛji.
- If yu gɛt siriɔs alɛji ( i nɔ izi fɔ blo , swel , yu chɛst de pen ), go to dɔktɔ wantɛm wantɛm.
- Trowe di nidul dɛn we yu dɔn yuz sef wan insay shap kɔntena nɔmɔ.
- If yu mis wan doz ɔ yu tek tumɔs, kɔl yu dɔktɔ wantɛm wantɛm.
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