Yu dɔn ɛva yɛri bɔt wan yɔŋ pɔsin we gɛt wɛlbɔdi, ɛn we sabi fɔ ple spɔt, day wantɛm wantɛm bikɔs i gɛt at atak? I rili sɔri. Bɔrku tɛm, wi kin tink bɔt at sik as tin wae kin apun wae pɔrsin de ol. Bɔt sɔmtɛm, de tin wae kin mek dɛn tin ya kin apin wae wi nɔr kin imajin na wan tin wae nɔr kin apin so ɔltɛm wae wi nɔr kin no bɔt. Tide, wi go tɔk bɔt wan pan dɛn kayn at sik ya we kin afɛkt yɔŋ pipul dɛn mɔ. Dis na ARVC.
Wetin na ARVC rili?
Fɔ tɔk am simpul wan, ARVC na at sik we nɔ kin bɔku ɛn we pɔsin kin gɛt frɔm in jɛnɛreshɔn , we min se i kin pas to bɔku bɔku jɛnɛreshɔn dɛn. Wetin kin apin na dat di mɔsul dɛn na wi at kin pwɛl.
Tink bɔt wi at lɛk pawaful pɔmp we gɛt 4 chɛmba dɛn. Dis na wetin de pɔmp blɔd ɔlsay na di bɔdi. pan dεn fכ chεmba dεm ya, di wan we de na di lכw rayt say dεn kכl am di Rayt Vεntrikl. insay ARVC, di hεlty hat mכsul sεl dεm na dis rayt vεntrikl de day εn fεt εn fayv tisu (ska tisu) de tek in ples .
I tan lɛk brik we de fɔdɔm na gud wɔl ɛn di gap dɛn ful-ɔp wit dɔti. Wetin kin apin? Di wɔl na da at chɛmba de kin tan lɛk tin, wik, ɛn strɛch. Dɔn i nɔ kin ebul fɔ kɔntrakt fayn ɛn pɔmp blɔd. Dis kin mek tin dɛn lɛk fɔ blo shɔt ɛn fɔdɔm.
wetin ivin denja pas dat na dat di nyu fεt εn ska tisu we dεn fכm de ambɔg di ilektrikal signal dεm na di at. Dis kin mek di at nɔ de bit ɔltɛm. Wi kin kɔl dis aritmia . Dis na de sik wae de denja pasmak pan dis sik. Na bikɔs i kin mek di at nɔ de wok wantɛm wantɛm ɛn ivin day.
Dɛn kin kɔl dis sik bak ARVC, Arrhythmogenic Right Ventricular Dysplasia (ARVD). sכmtεm dεn kin kכl am bak Arrhythmogenic Cardiomyopathy (ACM) biכs i kin afekt di lεft vεntrikl bak.
Wetin na di sayn dɛm fɔ dis sik?
Wan prɔblɛm wit dis sik na dat, i kin gɛt ɛni sayn we i de bigin. Bɔrku tɛm, di sayn dɛm kin bigin fɔ sho bifo i ol 40 ia, sɔmtɛm ivin wae pɔrsin dɔn yɔŋ.
De tin wae de frayd pas ɔl na dat fɔ sɔm pipul dɛm, de fɔs ɛn wangren sayn wae de mek dɛn no se dɛn gɛt dis sik na wae dɛn at kin day wantɛm wantɛm.
So, e fayn fɔ no bɔt dɛn sik ya we de kam biɛn ya.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| Di at bit we nɔ de bit ɔltɛm (Arrhythmias) . | Abnɔmal chenj dɛn na di at rit. I kin fil lɛk se yu de flɔt ɔ swɛt na yu chɛst. Ɛspɛshali insay kɔndishɔn dɛn lɛk (Atrial Fibrillation) . |
| Diziz ɔ fɔdɔm | I tan lɛk se yu nɔ gɛt kɔnshɛns bikɔs di bren nɔ de gɛt inof blɔd. |
| Taya | Fɔ fil taya pasmak ɔltɛm bikɔs di bɔdi nɔ de pɔmp blɔd fayn fayn wan. |
| Chɛst de pen | Chɛst pen bikɔs ɔf prɛshɔn pan di at. |
| I nɔ kin izi fɔ yu fɔ blo | Shot brith we kin kam bikɔs blɔd nɔ kin gi di lɔng dɛn. |
| Di bɔdi we de swel | Swel na di leg, ankles, fut, ɔ bɛlɛ. |
| At we nɔ de wok fayn | As tɛm de go, di at in pawa fɔ pɔmp kin wik ɔlmost. |
Di tin dɛn we kin mek pɔsin gɛt ARVC ɛn di tin dɛn we pɔsin kin gɛt frɔm am
Bɔku tɛm, ARVC kin kɔmɔt frɔm wan jɛnɛtik we de chenj . Dis na smɔl mistek we de na di bluprint ɔ di jin dɛn we de mek wi bɔdi in sɛl dɛn. dis kכndyushכn kin apin we mistek de na di jin dεm we de afekt di protin dεm we de εp fכ kip di at mכsul sεl dεm kכnekt to wan an.
We dis kɔnekshɔn wik, di at mɔsul sɛl dɛn kin bigin fɔ separet frɔm dɛnsɛf ɛn day. Dis kin apin mɔ di tɛm we pɔsin de strɛs pan di at, lɛk we i de du ɛksɛsayz.
Na lɛk af pan di wan dɛn we gɛt ARVC gɛt famili histri bɔt dis sik. Dis min se wan istri de we gɛt fɔ du wit di jɛnɛtiks .
So, if dɛn dɔn no se sɔmbɔdi na yu famili gɛt ARVC, i rili impɔtant fɔ mek da pɔsin in fambul dɛn we de nia am (in mama ɛn papa, in brɔda ɛn sista dɛn, in pikin dɛn, in granpikin dɛn, in ɔnkul dɛn, in anti dɛn, in brɔda in pikin dɛn, in niusman dɛn) go du mɛdikal ɛgzam. Ivin if no sayn nɔ de, ivin di wan dɛn we yɔŋ fɔ go to dɔktɔ ɛn tɔk bɔt dis.
Tu men we dɛn de we dɛn kin transmit ARVC tru jɛnɛreshɔn dɛn:
- Autosomal Dominant: Dis na di kayn we we dɛn kin yuz mɔ. Dis min se wan pan di mama ɛn papa gɛt di jin we de chenj. Dɔn dɛn pikin gɛt 50% chans fɔ gɛt di sik. Bɔt di sayn dɛm ɛn di ej we di sik bigin kin difrɛn pan di famili mɛmba dɛm.
- Autosomal Recessive: Dis kin shɔt smɔl. Na ya, mama ɛn papa dɛn ɔl tu gɛt di jin muteshɔn, bɔt dɛn nɔ gɛt di sayn dɛn. Dɛn pikin gɛt 25% chans fɔ gɛt dis sik. Wan patikyula tin we gɛt fɔ du wit dis na Naxos disease , we kin mek di skin na di an ɛn di fut dɛn tik ɛn tik tik ia we gɛt wul kin gro.
Aw fɔ no di sik?
Dɔktɔ kin no if yu gɛt ARVC bay di sayn dɛm, yu famili histri, ɛn sɔm mɛrɛsin tɛst dɛm. Sεvεra spεsifi k diagnostik krayteria de fכ ARVC. Dɔktɔ dɛn kin luk ɔmɔs pan dɛn krayteria ya yu mit.
Di men pɔynt dɛn we dɔktɔ dɛn kin pe atɛnshɔn to:
- fכ chεk fכ abnכmal rayt vεntrikul fכnshכn ( dεn de yuz Echocardiogram כ MRI tεst fכ dis).
- fכ si if εni fεt כ ska tisu de we dεn dכn dכn na di at mכsul ( MRI rili imכtant fכ dis).
- Fɔ chɛk fɔ abnɔmal tin dɛn pan ECG tɛst ( Ilɛktrokardiogram - ECG/EKG ).
- Di at ritm we nɔ de rit ɔltɛm, mɔ we yu de du ɛksɛsayz.
- If ɛnibɔdi na di famili gɛt ARVC.
bay dεn tin ya, di dכkta go disayd if yu "definitely" gεt di sik, "probably" gεt am, כ "possibly" gεt am. Dɛn kin rifer yu bak fɔ mek dɛn du yu jenɛtik tɛst if nid de.
Ɔda tɛst dɛn we dɛn yuz:
- Cardiac Computed Tomography (CT ) skan fɔ di at
- ECG test we yu de du ɛksɛsayz ( Stress Test ) .
- Stɔdi di ilɛktrik aktiviti na di at ( Electrophysiology Testing ) .
- Fɔ tek wan smɔl pat pan di at mɔsul fɔ ɛgzamin ( Biopsy ) .
Wetin na di tritmɛnt dɛm fɔ ARVC?
Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de fɔ ARVC. Bɔt bɔku tritmɛnt dɛn de we go ɛp yu fɔ kɔntrol yu sik dɛn, fɔ mek yu nɔ gɛt prɔblɛm dɛn we de mek yu gɛt prɔblɛm, ɛn liv nɔmal layf. Yu dɔktɔ in men gol na fɔ kɔntrol di at ritm ɛn di at kɔndishɔn.
| Di we aw dɛn kin trit am | Wetin kin apin? |
|---|---|
| Mɛrɛsin dɛn we dɛn kin yuz | Dɛn kin gi dɛn mɛrɛsin dɛn lɛk mɛrɛsin dɛn we de mek pɔsin nɔ ebul fɔ waka , beta-blɔka , ɛn tin dɛn we de mek pɔsin nɔ ebul fɔ rɔtin . |
| Kateta we dɛn kin pul | If yu gɛt at bit we nɔ de bit ɔltɛm we yu nɔ go ebul fɔ kɔntrol wit mɛrɛsin, na wan we we de bɔn di say dɛn na di at usay ilɛktrik signal dɛn we nɔmal de kɔmɔt. |
| ICD divays (Implantabl Kadiɔvata-Dɛfibrilatɔ) . | Dis na wan pan di tritmɛnt dɛn we impɔtant pas ɔl. Fɔ pipul dɛn we gɛt ay risk fɔ day bikɔs dɛn at nɔ de wok wantɛm wantɛm, dɛn kin put wan smɔl tin ɔnda di skin na dɛn chɛst. We wan denja at ritm dizayd apin, dis divays kin gi ilɛktrik shɔk fɔ mek di at kam bak to nɔmal. |
| Transplant fɔ di At | Dɛn kin tek am as las tin if ɔl ɔda tritmɛnt dɛn nɔ wok, bɔt bɔku pipul dɛn we gɛt ARVC nɔ nid fɔ go dis fa. |
Tin dɛm fɔ tink bɔt we yu de liv wit ARVC
Wae yu dɔn no se yu gɛt ARVC, yu go nid fɔ mek sɔm chenj dɛn na yu layf. Dɛn tin ya kin ɛp fɔ ridyus di strɛs we de pan yu at.
- Limit exercise: ARVC kin mek i wɔs we yu de du ɛksɛsayz. So, yu go nid fɔ avɔyd kɔmpitishɔn spɔt dɛn ɔltogɛda. Mek shɔ se yu tɔk to yu dɔktɔ bɔt ɔmɔs ɛn di kayn ɛksesaiz we yu kin du ɛvride.
- Fɔ liv fayn layf: I rili impɔtant fɔ lɛ yu nɔ drink rɔm, nɔ smok, it tin dɛn we gɛt fayn fayn tin dɛn fɔ it, ɛn nɔ drink bɔku tin dɛn we gɛt kafinɛ (kɔfi, ti).
- Tek yu mɛrɛsin dɛn lɛk aw dɛn tɛl yu fɔ tek am: Nɔ ɛva skip fɔ tek di mɛrɛsin dɛn we yu dɔktɔ tɛl yu fɔ tek.
- Yu fɔ chɛk yu dɔktɔ ɔltɛm: Yu go nid fɔ go to yu dɔktɔ fɔ di res ɔf yu layf. If yu gɛt ICD, yu go nid fɔ mek dɛn chɛk am ɔltɛm .
Fɔ no se yu gɛt at sik kin rili tranga fɔ dil wit, mɔ we yu yɔŋ. If yu na atlet, i kin mek yu fil bad fɔ lɛf da aydentiti de. Bɔt mɛmba se yu layf valyu pas dat. If yu trit yu fayn ɛn yu de liv yu layf di rayt we, yu go ebul fɔ liv gud layf.
Mɛsej we dɛn kin kɛr go na os
- ARVC na wan sik we nɔ kin apin so ɔltɛm, we pɔsin kin gɛt frɔm in mama ɛn papa, we kin afɛkt di rayt say na di at mɔ.
- De tin wae denja pas ɔl bɔt dis sik na de risk fɔ mek yu at stɔp wantɛm wantɛm ɛn day ɛn nɔr gɛt ɛni sayn.
- If yu gɛt sɔm sayn dɛn lɛk we yu chɛst tayt, yu ed de tɔn, ɔ yu nɔ go ebul fɔ blo, go to dɔktɔ wantɛm wantɛm.
- If pɔsin na yu famili gɛt ARVC, yu fɔ rili gɛt mɛdikal chɛk-ap.
- Pan ɔl we dɛn nɔ kin ebul fɔ mɛn di sik ɔltogɛda, dɛn kin ebul fɔ kɔntrol am fayn fayn wan ɛn liv fayn wit mɛrɛsin, ICD divays, ɛn chenj dɛn layf.
- I rili impɔtant fɔ mek dɛn sik pipul ya nɔ du ɛksɛsayz we de tranga ɛn we de kɔmpit.
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