Dɛn dɔn no se pɔsin we dɛn lɛk ɔ pɔsin na in fambul gɛt kansa we dɔn go bifo ɛn dɛn tritmɛnt nɔ de wok igen? Dis na tɛm we pɔsin kin rili fil bad ɛn i nɔ kin izi fɔ du am. Sɔmtɛm lɛk dis, wi ɔl kin tray fɔ go bifo pan tritmɛnt fɔ mɛn pipul dɛn ɛn mek di ɔda de dɛn na di pɔsin in layf fayn, nɔ kin fil pen, ɛn mek i gɛt kɔrej as wi ebul. Dis na di say we di kɔnsɛpt fɔ “Hospice Care” kam fɔ ɛp wi. Fɔ tɔk am simpul wan, na kia we gɛt lɔv, we de kɔrej pɔsin we de protɛkt/tek kia ɔf di pɔsin ɛn dɛn famili.
Ustɛm dɛn fɔ bigin fɔ kia fɔ pipul dɛn we de na os?
Dɛn kin tink bɔt dis kayn kia we, akɔdin to di dɔktɔ we de trit am, di pɔsin nɔ gɛt pas 6 mɔnt fɔ liv. Di tin we impɔtant pas ɔl fɔ ɔndastand ya na dat di men gol fɔ kia fɔ pipul dɛn we de na di hospice nɔto fɔ mɛn kansa . Di wangren tin we i want fɔ du na fɔ mek di say we i nid fɔ mek di pɔsin spɛn di ɔda sɔm mɔnt ɔ wik dɛn na in layf as i nɔ go gɛt pen, i go fil fayn, ɛn i go gɛt rɛspɛkt as i pɔsibul.
Imajin, afta dɛn admit am na dis savis, if di pɔsin in kɔndishɔn bɛtɛ pan sɔm we dɛn? Nɔ prɔblɛm. Fridɔm de fɔ pul yusɛf kɔmɔt na di hospice savis ɛni tɛm ɛn go bak to aktif kansa tritmɛnt. Dɔn bak, if di pɔsin liv pas di 6 mɔnt we di dɔktɔ dɔn tɔk, i kin ridyus dis hospice savis ɛn kɔntinyu fɔ gɛt am fɔ as lɔng as nid de.
If wan ɔ mɔ pan dɛn tin ya apin to yu ɔ di pɔsin we yu lɛk, i kin bi se na tɛm fɔ tink bɔt aw fɔ kia fɔ pipul dɛn we de na os:
- If di kansa de na wan stej we dɔn rili go bifo.
- If yu dɔn gɛt fɔ de na ɔspitul ɔltɛm fɔ di tɛm we dɔn pas.
- If yu want fɔ stɔp di tritmɛnt bikɔs di tritmɛnt nɔ de du bɔku ɛfɛkt ɔ bikɔs yu nɔ ebul fɔ bia wit di sayd ɛfɛkt dɛn we di tritmɛnt gɛt.
- If yu bɔdi wet dɔn go dɔŋ bad bad wan.
- If yu go lɛk fɔ spɛn di ɔda tɛm na os wit di wan dɛn we yu lɛk pas fɔ de na ɔspitul.
Us ɛp di hospice de gi?
Dis nɔto fɔ wan pɔsin in savis. Na wan big tim fɔ pipul dɛn kin gi dis kia, lɛk yu dɔktɔ, wan spɛshal nɔs we dɛn tren fɔ mɛn pipul dɛn we de na os, wan soshal woka, pɔsin we de ɛp fɔ mɛn pipul dɛn bɔt wɛlbɔdi biznɛs, ɛn volontia dɛn. Lɛ wi tek wan luk pan di men savis dɛn we dɛn de gi.
| Savis Divishɔn | Ɛp ɛn ɛksplen we dɛn gɛt |
|---|---|
| Manejmɛnt fɔ di pen | Di men tin we dɛn kin pe atɛnshɔn pan fɔ kia fɔ di pɔsin we sik na fɔ mek di pɔsin fil fayn as i pɔsibul. Dɛn kin du ɔl wetin dɛn ebul fɔ kɔntrol di sayn dɛm lɛk aw dɛn kin fil pen na dɛn bɔdi, aw dɛn nɔ kin ebul fɔ blo fayn, ɛn aw dɛn kin taya. |
| Fɔ sɔpɔt famili | Dis kia nɔto fɔ di pɔsin nɔmɔ we sik. Dɛn kin tɛl di pɔsin in famili ɔltɛm bɔt aw di pɔsin de fil ɛn wetin kin apin afta dat. Dɛn kin gi di famili sɔpɔt pan saykilɔjik bɔt aw pɔsin kin day ɛn aw fɔ bia wit am. |
| Fɔ mɛn pipul dɛn na Gɔd in yay | Ɔlman gɛt tin dɛn we i biliv pan rilijɔn ɛn tin dɛn we gɛt fɔ du wit Gɔd biznɛs. Di hospice tim de rɛspɛkt wetin di pɔsin biliv ɛn wok fɔ gi di spiritual hiling we dɛn nid. Dɛn kin ɛp bay we dɛn de tɔk bɔt aw di pɔsin we sik de tink bɔt day ɛn ɛni rilijɔn rilijɔn we dɛn nid fɔ du. |
| Respite Keya fɔ Rɛst | If di pɔsin de kia fɔ am na os, di famili bak nid fɔ blo fɔ kia fɔ dɛn. Ɔnda dis savis, wɛlbɔdi pɔsin go kam na di pɔsin in os ɔ na hospice sɛnta ɛn kia fɔ dɛn fɔ te 5 dez. Dis kin gi di famili chans fɔ tek sɔm tɛm fɔ lɛf fɔ wok ɛn fɔ gɛt trɛnk. |
| Di Kia we Dɛn De Kia fɔ di Wan dɛn we Dɔn Day | Hospice care nɔ kin dɔn afta di pɔsin day. Ivin afta dat, dɛn kin gi di famili di advays ɛn sɔpɔt we dɛn nid fɔ mek dɛn nɔ fil bad. Di wan dɛn we de gi advays, di bigman dɛn pan Gɔd biznɛs , ɔ di wan dɛn we de wok fɔ dɛnsɛf kin ɛp fɔ du dis. |
Dis na di sem tin wit palliativ kia?
Sɔntɛm yu dɔn yɛri di wɔd “palliative care.” Dɛn kin kɔl am bak “kɔmfɔt kia.” Smɔl difrɛns de bitwin dɛn tu.
Hospice na pat pan palliativ kia. Palliative care kin bigin pan ɛni stej fɔ sik, bɔt hospice savis kin bigin na di ɛnd ɔf layf.
Fɔ tɔk am simpul wan, dɛn kin yuz palliativ kia fɔ ridyus di sayd ɛfɛkt dɛm we di tritmɛnt kin gɛt (e.g., pen, nɔs ) frɔm di tɛm we dɛn bigin fɔ no bɔt kansa. Dat min se, dɛn kin yuz palliative care fɔ ridyus di diskɔmfɔt we tritmɛnt kin kam wit ɛn dɛn kin trit di kansa bak.
Bɔt hospice na spɛshal we fɔ kia fɔ di sik we dɛn kɔl palliativ kia we nɔ de fɔ mɛn di sik bɔt fɔ mek di ɛnd ɔf layf mɔ kɔmfyut. Di men tin we i want fɔ du na fɔ ɛp yu fɔ kɔntrol yu strɛs ɛn di pen we yu de fil na yu bɔdi, gladi fɔ di wan dɛn we yu lɛk, ɛn fɔ mek yu gɛt sɛns fɔ disayd fɔ du impɔtant tin dɛn na yu layf.
Aw yu kin fɛn savis lɛk dis?
Dis kɔnsɛpt de kam fɔ bi pɔpul smɔl smɔl na Sri Lanka. Yu kin aks yu dɔktɔ we de trit yu ɔ soshal woka na di ɔspitul bɔt dis ɛn dɛn kin sɛn yu to grup we de gi dis kayn savis.
Dɛn kin gi dis savis na os, na ɔspitul, nɔs os, ɔ spɛshal hospice sɛnta. Yu kin chenj bak bitwin dɛn opshɔn ya dipen pan wetin yu nid.
Bifo yu pik wan hospice savis, aks yusɛf dɛn kwɛstyɔn ya:
- Yu lɛk di envayrɔmɛnt na da ples de?
- Dis na say we fayn fɔ yu famili ɛn padi dɛn?
- Yu tink se dɛn alaw di wan dɛn we yu lɛk fɔ kam fɛn yu ɛnitɛm?
- Udat go tek kia ɔf yu? Wetin na dɛn kwalifayeshɔn dɛn?
- Us savis dɛn de gi? (Dɛn de gi ɔlkayn mɛrɛsin, sayɛns, ɛn spiritual kia?)
- Yu tink se di wan dɛn na di famili kin kɔntakt dɛn ɛnitɛm?
- Yu de alaw yu famili fɔ ɛp yu fɔ kia fɔ yu?
- Aw bɔku dis kin kɔst? Yu tink se inshɔrans de kɔba am?
I rili impɔtant fɔ disayd fɔ du sɔntin wit ɔndastandin bɔt dis klia wan.
Mɛsej we dɛn kin kɛr go na os
- Hospice care nɔto tritmɛnt wae dɛn kin aim fɔ mɛn di ɛnd ɔf layf fɔ pɔrsin wae gɛt kansa wae dɔn pasmak. Bifo dat, na tritmɛnt fɔ mek pɔsin nɔ fil pen, fɔ mek pɔsin fil fayn, ɛn fɔ mek in layf bɛtɛ .
- Dis savis nɔto fɔ di pɔsin nɔmɔ we sik. Na kia we de gi sɔpɔt pan maynd ɛn filin ɛn no bɔt di wan ol famili fɔ di pɔsin .
- Yu kin gɛt dis kia na os, na ɔspitul, ɔ na say we dɛn dɔn gi yu.
- Nɔ mek yu wan disayd lɛk dis. Mek shɔ se yu tɔk to yu dɔktɔ opin wan fɔ no if dis na di rayt tin fɔ yu ɔ di pɔsin we yu lɛk.
Hospice, Kansa Keya , Paliativ Keya, Ɛnd-ɔf-Layf Keya, Pen Manejmɛnt , Kɔmfɔt Keya, Sri Lanka
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